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        New Message Board Archives >> Jan-Mar 2003 >> WEIRD SYMPTOMS CHRONIC CH
        
(Message started by: CHILDINSIDE on Feb 26^th, 2003, 10:33pm)

Title: WEIRD SYMPTOMS CHRONIC CH
Post by CHILDINSIDE on Feb 26^th, 2003, 10:33pm

:'( I DON'T GET TO SEE MY NEURO TILL LATE APRIL, AND I HAVE SOME QUESTIONS. I HAVE ABOUT 4-7 DAYS REMISSION (IF I AM LUCKY) I GO AROUND WITH AN ALMOST CONSTANT RIGHT EYE DROOP (EVEN IF NOT IN IMMEDIATE PAIN). THE PAINS ON TOP OF MY HEAD FEEL LIKE A CROSS BETWEEN BOILING WATER ON TOP OF MY BRAIN, AND A STEEL BAR PERMENTLY IMPLANTED THROUGH MY HEAD, AND OUT MY EYE. I CAN BE GOING ALONG GREAT WHILE I AM IN A CYCLE, AND BOOMB OUT OF NO WHERE EYE DROOP, AND BRAIN PAIN. THE PAIN COMES IN AND OUT IN WAVES USUALLY STARTING AT ABOUT 10 TIMES A DAY IN THE BEGINING OF MY CYCLE, PROGRESSING UP TO 30 OR MORE A DAY OF PAINFUL WAVES. THE SHORTEST WAVE HAS BEEN ABOUT 35 SECONDS TO MY LONGEST PAIN OF 3 HOURS. I CAN TELL WHEN MY CYCLE IS ABOUT OVER, I WILL START GETTING KIND OF DREPESSED, AND THE PAIN IS CLOSER TOGETHER, AND LONGER LASTING. I HAVE BE ON IMITREX INJ. O2, PRENDISONE, MEDROL DOSE PACK, LIDOCANE NASAL SPRAY NOTHING HAS WORKED. I HAVE BEEN ON MANY MORE THAAT I HAVE NOT LISTED. MY FAMILY DR HAS PUT ME ON MEPRIGAM FOR THE MIGRAINS THAT I GET BETWEEN CYCLES. I DON'T TAKE THAT UNLESS IT IS AN APSOLUTE LAST RESORT OF NOT BEING ABLE TO TAKE ANYMORE. ARE THESE SYMPTOMS NORMAL FOR CCH. IF NOT WHAT DO I DO NEXT? IF THESE ARE QUOTE UN QUOTE NORMAL ANY OTHER SUGGESTIONS. SOMETIMES I HONESTLY WANT TO DIE INSTEAD OF LIVE IN 24-7 PAIN. HELP!!!!!!!
MELISSA
ARE THESE

Title: Re: WEIRD SYMPTOMS CHRONIC CH
Post by cootie on Feb 26^th, 2003, 11:22pm

sounds like yer goin thru some nasty sheeit rite now type times.....seems there are quite a few goin thru some more intense attacks or episodes rite now...I feel so bad for you....someone with more first hand expirience will probly 'step up to the counter' and be able help you soon with some of yer questions. Really sorry you gotta go thru all this.....am sorry anyone has to......Pam