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New Message Board Archives >> Jan-Mar 2003 >> well its official im a clusterhead
(Message started by: hempgrl on Feb 26th, 2003, 5:48pm)

Title: well its official im a clusterhead
Post by hempgrl on Feb 26th, 2003, 5:48pm
hey all well the snow cleared and i finially got that neuro appt. i went today and i tell whats wrong and i tell him and he asks if i heard of cluster headaches....and i told him i have and that was the end of the appt i left w/ 4 prescrpitions..... imitrex injections,topamax, methylprednisolone, and one for a mri............can anyone please give me some info on these..........i went to the pharmacy but the pharmicist was an ass lol........and to top it off they didnt have the imitrex just refills..........anywho any info would be appreciated i havent gotten more answers here then anywhere else..............thanks christine :-*

Title: Re: well its official im a clusterhead
Post by eyes_afire on Feb 26th, 2003, 5:59pm
Hi Christine.  Topomax is primarily an anti-seizure medicine which is sometimes prescribed for CH.  Methylprednisolone is also known as prednisone.  Check out the medications board, there's a couple of active threads discussing prednisone.  I'm afraid some docs overlook O2 and Verapamil.  Those are 2 of the most effective CH meds and they have the least side effects.  If you current plan doesn't work out, make sure you try O2 and verapamil if your doc permits.

Title: Re: well its official im a clusterhead
Post by domm on Feb 26th, 2003, 6:06pm
christine - sorry to hear the official "news", but you are in the right place. Click on every button you see on the left. Pull up a chair. You've got a lot of reading to do.
welcome
domm

Title: Re: well its official im a clusterhead
Post by hempgrl on Feb 26th, 2003, 6:06pm
thanks for the info on my way to check out those threads.........

Title: Re: well its official im a clusterhead
Post by cbolony on Feb 26th, 2003, 6:11pm
hemgrl use the imitrex tip on the left side of the board.
The insurance companys are not going to give you
a lot of the statdoses.I cut mine in 1/2 and some times
in 1/3.If you want to use the pen injecter and you are having a hard time getting one email your address
i will send you one i have a extra one

Title: Re: well its official im a clusterhead
Post by hempgrl on Feb 26th, 2003, 7:14pm
hey cbolony.......thanks, hopefully i will find one ....the hubby is on his way to the 2nd pharmacy..........gonna check out the imitrex tip now thanks again

Title: Re: well its official im a clusterhead
Post by woobie on Feb 27th, 2003, 9:09am
Sorry to hear you're a clusterhead.. but atleast you have the best weapon now... the information and friendship you'll be sure to find here.

ask your doc about O2.. .dont overlook that!!  Oxygen is God send in this house!!   And the people here who helped make sure my husband was using it the right way..

Nice to meet you!!  Welcome!!

Tina   :-*

Title: Re: well its official im a clusterhead
Post by ch_nic on Feb 27th, 2003, 9:41am
I can't agree with you more.

Christine.
You're definitely not alone and we've got an army here holding up together. Hang in there!

nic


on 02/27/03 at 09:09:30, woobie wrote:
Sorry to hear you're a clusterhead.. but atleast you have the best weapon now... the information and friendship you'll be sure to find here.


Title: Re: well its official im a clusterhead
Post by brain_cramps on Feb 27th, 2003, 9:48am

on 02/27/03 at 09:09:30, woobie wrote:
Sorry to hear you're a clusterhead.. but atleast you have the best weapon now... the information and friendship you'll be sure to find here.


Well put Tina!




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