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        New Message Board Archives >> Jan-Mar 2003 >> hi all
        
(Message started by: sweet_mystic on Feb 22^nd, 2003, 12:04am)

Title: hi all
Post by sweet_mystic on Feb 22^nd, 2003, 12:04am

well we came from the doc's, all she really did was up the dose on his pain meds,, then i gave her all the info I found here, starting him on a steroid series again, and gonna see if our insurance will pay for botox script,,(think i should cross every finger and toe I have? ) lol
he isint too keen on the idea of paralizing part of his head, but hey,, if it works it will be worth it , and if not , at least his wrinkles will be gone (right?) if anyone else wants to email me what PREVENTIVE meds their doc, has tried , would be so grateful, i read a post about someone being around their son while he was doing his floor,,hubbie usto install carpet, and lino.. ceramic tile,, we noticed that the glue he used really brought on his headaches, got me thinking, if he layed it for 17 years , If thats how long it will take to get it out of his system, well everyone , im off to dream land,,hopefully it will be a headache free night,,and soon a break from the monster inside his head ,, well wishes to all.........

Title: Re: hi all
Post by cootie on Feb 22^nd, 2003, 1:21am

Hope things work out for ya's sweet_mystic......Brad put up knotty pine barn sideing paneling in the small kitchen and wanted to varnish it next ta seal and protect it.....all the products carry warnings cuz of some sort of fumes.....I told him for now "to just leave it".....I don't wanna risk it.....our doc just left his practice and we gotta start over agin with a new doc which sucks.....and fight insurence every episode for meds. He does verapimil and imitrex. Good luck to ya.......Pam

Title: Re: hi all
Post by domm on Feb 22^nd, 2003, 3:28pm

sweet - I use Verapamil as a preventative. Oxygen and Imitrex as abortives until the Verap made them unneeded.
Good luck in finding the right set of stuff that works for you and yours
PFDANs
domm

Title: Re: hi all
Post by parrothead on Feb 22^nd, 2003, 3:43pm

sweet_mystic,

Just though I'd give you my 2 cents worth.
My Doc started me on Neurontin this cycle, it
seemed to work fairly well. Although it didn't end
my CH, it did seem to lessen the severity.
Most here have not had the best of luck with
Neurontin. Like Domm it seems most here have had
better luck with Verapamil.

Good Luck - Hope the beast gets better for you guys!

Parrothead-Mark

Title: Re: hi all
Post by jonny on Feb 22^nd, 2003, 4:07pm

on 02/22/03 at 01:21:43, cootie wrote:

sort our doc just left his practice and we gotta start over agin with a new doc which sucksluck to ya.......Pam

Cutie,

I had a Harley riding , corvette driving Neuro for 9 years....dude knew his shit and gave me WHAT I wanted......lost him due to insurance change.

Now I got a Neuro that knows CH but says he has never heard of Goasby......give me a break, is this some kinda "I dont know the guy that is better than me" bullshit?

...........................jonny
jonny Honks 4 Pam &Brad

Title: Re: hi all
Post by ave on Feb 22^nd, 2003, 7:02pm

Honey, I know all of us are grabbing at straws here...

If carpet glue could have brought on clusters I would have had them years ago!

I just didn't until I was over 50.

No, it is a totally unregulated neurological problem in our brains.