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Title: New guy....am I in the right place? Post by losthill on Feb 1st, 2003, 10:24am Hello All- :-/ I am willing to try anything to better understand what I suffer from and hoping to find help here. I have read much of the info here and have been going to my doctor for years now without any success really in treating what I think may be "cluster headaches". My doctor has prescribed everything to prevent and treat my migraine/cluster/whatever headaches I have, (he has not been able to clearly indentify even what type of headaches I have). Only one thing has been somewhat successful in treating and that has been Imitrex, which I have not taken in some time. 2 years ago I found Excedrin Migraine and have taken it like candy since. Usually once a day, everyday and lately sometimes 2 doses a day. My main question is, what do I have, Clusters? I really need to identify what I have before I can find a better treatment that may be safer. My doctor tells me that taking so much Excedrin is bad for the liver. I seem to have some of the signs outlined on this site, but not others. What I get and can say is: These headaches are all year round. Started years ago a couple times per week, growing to almost everyday. They are ALWAYS on the right side of my head and reach from my lower right neck to my right eye. My right eyelid for years now has been saggy. There is no pattern to my headaches that I can identify. I get them anytime 24/7. I guess I could go into my lifestyle, but really needing to find out if I am in the right place. Any feedback is greatly apprecaited. I would continue abusing Excedrine Migraine daily if it wasnt for my recent Emergency room visit that costed me $500 for a shot of Morphine. That is what has me searching at this time. 98% of the time the Excedrin works, but that 2% is unbearable as I am sure you know. So do these sound like Clusters? Many thanks for your feedback! |
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Title: Re: New guy....am I in the right place? Post by fubar on Feb 1st, 2003, 10:30am Did you take the cluster quiz? http://www.clusterheadaches.com/quiz.html -Fu |
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Title: Re: New guy....am I in the right place? Post by domm on Feb 1st, 2003, 10:48am losthill - cluster headaches start from nothing and go to full blast in a matter of minutes. The white hot poker in and around the eye produces excruciating pain. The sufferer cannot sit still and usually paces, rocks or bang his/her head against something in an attempt to distract or even ease the pain. The attacks usually will wake someone from a sound sleep. Attacks last anywhere from 30 minutes to several hours. When the attack is over, its over, there usually isn't any residual problem. Traditional OTC pain relievers do not work and can compound the problems causing rebound headaches. Oxygen, Imitrex and calcium channel blockers are effective in treatment. Read up and take the cluster quiz as fubar suggested. Only a good neuro is going to be able to properly identify whats happening with you. You can find a list of recommended docs at the OUCH website. There may be one someone else has found nearby. Good luck domm |
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Title: Re: New guy....am I in the right place? Post by losthill on Feb 1st, 2003, 10:52am I did, It was helpful to see some of the questions, like the "droppy eyelid", which I have. Other than that it just says "I may" suffer from CH. The first 9 questions would lead me to belive I am in right place, but not necessarily but my answers on the last 9. So I don't know. Guess my hope is to find out if my symtoms and use of Excedrin Migraine make me a CH sufferer. Hopefully similar feedback will tell. Thx |
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Title: Re: New guy....am I in the right place? Post by Tony_M on Feb 1st, 2003, 11:07am The thing is, it doesn't really matter. You can still benefit from the support that is here. You can try some of the remedies and see if they work for you. No two CH sufferers seems to have the exact same symptoms anyway. You are a sufferer, let's see if any of the good stuff on this site makes a difference. Then you can call it what you want. |
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Title: Re: New guy....am I in the right place? Post by jonny on Feb 1st, 2003, 11:31am on 02/01/03 at 11:07:37, Tony_M wrote:
Yes, it does matter....If its not clusters, Lost should be seeking out what it is and get help in that fourm. this Is a cluster site, not a "any kind of headache site". Excedrin Meegraine wont put a dent in a cluster headache. .................................jonny |
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Title: Re: New guy....am I in the right place? Post by cbolony on Feb 1st, 2003, 12:16pm losthill here is a post from Ted a member about what a clusterheadache feels like. But the other reason "cluster headaches" is a misnomer is because of what a true c-head feels. After you read this try and close your eyes and imagine it. You won't be able to but try. A red hot seering pole being slashed across your cheekbone and returned to destroy your flesh. It remains there for 1-4 hours. It gets pressed against your nostril to equal the pain but the addition of a 300 lb man adds to it by repeatedly kicking your cheekbone and nose.This is your final warning that some real pain is yet to come. Suddenly you feel his steel-toed boots bash your eye in. Molten lead is dripped into your eye as a shrply-fanged viper eats away at the same eye, releasing a strong acid-based venom. His twin eats away at your eye from the inside, also releasing the venom. This happens several times per day. Every day. |
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Title: Re: New guy....am I in the right place? Post by losthill on Feb 1st, 2003, 1:48pm Heh- well they certainly do not feel like that. Oh well, maybe they are not CH then. Since there are hundreds of different kinds of Migraines, I thought maybe there were multiple types of Cluster Headaches. My hope was to find others with my symptoms that may be able to shed some light, but if Execedrin Mirgraine does not get rid of CH's, then I dont have CH's. My headache just happens to be everyday on the right side of my head and neck, started in my early 20's, I have a droopy right eyelid, so reading that these are symptoms of CH's, this sounded like the one. Anyway, thats why I titled this subject "am I in the right place". Maybe its time to dump the family doctor and look for a specialist like some of those listed on "OUCH". I just want to find out what has crippled my life over the last dozen years, identify it, then properly treat it. Thanks everyone! Process of elimination works too! Peace |
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Title: Re: New guy....am I in the right place? Post by Ueli on Feb 1st, 2003, 1:50pm Tony_M, did you miss what's written on the front door to this site: (http://www.clusterheadaches.com/) And there are a few fucking good reasons DJ has put that up:
losthill, Excedrin Migraine was approved for "pain associated with mild-to-moderate migraine", hardly something to compare to cluster headaches. BTW, the composition of Excedrin Migraine (250 mg acetaminophen, 250 mg aspirin, 65 mg caffeine) is exactly the same as for the time honored Excedrin Extra Strength. The FDA approved it as a "new" medicament because in the leaflet "important information about appropriate use and when to consult a doctor" is provided. Duh! ::) All a clusterhead can expect from over-use of Exedrin are rebound headaches lasting all day, a hole in the stomach from all the aspirin and sleepless nights from the caffeine. PFNADs Ueli |
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Title: Re: New guy....am I in the right place? Post by jonny on Feb 1st, 2003, 3:14pm Need I say more than Touche', Ueli ...................................jonny |
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Title: Re: New guy....am I in the right place? Post by losthill on Feb 1st, 2003, 5:39pm essssh! I didnt mean to get people all worked up here... I have been told I do not have Migraines and that they sound more like Cluster Headaches by my Doctor. THAT is why I am here. I feel like I may have stumbled on a cult here and because I may not share the same pain levels or exact symptoms as you I am thrown out into to the cold before I even get a drink! I find it hard to believe this site was intended for such a thing. Tony, thanks for the advice and making me feel welcome to look around. Why these two felt it necessary to throw their cyber weight around even after I said thanks and peace, is beyond me. I am sure that bitterness and negativity cant help the head problems much. You two have basically told me in that in your vast medical training and experience with Cluster Headaches and your completed thorough exam of me, that I have what you call "meegraines" and that there are tons of sites out there for these types of losers! Well, why you two "hi-five" each other for being part of the Cluster Headache Elites and putting Tony and I in our place...all I can say is, Thanks, but I think I will get other opinions! Many differnt types of Migraines out there so is it remotely possible that there could be different types and levels of Cluster Headaches? One would think so.... |
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Title: Re: New guy....am I in the right place? Post by Laurie on Feb 1st, 2003, 6:12pm Tony, I'm just out of my cluster, so I'm not grumpy :) To get a definative diagnosis, you should consult a neurologist; family doctors rarely have the expertise needed to diagnose and treat CH. Since there are less benign things that can cause headache besides migraine and CH, it's very important for you to get a diagnosis from an expert. Did you ever see the movie "Pi"? That guy is definately a CH'er. However, everybody's clusters are a little different and can vary in severity. For example, I am unusual in that I sit upright without moving during my attacks. But a severe attack is unmistakable. I am a happy healthy person, but, when I get a Kip 10 (haven't for a number of years, thank goodness), I am likely to fantasize about suicide or self-brain surgery with the nearest sharp (or, hey, blunt!) object within the first 20-30 minutes. Cluster headaches involve the trigeminal nerve, a sensory nerve in the face that has 3 branches just above the eye, just below they eye, and along the bottom jawline. One or more of these branches will be afflicted. To me, even a "mild" CH attack feels like a large white-hot spear has impaled my head at the temple and is poking out my eye with the sharp tip. Migraines do not involve the trigeminal nerve, and feel more like a warm pulsing wave of nausea, with light sensitivity and light-headedness. Laurie |
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Title: Re: New guy....am I in the right place? Post by Ueli on Feb 1st, 2003, 6:53pm losthill, you take quite a mouthful for someone who has to hide behind a vague moniker and has not the guts to supply mail address, age, where you come from, nor even whether you're man or woman. My guess is you're still a child, since you haven't even learned to read yet: My post was clearly divided into two parts. In the first I opposed Tony_M's notion that this site is a playground for all people with any kind of troubles. In the second part I tried to explain to you why it's useless to try to treat clusters with this OTC stuff. BTW, I couldn't make up my mind yet if you have clusters or not, since your abilities to describe your symptoms matches your ability to read a post. It would be helpful for all if you could work on these instead of displaying your wise ass. Besides jonny and I there are a few hundred more that agree on: I said it before, but repeat it gladly: It's a joy to welcome a new visitor who introduces himself by farting in our parlor. BTW, losthill, the best way to make friends here is to find as much similarities between clusters and meegraines as you can make up; best is to declare they're just variants of the same thing. Ueli |
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Title: Re: New guy....am I in the right place? Post by parrothead on Feb 1st, 2003, 7:44pm Losthill, Although I'm new to this site as well, and I'm certainly not an expert. It seems to me that every clusterhead requires different meds to control the beast, and its possible that everyones beast may be a little different. Some of your symtoms are certainly consistant with CH, although an asprin-tylenol-caffine mix would not dent a CH. I too pound excedrin, but for "tension" headaches I get on a regular basis along with my yearly, 3-4 month bouts of CH. See a good Neurolgist and get a handle on your headaches! Good Luck, hang in there! |
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Title: Re: New guy....am I in the right place? Post by losthill on Feb 1st, 2003, 7:55pm Heh- Ummm Ueli, I guess every community needs a village idiot, I see I have run into him on day one. All pain no brain...shame.. You really should read your response again, its quite amusing... I did not know that I had "no guts" and was "hiding" because I didnt say my name, age, gender and state I live in? What difference would that make tough guy? My name is Kevin, I would be a 36 yr old male from LA. What happens now? I also did not know you were still making up your "professional mind" whether or not I have Clusters... I guess I should have waited on the edge of my seat. Then you go on to say that you have said it before and will say it again about welcoming people that fart in your parlor? So, I am not the first to receive your worthless negative responses, gee...big surprise there! Hrmm...maybe I am not the one with the problem? Funny, you felt it necessary to use profanity to get your one-sided, shallow point across to Tony, and I am the child? Maybe you should ask yourself why you are spending your time trying to be a forum thug.........I think we know that answer. Tony, Laurie, Domm and cbo, thanks for your help and feedback of value. My appologies you have to read garbage like this, I am sure I will be embarrassed later that I even responded to this bozo. This site looks like its extremely beneficial in helping people that suffer from Clusters, but it is also a tool for helping people who dont understand what they have determine wether or not it is Clusters they suffer from. Just have to weed through the garbage first I guess.. Kevin 36 yr old Male Los Angeles |
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Title: Re: New guy....am I in the right place? Post by Linda_Howell on Feb 1st, 2003, 8:45pm Losthill, I am sorry you did not get the response from all of us who suffer from Cluster Headaches that you wanted. But to call "our Ueli" a bozo, a village idiot, a thug...... You are now on VERY shakey ground !!!!!! Please read all the links to the right if you haven't already done so. Take time to realize that we, as a cluster community here, have been here a long time. We are very tired of having to walk in the foot-steps of the migrainers who get all the attention, the grants for research, the MONEY, the drugs, the attention. Also, please read some of the posts here on this Message board. They will give you some inclination as to the fact that we ARE a family here!!!!!!! WE are all we have sometimes. You have insulted one of ours. Linda Howell |
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Title: Re: New guy....am I in the right place? Post by losthill on Feb 1st, 2003, 10:09pm Linda- To think it wasnt even 12 hours ago I found this site, shared the excitement with my wife and placed my first post......and this is what it has turned into Here is what I see. An online family full of people that suffer from a common illness. Based on the feedback, most are helpful and a few are bitter, over protective and rude. Did "your" Ueli not repremand your other family member with profanity, throw 3 rules out to my post (that I am still not convinced apply to me yet), classify me as a meegrainer, and call me a gutless illiterate wiseass child ? Only THEN I respond with the thug and bozo remarks and I am now on shakey ground for insulting one of yours?? Do you know how silly you sound??? You are wrong when you say your sorry I did not get the feedback I wanted? Sorry , you wont scare me off that easliy, I got a great amount of feedback that I find extremely helpful from Tony, Domm, cbo, Laurie and Parrothead, otherwise, I would not have checked back throughout the day as I have. All this helpful feedback in just one day, I am pleased!!! It is Ueli's and your response that I am having trouble seeing any value in. Why do you even repond I ask you? Why, this is MY post! Ask yourself why are you even bothering? To think I had sense enough to end it before all this crap started after seeing Jonny's response. I said Thanks and Peace (see post at 1:48pm today). Then Ueli had to use my post as a sounding board for his paraniod and immature message, hoping to start something and get others like him going. If you don't want to help, then dont! Its bad enough to deal with this mentality in the real world. Go jump on the next newbie and tell them how your sick and tierd of this an that.... I am hear for answers, you obviously have nothing I need. Kev |
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Title: Re: New guy....am I in the right place? Post by jonny on Feb 1st, 2003, 10:30pm on 02/01/03 at 21:27:47, chantal wrote:
What a crock of shit, this website was built by a clusterhead because all there was was meegraine sites out there.....heres one for you and I didnt even have to look hard. http://tinyurl.com/57tx Lost, Keep digging the hole......LOL ...................jonny |
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Title: Re: New guy....am I in the right place? Post by kim on Feb 2nd, 2003, 12:27am Oh. Shut UP! If you have clusters, welcome and thanks for the company. I read this series of posts and can't seem to crack a grin at anything said here. Sounds like the soft shit I step in each morning - results of puppy poop. So..............STFU. Glug, Blah, Puff, ETC... :P PS: Uwlo(oops - that is UELI.........STFU!!!!!!!!!!!!!!!!!!!) :-* |
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Title: Re: New guy....am I in the right place? Post by jonny on Feb 2nd, 2003, 1:08am on 02/02/03 at 00:27:38, kim wrote:
Bitch, when you know as much as Ueli you can tell someone to shut the fuck up.......until then shut the fuck up!!!!!! ..............jonny |
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Title: Re: New guy....am I in the right place? Post by cootie on Feb 2nd, 2003, 1:43am Banging your head against a wall uses 150 calories an hour........thought for the day.......Pam |
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Title: Re: New guy....am I in the right place? Post by Linda_Howell on Feb 2nd, 2003, 2:32am " DO YOU KNOW HOW SILLY YOU SOUND?" NO, and I don't care, because for the last several years that I've been here........Ueli has been one of the guys that has informed me as well as others. HE takes the time to research. He isn't called our Wise old owl for nothing. I have always been one to welcome with open arms anyone who has cluster headaches as are most of us here. I'm chronic. I have these MUTHERS.....every single day and night for ten years......with no end in sight. Do NOT mess with this family!!!!!!!! until you're ready to come to us with-out the attitude. Linda Howell Linda |
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Title: Re: New guy....am I in the right place? Post by Aussie on Feb 3rd, 2003, 1:21am Just love the politics and mud flinging. First time I've cracked a smile since starting this stretch of hell. Crikey, humour is bloody good therapy. Glad to have found this site for all the benefits. |
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Title: Re: New guy....am I in the right place? Post by Ted on Feb 3rd, 2003, 3:08am on 02/02/03 at 01:08:04, jonny wrote:
Because she's going through her own heavy shit, and because she said nothing rude to Ueli but was just giving the usual shit we all give each other, but mainly because she's going through her own heavy shit, Jonny, Shut up! Minus the "the fuck." (Kim, you're going to owe me one big time for this. You better swallow!). And let's not forget that Ueli, although he is well versed in clusters, does happen to take one minor point of a dozen symptoms, singles them out, and diagnoses from that alone. And forgets all the classic symptoms that were mentioned (no, I don't remember the person's name in particular. But I do remember seeing all the symptoms buried within a bunch of other symptoms and the ACTUAL symptoms being ignored). |
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Title: Re: New guy....am I in the right place? Post by Mark C on Feb 3rd, 2003, 3:46am on 02/01/03 at 22:09:52, losthill wrote:
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Title: Re: New guy....am I in the right place? Post by suzy617 on Feb 3rd, 2003, 5:29am Hi Losthill, I'll stay out of this argument and just say... WELCOME!! suzy |
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Title: Re: New guy....am I in the right place? Post by Bob P on Feb 3rd, 2003, 9:06am New guy....am I in the right place? I don't think so. You may want to do a web search for rebound headaches. |
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Title: Re: New guy....am I in the right place? Post by Slammy on Feb 3rd, 2003, 1:25pm ;D ;D ;D ;D ;D ;D Ahhhh it feels sooo good to be back home! :D Slammy 8) |
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Title: Re: New guy....am I in the right place? Post by don on Feb 3rd, 2003, 1:30pm Quote:
Either your computer is locked onto CH or you don't have a fuckin clue how to use a search engine. Can you say................ YAHOOOOO |
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Title: Re: New guy....am I in the right place? Post by losthill on Feb 3rd, 2003, 3:32pm WAKE UP DON !!!! Its Monday don, wake up dude... No one on this post is looking for migraine sites let alone having trouble finding them... Wrong post maybe genius? |
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Title: Re: New guy....am I in the right place? Post by brain_cramps on Feb 3rd, 2003, 4:23pm losthill: Are you the guy that wrote "How to win friends and influence people"? I didn't think so. You seem determined to PISS OFF everyone here. You must not want help very bad. |
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Title: Re: New guy....am I in the right place? Post by Charlie on Feb 3rd, 2003, 4:41pm Dear Lost: I sincerely hope you have migraines rather than clusters. So far, I have found nothing to compare. What you need is to explain just how intense your headaches are and how localized. In many ways, you sound like a clusterhead, in a couple, not. If you have clusters welcome aboard and you’ll find that we can be more helpful than you know. If not, you’ll do better with other headache sites. There are scores sites devoted to headaches of all kinds. You need to be sure of your diagnosis. It is true that we can be a little short and sound somewhat intolerant. It seems more intense than it is. You’ll find no one more helpful than Jonny and Ueli. They may come on strongly but they know their business. If you have clusters, welcome and we hope contribute to our little madhouse. Charlie |
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Title: Re: New guy....am I in the right place? Post by SFChris on Feb 3rd, 2003, 4:50pm Yo Slammy - how's it going? The more things change, the more they stay the same, huh?! Welcome back home, bro. Chris |
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Title: Re: New guy....am I in the right place? Post by Margi on Feb 3rd, 2003, 4:56pm Losthill, I'm sorry you have head pain of any kind, but you've admitted in this thread that even YOU don't think you have clusters. I hope you find a good diagnosis and resulting treatment for your pain. And, yes we are kind of a cult here, you're right on that. And, yes, this site IS actually intended to be 'that kind of thing'. A place for cluster folk to gather and share war stories. If you're not a cluster sufferer or supporter, we can't help you. No need for the 'tude, dude. We are who we are, and it's not exactly nursery school in here. As you noticed, we WILL stick up for each other if an outsider tries to start snapping orders about our behaviour. What I'd like to know is what Ted's trying to get Kim to swallow. Oh. Wait.....never mind. I'll just be S'ingTFU now. |
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Title: Re: New guy....am I in the right place? Post by pimmony on Feb 3rd, 2003, 5:53pm Sigh, okay you have finally scared me into tears and the dash away from here folks. I know it is a tough world out there, and harsh, gratuitous words are spoken every day to the deserving .... and to the undeserving. I suffer from cluster headaches. This has been diagnosed by a neurologist working with Professor Goadsby. At the time I posted here, even subsequent to that diagnosis, I said that I was still not sure I should be here because you are all long timers. There are possibly three people who have helped me so much here, with their attitudes, their advices and their infinite patience and kindness and I will miss them. The rest of you are a closed family and you will barely tolerate incomers, if not making them feel like hopeless inadequates because they have not had the good fortune to have lucked into here several months ago at least - then at least making them feel like wannabies of some sort. You guys made me cry tonight and not because I had a headache, you made me cry because you are downright unkind and perhaps a kinder approach would have made a SUFFERER, okay not a clusterer, just someone who has big pain too, go to a different place. It does not matter what you say in response, I am not going to come back again and face the fear ... For those who are kind, bless you |
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Title: Re: New guy....am I in the right place? Post by cathy on Feb 3rd, 2003, 5:54pm Cootie...do you reckon you use twice as many calouries if you bang it twice as hard.??? ??? Looks like I missed all the fun...again!!! Ted... ??? I'd like to know too...lol Slammy Hi hows it going... :-* Jonny and Ueli...I luv you guys... :-* :-* cathy |
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Title: Re: New guy....am I in the right place? Post by cootie on Feb 3rd, 2003, 6:03pm Cathy.....you burn more calories if you go 'twice as long'.....I think I'll sud-dup-now.......Pam :-X |
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Title: Re: New guy....am I in the right place? Post by don on Feb 3rd, 2003, 6:39pm Hey Losthill. Listen up you fucking wingnut. I posted a quote. Where did the quote come from? This fucking thread. The thread that is dedicated to you appearing out of nowhere to fuck with everybody! Excedrin for CH? Gimme a fuckin break pal. |
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Title: Re: New guy....am I in the right place? Post by jonny on Feb 3rd, 2003, 6:47pm All one has to do is look at my post 9:27 pm to see that Chantal posted about not being able to find any Meegraine sites. Chantal, removed the post. ..............................jonny |
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Title: Re: New guy....am I in the right place? Post by Slammy on Feb 3rd, 2003, 6:50pm on 02/03/03 at 18:39:15, don wrote:
Bahahaha! Can I change my nickname to Fucking wingnut? ;D Slammy 8) |
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Title: Re: New guy....am I in the right place? Post by cathy on Feb 3rd, 2003, 6:50pm ;) on 02/03/03 at 18:03:45, cootie wrote:
Must be why I lost so much weight then...lol ;D |
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Title: Re: New guy....am I in the right place? Post by Slammy on Feb 3rd, 2003, 6:52pm on 02/03/03 at 18:50:35, cathy wrote:
hmmmm ya think? Cathy! Go to bed! :-* Slammy 8) |
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Title: Re: New guy....am I in the right place? Post by losthill on Feb 3rd, 2003, 7:24pm Pimmony- For what its worth, if you do check back...the few sour grapes, and I do mean few, regardless if they like to think the represent the majority of this forum, have had ZERO effect on this guy. Anyone who knows simple math can see that the LARGE majority of the replies to this post have been positive, helpful and from good people. People who are NOT in the small lame click that have nothing better to do with their lives then reply to this post with anything other than helpful feedback. You hit the nail on the head when you said.... "The rest of you are a closed family and you will barely tolerate incomers, if not making them feel like hopeless inadequates because they have not had the good fortune to have lucked into here several months ago at least - then at least making them feel like wannabies of some sort." Their attitude in here mirrors their real life and although its sad....it is not our problem dear.... it really isnt. I have a brother in the mid west, a high school teacher and a good man. He told me one time that he said to one of his trouble-maker students one time that, "it takes no skill and no effort to be rude, but it takes effort, class and integrity to be role-model and someone all would like to be like". I realize my response to the original negativity in here was/is immature, but who knows....maybe a bit effective? I know if was a so-called "vet" of this forum and realized that I am responsible for scaring off and bringing someone to tears that probably needs the help this place can bring.....I would feel like S**T! Pim, all I can say is, you will find thier kind anywhere you go, so if this place has helped you at all like it has me already, I would focus on that...Look at all the cool people that have responded already....I am stoked! I have taken some good notes, kickin my family doc to the curb, and I am ready for my first visit with a neuro!! To you few lamers that will continue wasting our time with your cowardly replies....well your not even interesting enough to make me sick and your far from the ClusterHeros you think you are.... What other proof you need??? |
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Title: Re: New guy....am I in the right place? Post by jonny on Feb 3rd, 2003, 7:31pm I never claimed to be a HERO. Hell !!!, Im KING of the message board.....YA!!!, Thata baby. ;D .............................jonny :D |
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Title: Re: New guy....am I in the right place? Post by cootie on Feb 3rd, 2003, 7:57pm Oh jonny you know yer a....quote....."role-model and someone all would like to be like".....end of quote...........Pam ;) |
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Title: Re: New guy....am I in the right place? Post by ComputerGeek on Feb 3rd, 2003, 8:10pm Hi LostHill, Here are 2 peices of advice: 1) don't post a source for obtaining Excedrin and 2) always, always remember: jonny is the king ;D ;D ;D ;D ;D ;D ;D Pat |
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Title: Re: New guy....am I in the right place? Post by jonny on Feb 3rd, 2003, 8:17pm LMMFAO!!!!!!......Pat ;D I love this place. .............................jonny :D |
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Title: Re: New guy....am I in the right place? Post by Ueli on Feb 3rd, 2003, 9:40pm To Pimmony There is no reason for you to be "scared into tears and dash away from here." True, between those who met in Atlanta or Vancouver, or met often in chat, there developed a intimate relationship. But that doesn't mean in any way that they form closed "clique". There are a lot of folks that came only a short time ago that are fully integrated. It all depends how willing one is to communicate in a civilized manner. There are two examples from the last couple of days how to do it: HeidiH and MountainMan, they introduced themselves with a short summing-up of their headaches and what they tried up to now and asked some specific questions. Result: They've got some fuzzy welcomes and some (hopefully) useful answers. Then there are the newbies that blurt out a one sentence question, like "has somebody used xyz". When asked to tell something about themselves before expecting others to disclose their live stories they can get accepted members too, if the cooperate. Third there are these conceited jackasses, like molehill or dunghill or whatever is his screen name. He introduced himself with some useless statements like "he doctor has prescribed everything to prevent and treat" or "my headaches are ALWAYS on the right side" and from this we are supposed to divine if he has CH or not. In his follow-up posts he takes offence as a "profanity" when I use the webmasters favorite adjective on quoting the webmasters purpose of this site. But 'quod licet Jovi non licet bovi', he continues with the most outrageous insults towards those not of the same opinion as "his most holy self-righteousness". Pimmony, I, and many others, consider it as their duty to keep this message board clean of those self-proclaimed pharisees who try to transform this message board to an AOL chat they are used to. So, my suggestion to dunghill, or whatever his name is (he still hasn't found the time to update his profile to the bare necessities): either start afresh with another screen name and learn to behave in a civilized manner or get stuffed. Question to Ted: Where the heck did you see the slightest hint of I giving a diagnosis ? ? ? And, maybe Kim can answer the reason for comment. That is, if she's able to come down from her usual transcript of the babbles of a one year old. Thanks to all who recognized the character of this moron, and forgiveness to the few who kissed this jackass. Ueli |
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Title: Re: New guy....am I in the right place? Post by OneEyeBlind on Feb 3rd, 2003, 9:57pm LostHill, well, what can I say but repeat the only real inteligent thing I have ever read on this board. "Take what you need and leave the rest". While some of us just want to cut each other's chops off cause we have none of our own, others will try to help but might not have the knowledge, while others will provide useful info. Try and sort through it and ... like my favorite quote "take what you need, and leave the rest". My best to ya trying to figure it out. Again, like you were first told ... take the cluster quiz ... if you score high on the clusters ... then you probably have them; if you score high on the migraines .. then you probably have them. If you scored on both ... it probably a combo. It's not uncommon and quite frankly if you have both ... well .... I wish you the best of luck !!! |
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Title: Re: New guy....am I in the right place? Post by Ted on Feb 3rd, 2003, 11:18pm Good question, Ueli. Actually, I'm really glad you took me up on that because I used the wrong word and it makes it look worse than I meant. Never a diagnosis. But you have overlooked the classic symptoms before and while there were symptoms of other things as well, you told them they didn't have clusters. Not that they had something along with clusters. You never DXed someone and that was my fuck up of using that term. |
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Title: Re: New guy....am I in the right place? Post by losthill on Feb 3rd, 2003, 11:39pm Ueli- I just knew a blow-hard like you could not leave this alone. Whats wrong? Truth in the things I and others have said maybe? Not the hotshot you think you are? You are what some call a BLEEDING HEART, and I have no respect for your kind. You whine and cry about all the attention meegrainers get and it has you so bitter that you never stop to think who may be coming in that really could use help OR can help the group. See, maybe, just maybe, there are different kinds of CH's and some of the treatment discussed in here could help be of help? I mean all that your simple mind seemed to read from my post was that I take Excedrin. Others read that I said Imitrex has worked, I get the pain everyday on the same side of my head, my eyelid is droopy and these ARE similar to Cluster symptoms. I just happen to take EM all the time. The small percent that the pills dont work, is hell. Fact is, you dont know me...You have no idea of my background, network or influences or what I may bring to this group if I have some form of CH's, and you sure as hell don't know what I suffer from! Let's say your right....Could have I introduced my problem better? maybe? So what !! Why is it though that many were able to give me IMMIDIATE helpful feedback and you can only throw a few rules at me and see nothing in what I wrote other than I use Excedrin ? Maybe I have these things called Rebound headaches? Maybe they are Tension, maybe they are Migraines, maybe a hybrid thing, OR JUST MAYBE THEY ARE A FORM OF CLUSTER ! Regardless, I have learned more in the last 3 days than in the last 3 years from my doctor and its been from this post ,and nothing have I learned from you...So who's the loser here....? What the most ridiculous thread you are holding onto is that I have not given you enough information yet RIGHT?...WELL THEN HOW IN THE HELL CAN YOU AND YOUR LITTLE BUDDY TELL ME TO GO SEEK MIGRAINE HELP? This is an OPEN FORUM and if you dont like how I posted.....THEN DONT BOTHER WITH IT!! How pathetic is it for you to keep posting here? seriously....You dont have anything better to do? Here is the deal. I am not going to start over, change my screen name and play by your bonehead rules. I am not going anywhere! I will stay here as long as it takes me to figure out whether or not I have some form of CH's. If I dont belong here then I will move on and you will seek out your next "newbie" (what an ahole term) that you can throw your reactive immature approach on, but..... if I do have these, and this is where I can get long term help.... heh, I cannot wait to maybe one day meet you, look you in the eye and shake that hand. Anyway, while you take another 2 days to script out your next lame response, I am sure I will have even more valuable information that will bring me even closer to knowing what I do and do not have. BTW- "dunghill"?, now that is mature! I am sure Jonny fell off his chair at the YMCA when he read that....but taking a shot at my screen name? I thought that only happens in online games that kids play? Now a name like UELI? well....., I will leave that one to my 14 year old nephew to have fun with....I promise you it will be more witty and creative that dung/molehill.... To everyone else...thanks again for your feedback and your private messages....I would really like to detail further out what my pain is like and my next response will have this. Maybe I should start a new post though and hope the bozo's dont show up, this one is starting to smell bad. |
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Title: Re: New guy....am I in the right place? Post by Ueli on Feb 4th, 2003, 1:56am Dear Mr. Kevin from Los Angeles, Thank you very much for your patronizing reply to my last post. It makes me feel all warm and fuzzy. But I still have to uphold my earlier doubt about your reading skills. If you can't grasp may first post in this thread, maybe a friend can explain to you that I did not "throw a few rules" at you. As the heading line clearly indicates, the first part of this post was a reply to Tony_M's suggestion that this site should be a playground for sufferers of pain of any kind. That this site should be exclusive for sufferers of cluster headaches and their supporters is not my invention but that of the webmaster and owner of this site, our all benefactor DJ, and it shared by about 95% of the users of this message board. I'm sorry to inform you that not every word written here is directed exclusively at you, most people here care for others too, not only for your blown up ego. The 2nd part of this post was intended for you, as the heading indicates. But when I wrote it, I wasn't aware yet of your rudimentary reading skills, otherwise it would have gone like that:
So your poison pen reply was in no way called for, and entirely due to you insecurity, that does not allow any response that is not 100% compatible to what you expect. I would still be interested what the names of the "everything" you tried are, and a description of the dynamics of your headaches would help us to helping you. You wouldn't lose a stone form your crown if you could overcome your reluctancy to fill out a few items in your profile. Finally, it could help you, and us all, if you would take a look at the New Visitors (http://www.clusterheadaches.com/newvisitors.html) page of this site, or type "netiquette" into your favorite search engine. Then you would learn, something that we old farts learned from our parents, that a roundabout insult in the first few post is not exactly the good way to make new friends. If you read all the follow-ups in this thread carefully you must have realized that you stand pretty alone with your skewed view about jonny and yours truly Ueli |
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Title: Re: New guy....am I in the right place? Post by kim on Feb 4th, 2003, 9:49am To Losthill: Keep reading and best of luck. Things have a way of working out. Ted, thanks for being smart. That's why I like ya ;) Even though I can't stand that Pelosi chick ;D PS: How much is this gonna cost me anyhow :D :D :D PFDAN All -- and I do mean ALL. |
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Title: Re: New guy....am I in the right place? Post by losthill on Feb 4th, 2003, 10:58am I stand alone with my skewed views of you? You don't see the several people on this post besides me telling you to: 1. STFU! 2. You make incomers feel like hopeless inadequates 3. You have overlooked the classic symptoms before Not to mention the good amount of private messages I have in my inbox that validate my feelings, and I am sorry to say this Ueli, but there are probably MANY more that think you are an idiot, but just have better things to do with thier lives than get involved in this post. Your mr. helpful routine at this point is pretty pathetic, and trying to make me look like the patronizing one, well, grow up man. Let me spell it out for you. I DO NOT WANT YOUR HELP! I promise you that I will be ok without this "freindship" you keep insisting I have jepordized. If I knew my help was not wanted, well, I would not waste another minuet of my time. You really want to help me now huh.....or are you just positioning and trying to save face because this post now exists for all to see?? Relax pal, it seems you still have a few fans out there. .. Bottom line is this post went bad when you replied to Tony like you did. If you see anything more than Tony saying, "you can benefit from the support here, and try some of the remedies and see if they work for you", then thats your own problem. Still makes great sense to me. Other people have pretty much said the same thing in this thread with "take what you need from here". Ueli, I am sure you help others in here, so... go help THEM, because to me....You are really becoming a bore....be gone... |
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Title: Re: New guy....am I in the right place? Post by brain_cramps on Feb 4th, 2003, 11:14am Losthill: STFU!!!!! I would recommend that you go back and read the previous posts of Ueli (and jonny) to see what kind of help/advice he has given others in the past. In re-reading this thread, I see no reason for you to unload on him in the manner in which you did. In saying that you have headaches, you are implying that you do, indeed, have a brain. After listening to your bullshit and making an assumption about the close proximity of your head to your intestinal tract, my diagnosis is a) lack of oxygen, b) a severe case of hemorrhoids, or c) both. Ps… jonny is DA KING and Ueli is the professor. |
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Title: Re: New guy....am I in the right place? Post by don on Feb 4th, 2003, 11:22am Quote:
self diagnosis is a dangerous thing Losthill |
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Title: Re: New guy....am I in the right place? Post by Margi on Feb 4th, 2003, 11:31am word to the wise: stop responding to this thread. It's a no-win situation for anyone here. ::) |
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Title: Re: New guy....am I in the right place? Post by losthill on Feb 4th, 2003, 11:32am Kim- what does PFDAN mean? Braincramps- My replies to Ueli apply to you and yours as well pipsqeek! Your kind will never get it.......ever |
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Title: Re: New guy....am I in the right place? Post by Margi on Feb 4th, 2003, 11:36am I repeat: let this thread die. Everyone's made their point now. Losthill: PFDAN is pain free days and nights. It's a greeting clusterheads give each other. |
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Title: Re: New guy....am I in the right place? Post by Jimi on Feb 4th, 2003, 11:43am Greetings losthill. You seem intent on getting in the last word. So I thought that I would put in my two cents worth. You stated in your last post *Let me spell it out for you* I just wanted to let you know that the following words are spelled this way 1. thier-their 2. freindship-friendship 3. jepordized-jeopardized 4. minuet-minute So if you want to spell something out for us clusterheads, please spell correctly. Thank you, and have a nice day. ;) And so on and so on and scooby dooby doo |
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Title: Re: New guy....am I in the right place? Post by Slammy on Feb 4th, 2003, 11:43am on 02/04/03 at 10:58:29, losthill wrote:
Actually, you do. I don't know what fucking On-Line game you fell from, but your worthless diatribe is what is getting boring. I actually was feeling that you just got off the wrong foot in here, and that you might have something to contribute. But, as fools most often do, you keep popping off and only confirm what Ueli pegged in the 1st couple of posts. You're nothing but an idiot. You really don't know how foolish you look, taking on one of the most respected members of this family. And I do mean FAMILY, which seems beyond your comprehension. But then, I guess it is beyond your comprehension that your hurling of insults make you look like friggin child playing with his parent's toys. Do your research, get your info, and trouble us no more. Though, we always like a good chuckle, and you have given us a few. But, understand this, Ueli is untouchable, and has garnered more respect from us here, than you could possibly acheive here in several lifetimes. I'd find a new hobby if I were you. But, if you'd like.... I'd would just love to go a few rounds with ya! ;D Slammy 8) p.s. my apologies, Margi..... I posted this before I read your plea.... still love me? :-* |
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Title: Re: New guy....am I in the right place? Post by Margi on Feb 4th, 2003, 11:50am LOL yeah, Slammy - no worry there. ;) You summed it up well, though. It's time for Losthill to take his toys and go home, so that we can get back to the business of supporting clusterheads here. As always, Ueli's info and intuition is right on the money. ps to Jimi: I was wondering about that minuet one...thinking maybe it was time for us all to start dancing or something....LOL good catch. |
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Title: Re: New guy....am I in the right place? Post by don on Feb 4th, 2003, 12:03pm Uh no UUUUUHHHHH NOOOOO I AINT DANCING! |
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Title: Re: New guy....am I in the right place? Post by losthill on Feb 4th, 2003, 12:14pm SLAMMY- "Taking one of the most respected members of our family" "Ueli is untouchable" "Ill go a few rounds with you" Trust me, the chuckles are heavy from this end too. You sound like a total gimp. Cyber Soprano wannabe? You people really need to get out more. You obsession in here has stripped you clean of any reality. Margie- your started out making sense this morning, then caved in....did you get a call from Ueli? :) |
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Title: Re: New guy....am I in the right place? Post by Slammy on Feb 4th, 2003, 12:28pm on 02/04/03 at 12:14:02, losthill wrote:
And you continue to post, why? Bahahaha! speaking of being stripped clean of any reality.... go find another sandbox to play in, little boy! ;D Slammy 8) |
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Title: Re: New guy....am I in the right place? Post by Margi on Feb 4th, 2003, 12:31pm ::) Losthill, you already admitted you don't have clusters.... so why are you wasting your time on our message board, instead of getting down to finding a doctor who can diagnose and treat you? Time for you to stop slinging mud at folks who originally tried to help you, and take charge of finding relief for your pain, ok? Might be a good idea to get your anal retentiveness looked at while you there, too, ok? Yes, we are obsessed here and HAVE become a tight knit family. But I think I speak for the masses when I say that we're all VERY thankful Don's not gonna dance.... However, I think we'd all like to hear Slammy sing. p.s. Losthill, you really sound like you need to always have the last word, so please know that I will not respond any further to this thread. So, g'head. Take your best shot, darlin...you know you WANNA :) |
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Title: Re: New guy....am I in the right place? Post by losthill on Feb 4th, 2003, 12:39pm Slammy- I continue to post because this is MY post! Whats your excuse, Jenny Jones hasnt started yet? A few rounds you challenged me to? Laff, knocked you out at the bell lamer. Margie- Umm all I can say to you is..."huh"? Many posts ago I said I may not have Clusters then based on the description that one guy left. Other emails after indicate I may have some form of them. Ya have to read the entire thread everytime you wake up dear to remember what was said? |
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Title: Re: New guy....am I in the right place? Post by Peppermint on Feb 4th, 2003, 12:39pm ...been watching this thread. :P I concur.... SING SLAMMY, SING!!! |
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Title: Re: New guy....am I in the right place? Post by Slammy on Feb 4th, 2003, 12:45pm on 02/04/03 at 12:39:19, losthill wrote:
Lamer? BAHAHAHAHA! Who talks like that anymore! ;D You kill me! :D Thanks for the laugh..... ahh me.... anyways.... you bore me now..so I'm done with you.... But, you can look back, and feel privileged that your little sorry- assed existence was acknowledged by Ueli, Margi, and Slammy! :D *poof* you're gone! Slammy 8) Author's note: It seems every couple of weeks a twit like losthills comes in and shares his "small-penis" syndrome with us...... conspiracy theorists think it may be the same guy...but this author thinks it is many guys with small penises.... who knows? ;D |
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Title: Re: New guy....am I in the right place? Post by losthill on Feb 4th, 2003, 12:53pm hehe Slammy the Coward! Challenged me to a few round and lasted only minuets, surprise surprise! Back to your wormhole son...... |
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Title: Re: New guy....am I in the right place? Post by don on Feb 4th, 2003, 1:16pm You obviously have a problem with your masculinity, always wanting to do a minuet with Slammy so heres a site that may help you get a grip, so to speak. Might even help your your baby meeeeegraines; http://www.massivemember.com/?hop=clickentry.ghaines |
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Title: Re: New guy....am I in the right place? Post by dannyboy on Feb 4th, 2003, 1:30pm Losthill, please excuse the over enthusiastic welcome... I'm the Chief around here and while the cat is away... oh well. I'm also a snake oil salesman that makes money out of peoples pain suffering which is why they like me so much as you'll soon see. I also like to sharpen my sword on Ueli's head from time to time. My main purpose though is to divert their attention and give them someone to hate more than you, so that you can get on with solving what you came here to solve. Pay no attention to the "do you know who he is?!!" crap. No one here is anyone, and everyone here is welcome to do research into whether they have clusters or not with out being attacked. So please... welcome. I kinda like ya, I have no idea if you have clusters or not, but then nor does Ueli or Jonny. They just like to act like C U N T S cause their uncle fiddled with them when they were little. They know dick about dick, which pretty much explains things. We've repetitively tried to enroll them in anger management courses and give them posts at the door, but to no avail. They continue to think that they know, and own, and have the right to shove poeple. Aside from that they do alot of good for ch.com and ouch. My personal opinion which is as worthless as theirs is, is that you need to stick around and do some more investigating before jumping to any conclusions. If indeed you don't have clusters then sure, this ain't the place for you. But cross that bridge when you come to it and make that decision yourself and in your own good time. And for the love of Christ don't respond intelligently to their crap, just kick them in the balls and laugh your head off, it drives them mad. Or better still conduct your investigation, share your reults with us and your reasons, take advice from friendly welcoming folk only, and then either leave or stay. Does anyone smell Lion shit...? I couldn't really tell, too brief Sweet Danny |
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Title: Re: New guy....am I in the right place? Post by don on Feb 4th, 2003, 1:46pm Did you two find each other in a roomate wanted ad? |
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Title: Re: New guy....am I in the right place? Post by cootie on Feb 4th, 2003, 1:58pm ALRIGHT GUYS.....I am tough and can take alot of shit....always like ta add a few laughs too but I think you two guys are outa line here (lost and danny)....that last post was way too personal cuz I know people that HAVE been fiddled with and it ain't friggin funny !!!! Yer pissin ME off now......I ain't likein this shit........Pam |
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Title: Re: New guy....am I in the right place? Post by Marc on Feb 4th, 2003, 2:01pm All we need now is H2O Mutt......... ;D |
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Title: Re: New guy....am I in the right place? Post by Slammy on Feb 4th, 2003, 2:01pm so are dannyboy and losthills going to bone or what? ;D why dont you stop trying to get into his pants and talk about clusters? this is clusterheadaches.com, not "i-need-a-date-because-i-live-with-my-parents-at-the-age-of-39.com" ;D Slammy 8) |
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Title: Re: New guy....am I in the right place? Post by dannyboy on Feb 4th, 2003, 2:04pm HONK So he does have clusters or he doesn't? |
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Title: Re: New guy....am I in the right place? Post by Bob P on Feb 4th, 2003, 2:05pm Danny!!!! My main man. How you be bro? My only comment on this thread is: Ueli is ok as far as retired nuclear physisits go (bet you guys didn't that about him) even if he does have a little gas problem. BTW - I lost all the OUCH money in a drug deal gone bad. That's why pahlow.net and the pic page are down. I hope to beat my IP into submission soon and be back up and running. Danny, really good to see your shinny black face around the sandbox again. |
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Title: Re: New guy....am I in the right place? Post by don on Feb 4th, 2003, 2:14pm You better not have lost the fuckin yacht trying to smuggle that dope! (no not Danny Boy!) That boat is MINE! |
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Title: Re: New guy....am I in the right place? Post by dannyboy on Feb 4th, 2003, 2:20pm Boob! I don't go for that soppy stuff, pull yourself together And I thought I told you to stay off the nose garbage and never to deal with Nigerians. Some people's kids... |
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Title: Re: New guy....am I in the right place? Post by Bob P on Feb 4th, 2003, 2:23pm The boat was confiscated. I let hub and Jack borrow it. They were caught smuggling 4978 kilos of Excedrine Migraine in from Mozabique. Danny had gotten us a real god deal on it and I hear there's a big market for it with clusterhead wannabies. |
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Title: Re: New guy....am I in the right place? Post by losthill on Feb 4th, 2003, 2:32pm I get this image of John Goodman from "Oh Brother Where Art Thou" with your introduction here Dan. :) I should have taken the high road a bit sooner, but being that it is my post, and Tony was just trying to be helpful, I challenged "the family" and now I will never know the love that could have been for me :'( I agree with you and have no doubt these guys do some good for this place, but I don't have to join their click to participate. My opinion of them will not change and thiers will not change of me..............God bless America! Anyway, the important thing is information is free and I have a right to be here to research. It is Nancy's message that has me very curious. This could be a combination of Migraines & Clusters, not uncommon....based on my quiz scores, that makes the most sense so far. So.... I will end this post to start a new that detail's as best I can what I live with. If its not enough information, or I don't follow the examples properly of "how to do it" from the professor......well get over it...or dont! but respond if you have anything of value to add! Continue posting here if you must, I am turning off my email nofication to this post, I need the room back. Peace! |
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Title: Re: New guy....am I in the right place? Post by jonny on Feb 4th, 2003, 2:32pm on 02/04/03 at 14:23:34, Bob P wrote:
LMMFYBO!!!!! ;D Too funny :D ............................jonny |
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Title: Re: New guy....am I in the right place? Post by dannyboy on Feb 4th, 2003, 2:37pm SHIT, it was a fucken Lion... Everybody shut up and keep your heads down, where's REV and that other guy that doesn't reccomend a 30-06 in thick bush... The substance in the med is wrong, or the drug is too weak to have an effect on clusters? Look forward to you post Lost. |
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Title: Re: New guy....am I in the right place? Post by Jimi on Feb 4th, 2003, 3:01pm *yawn* |
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Title: Re: New guy....am I in the right place? Post by don on Feb 4th, 2003, 3:05pm You lent the boat to Hub and Jack? Christ what were you thinking? That would be like letting Danny and Lost play with the electric vibrator in the tub! |
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Title: Re: New guy....am I in the right place? Post by Jarvis on Feb 4th, 2003, 3:42pm :) I dont know about the reast of you in the bleachers, but I enjoyed this immensely. ;D Losthill vs. Ueli. I allready got tickets for the next show. Reminded me of the fights with my ex wife ........... By the way I must have turned my head. Who won? Is there still a guestion remaining. Looking forward to your new post losthill. ... mj.. |
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Title: Re: New guy....am I in the right place? Post by don on Feb 4th, 2003, 5:01pm who won? It's all in the name dude. LOSThill |
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Title: Re: New guy....am I in the right place? Post by BobG on Feb 4th, 2003, 8:43pm I want to thank everyone that contributed to this string. I'm at work right now and was having trouble getting a nap. I read half way through the string and went right out. ZZZzzzzzzz :D The only problem is I can't walk. I nodded off with my feet on the desk and they fell asleep too. :( Not good. I can't get to the coffee pot :'( |
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Title: Re: New guy....am I in the right place? Post by Charlie on Feb 5th, 2003, 12:36am Welcome Andrea and if you have clusters, you found the right place. One thing I do is to ask if your headaches wake you out of a sound sleep. You cannot sleep or lie still during a cluster attack. Cluster come on suddenly and make you wish for a coma. It's sharp and very localized. When it ends, it can feel like it's draining away. With a cluster, lying down or sitting still is not an option. You cannot do things like type coherently during a cluster. There are NO otc pain drugs that will touch a cluster and narcotics aren't very good either. I hope you don't have CH but it's good you're looking us over. Clusterheads usually get help from neurologists. Hope this helps. Charlie. |
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