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        New Message Board Archives >> Jan-Mar 2003 >> WILL THEY EVER GO AWAY???
        
(Message started by: JesseWallis on Jan 29^th, 2003, 3:54pm)

Title: WILL THEY EVER GO AWAY???
Post by JesseWallis on Jan 29^th, 2003, 3:54pm

I was just diagnosed today with cluster headaches, although I'm scheduled for an MRI and MRA on Friday. I've had them daily now for the past 3 weeks, mostly occuring about 2 a.m. The last time I recall having such severe headaches was about 4 years ago when they lasted daily for about a month. I had a CAT scan performed and nothing was found.

I was doing research to learn more about this problem, and found your site. I have to say, it's extremely helpful and informative. I can relate to the testimonials on your site, and after reading something about the problem, it was practcially dead on point.

My questions are as follows: Is there a point when the headaches will just stop and never come back? I'm 29 years old presently. I've tried to figure out what triggers them, but can't think of anything significant happening in my life right now. My last episode was 3 hours long, the longest I've ever had. Is there anything that triggers them to last longer than others?

Thanks for any info.

Title: Re: WILL THEY EVER GO AWAY???
Post by jonny on Jan 29^th, 2003, 4:06pm

on 01/29/03 at 15:54:46, JesseWallis wrote:

Is there a point when the headaches will just stop and never come back?

I'll let you know, 27 years and counting with no end in site
:o

........................jonny :D

Title: Re: WILL THEY EVER GO AWAY???
Post by Svenn on Jan 29^th, 2003, 4:33pm

Some neuroes"clowns"tell us that this might vanished when we are grownups/adults.

The question then is: :) ;D 8) ???

Whats the definition of an adult or grownup?

Svenn

Title: Re: WILL THEY EVER GO AWAY???
Post by Linda_Howell on Jan 29^th, 2003, 4:46pm

Our friend Charlie on this message board is older than dirt, and his went away 12 years ago. He gives the rest of us hope. I just can't wait to be older than dirt!!!!

(sorry Charlie. The devil made me say it)

Linda H

Title: Re: WILL THEY EVER GO AWAY???
Post by suzy617 on Jan 29^th, 2003, 4:50pm

I've had them for 21 years now, usually right on time each year but I have not yet reached the "old as dirt" age so gonna wait a few years and see what happens. LOL (sorry Charlie) ;)

suzy

Title: Re: WILL THEY EVER GO AWAY???
Post by 2late on Jan 29^th, 2003, 5:45pm

one thing i've learned about ch is you'll never really understand it, good luck with the m.r.i. & let us know,my only trigger (in cycle) is alcohol ??? >:( :'( .........2late

Title: Re: WILL THEY EVER GO AWAY???
Post by Roxy on Jan 29^th, 2003, 5:55pm

Obviously....I haven't reached adulthood yet. Since mine didn't start till I was 43.......I'm not real sure when puberty is going to hit. ;D

So far, I haven't found a trigger.

Good Luck.....and welcome,

Tracey

Title: Re: WILL THEY EVER GO AWAY???
Post by cootie on Jan 29^th, 2003, 6:02pm

Welcome JesseWallis....if yer old as dirt you'd remember yer first dinasour siteing.....(can I ever be serious)....good luck to ya.....Pam ;)

Title: Re: WILL THEY EVER GO AWAY???
Post by Charlie on Jan 29^th, 2003, 7:08pm

Mine did Jesse. It will be 13 years in April.

Had them for 22 years but there is hope.

Stick around.

Old Charlie---From the home.

Title: Re: WILL THEY EVER GO AWAY???
Post by guerrabug45 on Jan 29^th, 2003, 7:38pm

triggers-MSG's!!!!! You need to check all labels carefully, they are found in everything
YELLOW #5
BEER
NITRATES
CHOCOLATE
AGED CHEESES- like parmesan
These are the ones that always cause my headache.
- still discovering new triggers like TYRAMINE
But, the blue sky or the green grass can set off a headache, somedays there just aren't any clear cut and easy answers. Good Luck

Title: Re: WILL THEY EVER GO AWAY???
Post by tgz23 on Jan 29^th, 2003, 10:33pm

Welcome Jesse, I was told by a Neuro when I was in my late 20's that I would outgrow them, I'm now 42. Beer is an instant trigger for me. If my attacks are low enough where I can sit still hot things help. At the company Christmas party I drank about 5 screw drivers, the next day went well, 2 and 3 days later things weren't so good. Anyway welcome aboard and grab an oar.

Title: Re: WILL THEY EVER GO AWAY???
Post by ZAIRA on Jan 30^th, 2003, 7:24am

Hi, Wecolme!
Docs have diagnosed you with a BAD thing!
In this site you will find all support and necessary information to face CH.
I’ve been suffering CH for 10 yrs. and it is going worse and worse… I don’t want to discourage you… but I don’t believe in “fairy tales”…

Get all courage, beacuse living with CH is not simple!

Keep hard :D or be strong…

See you soon and Good Luck,

Zaira from Italy

Title: Re: WILL THEY EVER GO AWAY???
Post by Aussie on Jan 31^st, 2003, 4:25am

New to the group, been suffering for 15 years and thought I had it beat and had got use to the pain.
That was until 2 nights ago - 2 Belters in a night that lasted over an hour each. Give me back the fifteen minute bursts.

Title: Re: WILL THEY EVER GO AWAY???
Post by Tony_M on Jan 31^st, 2003, 5:10am

My dad's CH went away when he was about 55 after suffering his entire life. He is 72 now and has no attacks. So, sorry to say you have about another 30 years to look forward to. God willing.

The only reason I am up is because I let my Depakote level slip a little the past two days and I had an attack earlier. Only a 7.....just another 11 years for me? That is an eternity in CH years.

Title: Re: WILL THEY EVER GO AWAY???
Post by erik on Jan 31^st, 2003, 8:21am

sorry to tell you but ones they come around it is very unlikely that they will go away. they might leave for extended periods of time, but then again they might not. they have been attacking me for 27yrs sometimes for months, some for years. living with them is not easy but keep thinking that they will go away again, will give you the most strenght. thinking of what might be causing them is almost a never ending thought, that most of us do. it is more something to blaim it on, than really knowing what the real cause is.I am almost afraid to say that mine have finally stopped after starting september 2001 but some how they just start and they just dissapear. pain free with only the occasional flashes for 10 days just hope it continues. have faith my thoughts are with all sufferers . ERIK