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        New Message Board Archives >> Jan-Mar 2003 >> my intro
        
(Message started by: ComputerGeek on Jan 18^th, 2003, 11:41pm)

Title: my intro
Post by ComputerGeek on Jan 18^th, 2003, 11:41pm

Hi Everyone,

This is acutually not my first post here but I got off on the wrong foot so I'm trying things differently with a simple intro of my self. I'm male, in my 40's, and have a family. I work full time as a database administrator and go to school full time as well. I have had cluster headaches for a bout 11 years now. They started when I gave up drinking coffee (I have now mended my ways and still drink coffee :-)). I few days after quiting coffee I experinced my first cluster. It lasted for about 2 minutes and was so unuusal and painful that I went to see my doctor. He said it was caffiene withdrawl. I said that it was something more than that. He disagreed and I went home. The headaches continued to get worse in pain, frequency, and length. Eventually after several trips to the emergency room he took me serious and diagnosed cluster headaches. I then started trying all kinds of drugs like cafergot, bellergal, beta blockers, and finally the initial one to work, Elavil (not sure if I am spelling it right, its been a while since I was on it). I was on this crappy drug for about 4 years and then went off. About a year later the CHs started up again. I then found a nuro who put me on Sansert as a preventative and Imitrex injections for aborting. The headaches are always on the right side of my head, my eye droops, my right nostril runs, right side of face sometimes hurts, and I sweat. They come around November and leave around February each year. I can't sit down or really do anything but hit my head and pace when they occur. I have a 2 and 1/2 year old daughter so right now when I do get a CH and its not in the middle of the night, I hide in my closet (its big enought to pace in). Any way, Sansert has really changed my life for the better. I get my kidneys checked every 3 months. I have gotten a wealth of information from this site over the last few years. Thank-you. And thank-you to woobie for all the kind words.

Pat

P.S.- sorry for any bad feelings my initial posts may have caused.

Title: Re: my intro
Post by Mastifflvr28 on Jan 19^th, 2003, 12:37am

Welcome to the board putergeek,
(btw...there are a few of us here)

Grab an oar...but I know you already tried that one!! LOL.

You didn't mention O2...??
Take care,
Mast

Title: Re: my intro
Post by Charlie on Jan 19^th, 2003, 12:49am

Welcome back and I remember the coffee thing. Coffee is a hobby with me. The idea of not drinking it has never occurred to me. My attacks ended more than 11 years ago but I can find no reason other than I was 45 at the time. I know how lucky I am. Maybe you'll have the same experience.

Stick around and l guess you already know the players here. Glad to have you.

Charlie

Title: Re: my intro
Post by firebrix on Jan 19^th, 2003, 5:35am

Welcome aboard ComputerGeek!
Good to meet you but sorry you suffer CH.
Stick around. You'll have some fun, and meet some really cool people here.
Wishing you PFDAN
firebrix

Title: Re: my intro
Post by Opus on Jan 19^th, 2003, 7:01am

Pat,
Glad you have come back and sorry you have to be here. I don't think many true clusterheads can stay away for long. Glad woobie caught you in time.
Opus:P

Title: Re: my intro
Post by marty on Jan 19^th, 2003, 7:54am

Hi Pat..

Welcome.. Since you are from South Cal, check out the CalOUCH web site on

http://www.pahlow.net/calouch/index.htm

You will find that we are starting to build a contact network and are planning a lot of activites and fun stuff as well as the more serious business of dealing with Doctor and Insurance issues.

We'd love to see you join us

Marty

Title: Re: my intro
Post by brewcrew on Jan 19^th, 2003, 8:13am

You and I are in the same boat, my friend. Sansert has been a life saver for me. I hate to be the one to break it to you, but it has been discontinued by Novartis. Hopefully this means that they've found something better with which to replace it (I heard about something called Methergine on another thread). You might want to talk to your neuro about it.

We can hope, right?

Title: Re: my intro
Post by suzy617 on Jan 19^th, 2003, 8:22am

Hi Pat,

Welcome to the cluster family. I never tried the coffee thing to abort an attack but I know lots of CHers do that. Glad you came aboard....stick around.

suzy

Title: Re: my intro
Post by woobie on Jan 19^th, 2003, 9:00am

LOL!!!
See Pat?? That wasn't so hard, now... was it?? ;)

Tina :-*

Title: Re: my intro
Post by jonny on Jan 19^th, 2003, 10:58am

Welcome aboard, Pat

Sorry you have to be here, but im glad your finally home. lots of nice folks here.

......................jonny

Title: ;DRe: my intro
Post by Mark C on Jan 19^th, 2003, 2:24pm

Welcome aboard Pat.....Tina you kill me ;D

Title: Re: my intro
Post by cootie on Jan 19^th, 2003, 3:08pm

Hi Pootergeek......I remember yer first posts....live and learn is my motto and I'm still learnin of course.....welcome back....you did good !! Our closets are too fulla junk ta pace in or hide.......good luck to ya......Pam

Title: Re: my intro
Post by rick on Jan 20^th, 2003, 3:25am

Pat,

Sorry you have to join "our little club", but glad to meet you anyway. Glad to hear the pharmaceutical LSD...er...Sansert is working for you ::). Continue to educate yourself on your condition through use of this site and the OUCH website is the best advice I can give.

Peace,

-R

P. S.:

http://www.clusterheadaches.com/wwwboard/messages/39616.html

http://www.migraines.org/treatment/tsmthysr.htm

http://nepenthes.lycaeum.org/Drugs/LSD/ProbChild/Chapter3.html