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        New Message Board Archives >> Jan-Mar 2003 >> new to the site
        
(Message started by: bazman1 on Jan 12^th, 2003, 10:38am)

Title: new to the site
Post by bazman1 on Jan 12^th, 2003, 10:38am

hi all im new to this site i am a episodic clusterer sufferer i have 2 bouts a year which normally last for about three months at a time i have had them for the past 12 yrs and have had them called headaches until 2001 when i was seen by a local doctor in the hospital who put me to see a neurologist who then diagnosed me with cluster head aches i have since then tried many different medications like zomig,propranolol,tegretol,(co-codamol,co-proxamol)carbamazipane,nethysergide,etc,etc i am now on o2 and imigran subject(injections) to which i get enormous relief out of thanks

Title: Re: new to the site
Post by Silver_Dolphins on Jan 12^th, 2003, 10:57am

Hi Bazman,

Tell us a bit about yourself. DO you, or someone you know and love suffer from CH?

Look around the site get all the information available, and if you have questions, then by all means ASK. There are many folks on this site that have such a vast knowledge (unfortuantely from experience) of CH, and they are more than happy to help.

Welcome, and I hope you are pain free.

Silver Dolphins.

Title: Re: new to the site
Post by Jarvis on Jan 12^th, 2003, 11:01am

Read and Type. Ask and Tell.. Do as silver D. says and enjoy the therapy and knowledge

Title: Re: new to the site
Post by bazman1 on Jan 12^th, 2003, 11:21am

thanks for making me feel at home on this site.i am a cluster sufferer and have been one for the past twelve years i was finally diagnosed with ch in 2001 whilst in my local emergency room since then i have tried many drugs (which were supposed to be miracle cures)which have failed until recently a neurologist decided to try me on o2 and imigran subject which have seemed to work so far the only problem with it is that my local doctors know nothing about ch and seem to think that it is a very expensive drug for (just a ch)so i have to fight with them every 6 months to get more
also its nice to know that im not going insane and that there is people like myself out there.thanks again

Title: Re: new to the site
Post by BobG on Jan 12^th, 2003, 11:50am

Good to hear that you have the O2 and the imigran. Those are the abortivies of choice for most ch sufferers. See if your doc will prescribe a preventative like Verapamil.

And if the doc ever uses the phrase "just a ch", hit him in the head with a snow shovel and say "What's the problem doc? It's only a headache."

Title: Re: new to the site
Post by Jarvis on Jan 12^th, 2003, 11:57am

Hey Bazman- seems many docs dont have a clue about CH but just as many do.There is a doc list in the buttons to the right of some docs that know if you havent allready checked.. Glad you were finally diagnosed. Lots of info and experience here on this site for you. If you found something that works it is priceless. Once diagnosed a lot of experimenting with different meds goes on for many.... Are you chronic or episodic?

Title: Re: new to the site
Post by bazman1 on Jan 12^th, 2003, 11:57am

thanks for the last reply i have already threatened to shove a chair up a doctors rear passage as he thought i was on drugs when i came in with a ch because he couldnt believe a headache could do this to someone and he also got me a police escort away from him

Title: Re: new to the site
Post by bazman1 on Jan 12^th, 2003, 12:00pm

reply to no.5 i am an epesodic sufferer i get the twice a year for about three months at a time

Title: Re: new to the site
Post by Karla on Jan 12^th, 2003, 1:22pm

Personally I would be looking for a new dr if I was told it was only a headache or only ch. I can't believe the dr had the police escort you out. How uncompationate and stupid. He is ignorant about it. I would be out of there and not going back.

Title: Re: new to the site
Post by Roxy on Jan 12^th, 2003, 1:24pm

Hi Bazman and welcome to the world of Clusterheads,

While your doctor is having his asschair surgically removed, do as Jarvis said and click to the left and find a doc who will at least not have you escorted away. Sounds like you've got a good start on the 02 and Imitrex...just so sorry it was 12 years late.

Go join OUCH, it's a lifesaver, both mentally and physically, and read, read, read. Then print out everything you can......take it to your local dr.

Good luck and here's wishing you many PFDAN,

Roxy

Title: Re: new to the site
Post by cootie on Jan 12^th, 2003, 2:18pm

Bazman..hello....sounds like your goin thru alot of the similar ordeals.....you'll learn alot on here and OUCH site....we have ta fight with our insurence co 'every' month durein Brad's cycle.....not had ta threaten ta ram a chair anywhere....it's always a thought when ya get the run 'round tho isn't it (that's a tame one actually)....good luck to ya.......Pam

Title: Re: new to the site
Post by Mark C on Jan 12^th, 2003, 2:52pm

Welcome to the Nuthouse bazman1,
We love new folks. Sorry you need us but we are glad you are here. If you have threatened a stupid doctor you are going be right at home here. Not that we all beat our Doctors, it just that is something we all can relate to. Good luck with the head.

on 01/12/03 at 11:50:13, BobG wrote:

And if the doc ever uses the phrase "just a ch", hit him in the head with a snow shovel and say "What's the problem doc? It's only a headache."

What Bob said....

on 01/12/03 at 13:24:35, Roxy wrote:

While your doctor is having his asschair surgically removed,
Roxy

Asschair.....Roxy I like you ;D

Lets see, a shovel on one end and a chair up the other, sounds like this Doc needs a Doc! LMAO!

PFDAN's,
Mark

http://animatedgif.net/welcome/jswelcome2_e0.gif

Title: Re: new to the site
Post by cootie on Jan 12^th, 2003, 3:23pm

Don't fergit the 'bad bad' docs colonoscopy.....when the chair is removed a firehose sized tube will be easy access.......the shovel will take care of any sedatives needed......we could start sellin VHS tapes.....and call it...."When CH'rs go wild".......Pam ::)

Title: Re: new to the site
Post by jonny on Jan 12^th, 2003, 4:01pm

Stay away from Cootie, she has cooties.

Plus I think she is some kind of Mistress of the dark.

You have been warned.

....................................jonny

Title: Re: new to the site
Post by bazman1 on Jan 12^th, 2003, 6:16pm

does anyone know where i can get information about all the different medications available? for clusterheads.

Title: Re: new to the site
Post by cootie on Jan 12^th, 2003, 6:43pm

johnny....nooooo sir......I jus have too much visual...creative minds can be a good thang.......makes fer good conversation ta keep an interest......I dunno.....sumthin like that......ha-ha-ha-ha......Pam......the cootie without cooties......