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        New Message Board Archives >> Jan-Mar 2003 >> DJ do you really know what you did?
        
(Message started by: Elaine on Jan 11^th, 2003, 5:00am)

Title: DJ do you really know what you did?
Post by Elaine on Jan 11^th, 2003, 5:00am

DJ I know when you started ch.com you started it hoping to talk to another clusterhead. Do you know what you really did. You not only got a bunch of clusterheads together, you made it possible for so many other people as well to find help. We all know that some here are not clusterheads. Fact is 99.9 are here because they need some kind of help. Most are clusterheads or supporters, but there are some here who have other problems they have emotional problems, or are just plain lonely looking for a friend and so on and so on. What ever the reason for them to be here, you can bet your bottom dollar they have gotten help here. You Dj have done much more than you set out to do. You have helped more than you will ever know. This site has saved lives of many.

Dogs and cats have been helped, children have been helped ( my little Garrett was one and he did not have clusters)! Weather you meant for all these people to be here or not, this site has helped everyone, in some form or fashion.

I know Tuesday you will have another operations, and I hope you know that we all Thank you very much for this site and we all care about you. Prayers and thoughts will be coming your way. You Fucking take care of yourself, you make sure someone lets us know how you are. Your the man that made all this happen and we all have strong feelings for you. Keep your chin up, kiss the nurses. You tell them you have hundreds of people here who you mean a lot to. I owe you dinner at the next convention and a few beers.

YOU ARE THE MAN!!!!

Love you my friend!!!

Title: Re: DJ do you really know what you did?
Post by Linda_Howell on Jan 11^th, 2003, 7:08am

Kiss your nurses????????? Like you had to tell him that Elaine?

DJ , we all love you, more than you'' ever know.

Ask that Neurologist if...........

"HE"S EVER HAD A BIRDIE"

Linda Howell ( your caddie)

Title: Re: DJ do you really know what you did?
Post by SommelierCH on Jan 11^th, 2003, 7:13am

DJ,

You have changed my world.

You gave me hope.

You have given me purpose. I have 1yr. 10months, pain free, to help make a change in the “system” we are all run through. Then it’s back begging for meds.

You gave me hope.

PFDAN,

David J.

Title: Re: DJ do you really know what you did?
Post by Brassbear on Jan 11^th, 2003, 7:42am

DJ,

Many, many thanks to you bro. This site is awesome and has been a real gift to many in need, myself included. I don't know where I would have been without the information and support that I've found here. Probably in a loony bin some where.

Hope all goes well with your surgery. I'm got a minor procedure Monday myself, but nothing big.

BTW, I'm a nurse and if you try to kiss me I'm gonna jack yer jaw! ;D

Keep up the good fight. You need ANYTHING let us know! ;)

Michael

Title: Re: DJ do you really know what you did?
Post by woobie on Jan 11^th, 2003, 8:31am

Hey Elaine..

Very well said.. and very true..

I never met you DJ.. but I hope to one day....

You ARE da man!!
BE WELL!!

Tina :-*

Title: Re: DJ do you really know what you did?
Post by catlind on Jan 11^th, 2003, 8:44am

DJ,

I think Elaine said it so well. There isn't much one can add to that. Thank you so very much for giving us all a home where we can share our pain, and support each other and help to get this boat heading to the port of recognition.

Tuesday all my vibes will be for you, we'll all be thinkin of ya.

Cat

Title: Re: DJ do you really know what you did?
Post by Svenn on Jan 11^th, 2003, 8:55am

I`ll copy both Elaine and Cat on this one

Svenn

Title: Re: DJ do you really know what you did?
Post by Mastifflvr28 on Jan 11^th, 2003, 9:10am

VIBES DJ...oh and Fuckeneh!!!
Mast

Title: Re: DJ do you really know what you did?
Post by suzy617 on Jan 11^th, 2003, 9:10am

Elaine,

Thank you for reminding all of us about our creator of clusterville.

DJ,

Wishing you much success with your surgery. You are in my prayers. So true what Elaine said, Have you a clue how many lives you have touched?

suzy

Title: Re: DJ do you really know what you did?
Post by Margi on Jan 11^th, 2003, 11:19am

DJ's just having this surgery so he can say he can only caddy at the next convention Golf Tournie...you watch. Then, he'll say he's not sure if he's strong enough to hit a golf ball. Then, he'll TRY, just once. Then, he'll proceed to knock that little white ball outta sight. He's just a sandbagger who goes to great lengths to get us thinking that he's not that good a golfer. We're onto you, Mr. "Oh, look, I got a birdie".

There's a cloud of prayer going up for you, DJ. You know that. Countin on getting another hug from you at the next convention, kiddo. ;)

Title: Re: DJ do you really know what you did?
Post by Leesa on Jan 11^th, 2003, 11:30am

THANKS DJ!!!!!!!!!! You ROCK man 8) !!!!!! Prayers up for ya!!!
Leesa ;D

Title: Re: DJ do you really know what you did?
Post by Silver_Dolphins on Jan 11^th, 2003, 11:58am

DJ,

I cannot express my gratitude enough for this website that you created. I know that the operation of a website can be costly and just as soon as I am able, seems every time I see alight at the end of the tunnel, it is a freight train, I will send in a donation to help you offset the cost.

You have helped many, many people.

PFDAN

Barry

Title: Re: DJ do you really know what you did?
Post by jonny on Jan 11^th, 2003, 1:01pm

This is what zipper head will look like after surgery, this time it will be on the other side.

But dont let him fool ya, he will be at the nearest strip joint as soon as he can get dressed....LOL ;D

http://tinyurl.com/4c0m

FUCKENEH!!!!!!!.........You Fucker!!! ;D

..........................jonny :D

Title: Re: DJ do you really know what you did?
Post by firebrix on Jan 11^th, 2003, 1:50pm

Thank you Elaine! You said that so well. We 're with you on every word.

We'd been wondering about DJ's surgery and wish him all the very best.

PFDANs to you all
firebrix and Mopar

Title: Re: DJ do you really know what you did?
Post by Lenny on Jan 11^th, 2003, 6:41pm

Could you please let me know how D.J. surgery goes.
I kind of feel weird asking this,what is wrong with D.J.?? I remember appr. 1 - month ago,he was going to the bay area ( i just assumed it was cluster related ) hopefully its nothing too serious( i hope ). PFDAN to all !!

Title: Re: DJ do you really know what you did?
Post by BarbaraG on Jan 11^th, 2003, 7:50pm

I'll be thinking of you and praying for you. Take care DJ and thanks for everything that you have done for us clusterheads. :) :) BarbaraG

Title: Re: DJ do you really know what you did?
Post by Mark C on Jan 11^th, 2003, 8:20pm

FUCKIN A !!

Title: Re: DJ do you really know what you did?
Post by Charlie on Jan 11^th, 2003, 8:35pm

http://www.netsync.net/users/charlies/gifs/fuckeneh.png

Charlie

Title: Re: DJ do you really know what you did?
Post by jonny on Jan 11^th, 2003, 8:45pm

LMMFYBO......Charlie!!!!

......................jonny

Title: Re: DJ do you really know what you did?
Post by maria9 on Jan 11^th, 2003, 9:09pm

Hey DJ, as we wander and sometimes stumble through our lives, we wonder what have we done to create a better place for our fellow human beings. Rest assured DJ you have made a difference in this world. You have, you have. Who could have imagined?

Maria (from the convention)

Title: Re: DJ do you really know what you did?
Post by Ree on Jan 11^th, 2003, 9:38pm

Even with a zipper head you are adorable... Now to make the sides match... send pics DJ... we'll be glad when its over for you... Good Luck and God Bless~~~
Ree and Davehttp://www.sfdt.com/gif/movies/pics/1287-MD.gif
(ps Dont let this guy near you... LMAO)

Title: Re: DJ do you really know what you did?
Post by maria9 on Jan 11^th, 2003, 9:40pm

Oops forgot to say Fuckeneh, DJ, Maria

Title: Re: DJ do you really know what you did?
Post by jonny on Jan 11^th, 2003, 10:29pm

on 01/11/03 at 18:41:12, Lenny wrote:

I kind of feel weird asking this,what is wrong with D.J.??

Lenny,

Click this link.

http://moyamoya.com/

Now you know, dont worry......nothing can kill this fucker!!!!!

....................jonny :D

Title: Re: DJ do you really know what you did?
Post by Not4Hire on Jan 11^th, 2003, 11:09pm

holy screamin FUCK!

obviously.....if you have taken the time to *click* the link........

this ain't OUR DJ

in this MOYAMOYA (wtf?) deal

...in his new website: not even once did he use the FUCK word.........

(must be some other balding unfortunate) .......RIGHT?

but if it IS..... (ominous drumroll) .... TRUE

just know DEEJ...... we're pullin' oars.....

thanks bro...... yer Montana friend.....N4H

Title: Re: DJ do you really know what you did?
Post by Roxy on Jan 11^th, 2003, 11:21pm

DJ,

Can't really say it better (or funnier) than it's already been said. The important thing is that everyone speaks from the heart. You are a lucky man to have the love of a great number of friends, and they are lucky to have you. You have done an amazing thing in life....so many people have the want and desire to help people, but not many people are able to actually do something. You have done something which has helped, and will continue to help, such a large number of people in need.

You are an amazing man, and someday soon, I hope I actually have the honor of meeting you in person.

Bounce out of that bed quick......all kinds of good vibes coming your way.

R

Title: Re: DJ do you really know what you did?
Post by paul_b on Jan 11^th, 2003, 11:58pm

It is rare to cross paths with a person who has taken their demons and turned them into a source of hope and help for others. I feel blessed to have crossed your path DJ. May the surgery go smoothly and your knew web site bring hope to others. Thank you Johnny for once again sharing your vast knowledge.

Title: Re: DJ do you really know what you did?
Post by rick on Jan 12^th, 2003, 12:51am

DJ,

Thank you, thank you, and thank you.

I really didn't have a clue what was wrong with me until I found this place. You have done much good for so many people DJ, and you deserve to feel really good about that.

Thank you not only for the help that I've gained through this place, but also for the friends I've been able to make.

PEACE!!!! 8) 8) 8)-R

Title: Re: DJ do you really know what you did?
Post by 2late on Jan 12^th, 2003, 10:18am

you helped us all more than you'll ever know, best of luck bro' MOTHERFUCKENEH!!!!!! .........2late

Title: Re: DJ do you really know what you did?
Post by Peppermint on Jan 12^th, 2003, 11:23am

Prayers and good vibes going up and out to you DJ......

http://www.click-smilie.de/sammlung/sport/sport005.gif

Rock on DJ - come out fighting!

Pep ;)

Title: Re: DJ do you really know what you did?
Post by cootie on Jan 12^th, 2003, 12:01pm

We all bow down to da higher power of DJ-gawd like person and all yeah "Fuckeneh" tagether !!! Pam ;)

Title: Re: DJ do you really know what you did?
Post by cathy on Jan 12^th, 2003, 12:24pm

???Wow ...what can I add to all that...DJ I thank you from the heart of my bottom....err.. I meant the bottom of my heart.... ;D

Hope the surgery goes well for you...positive vibes from moi to you...and from all of us here....

http://www.uselessgraphics.com/copy_2_of_wave.gif FUCKENEH..!! ;D

Thankyou...Cathy & Wes :)

Title: Re: DJ do you really know what you did?
Post by JDH on Jan 12^th, 2003, 4:47pm

just to add my two cents worth.
I have learned more about CH's from this website than I have in 18 years of dealing with various Dr's.
I've actually suggested things to them that I have read about on here.
Many thanks to you DJ, your site had given a lot of people hope who might not otherwise have had it.
PFDAN's to all.

Title: Re: DJ do you really know what you did?
Post by cerebus on Jan 12^th, 2003, 6:51pm

DJ,
Even though I have never met ya, I'm givin' up props to ya. Kudos Bro'
Cerebus

Title: Re: DJ do you really know what you did?
Post by jonny on Jan 12^th, 2003, 7:00pm

Kudos?

The dude wants to kill you just for typing that......LOL

.................................jonny

Title: Re: DJ do you really know what you did?
Post by bwags on Jan 12^th, 2003, 10:51pm

First off, Johnny Thanks for posting MoyaMoya.com in relating to what's happening to DJ, For some of us not knowing. I've been all over his new site and challenge every CH'er whoever thought for one minute how much this site has helped them out to go visit MoyaMoya.com to get an Idea of what is to come of his next home and for the thousands of people he will help. My thoughts and prayer's to everyone on this site and to the next generation of moyamoya.family. God Bless you all and Thank God for DJ!!! Your truly an amazing Man.

bwags

Title: Re: DJ do you really know what you did?
Post by DJ on Jan 13^th, 2003, 12:50am

Damnit you guys.... you're killing me here! :'( What can I say other than what I've said all along...

I didn't do it, YOU GUYS did!

Every single one of you who've made a post, offered a kind word to someone who needed it, shared your story... YOU are the one's who've made this site the interesting FAMILY it has become, NOT me! I simply put the framework together. YOU GUYS gave us a heart!

I THANK ALL OF YOU FOR THAT!

Ok... I'm settled in CA again. Have some pre-op appts tomorrow morning and then go in early Tues for surgery. My mom will have my cell phone and will be making some phone calls as soon as I get out of surgery so everyone can have an update.

Hopefully I'll have another COOL nurse I can talk into letting me make a post to the board myself from the ICU! ;D ;D

THANK YOU for all of the prayers, wishes, and vibes! With all of you pulling for me, NOTHING can go wrong!!

P.S. Charlie!! You GOTTA let me use that one!!! LOL

Title: Re: DJ do you really know what you did?
Post by Jarvis on Jan 13^th, 2003, 1:06am

DJ.....Whithout the framework there is no house. Thanks and best of all that is to you..........mj........

Title: Re: DJ do you really know what you did?
Post by Charlie on Jan 13^th, 2003, 1:38am

Good luck DJ and glad to hear from you. Take care and here is URL for ya:

http://www.smiliegenerator.de/s3/clicksmilies31106.png

http://www.smiliegenerator.de/s3/clicksmilies31106.png

Charlie

Title: Re: DJ do you really know what you did?
Post by cher on Jan 13^th, 2003, 5:15am

good luck again, DJ with your surgery. I still remember the feeling i had when i first found this place, also the friends i made and even meeting some of you.

i wish you well

lots of love

cher x

Title: Re: DJ do you really know what you did?
Post by SFChris on Jan 13^th, 2003, 10:52am

Folks:

DJ e-mailed me and invited me to visit him at Stanford. The surgery is on Tuesday, so I will wait until Wednesday to make my first visit.
I'll keep you posted on DJ's conquests with the nurses! :o

Chris

Title: Re: DJ do you really know what you did?
Post by Slammy on Jan 13^th, 2003, 11:40am

Good Luck DJ! There's this cool tittie bar not too far from Stanford... but I'm sure Chris knows where it's at! ;D

The whole fam damily is behind ya! :D

Slammy 8)

Title: Re: DJ do you really know what you did?
Post by NotH20 on Jan 13^th, 2003, 11:52am

Prayers and thoughts going up to you DJ......good luck to you and we'll all be waiting for that post from ICU. If your nurse is not as nice as the last one - tell them Jonny will be knocking their door down! ;)

Mia

Title: Re: DJ do you really know what you did?
Post by 9erfan on Jan 13^th, 2003, 1:26pm

Geez DJ, 1 rare disease wasn't enough for you? You had to get moyamoya too?? :o I think you just wanted to come out to Cali again to get some site-seeing in!!
I know I'll probably see you at one of the Palo Alto bars by tomorrow night!! ;D

I don't usually use the F-word but for you I send up a big FUCKENEH Zipperhead!!! ;D

Thanks for giving us this site and starting our family!

Virginia

Title: Re: DJ do you really know what you did?
Post by Jabeen on Jan 13^th, 2003, 10:20pm

You certainly have a lot to deal with-as if CH's weren't enough! I never heard of moyamoya (But I had never heard of CH's before it hit me either) Unbelievable! Best of luck- lots of good wishes-
Jabeen

Title: Re: DJ do you really know what you did?
Post by Dave_W on Jan 14^th, 2003, 7:05pm

Oh Man, DJ!

I'm sitting up while you're in surgery, and I thought I needed to add based on the subject line of this thread...

CH.COM educated my doctors (all of them), and gave me relief from the beast for the first time in 20 years. I found you back in 1998, right after start-up, and I've had the best years of my life since then.

Wish there was something I could do besides pray for you --

Maybe I'll just send a big wad of money to OUCH.

Love ya, man.

Old Dave