Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> Jan-Mar 2003 >> Insomniacs, any of you?
        
(Message started by: brain_cramps on Jan 6^th, 2003, 11:52am)

Title: Insomniacs, any of you?
Post by brain_cramps on Jan 6^th, 2003, 11:52am

For the episodics out there: When out of cycle, do you suffer from insomnia.

Since my last bout that ended about 3months ago, I usually getting a couple hours of sleep, am up for about 3hours, then back to sleep for a couple hours.

Not complaining, but was wondering if anyone else has noticed the same thing?

Grant

Title: Re: Insomniacs, any of you?
Post by cootie on Jan 6^th, 2003, 12:48pm

Now that I think about it once Brad's cycle ended he started on all sorts of big projects around here and started stayin up alot later....wasn't as tired as normal....of course the attacks wear him out but he was more tired the entire term day by day beginin ta end of the last cycle even jus before they started he seem'd more tired then usual. I'm the insomniac of the family tho....always have been......if it wasn't fer Ambien I'd be a mess. (or more of one I mean......ha-ha) Pam

Title: Re: Insomniacs, any of you?
Post by Bob P on Jan 6^th, 2003, 1:00pm

Yep. In bed at 9:30. Up at 1am. Back in bed at 4am. Up at 5:30.

It's because our hypothalami are screwed up, causing also our flatline melatonin levels.

Title: Re: Insomniacs, any of you?
Post by Belle on Jan 6^th, 2003, 1:04pm

I hear ya. Episodic here and I do find that when I'm out of cycle I keepfinding more reasons to stay awake. I do most of my house work at night and I think the only reason why I do actually get some sleep is bcz of the anti-depressents I take before I do goto bed. Wierd!

Belle
::)

Title: Re: Insomniacs, any of you?
Post by suzy617 on Jan 6^th, 2003, 1:15pm

I have to say that I almost never have a problem sleeping at night when not in cycle. Guess I'm a lucky one...

suzy

Title: Re: Insomniacs, any of you?
Post by ave on Jan 6^th, 2003, 2:08pm

Yes, always have slept very little and needed very little as well. I am not an insomniac. My hypthalamus is out of whack, as BobP says.

Title: Re: Insomniacs, any of you?
Post by Mastifflvr28 on Jan 6^th, 2003, 2:19pm

No way. I love my sleep. I especially love my nappys without getting hit, out of cycle :)
Mast

Title: Re: Insomniacs, any of you?
Post by cathy on Jan 6^th, 2003, 2:38pm

http://www.frinkian.com/images/smiles/new_sleeping.gif

Nope .....wes has no trouble at all when out of cycle...day, night, whenever Im around actually.... ::)

Cathy ;D

Title: Re: Insomniacs, any of you?
Post by Slammy on Jan 6^th, 2003, 2:40pm

I can sleep anytime and anywhere... out of cycle, of course.. :)

Slammy 8)

Title: Re: Insomniacs, any of you?
Post by Ree on Jan 6^th, 2003, 3:20pm

Dave is a real insomniac... In and out of cycle he has problems sleeping...worse during cycle though... This is a common occurance for all people between the age of 35-50ish.... ask around all people our age have problems sleeping has to do with our natural levels of Melatonin... why do you think that they make all that sleep stuff.................its for everyone. me

Title: Re: Insomniacs, any of you?
Post by echo on Jan 6^th, 2003, 4:49pm

on 01/06/03 at 14:40:41, Slammy wrote:

I can sleep anytime and anywhere... out of cycle, of course.. :)

Slammy 8)

Now we know just how boring Slammy really is. ;D

Title: Re: Insomniacs, any of you?
Post by domm on Jan 6^th, 2003, 4:54pm

B_C - I usually do for a while, but after a few months out of cycle, I manage to go thru the night.

echo - I don't think its Slammy thats boring, I think we're boring him.... ;D
domm

Title: Re: Insomniacs, any of you?
Post by Mark C on Jan 6^th, 2003, 5:09pm

I average 3-4 hours sleep every 24 hours or so. Working a split shift adds to the problem. I can be awake for 20 hours and still lie in bed for hours without nodding off, or never really going to sleep. 10 Ambien a month help, but not much. However, I have been PF for over a month now and I am grateful for the break.
PFDAN,
Mark

Title: Re: Insomniacs, any of you?
Post by Silver_Dolphins on Jan 6^th, 2003, 5:10pm

Out of cycle I can sleep with no problems. Of course I am a night owl by nature, so I don't get a lot of sleep as I have to be out of bed by 5:30 am.

Title: Re: Insomniacs, any of you?
Post by eyes_afire on Jan 6^th, 2003, 6:25pm

Well, I guess it depends on how you define 'insomniac'. If you mean unable to sleep thru the night without waking up a few times, then yes (which is probably why I remember so many of my dreams). However, I'm also probably a hypersomniac. According to my brain wave measurements, my first REM onset comes abnormally early and often (which is probably why I have so many strange dreams). No problem falling asleep for me. Like Michelle, I like afternoon siesta, provided that the CH Beast is not scaring me. My sleep is wacked.

Title: Re: Insomniacs, any of you?
Post by cerebus on Jan 6^th, 2003, 6:26pm

until recently, Yeah, big time. But with the lovely mixture of meds I take now I'm lucky to stay awake at all. Odd thing though, I still have a "pseudo- sleep" state almost every night. I sleep, I even dream but my body doesn't rest. I wake up sore as hell as if I ran a series of marathons. Suppose I have chronic fatigue syndrome?
Cerebus

Title: Re: Insomniacs, any of you?
Post by eyes_afire on Jan 6^th, 2003, 6:46pm

Cerebus, it's not so much the quantity of sleep, it's the quality. I can get a good quantity of sleep, but if the quality is poor I feel like shit. Maybe your meds are interfering with the normal sleep brain waves necessary for restoration. BTW... if I'm not mistaken, REM sleep is not necessarily indicative of good sleep... it's an active sleep stage (but still very necessary). I usually feel worse waking up in the morning after a dream-filled night.

Balance and moderation... so hard to attain...

Title: Re: Insomniacs, any of you?
Post by Charlie on Jan 6^th, 2003, 7:47pm

Not an insomniac but I am a creature of the night. I will say that it was enhanced by my episodics as I was often afraid to go to sleep. Now though, it has to be mostly some kind of circadian thing. Naps? once a year.

Yawn.......Charlie

Title: Re: Insomniacs, any of you?
Post by cootie on Jan 6^th, 2003, 8:17pm

Cerebus.....I found out alot of them anti depressants wacked out my already wacked out wacker more......did that make any sense.....(I sound wacked you say...hey I heard that)....anywho.....alotta that stuff made me feel tired and whipped out (I didn't say wacked).....I thrive on my energy even tho not bein able to fall asleep ain't cool.....but without that energy level I am more depressed in other ways cuz I don't have that drive I need ta keep rollin. Sorta dam'd if ya do and dam'd if ya don't situation. But lotta that stuff made other sheeit worse. Pam ::)

Title: Re: Insomniacs, any of you?
Post by brain_cramps on Jan 7^th, 2003, 12:37am

thx so much for answering. i thought it was just me (or what Bob P said)

thx,
grant

Bob P.
tell me more about the hypothamalumi, hippopotami or WHATEVER THEY CALL IT ??? ??? ???

Title: Re: Insomniacs, any of you?
Post by StanTheMan on Jan 7^th, 2003, 8:27am

Yes!

I've had sleep troubles since I was about 25 -- I've had CH since I was 32.
Just finished my last cycle in late October. But sleep is still a battle. Some nights OK -- other nights it's just plain lousy -- even with medication.
Since I learned some stuff at this site about how CH can affect seratonin levels, etc., I at least have been able to make some sense of this insomnia.

Regards to all and prayers for PFDAN to all...

StanTheMan :)

Title: Re: Insomniacs, any of you?
Post by catlind on Jan 7^th, 2003, 9:48am

Grant,

I'm an insomniac, as well as various other adjectives LOL
I also have sleep apnea, and when they did their little ole sleep study on me, called a code blue cause I quit breathing and they couldn't wake me up LOL. I woke up and wondered what the hell all the commotion was!

The results were that I don't spend enough time in REM sleep. Prolly why the beast doesn't always get me at night. I'm in and out of REM sleep frequently, but never for any length, and I was told, that was probably why I was able to control my dreams. *shrug* The entire medical community has decided I'm an 'interesting' anomaly. Interesting is a BAD thing when it comes to Dr's.

I did best when I was running 20 hours a day as a single mom trying to put myself through school. 3-4 hours sleep a night and I was probably my most energetic during that period.

Who knows, my pituitary gland is messed up as well as my hippothalamus ;)

Cat

Title: Re: Insomniacs, any of you?
Post by Brassbear on Jan 7^th, 2003, 9:58am

I had insomnia for about 3 moths before this cycle began. It's been 31 days now, and I'm still in cycle. This may sound stupid but I actually get more sleep now than I did before this started. The beast almost always clobbers me during the day. I've only been hit at night three times.

Michael

Title: Re: Insomniacs, any of you?
Post by brain_cramps on Jan 7^th, 2003, 11:22am

on 01/07/03 at 09:58:45, Brassbear wrote:

The beast almost always clobbers me during the day. I've only been hit at night three times.

During the last couple cycles, I've rarely got hit during the day at all. Just all night, every night. >:(

Title: Re: Insomniacs, any of you?
Post by cootie on Jan 7^th, 2003, 2:17pm

brassbear........ya need ta get rid of them 'moths'....they'll eat holes in yer clothes !!! (in yer last post).....hee-hee-hee........Pam ;)

Title: Re: Insomniacs, any of you?
Post by firebrix on Jan 8^th, 2003, 2:57am

Yes. Mopar has always been a restless and light sleeper, often going weeks on two or three hours each night. It was never any trouble for him to work nightshift, or to work a double shift, indeed he seemed to thrive on it while we all faded and begged for ever-stronger coffee.
This of course, was prior to CH entering our lives. Mopar's chronic.
Now he's understandably afraid to go to sleep;he delays going to bed in case he gets hit soon after he's got there, and still manages to hold it all together on less sleep than most humans. When he awakes, it is as tho' he has never been asleep - he is running on all eight cylinders from start-up. It always takes me two cups of tea at least before I'm human.
As we learned more from this site and Ouch we realised that its all to do with serotonin. Or at least some of it!
It's an interesting little neurotransmitter.
Good to meet you brain_cramps!
firebrix