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        New Message Board Archives >> Jan-Mar 2003 >> Cluster headaches ??  Help
        
(Message started by: halkamp on Jan 5^th, 2003, 9:42am)

Title: Cluster headaches ?? Help
Post by halkamp on Jan 5^th, 2003, 9:42am

Hi everyone,

Just found htis website a couple of weeks ago.
Don't know for sure if this is my problem, but after taking the cluster quiz I'm pretty sure.
Have spent a few thousand dollars in the past couple of years with my dentist thinking it was (TMD). Had teeth extracted, nite gard, bite alignment. Headaches went away for about 7 months and then returned.
Have been suffering these unbearable pains for roughly 10 years.
Saw my doctor ( General pracitioner) a couple of months ago. He prescribed some Vicodin. No help. Pain usually lasts from 10 minutes to an hour about 3-5 times a week. Have done a lot of dancing. How do I convince my doctor or myself that CH is the problem? Any help would be appreciated.

Thanks,

Harold ??? http://URL ???

Title: Re: Cluster headaches ?? Help
Post by Silver_Dolphins on Jan 5^th, 2003, 9:53am

Have you told you GP that you think you have CH? If so, did he/she dismiss it?

I would get an appointment with a neurologist. Try to find one that is familiar with CH.

Until you can get to the neuro, become familiar with this site. There is a ton of information in the archives that you will find useful. The folks here are amazing. The information that they can give you for help in treating this condition is terific.

Visit the OUCH site. The link is on the left habd side of this page highlighted in yellow.

Welcome aboard.

PFDAN

Silver Dolphins a/k/a Barry

Title: Re: Cluster headaches ?? Help
Post by halkamp on Jan 5^th, 2003, 9:59am

Hi,

Told my GP that I thought I had CH. a couple of weeks ago.
He wasn't convinced. Think I'll call him tomorrow and see if he will sent me to a neurologist. The joys of having PacifCare.

Thanks,
Harold ::)

Title: Re: Cluster headaches ?? Help
Post by ave on Jan 5^th, 2003, 10:26am

Harold, if you vivit the OUCH site (yellow button on the left) you can also find a list of ch-friendly docs. May be helpful.

And sadly welcome here, but you have fallen amongst the best specialist in the country, lol.

Title: Re: Cluster headaches ?? Help
Post by Ree on Jan 7^th, 2003, 1:16pm

Ask for a sample of imatrex... if you get hit take it and see if it aborts... In my headache experience... if its sinus or teeth pain... the imatrex wont work and if its meningitis it wont work. Imatrex will abort a migraine or a CH attack... ((sometimes it doesnt if your in the peek of your cycle)) but its worth the chance to see...

Start to log your Headaches also and see if they form a cycle... also do your Headaches wake you up out of a sound sleep?or... come on during a relaxing time???

Tell your doctor all of the information you have as well as
information you get here... to qualify yourself in the game that no one wants to play... Welcome to our family~~~ let us know what happens... Ree

Title: Re: Cluster headaches ?? Help
Post by cecile on Jan 7^th, 2003, 1:44pm

Oh yeeeees, RUSH to a neuro !!!

I lost my time and my health for years in generalists and other ENT specialists, they get me operated 3 TIMES for NOTHING !!!
the only one who "discovered " CH was a neurolog

Good luck for you and welcome in here (it's really helps to cope with our pain)

Cécile