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        Cluster Headache Help and Support >> Getting to Know Ya >> Here to help!
        
(Message started by: mfleig on Mar 11^th, 2008, 10:33am)

Title: Here to help!
Post by mfleig on Mar 11^th, 2008, 10:33am

Hello, Everyone!

I have recently found out about this website through the many sufferers who have contacted me to purchase parts. I am the Operations Manager for Sea-Long Medical Systems and am using the information you have offered to research the masks and other related items you require. I would like to be able to carry everything to make purchasing easier.
Can someone please let me know how you are attaching the Humidifier Bottle to the Mask set-up?
Thanks-I'll keep everyone posted on what I am able to carry. M

Title: Re: Here to help!
Post by Yorky on Mar 11^th, 2008, 10:55am

Hello, Everyone!

I have recently found out about this website through the many sufferers who have contacted me to purchase parts

yea, well i will have a new hypothalamus mate :)

what other parts do you do ?

i have a dodgy right knee :)

Title: Re: Here to help!
Post by Superdave on Mar 11^th, 2008, 11:37am

HI M.,
Happy to hear from you. Thank you for helping me with the parts I needed recently to build my clustermask, you were very helpfull and the delivery was only a couple of days. I haven't determined how to attach the humidafier to my o2 set up just yet, hopefully your post will give me some insight on how to do this. :)

Hey everybody, M. knows who we are, and wants to help us when we need parts for our oxygen mask. Please welcome her warmly.

She may have some other inovative ideas to help us build a better mask. So if you have Ideas or questions for her please post up. She is here to help.

Thanks Superdave 8)

Title: Re: Here to help!
Post by Guiseppi on Mar 11^th, 2008, 11:58am

Thanks for referring her, apologies to her if we come on strong! ;) We get a lot of unscrupulous souls looking to make a buck off of our friends, we tend to get real hostile towards those types!

If you're recommended by Dave that's good enough for me.

Guiseppi

Title: Re: Here to help!
Post by Yorky on Mar 11^th, 2008, 1:36pm

sorry m.
daves recomendation, is good for me too :)

Title: Re: Here to help!
Post by mfleig on Mar 11^th, 2008, 3:07pm

No problem. I am researching mask alternatives and will keep other ideas in mind. Most of our items deal with the Hyperbaric Oxygen Treatment Industry but all areas of oxygen treatment seem to link parts together. Thanks, SuperDave for the nod of approval. We haven't figured out the Humidifier bottle attachment yet but saw they were recommended for purchase on this site.

Title: Re: Here to help!
Post by George_J on Mar 11^th, 2008, 3:21pm

Welcome, m. (I feel as if I'm addressing an Ian Fleming character. ) ;)

In the past, we've had some discussion about the relative virtues of high-flow regulators vis a vis demand regulators. Both appear to work--those using demand regulators report that they are more thrifty of oxygen than high-flow regulators. Obviously, they will require different setups and masks.

Any chance you might elaborate a little bit on that? I'm contemplating what sort of setup to put together for my next cycle, and I'm sure others would be interested in what you have to say as well.

Thank you.

Best wishes,

George

Title: Re: Here to help!
Post by Annette on Mar 11^th, 2008, 5:42pm

Hello and thanks for helping.

From what I understand the humidifier or the water bubbler is not attached directly to the mask but via the tubes, so that the oxygen mixes with the water vapour before reaching the mask so its not too dry.

Water bubbler is not available in Australia and my husband had to make his own.

It looks like this

http://i18.photobucket.com/albums/b149/bargainbazzar/DSC01660.jpg

Hope that helps.

Title: Re: Here to help!
Post by thebbz on Mar 11^th, 2008, 10:02pm

You may want to let the webmaster know your sellin parts here.
If you haven't already.
http://i11.photobucket.com/albums/a162/thebbz/O2regulater012.jpg
Has to be a high flow to handle the pressure of 15 lpm
thebb

Title: Re: Here to help!
Post by Linda_Howell on Mar 11^th, 2008, 10:41pm

http://www.mushys.com/O2/mymask.html

Title: Re: Here to help!
Post by mfleig on Mar 12^th, 2008, 8:35am

Thanks for the photos-they are very helpful. I will take all this information to technical today and see if there are any other suggestions on set-ups or mask options. I will post any new details as I get them.

As for selling parts and notifying the webmaster, I'm new at communicating this way so point me in the right direction-I've taken an interest in your condition due to the number of people I have spoken with and think my company may be able to assist with setups due to the extensive research we do in these areas. Please don't let me get into trouble.

As for bubblers in Australia, I can take care of that. If you want additional details SuperDave kindly posted the information to reach me.

George J-I will get back with you on the question. As you see, I'm not the technical genius, just the translator.

Thanks for the warm welcome! M

Title: Re: Here to help!
Post by Kaib on Mar 12^th, 2008, 10:26am

Not that I'm that kind of guy now, but...15 years ago, I would have said "that's one hell of a bong".

Thanks guys.

Title: Re: Here to help!
Post by Ray on Mar 12^th, 2008, 12:04pm

M:

Here's my demand regulator rig, just to contrast the photographs. I will answer a PM if you have any questions...

http://i242.photobucket.com/albums/ff287/raymond759/DemandValve.jpg

Ray

Title: Re: Here to help!
Post by Jonny on Mar 12^th, 2008, 5:00pm

http://im1.shutterfly.com/procserv/47b4d600b3127cce9fbec1662f7800000016108AZM2bNk5bM6

http://im1.shutterfly.com/procserv/47b5df01b3127cce9fbec13b5f3600000016108AZM2bNk5bM6

Title: Re: Here to help!
Post by Kirk on Mar 12^th, 2008, 8:22pm

I hope this helps.
http://img.photobucket.com/albums/v285/Kirk511/083942.jpg
A bit blurry. But I think you get the idea.
[smiley=smokin.gif]

Title: Re: Here to help!
Post by Annette on Mar 12^th, 2008, 11:49pm

M

The regulator is different here in Australia. I can get the bottle but cant get the right connection.

http://i18.photobucket.com/albums/b149/bargainbazzar/DSC01661.jpg

I have spoken to the product manager at BOC in Australia and he tried for 3 weeks without able to get the right connection for the bubbler.

Title: Re: Here to help!
Post by mfleig on Mar 13^th, 2008, 8:49am

Thanks for all the photos everyone! We understand now. As for proper fittings in Australia, if you can tell me exactly what you need I can research my suppliers here.

George, a demand regulator would be a good bet.

I have calls out everywhere for samples of things to see what I can put together as a kit for you guys but the process will take me a month or two. I will cetainly keep you updated.

FYI-the webmaster has given me the green light to post.

M

Title: Re: Here to help!
Post by thomas on Mar 13^th, 2008, 8:52am

on 03/13/08 at 08:49:31, mfleig wrote:

Great news all around, welcome to the team.

Title: Re: Here to help!
Post by Jonny on Mar 13^th, 2008, 9:56pm

on 03/13/08 at 08:49:31, mfleig wrote:

but the process will take me a month or two.

M, thats is just a blink of the eye for most of us!

Thank you!!!! :-*

Title: Re: Here to help!
Post by Barry_T_Coles on Mar 13^th, 2008, 10:26pm

on 03/12/08 at 23:49:50, Annette wrote:

M

The regulator is different here in Australia. I can get the bottle but cant get the right connection.

I have spoken to the product manager at BOC in Australia and he tried for 3 weeks without able to get the right connection for the bubbler.

I'm suprised you couldn't get a fitting from BOC; if you take a photo of what you are connecting it to I will have a look here in Karratha & will probably be able to get one off the shelf or if not straight up overnight, or I may even have the fitting myself.

Cheers
Barry

Title: Re: Here to help!
Post by Annette on Mar 13^th, 2008, 11:15pm

Barry, this is what our regulator and the connection looks like. Its what supplied by BOC.

http://i18.photobucket.com/albums/b149/bargainbazzar/DSC02937.jpg

When I ordered the bubbler, I was sent a bottle that looks exactly like the one BBZ posted but you cant attach it to the regulator.

I rang BOC and they told me I have to order a special connection/adaptor for it. I placed the order and waited for 2 weeks, nothing came. I rang them back and they put me through to their product manager Danny Chard. He was very nice and helpful, he explained to me that I needed the converter from a white to green nipple ( not sure what that meant but that was exactly what he told me ). He checked their Melbourne warehouse and they didnt have any. He took 3 weeks to search for some and finally told me they didnt have any and that it would cost too much to import from US.

If you can get your hand on one for us it would be much much appreciated. Thanks heaps :-*

Title: Re: Here to help!
Post by RichardN on Mar 13^th, 2008, 11:52pm

Hi again "M"

Your name and company name have already been posted . . .just forgot who posted it . . . which is how I recently contacted you.

I do want everyone to know that you referred me to "mushys" for the replacement masks I need for my Clustermasx and advised me of your interest in our condition. . . . and also advised that the only mask you carried would probably not fit our needs.

We have a friend here folks . . . who's willing to put together the system(s) WE need.

And "M" . . . did you get the screen cleaner I sent you?

Thanks for your efforts,

Be Safe.

Richard

Title: Re: Here to help!
Post by Barry_T_Coles on Mar 14^th, 2008, 4:42am

Annette
Had a look at Thebzz bubbler it looks like they have a screwed thread in them so i'll need a bit more info & rather than clog the board up i'll PM you.
Barry

This is the one I use; its a plastic cool drink bottle with two holes drilled in the top just slightly smaller than the tube, the yellow thing is an air stone from the pet shop & just distributes the air in a finer form.
All up cost about $2.
Edited to add: This type of bubbler cant be used with a demand valve setup.

http://www.mushys.com/kiwi/bubbler2.jpg
Cheers
Barry

Title: Re: Here to help!
Post by thebbz on Mar 14^th, 2008, 9:30pm

Geez Barry let me know I may have an extra around. You can dissect it. ;) There are two types I know of. One has a pressure relief at 8 lbs.(low flow). And the one you want has a pressure relief at 15 psi. (high flow). I tried the low flow and at 10 lpm the pressure relief goes off. PSSST.
all the best
thebb

Title: Re: Here to help!
Post by Callico on Mar 15^th, 2008, 11:45am

Welcome M, and thanks!

Jerry

Title: Re: Here to help!
Post by Linda_Howell on Mar 17^th, 2008, 8:06pm

M...

I have recently had someone contact me who tried to order a few things from Seacrest. Hose, adaptor, Mask, and a few other things that I don't have... tosend her. She placed her order and was told she needed a script in order for her order to be processed.

That boggles my mind. Is this true?

I understand needing a script for 02 and one usually gets everything one needs at that time..but she is simply trying to get a few plastic parts, if you will... and now cannot.

Any help is appreciated.

Linda Howell

Title: -Re: Here to help!
Post by mfleig on Mar 19^th, 2008, 12:36pm

I do not need a script for parts.

M-

Title: Re: Here to help!
Post by thebbz on Mar 19^th, 2008, 4:45pm

Quote:

Posted on: Today at 9:36am
I do not need a script for parts.

M-

So we would have to contact you personally for purchases? What happens if you die? ;;D Do you have a link for parts and pieces available without a perscription? I could use some parts where do I go?
thebb

Title: Re: Here to help!
Post by Linda_Howell on Mar 19^th, 2008, 5:31pm

Check your PM's John.

Title: Re: Here to help!
Post by mfleig on Mar 20^th, 2008, 8:19am

Well, hoping not to die anytime soon, but anyone here would be happy to help. Parts can be purchased through www.sea-long.com but you can only get fantastic customer service with a Kentucky twang by giving us a call.

We are really excited about helping ya'll (Kentucky for "everyone") out!
M-

Title: Re: Here to help!
Post by brewcrew on Mar 20^th, 2008, 9:48am

on 03/20/08 at 08:19:27, mfleig wrote:

Go Marquette!

Title: Re: Here to help!
Post by Mr. Happy on Mar 20^th, 2008, 3:51pm

on 03/19/08 at 16:45:20, thebbz wrote:

Do you have a link for parts and pieces available without a perscription?

On the parts page (http://www.sea-long.com/products/parts.html), they have a really cool button that looks like this - http://www.sea-long.com/images/add_to_cart_btn.gif

It's Up County!
RJ

Title: Re: Here to help!
Post by thebbz on Mar 21^st, 2008, 5:11pm

We'll be talkin to ya'll soon. he..he..he Ya'll
thanks for all the hep ya'll.
thebb 8)

Title: Re: Here to help!
Post by mfleig on Mar 26^th, 2008, 2:28pm

For those of you using masks, do you use a headstrap as well or simply hold it to your face?

Thanks for the input,
M-

Title: Re: Here to help!
Post by Guiseppi on Mar 26^th, 2008, 3:00pm

We encourage people to cut the straps off of the re breather masks. The concern is they'll fall asleep, the 02 tank runs dry and the concern is with suffocating.

Guiseppi

Title: Re: Here to help!
Post by mfleig on Mar 26^th, 2008, 5:04pm

Thanks!

M-

Title: Re: Here to help!
Post by thebbz on Mar 26^th, 2008, 7:42pm

I have a tube with a mouthpiece and a mask attachment. See the photo.
thebb

Title: Re: Here to help!
Post by mfleig on Mar 27^th, 2008, 7:46am

I don't see the photo. But that brings me to another question-Do you prefer a mouthpiece to a mask and if so, do you feel you get the same results with it?

M-

Title: Re: Here to help!
Post by brewcrew on Mar 27^th, 2008, 8:07am

I use only the mouthpiece. No chance of leakage around the edges, and it just feels better. Also easier to transport in a purse or briefcase.

Title: Re: Here to help!
Post by LeeS on Mar 27^th, 2008, 9:59am

I have used both but prefer the cushion mask.

Something to to with a greater 'feeling' of security - may sound a bit weird and a bit girly; but not as girly as Brew's purse ;)

Others have reported that they don't like the claustrophobic feeling of the mask and others like biting the mouthpiece hard whilst inhaling. Each to their own - but I think both options should be made available, as Ben did with the clustermasx.

Thanks with all your help on this M. Not sure if anyone has asked, but do you ship to the UK?

-Lee

Title: Re: Here to help!
Post by mfleig on Mar 27^th, 2008, 4:44pm

Thanks for all the input. I will get a mouthpiece sample in here as well. Don't think it will be any issue at all.

I can ship anywhere in the world as long as the country doesn't have import restrictions. I also have a distributor in UK that can help but I will have to make sure he has all your parts in stock if you are interested.

Thanks for the help everyone. Samples of the masks you reference are arriving daily and I will get a mouthpiece in here shortly. Stay tuned...

M-

Title: Re: Here to help!
Post by brewcrew on Mar 27^th, 2008, 4:47pm

Are you a Goddess? This is unbelievable.

Title: Re: Here to help!
Post by mfleig on Mar 28^th, 2008, 7:52am

No, not a goddess just someone with a heart to serve others. Thanks for all the kindness!

Title: Re: Here to help!
Post by LeeS on Mar 28^th, 2008, 11:34am

on 03/27/08 at 16:44:12, mfleig wrote:

I also have a distributor in UK that can help but I will have to make sure he has all your parts in stock if you are interested.

Most definitely - many thanks.

-Lee

Title: Re: Here to help!
Post by mfleig on Mar 28^th, 2008, 4:50pm

I checked and he doesn't carry all the parts. It will be less expensive for me to send them to you via postal service than to ship a few parts to him. If you want to order contact me at mfleig@sea-long.com on Monday. I am about to check out for the weekend.

Take care everyone and hope it is a peaceful one for you!

M-

Title: Re: Here to help!
Post by LeeS on Mar 29^th, 2008, 6:38am

Cheers M 8)

Title: Re: Here to help!
Post by thebbz on Apr 2^nd, 2008, 1:44pm

Bumpareeno.

Title: Re: Here to help!
Post by mfleig on Apr 2^nd, 2008, 2:25pm

Hi, Everyone!

I have tried to find breathing bags larger than 3-Liters but they aren't available. 3L is the medical standard so I hope these will work for you.

M-

Title: Re: Here to help!
Post by mfleig on Apr 9^th, 2008, 7:58am

Hi, Everyone!

Just wanted to let you know I forwarded some additional parts for your use to my distributor in England yesterday. He will have them as of Monday afternoon (April 14th). Let me know if this is a closer shipping location for any of you and I will have him contact you.

I have both mask samples that are referenced at mushy's but I'm still trying to obtain the mouthpiece. Apparently one style has been discontinued but I think we have another that will work exactly the same. Stay tuned and let me know if you need anything- mfleig@sea-long.com.

M-

Title: Re: Here to help!
Post by Superdave on Apr 9^th, 2008, 10:26am

M,

!!THANK YOU ..........THANK YOU .............. THANK YOU!!

Title: Re: Here to help!
Post by mfleig on Apr 23^rd, 2008, 9:07am

Hello, Everyone!

Just an update to let you know I am still tracking down the breathing tubes and need to get tubing info. Don't give up on me. There are a lot of suppliers involved and it just takes time to bring in new products.

Call or email me with any questions. I am checking this board several times a day for questions as well.

M-

Title: Re: Here to help!
Post by LeeS on Apr 23^rd, 2008, 10:25am

Thanks with all your help with the potential UK supply M. Roly has been in touch 8)

-Lee

Title: Re: Here to help!
Post by George_J on Apr 23^rd, 2008, 10:28am

Thanks for all your effort on this, M. It's much appreciated.

Best wishes,

George

Title: Re: Here to help!
Post by mfleig on Apr 23^rd, 2008, 10:38am

Great! Roly is very knowledgeable in HBOT and may have some useful insight on equipment for you. We will work closely to get anything we can to help your fellow sufferers.

M-

Title: Re: Here to help!
Post by mfleig on Apr 29^th, 2008, 7:54am

Good Morning, Everyone!

Can someone please tell me what fitting is being used to connect the tubing to the humidifier bottle? It isn't anything I carry and someone needs one. I would also appreciate knowing where to get them.

Thanks!
M-

Title: Re: Here to help!
Post by Mr. Happy on Apr 29^th, 2008, 9:07am

You can't connect a humidifier with tubing, unless you want to Rube Goldberg the whole contraption. The humidifier is connected directly to the regulator via the screw on fitting. Most cylinder type regulators have a tubing connection only. A regulator with the screw on fitting and tubing adapter (Christmas Tree) solves the problem!

http://mushys.com/pix/regulator.jpg

http://mushys.com/pix/bubbler2.jpg

Title: Re: Here to help!
Post by mfleig on May 6^th, 2008, 7:55am

Hi, Eveyone!

I would like to see one of the Clustermasks that is no longer being produced. Do any of you have one that isn't working any longer that you would be willing to send to me? I can send it back if necessary. I want to compare it to the one now being recommended on the mushy's link. If you have one, please contact me at mfleig@sea-long.com.

Thanks and have a good one~
M-