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        Cluster Headache Help and Support >> Getting to Know Ya >> Superdave New Cronic Guy
        
(Message started by: Superdave on Feb 10^th, 2008, 9:27pm)

Title: Superdave New Cronic Guy
Post by Superdave on Feb 10^th, 2008, 9:27pm

After 5 yrs, 5 different Medical Doctors, at least 10 Witch Doctors 1 divorce, 10 lbs. of zanex and lots and lots of headaches I've finally found you guys. Bitter sweet I must say, reality runs rampid here, at least I'm not alone in this thing anymore.

Please to meet you'all Superdave here, Cronic cluster headache sufferer of 5 1/2 years. 8)

You mean just in my head?

Title: Re: Superdave New Cronic Guy
Post by DennisM1045 on Feb 10^th, 2008, 9:44pm

Welcome to your 2nd home Dave. Glad you found your way here. I'm sorry you had to.

What else have you tried for meds Dave? What to you use to abort a headache? What preventatives are you using?

I'm episodic and my heart goes out to you chronic guys. I don't know how you do it.

Anyway, welcome. Let us know how we can help.

-Dennis-

Title: Re: Superdave New Cronic Guy
Post by Guiseppi on Feb 10^th, 2008, 10:41pm

Welcome to the nut house! What Dennis is saying, when you get a chance, let us know what meds you have tried, what's worked and what hasn't. There is a combined Gazillion years of experience on this board. Maybe we can tweak your routine to give you some relief.

Sorry you're hurting, we don't like when anyone is hurting, give us a chance to help you out!!!!

Guiseppi

Title: Re: Superdave New Cronic Guy
Post by Superdave on Feb 10^th, 2008, 10:48pm

Thanks for welcoming me Dennis. Its been quite a time over these last few years of being misdiagnosed mismedicated and blown off by nuorologist who become frustrated by my unknown condition. Its so amazing how these Doctors who claim to be headache specialist
can't recognize a cluster patient.
Any way I subdued the beast for years with valume zanex and soma, pretty much anything I could get my hands on to knok me out cold through the night. I was able to keep working but don't remember a thing :o
This past summer I found the right guy, He loaded me up with the usual verapamil, cafergot and steroids to give me 7 weeks of relief. After the those meds ran out
the beast was back in his usual form, basicly when I needed rest. Now they have me on sansert and migrainal. Told me to give about 3 months to take hold,
Its been about 9 weeks and I'm still batteling daily. Hard to say if it's doing any good at this point but at least I can remember yesterday! The migrainal works about 75% of the time but my nose really dose'nt seem to like it much, I get a lot of congestion after a good spray. And yes I will be at my local welding supplier tomorrow morning.

Wow!, it is so refreshing to converse with people about this monster that actually know what I mean. :)
Thaks Again Dennis

Title: Re: Superdave New Cronic Guy
Post by Guiseppi on Feb 10^th, 2008, 10:51pm

OXYGEN....OXYGEN...OXYGEN!!!!!!!

You'll hear that a lot around here! ;)

Guiseppi

Title: Re: Superdave New Cronic Guy
Post by Superdave on Feb 10^th, 2008, 10:55pm

Thanks Guiseppi,
I knew this cch bs would eventually wind me up in the nuthouse, I'm just glad the nuthouse is in my office @ home. Yea!!! :D

You really think it's just in my head?

Title: Re: Superdave New Cronic Guy
Post by Bob_Johnson on Feb 11^th, 2008, 8:05am

For chronic CH, Lithium has become a first round med of choice. Oxygen may be less effective for chronic, according to one authority.

This is the most current list of therapies:

http://www.plainboard.com/ch/chtherapy.pdf

Here is a link to read and print and take to your doctor. It describes preventive, transitional, abortive and surgical treatments for CH. Written by one of the better headache docs in the U.S. (2002)