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        Cluster Headache Help and Support >> Getting to Know Ya >> New here... and a question
        
(Message started by: gizmo on Jan 17^th, 2008, 5:03am)

Title: New here... and a question
Post by gizmo on Jan 17^th, 2008, 5:03am

Hi all!
My name is Oliver and I'm form Germany and I'm really, really glad I've found this site.

My Doc just told me that I'm most likely suffering from CH and sent me to the neurologist (I'll meet him on Tuesday next week).
I'm currently not sure when all this started, but it could be easily 15 years ago.

Question: Since the Doc didn't prescribe me anything I wonder what I can do until next week.
I already know from a long trial and error period that the usual analgesic don't help.
Melatonin is not an option since it isn't freely available in Germany.
Any ideas / hints?

Thanks and please excuse my bad English,
Oliver

Title: Re: New here... and a question
Post by Redbull_Junkie on Jan 17^th, 2008, 6:58am

Howdy oliver
down a can of Redbull as soon as you feel the head commin on
its worked for me for 90%of my hits
painfree wishes
Kev

Title: Re: New here... and a question
Post by gizmo on Jan 17^th, 2008, 7:09am

Thanks for the suggestion.
I really hate the taste but I'll sure give it a try.

Title: Re: New here... and a question
Post by chewy on Jan 17^th, 2008, 7:47am

http://www.ouch-us.org/chgeneral/nonmed.htm

Title: Re: New here... and a question
Post by hotprestwich on Jan 17^th, 2008, 11:25am

Get some 02-it works
you can order mellatonin online
have that coffe pot on all the time, its great,
workks for me but the redbulls dont,

Title: Re: New here... and a question
Post by imfareware on Jan 17^th, 2008, 5:31pm

Wie getz?

My O2 is helping me alot with my current cycle of CH's, mellitonine has helped at night, red bull and ice on the head. Good luck, I hope your pain free soon!

In the US Army I spent 3 years outside Stuttgart, and 3 years in Buedingen.

Title: Re: New here... and a question
Post by gizmo on Jan 18^th, 2008, 2:22am

> Wie getz?
Very well!

I've tried Red Bull last night and it helped me a lot - thanks Kev!
This was the first night for the last seven days with a few hours of sleep.
HURRAY!

Title: Re: New here... and a question
Post by GrandPotentate on Jan 18^th, 2008, 8:56pm

I found brisk walks helpful prior to finding out what these were and later getting hooked up with oxygen. It does not do much for the duration of the hit, but seems to knock it down a notch. Or maybe it jut gives me something to do besides suffering. Like oxygen, start as soon as you feel the first twinge of pain.

Your English is far far better than my Deutsch. perhaps you can fill us in on any news from the doctors over there. Two sites are:
http://ck-wissen.de/
http://www.clusterheads.de/

Please keep in touch!

Jon

Title: Re: New here... and a question
Post by gizmo on Jan 19^th, 2008, 6:05am

Thanks for the tip - I'll sure give it a try.

> perhaps you can fill us in on any news from the doctors over there.
> Two sites are:
> http://ck-wissen.de/
> http://www.clusterheads.de/

One thing I found is already mentioned in the "O2 question" thread (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=meds;action=display;num=1200579702).

Anyway, I'll have a look at them again and see if I can find some more useful information and post them here.

> Please keep in touch!

I will!

Oliver

Title: Re: New here... and a question
Post by Jonny on Jan 20^th, 2008, 12:55am

Do you know Ete?

Title: Re: New here... and a question
Post by gizmo on Jan 20^th, 2008, 6:24am

Title: Re: New here... and a question
Post by gizmo on Jan 22^nd, 2008, 2:31pm

Today the neuro confirmed the diagnose.
He prescribed me prednosine and ascotop (zomig), despite the fact that I demanded O2 >:(

To me the prednisone dose seams a bit high.
7 days with 50mg, 7 days with 40mg, 7 days with 30mg and so on.

For now I'll wait and see how good the ascotop works as an abortive.

Any further suggestions?

Title: Re: New here... and a question
Post by Stinger on Jan 22^nd, 2008, 6:32pm

I've always had to take the prednisone in high doses. I hate it. It makes me nervous and eat a lot. It only kicked the cycle out once in all my cycles.