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Title: Thank You Post by jbellino on Jan 10th, 2008, 8:06pm My name is Joe, I'm 32 and I suffer from these horrible headaches. I started getting them about 10 years ago, but none of the doctors I went to knew what they were. I made several trips to the ER, and contimplated the "s" word when nothing else worked(glad I just contimplated it). About a year and a half ago I went tot a Neurologist and he finally diagnosed what these damn things are. Not that knowing what they are helps with the pain, but at least I know. Anyway, he did the steroids, and the pain meds and the Imitrex injections which by the way are the only thing that helps me get rid of them. I usually get these headaches around the change of seasons. I am currently in my "cluster" time and have had at least 2-3 a day since the first of Dec. Unlike most of what I have read in here and on the internet, I cannot set my clock by these things. They come and go as they please with alot of them being around 2-3am. I am so miserable when I get them, and fell real bad after they have gone away. The worst one this time was Christmas Eve. It started about 5pm and did not get rid of it until 3pm the 26th. I did the shots, I took OTC meds, I paced and showered and you name it I tried it, but nothing worked. It finally went away only to come back the next day. Do any of you know if there is a cure, or if there is anything surgically they can do to stop the headaches from reoccurring? If you do please let me know, I don't want to be giving my self a shot for the rest of my life, or taking pills forever. Thank you so much for putting this site out here for people who suffer from the most excrutiating pain in the world. Joe |
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Title: Re: Thank You Post by vietvet2tours on Jan 10th, 2008, 8:18pm Get oxygen and toss the drugs. Potter |
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Title: Re: Thank You Post by jbellino on Jan 10th, 2008, 8:56pm I am going to get the O2 tomorrow, I have tried it a few times at work and it helped. I have been reading the posts on here and some of these stories have brought tears to my eyes knowing that I am not the only one to suffer from these things. |
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Title: Re: Thank You Post by tessistired on Jan 10th, 2008, 8:59pm Hi there Joe! Welcome to the family! So glad you found us but I am sorry it is under these circumstances. If you haven't already done so...check out the OUCH web site...on the left of the screen you will see links hilighted in yellow and you can click on it and get lots more valuable info. No there is no cure yet for cluster headaches but by golly Lord willing there will be one day!! Have you seen your neuro within the last yr and a half?...Are you on any preventative meds such as verapamil, Topamax, or Lithium? If not it would be a good idea to talk with your neuro about a treatment plan of attack. Let us know what you are currently doing to prevent your ch's and we can try to help you. We are here to support you in any and every way possible. I wish nothing but the best for you! PAIN FREE DAYS AND NIGHTS ALWAYS TESS |
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Title: Re: Thank You Post by jbellino on Jan 10th, 2008, 9:07pm I have not seen the neurologist since last may, but I have seen my family doctor two weeks ago and he prescribed the O2 and Diltiaz. I ahve tried the Verapamil, but it didn't seen to help much so he stopped them. The only other treatment I am doing is the shots, when I have one available. |
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Title: Re: Thank You Post by artonio7 on Jan 11th, 2008, 1:51am Hello Joe, Nice to meet you. Sorry that you're going through this now but you're in a good place. If you have a prescription for oxygen that's a great thing. Get yourself a Clustermax (a really wonderful non-re-breather mask) and be sure to read about the proper way to use the oxygen you can find great info on the OUCH site as Tess said. Glad that you found your way here Joe. Stick around. with warm regards, Tony |
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