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        Cluster Headache Help and Support >> Getting to Know Ya >> Howdy All
        
(Message started by: Redbull_Junkie on Jan 5^th, 2008, 12:33am)

Title: Howdy All
Post by Redbull_Junkie on Jan 5^th, 2008, 12:33am

Hello all
little bout myself>
been a clusterhead for thirty painfull years now,i get a cycle about every two years,they last about three months a time
found these boards around 2002 thought i might aswell join up and join the family
discoverd redbull this cycle it aborts 90% of my hits
also take 12mg melatonin wich helps with the nightime hits
painfree wishes to you all
Kev

Title: Re: Howdy All
Post by artonio7 on Jan 5^th, 2008, 1:49am

Nice to meet you Kev.

Sorry that your'e going through this though and glad that you're finding some relief with red bull. Have you been to a neurologist concerning your condition? Have you been diagnosed with CH?

with warm regards,
Tony

Title: Re: Howdy All
Post by DennisM1045 on Jan 5^th, 2008, 8:00am

Hi Ken! Welcome to the family. Sounds like you are coping. Please let us know more about how you wrestle the beast. We only learn through sharing what works and what doesn't for each of us.

-Dennis-

Title: Re: Howdy All
Post by Guiseppi on Jan 5^th, 2008, 12:06pm

Welcome to the board, you didn't mention oxygen! The first line abortive for many here, it's been the miracle fix for me. 6-8 minutes huffing the 02 and I'm pain free. Certainly worth a shot. So glad you found us.

Guiseppi

Title: Re: Howdy All
Post by Barry_T_Coles on Jan 5^th, 2008, 7:30pm

Hi Kev
Welcome home: Yanchep eh, hell I was only down your way for a week just before Christmas, we have a 5 acre property near Guilderton just off the Wannaroo/Lancelin road, I took a caravan down there to live in when we do our annual pilgrimage to the smoke in April, maybe we can catch up when I’m down next (Oh I’m from Karratha by the way)
From your post it doesn’t sound like your getting hit right now & I hope it stays that way for you.

Cheers
Barry

Title: Re: Howdy All
Post by imfareware on Jan 5^th, 2008, 9:47pm

Hello, I'm also new to this site, but not to CH, 20 plus years for me. I never heard of the melatonin, gonna pick me some up in the morning. Right now I'm at the beginning of my cycle (about every 2 years I've been averaging for 6 years now). Hang in there.

Title: Re: Howdy All
Post by RichardN on Jan 6^th, 2008, 12:13am

Welcome to Clusterville Kev

I've been here since 2/02 and these guys gave me my life back.

Read, read, read . . . tons of info here and caring folk who truly know your pain.

Be Safe, PFDANs

Richard

Title: Re: Howdy All
Post by Redbull_Junkie on Jan 9^th, 2008, 4:03am

Thanks for the welcome
Barry i'm mid cycle at the moment,but have been taking redbull three times a day for the past two years(since my last cycle ended),i think it has helped as i am able to abort a hit with two cans but my shadows seem to be stronger than i remember them to be,and nuthin seems to get rid of them
Have noticed a few strange things this time though:
1, usualy i love the taste of redbull but it makes me feel sick when i down it at the onset of a hit?
2,i have a stong craving for liquorise
3,for some strange reason i can have a beer without it trigering an attack,the smell of alcohol used to trigger me
4,my 1am wake up has now changed to 5am since starting the melatonin

don't know if any of the above has anything to do with redbull but this is the strangest cycle ive ever had,and the most painfree apart from the constant shadows,and my hit times are no longer predictable.

btw ive tried topamax as a prevent but didnt like the side efects,also had pred tapers and a few things i dont remember now,most of wich have worked after a month or so but
im trying to get through this cycle without to many meds,i do carry trex with me and have only had to use it twice so far,and no er visits this time eighther.

have a lot of muscle pains in shoulders and neck but not sure if they are anything to do with the clusters or just old age.

best painfree wishes to you all
Kev

p.s Barry give us a holla when your heading down this way would be nice to catch up...
pps have used o2 before BUT i'm a smoker and the first thing i do as the beast retreats is light up....i live in a one room van!nuff said..

Title: Re: Howdy All
Post by vietvet2tours on Jan 9^th, 2008, 10:48am

on 01/09/08 at 04:03:45, Redbull_Junkie wrote:

pps have used o2 before BUT i'm a smoker and the first thing i do as the beast retreats is light up....i live in a one room van!nuff said..

Enuff said? I think not. Put the tank outside and huff away. Get oxygen.

Potter

Title: Re: Howdy All
Post by AussieBrian on Jan 9^th, 2008, 7:29pm

on 01/09/08 at 04:03:45, Redbull_Junkie wrote:

2,i have a stong craving for liquorise

Copied from a post by the lovely Sandie99 who secretly wants to have my babies -

"Finnish candy manufacturer Panda has just launched one interesting product: a licorice bar with caffeine, taurine and guarana! It's called Super Pepe.

Now, that 50g bar contains 105g of caffeine and 200g of taurine, the amount of guarana is not mentioned. The bar has clear warnings: not for kids and do not eat more than 3 bars per day.

I saw that bar for the first time today and got one. The next time I'll get shadows, I'll check out if it helps. If so, then it comes in more convenient form than some other treatments and hopefully, the taste will be a good one...

Sanna

Title: Re: Howdy All
Post by tessistired on Jan 10^th, 2008, 9:32am

Hey there Kev!

Welcome to the family!

Sorry you've been with the beast for so long but glad you found us here. I know you can learn so much hear and there is so much support here for you! Everyone is absolutely wonderful and knowledgeable (sp) and we will do what we can to help you so share what info you have and learn lots!

PAIN FREE WISHES FOR YOU ALWAYS AND MANY BLESSINGS

Tess