|
||||
|
Title: Room for one more??? Post by Ten on Jan 2nd, 2008, 8:57pm Hey guys, not only am I new to this site im also new to this whole tinter web thingy too. So bear with me and i'll apologize now for any slip ups I make. One thing I am not new to tho is CH which i've been all too familiar with for the last ten years my longest cycle to date lasting about six weeks. What amazes me is that ive only just really discovered what CH really are, just now in the last ten minutes and believe me ive been to the emergency room with my skull crushed between my palms and seen countless doctors. Now i'm not trying to be a tough guy. I realize everyones experience is personal and maybe im just lucky. Maybe my pain aint that bad but not once in 10 years have I ever cried about my pain. Banged my head off the floor/wall sure. Tried to crush my skull sure. Thought about plunging a a power drill thru my face to relieve the pressure sure. Even thought about taking one pain killer too many but I never ever cried. I didn't want to let it win, didn't want to give in didn't want to seem weak. I'd been on this site for about 30 seconds and I wanted to cry. The relief was immense. I felt empowered, I felt validated I wanted to climb to the top of the tallest building around shake my fist and scream "SEE ITS NOT JUST A FUCKING HEADACHE" Thank you guys. Just for being here. Thats all it took. I've never before even met another person who suffers like we do. To find out I had an entire family that I didn't even know about almost broke me. My heart goes out to each and every one of you brave brave people. And man women and child if it all gets too much then come lay your head on my lap and i'll stroke it til the cows come home. I KNOW how you feel. More importantly for me is that you KNOW how I feel. I am sick to death of the blank stares, faked concern and complete lack of knowledge about this condition. It's nice to finally find a bunch of people that actually care. But then when you live with what we do how could you possibly not. Keep your chin up peeps and don't let the bastards grind you down. Yours in pain David. XXX |
||||
|
Title: Re: Room for one more??? Post by Linda_Howell on Jan 2nd, 2008, 10:21pm Never cried eh? Well then you don't belong here, cause you'll probably laugh at all of us who have.... including the big tough guys on the block here. Just kidding ....sort of. There is no disgrace in crying when you are suffering the worst pain known to man. None at all. You are no longer alone my friend. You are among others who know exactly what you are going through. |
||||
|
Title: Re: Room for one more??? Post by RichardN on Jan 2nd, 2008, 10:26pm Hi David & Welcome Home I had the same reaction when I came here 2/02 . . . at the end of my rope . . . and found that not only was I not alone, but that these folks had the info/ammo to help me get my life back. Do you have 02? A miracle for those of us it works for (over 70%). I can't take Imitrex (artery blockage and high cholesterol, so 02 is my only abortive . . . can usually kill the beast in minutes if used early on in the attack. Helen (Le Limey) will be along soon. She is totally equipped to help you deal with the UK medical system. So glad you found us. Let us know more about you and how you've coped with our beast (what's worked, what hasn't). Read, read, read . . . and ask any questions you might have . . . the answers you will get here come from folks who truly know your pain. Be Safe, PFDANs Richard |
||||
|
Title: Re: Room for one more??? Post by Ten on Jan 2nd, 2008, 11:20pm I really dont wanna be quite so controversial with whats only my second post on here, but I have to disagree with you on a coupla points Linda. Firstly I DO belong here. I've wanted to be here for the last ten years. Second I would never laugh at anybody crying about anything. I have spent many a night sat in tears after an argument with a loved one or a breaking up with a girl I loved. like I said everyones experience is personal and maybe im just a little luckier then most, I wasn't trying to belittle or trivialize anybody elses experiences I promise. Finally as bad as they are (certainly the most intense physical pain I have ever known) I know that there are things out there that are both physically and mentally a whole lot more painful. And compared to the guys going thru them we as a whole are the lucky ones. I'm not here for your judgement I can get plenty of that here. I ask only what I give. Love and support. Apart from that. Thankyou both so much for your kind words. I'm gonna take a little time to find my way around here now so i'll post again tomorrow and let you all know a little more about me. Took me a little while to realise what you meant by o2 Richard but i've just seen the tab at the side that says oxygen info haha. I'm so impatient I should have had a good read before I started bothering you all. Just couldn't wait to meet ya lol. Keep smiling folks and thank you so much for being there I really wasn't expecting a reply this quickly I know that you know how much it means to me. xxx |
||||
|
Title: Re: Room for one more??? Post by Linda_Howell on Jan 2nd, 2008, 11:47pm If this is what you're refering to.... Quote:
Then I guess you are correct in that you need to read a bit more around here. I suspect in about 1 to 3 days of reading you will understand what I was trying to say. ;;D No judgements, Linda ;) |
||||
|
Title: Re: Room for one more??? Post by Ree on Jan 2nd, 2008, 11:56pm Linda was only kidding... Ten welcome to the family. We already have our tough guy though so you will have to be the second tough guy around... ( see we all have a sense of humor) My name is Ree. My husband is a CH sufferer for over 20 years we stopped counting. He recently ended a cycle that was about 16-17 weeks. His longest cycle has been about 7 months so we were glad for the shorter version. You will find a wealth of information here, as well as many friends that share this horrible bond with you. Be well and pain free tonight... Ree |
||||
|
Title: Re: Room for one more??? Post by Linda_Howell on Jan 3rd, 2008, 12:04am At least Ree knew what I was saying. ;) |
||||
|
Title: Re: Room for one more??? Post by RichardN on Jan 3rd, 2008, 12:22am Just that slightly different sense of humor . . . if you watch BBC much, I tend to find some routines hilarious, while others I evidently just don't "get" (though obviously appreciated by the live audience) Helen will clue him in on our "oddities"? |
||||
|
Title: Re: Room for one more??? Post by George_J on Jan 3rd, 2008, 12:28am Hi David, Welcome home. [smiley=wave.gif] Best wishes, George |
||||
|
Title: Re: Room for one more??? Post by kcopelin on Jan 3rd, 2008, 1:41am Welcome home David! Remember, a burden shared is no longer a burden, and you are no longer alone. Most of us could finish each others sentences, and even though we respond to different meds, or react to the pain differently, the understanding runs deeper than the differences. ((hugs)) kathy |
||||
|
Title: Re: Room for one more??? Post by DennisM1045 on Jan 3rd, 2008, 9:44am Hi David, There is always room for one more. Welcome to your new home. -Dennis- |
||||
|
Title: Re: Room for one more??? Post by Guiseppi on Jan 3rd, 2008, 10:20am Welcome to your new second home ten. You'll find we kid and tease each other a lot here. You've already met Linda, she'll drive 1,000 miles in a blizzard to bring you a trex shot if you needed it! When you get a chance, tell us a little about what you've used for treatments in the past, what has and hasn't worked for you. This board is a constant work in progress. I'm forever amazed at how much stuff we learn from each other. Maybe you'll teach us something, maybe we'll give you something new to try! It is a great feeling the first time you log on here and realize you'll NEVER be alone again. Welcome. Guiseppi |
||||
|
Title: Re: Room for one more??? Post by Ten on Jan 3rd, 2008, 12:25pm Im so sorry for being so tetchy guys. Im sorry I misunderstood your post Linda honestly I am. I do have a sense of humour I swear im british for goodness sakes! haha (see) Was just up late and a bit cranky. I was so so pleased to find this place, so pleased to finally find a home, a place where I know im understood, and I thought for a second I was being asked to leave after my first post!! like oh fuck! even the cluster heads think im making it up and dont want me! Again im sorry but im so used to being ignored and dismissed that sometimes I think I actually expect it. There is one word in your post Linda that I should have cherished and completely overlooked. You called me your friend. Me, a limey half way round the world who you've never met, never even laid eyes on and you called me your friend. Thankyou my friend (my first ever 'merican' buddy!!!) and thankyou all. You words and encouragement are completely overwhelming I actually feel all warm and fuzzy inside! All my love david. xxx |
||||
|
Title: Re: Room for one more??? Post by LeLimey on Jan 3rd, 2008, 12:27pm Hello Ten, Its nice to meet you even if you ARE another bloody Dave (Linda do I HAVE to play nice?! ;) ) I'm not surprised you'r new to the tinternet. I see you're from Hull. You've only recently changed over from bags of salt to £'s sterling for currency haven't you?! :P In case you hadn't noticed - I'm the resident bitch ;;D Seriously now though, I promise I'll help all I can. I've got somequestions for you though and believe me, although it seems like I'm just a nosey old bag (which ! am!) these will help us suggest options for you to discuss with your doctor. We aren't doctors, we are expert patients though and we know enough to suggest options for your doctor to tailor to your own medical history. Have you had an MRI at any point? Have you been referred to a neuro? What meds are you currently taking and what have you tried in the past? Did any of them help? Have you ever tried O2? How long do your attacks last without treatment and with treatment? How many attacks a day do you average? Are they mainly at night or during the day? Do you get a cycle at the same time every year or does it vary? Whats your bank account number and sort code? (Hey it's worth a try! ;;D ) Right then Juglugs - get typing! We're waiting! Hang in there hon, you're home now Helen |
||||
|
Title: Re: Room for one more??? Post by LeLimey on Jan 3rd, 2008, 12:28pm on 01/03/08 at 12:25:04, Ten wrote:
Course you do sossidge. You're male. You're called David. With odds against you like that if you didn't have a sense of humour we'd have to use you as a doorstop! ;;D edited to be even ruder ;;D |
||||
|
Title: Re: Room for one more??? Post by Linda_Howell on Jan 3rd, 2008, 12:54pm Quote:
GOOD. I am so glad you realize that I would never ever insult you or tell you to go away unless you were trying to sell us some magical cure. :-* Please do try to answer some of the questions posed here, so we can try to help you sort through everything and maybe even help you. Welcome Dave...you have a home here for as long as you want. Linda Yes, Helen you have to be nice. It was his Mum who named him David. ;;D |
||||
|
Title: Re: Room for one more??? Post by Ten on Jan 3rd, 2008, 1:12pm Ok, a little about me. My name is david Im 26 years old 27 on sat. Woot woot. Unfortunately I started a cycle on xmas eve so im dreading it! I live in the north east of blighty a city called Hull. I've been a cluster head since I was 16. I really really wish that I could give you guys some advice. Wish I could say something that might change someones life. Tell you about some magic pill ive found that cures you outright. The truth is ive only ever aborted one attack EVER in 10 years and im not proud about how I did it. I have tried every kind of painkiller that you can buy over the counter and have taken so many over the years that my kidneys are starting to give me grief. For a long time I thought I had chronic sinusitis and so have tried ever kind of nasal spray and de-congestion tablet on the market. I've even tried the uber painkillers like kapake.......no joy. Ok so back to the one that I DID manage to abort. I was working away from home, staying in a house with a few of my workmates some of whom smoked quite a lot of pot. We came home from work one day and I started cook my tea. Befofe I'd even managed to sit down and take one mouthful the beast was smacking me upside the head. My appetite vanished instantly I felt like I was gonna chunder and within 5 mins was writhing on the floor in agony. This was the first time this particular group of friends had ever witnessed this and there concern was very touching. One of them approached me with what was obviously a joint and said "here son smoke this it'll sort you right out." and so I did. I took my plate of food into the bedroom placed it on the side, lay down on the bed and began to smoke. After my first drag I knew there was more in this joint then just pot. I could taste it, a nasty chemical taste but I didn't care because by the 5th drag I was painfree absolutely 100% pain free. Shit I even felt good! For about 60 seconds before I fell asleep. I woke at about 4 in the morning absolutely ravenous but still feeling good. (actually ate the food i'd placed on the side the night before. A plate full of cold potato waffles, fish fingers and baked beans pretty gross eh?) The next day after a LOT of cajoling I managed to get my friend to own up and tell me what he had given me. The answer........ dia morphine (not sure if thats the right spelling.) That incident took place 3 years ago and ive never had it again since. Not out of principles or morals but out of a fear of addiction, plus I wouldn't even know where to find it. Lost touch with that guy. I suppose the best I could hope for would be for somebody medically minded to read this story and do some research into why it worked and come up with a safe alternative. I wouldn't suggest or reccomend any one gets involved with dia morphine. Peace out David. xxx |
||||
|
Title: Re: Room for one more??? Post by brewcrew on Jan 3rd, 2008, 1:14pm Of course you have a sense of humor, David. Linda sensed that - otherwise she wouldn't have unloaded both barrels on you at the same time! ;) |
||||
|
Title: Re: Room for one more??? Post by LeLimey on Jan 3rd, 2008, 1:36pm Yeah Linda - he who shall not be named was named by HIS mother too don't forget! David - Happy Birthday for Saturday! I'm going to give you loads of info here so pay a-ten-shun! First off - meds from the doctor. CH is a vascular headache. The pain is caused by blood vessels swelling and crushing nerves so what we need to abort the pain is vaso constrictors. Ordinary painkillers are like throwing smarties at a shark. Bloody useless. They do not work in the right way and nothing, even morphine has aborted a hit for me bar vaso constrictors. All strong painkillers do is take me away - not the pain. So - with that said vaso constrictors are: Abortives - these work on blocking the attack once it's started. Imigran subcutaneous injections. These are the only licensed treatment for CH in the UK to date. You can use up to two per day and they will abort the pain in 5-10 minutes. Its like an epi-pen, you don't see the needle you just push a button and count to ten before removing it. Dead easy even for wimps! The downside is they only last for two hours so if you are getting more than two hits a day then you need something else as well. Oxygen Oh how I love this stuff! Using O2 at 15LPM with a non rebreather mask is the mutts nuts. I can abort a hit in 5-7 minutes if I get on the O2 early enough. Bloody brilliant and no side effects! Zomig or Zolmitriptan There are many types of triptans. All are vaso constrictors but the only ones which are really any use for CH are Imigran injections (referred to as Imitrex on this site) and Zomig nasal sprays. For some reason the Imigran nasal just arent so good and they are too short lasting to be a viable option. Zomig will take about 10 minutes to kick in but they last for up to 8 hours and you can use up to 3 per day. Depending on how you get attacked this may be a better triptan option but I'd still recommend O2 as my first choice. As a non "medical" option I'd also recommend red bull or generic brands of high energy drinks. I use asda's own for instance. As long as they have caffeine and taurine they will work! Caffeine is a vaso constrictor and taurine enhances the effect of the caffeine - think of it as a turbo boost! You can use strong coffee too but those little cans are highly portable! The key is to chug it as fast as you can at first twinge. Never mind what mummy says. Mr Manners can go to hell! You chug it and belch my friend!! Ice or heat also work well. Heat is a trigger for me but some people swear by it. My best friends are frozen peas and corn ;) If you look in the good old pound shops you can often see those chemical ice packs going cheap and they are useful to have with you too for at work or in the car or whatever. You said your cycle is usually about six weeks which is relatively short so I personally would choose to ignore preventatives as they work on the length of the cycle and not individual hits. You don't want to do anything that may make your cycle longer and quite frankly, most prevents take a couple of weeks to kick in as you need to taper up on the dosage. I'll tell you more about them if you like but there is a lot on this post already and I don't want to swamp you, given that you are a mere male and a northener to boot! ;;D Oh and check your pm's Top rght hand corner of the screen! Helen |
||||
|
Title: Re: Room for one more??? Post by Ten on Jan 3rd, 2008, 1:39pm Ok helen first of all whats £ sterling? you're right we've got rid of the salt but we use groats now. ;) your questions. Never had an mri never been referred (despite lots of begging) given up on meds (kidneys) attacks last between 1-3 hours some at night some during the day. never had more than 2 attacks in a 24 hours. Never tried o2 No pattern at all to my cycles, my last one before this was oct 2006. I actually thought I was rid of them. Its the longest ive ever been without an attack. Before that i'd have at least one cycle every 6 months. xxx |
||||
|
Title: Re: Room for one more??? Post by Ten on Jan 3rd, 2008, 2:13pm Oh my goodness Helen you're a brummy! its a good job we're online cos you wouldn't be able to take the piss out of anybody with an accent like your's ;) Thankyou for your message I do believe you are one of the sweetest people I ever talked to yam yam. x |
||||
|
Title: Re: Room for one more??? Post by LeLimey on Jan 3rd, 2008, 2:38pm I'm not a bloody brummie you cheeky northern pigeon fancying WASSOCK! I'll have you know I'm a Londoner born and bred and I'm only in the Midlands (Bingham is just outside Nottingham) because I was STUPID enough to marry a bloke from the black country ::) £'s sterling is pounds sterling - that is the currency of England numbnuts. Don't they teach anything but how to work out the odds on the greyhounds and that Hull RFC are shandy drinking limp wristed netball players?! ;;D Its your rights under the NHS act to be referred to a specialist in your area of need. So for you that is a headache specialist neuro not just any old neuro. If your doctor kicks off then we go to the PCT! Don't worry, I'll back you all the way hon. We need to get you O2 as well and some other abortives. Make a doctors appt in the AM and give me a ring and I'll talk you through what you need to ask for. I hope he's bolshie - I'm in the mood for a good fight! ;;D |
||||
|
Title: Re: Room for one more??? Post by mummymac on Jan 3rd, 2008, 3:49pm Quote:
Hello David I felt just the same, but I did cry right from the bottom of my little cotten socks . You will find all sorts of information and help here for the taking and giving ( I haven't got that far yet - still learning). They are a wonderful bunch of people here on this site. Quote:
|
||||
|
Title: Re: Room for one more??? Post by mummymac on Jan 3rd, 2008, 3:51pm I never finished my post properley What I wished to say is Only mad dogs and English men stay out in the midday sun, also do not always get the american humor |
||||
|
Title: Re: Room for one more??? Post by Linda_Howell on Jan 3rd, 2008, 4:32pm Quote:
"I was stupid enough to marry a bloke" is the ONLY thing here that I understood. LMAO you guys really do talk funny. |
||||
|
Title: Re: Room for one more??? Post by Ten on Jan 3rd, 2008, 5:00pm Ohhhh...... Bingham I thought you just couldn't spell, when in actual fact I just cant read. But then what do you expect from a bunch of foks that still give each other sacks of coal for xmas and sign there names with a X. Couldn't agree more with you about FC, im east hull (where the real men come from, the ones that dont cry ;)) ROVERS ALL THE WAY. And LONDON.......well you know all about drinking shandy down there eh? Southern softy shandy sipping fairies. Oh and I don't bet on the dogs. I like cock fighting. Haha this is so much fun. You are ace helen. All of you are ive never made so many cool friends in just one day before. ;;D xxx |
||||
|
Title: Re: Room for one more??? Post by LeLimey on Jan 3rd, 2008, 5:05pm on 01/03/08 at 17:00:53, Ten wrote:
Hmmmm between THIS and Quote:
I have a feeling he already knows our Ting Tong doesn't he?! ::) |
||||
|
Title: Re: Room for one more??? Post by Ten on Jan 3rd, 2008, 5:07pm Don't know if i'll be able to get an appointment tommorrow cos I need to re register with a new doc. Just moved house. but I shall go in tomorrow morning and see whats what. I'll let you know how I get on. Thanks again. It pains me that the only way I can show my gratitude is with words. They just seem a little inadequate for how I actually feel. x |
||||
|
Title: Re: Room for one more??? Post by LeLimey on Jan 3rd, 2008, 5:07pm Oh and on 01/03/08 at 17:00:53, Ten wrote:
here we were thinking the smell was them thar trawlers ;;D |
||||
|
Title: Re: Room for one more??? Post by LeLimey on Jan 3rd, 2008, 5:09pm Just get to a doctor asap and in the meantime stock up on icepacks and cans of red bull (asda tesco even Lidl all do cheaper equivalents.) All brands taste like something I wouldn't give someone on death row but I have to say I love the effect! Just remember - chug 'um at first twinge okay?! |
||||
|
Title: Re: Room for one more??? Post by rocketman3104 on Jan 3rd, 2008, 5:45pm Ok, Helen I was with you on the mutts nutts comment, but what the hell is a Wassock? LOL. |
||||
|
Title: Re: Room for one more??? Post by rocketman3104 on Jan 3rd, 2008, 5:48pm Oh, I was laughing so hard I forgot to welcome you Ten. Helen gave you some great advice, along with the hard time! |
||||
|
Title: Re: Room for one more??? Post by Jonny on Jan 3rd, 2008, 5:48pm Even their military is crazy across the pond! ;;D http://www.liveleak.com/view?i=a1e_1199378757 |
||||
|
Title: Re: Room for one more??? Post by Linda_Howell on Jan 3rd, 2008, 5:50pm Quote:
If you go this route Dave...here's a little tip if you're anything like me and cannot chug down anything fast that has lots of carbonation in it. I open a can and put it in the refridgerator. By the time I need to drink it real fast most of the carbonation is gone and a whole lot easier to chug. Linda |
||||
|
Title: Re: Room for one more??? Post by rocketman3104 on Jan 3rd, 2008, 5:53pm Lets see........Michael Jackson and The Village People I see a pattern here. |
||||
|
Title: Re: Room for one more??? Post by Linda_Howell on Jan 3rd, 2008, 5:55pm OMG Jonny..THAT was hilarious!!!!!!!! |
||||
|
Title: Re: Room for one more??? Post by LeLimey on Jan 3rd, 2008, 6:16pm on 01/03/08 at 17:48:34, Jonny wrote:
Don't forget this one ;;D http://www.youtube.com/watch?v=ZI5y1cNpbYo You do remember I used to work for the Ministry of Defence didn't you?! LOL forgot link - duh! |
||||
|
Title: Re: Room for one more??? Post by Jonny on Jan 3rd, 2008, 6:35pm Brit humor....got to love it!...LOL ;;D http://www.youtube.com/watch?v=XDHQO6QHFsc |
||||
|
Title: Re: Room for one more??? Post by LeLimey on Jan 3rd, 2008, 6:45pm Jonny you sent me this one and yes - it is so me [smiley=laugh.gif] http://www.liveleak.com/view?i=0ba_1183695470 If it says adult content it's violence if you can call it that. ::) |
||||
|
Title: Re: Room for one more??? Post by LeLimey on Jan 3rd, 2008, 6:49pm Oh and Paul - a wassock is another word for a flippin' didiot! ;;D |
||||
|
Title: Re: Room for one more??? Post by rocketman3104 on Jan 3rd, 2008, 8:39pm Thanks for clearing that up, I was with ya till you threw me that curve. (lol) |
||||
|
Title: Re: Room for one more??? Post by Ten on Jan 4th, 2008, 4:07am Haha I had an attack last night about 10 O clock. Went off just before midnight then half an hour later I felt like I was getting another so I ran to the 24 hour jacksons bought 3 red bulls and downed the lot in about 10 secs. The attack never came on but I havent slept a wink and have been farting and belching all night. I'd just like to say hello to all the new guys I haven't had chance to talk to yet and jonny that vid was priceless!!! Right im off to spend all my savings on red bull and find me a quack :) Have a great day lovelies. xxx |
||||
|
Title: Re: Room for one more??? Post by Ten on Jan 4th, 2008, 7:07am ok red bull sucks. im in agony. started 11.30. |
||||
|
Title: Re: Room for one more??? Post by LeLimey on Jan 4th, 2008, 7:26am Dave, how soon did you take the red bull hon? There is a knack to it. Have you got any frozen pea's or sweetcorn? wrap it in a teatowel and hold that against the affected side of your head - one on your neck at the back too if you can. Give me a call when you're able. We need to get you sorted asap Hang in there hon Helen |
||||
|
Title: Re: Room for one more??? Post by Ten on Jan 4th, 2008, 7:47am still in pain can't stop yawning. my nose ran right at the begining (right side). I can actually hear little popping noises coming from my nose (right side) my right eye leaked once (i wasn't crying ;;D ) |
||||
|
Title: Re: Room for one more??? Post by Ten on Jan 4th, 2008, 8:31am Still hurtin but im well enough to type for a bit now I think. Ok guys I got a corker for ya. Just had a right old scrap with the wee beasties running around in me heed. Tried the red bull thing again and no joy. Helen told me it was cos im a thick northern monkey and i'd done it wrong [smiley=laugh.gif] tried the ice but didn't seem to be having much luck with that neither. I had a thought!!! When I first came on here Richard told me that o2 was the dogs under carriage but I aint got me none. Never mind thinks I and in the great british tradition I improvised. Started heaving huge lungfuls of air quite aggresively. It was as much use as tits on a fish, but I had another thought. I was resting on my knees grinding my head into the floor to take off some of the pressure. And I remembered a training course i'd done with work just a short while back on dangerous gases. I have it on good authority that carbon dioxide sinks to the floor. So thinks I, I need to have my head up by the ceiling where all that good shit is. Which is how I found myself stood on the back of my sofa driving my head into the ceiling and heaving like a maniac.......Got dizzy fell off and nearly broke my neck, prolly would have done if it wasn't for the bad ass moves I learned in what is unquestionably the finest military dancing academy in the world ;;D |
||||
|
Title: Re: Room for one more??? Post by LeLimey on Jan 4th, 2008, 8:45am certi-flippin' fiable ::) Do you have a car Dave? If it has air con turn it to the lowest setting and stick your snout right next to the vents. Alternatively try a really hot shower and see if having the needles of hot water on your face helps. Hang in there, we'll find something that works but getting you to the doc is paramount. It can't wait now okay?! Just remember - I'm the queen of nagging and arse-kicking and you just aren't far enough away to be safe ;;D |
||||
|
Title: Re: Room for one more??? Post by Paul98 on Jan 4th, 2008, 9:07am on 01/04/08 at 08:31:32, Ten wrote:
Dave- I don't know 'bout the CO2 being any higher at floor level to make a difference but having your head down sure does!!! It increases the hydrostatic pressure in your head and makes matters worse. Keep your head higher than the rest of you! Sleep with pillows or in a chair. I have found reducing body temprature helps me greatly if I have no meds. Pour some water on you and stand out in the cold in your shorts. It's worth a try. -P. |
||||
|
Title: Re: Room for one more??? Post by michael on Jan 4th, 2008, 9:46am Just had a vision of Paul standing in his garden in the middle of winter in his shorts pouring a bucket of water over his head. That must be the attraction for Helen :) |
||||
|
Title: Re: Room for one more??? Post by Dape on Jan 4th, 2008, 9:49am on 01/04/08 at 08:45:39, LeLimey wrote:
Aint that the truth ;;D ;;D and even if you were the other side of the world you still wouldnt be far enough away to be safe [smiley=laugh.gif] I take it you have spoken to Helen I must warn you though she has a cook book straight from hell if you dont listen to her ;) Dape |
||||
|
Title: Re: Room for one more??? Post by rocketman3104 on Jan 4th, 2008, 9:57am David, before I was diagnosed I had no idea how to stop the pain. Nothing I could take would work fast enough. This worked for me. Put something really cold (bag of ice or frozen peas) on the affected side. Breath as deep and as fast as you can, in a rythym, exhaling all the air each time. Not short fast breaths, but fast deep breaths. That would help take it down to bearable levels, sometimes total abort. Did that for years until I found out it was Clusters. Hope it helps. Helen was right try and get to the doc and get you some oxygen as fast as possible. Helps most of us here. Hope you get some relief. |
||||
|
Title: Re: Room for one more??? Post by imfareware on Jan 4th, 2008, 7:22pm Hello David. Now your not the noob, I am. I feel your pain with you. My cycle just started also and believe me I cried alot with the pain. Hang in there it only gets better!! |
||||
|
Title: Re: Room for one more??? Post by Jonny on Jan 5th, 2008, 1:35pm Happy Birthday, David! :-* CLICK: http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=general;action=display;num=1199558029;start=0#0 |
||||
|
Title: Re: Room for one more??? Post by RichardN on Jan 6th, 2008, 12:08am Glad you found us David. Happy Birthday Sending PF vibes your way. Richard |
||||
|
Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1! YaBB © 2000-2003. All Rights Reserved. |