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(Message started by: aloneuk on Jan 18th, 2008, 6:10am)

Title: Hurt
Post by aloneuk on Jan 18th, 2008, 6:10am
How fair is it for a child so young and so small to hurt so bad ? What did he do wrong ? Why should he suffer ? I don't understand gods plan, Why not give it all to me god knows id take all his pain in one second to save his suffering. Is it a test ? if so for whom? I'm so angry that he has to hurt, He is my son and there is nothing i can do to help him that hurts more than any ch ive ever felt. To see a baby MY BABY  having seizures hurts like being stabbed in the heart, To know that the front of his brain is so swollen that its pressing hard on things and fucking them up a year they tell me until the swelling will go !! a fucking year ! how i wish i could take that pressure away from him, the pain he will be feeling ...

God i beg of you let me take it, all of it ! why make him suffer ??

He sleeps soundly in his cot happy and dreaming sweet baby dreams then alarms ring we run he is not breathing ! but why ? what can we do ? seconds pass like hours but then we hear him gasp and pant he is back ! where did he go and why? Is someone pulling him away from us ? Love pulls him back. Who is he fighting to stay here ? why wont they just leave him be ? 10times a day he fights for his life ! THATS NOT FUCKING FAIR ON ANYONE !  


This road is going to be long and hard for all of us but it breaks my heart for him, He never tasted the good of life before he got the sour bit....
I'm hurting in a way i don't know how to put into words  :'(
http://render1.snapfish.com/render2/is=Yup6aQQ%7C%3Dup6RKKt%3Axxr%3D0-qpDofRt7Pf7mrPfrj7t%3DzrRfDUX%3AeQaQxg%3Dr%3F87KR6xqpxQQ0GxeQQxJPnxv8uOc5xQQQG0Q0PGGlnJqpfVtB%3F*KUp7BHSHqqy7XH6gX0QQJQ%7CRup6Gn0%7C/of=50,590,437

Title: Re: Hurt
Post by Annette on Jan 18th, 2008, 6:50am

Oh Ike

I am so sorry!  :'(  I dont have words to express how I feel reading your post about your little boy hurting. There isnt a reason, life can be just cruel at times.

Being a mother I can feel some of the tremendous pain you must be feeling right now and yes I would be happy to take Rileys pain if I could. I would be happy to take YOUR pain too if I could.

I know its hard to think of anything positive now and to count any blessing, but Riley is lucky still in a way to have a father like you, to have a mother like Tami and a big sister like Louisha. He is not well and he is suffering but he is surrounded by love of the best kind. There are children out there who may not be born with illnesses but get beaten up and even killed by the very people who brought them into this life.

Riley is young, he has a lot of fight in him, he has already shown us all that he is one tough cookie! Things can improve and as he grows older his body will become stronger and stronger.

Hang in there Ike, and lean on us on difficult time. We take one day at a time, and together we will pray for Riley, will cuddle him, will support him, will be with him every step of the way.

Hugs and prayers going your way to all of you every single day and will keep going for several years yet !

Lots of love from Annette, Daniel, Edwyn and Andy.  :-*

Title: Re: Hurt
Post by barry_sword on Jan 18th, 2008, 6:54am
Ike, so very sorry. This is just not fair at all. Riley is a real fighter and is as strong as I have ever seen. We will continue to pray for him every minute of each day.

With all our love,
                   Barry&Angie [smiley=hug.gif] [smiley=hug.gif]

Note: Check your PM's.

Title: Re: Hurt
Post by DonnaH_again on Jan 18th, 2008, 7:18am
My dear friend.........

This sounds like what my twin grandson went through.  He suffered from the hands of the team who delivered him at birth, not from Gods plan for him.  God does not interfere with the things of man.  We pray to God to help us through this.

I know the sounds of the alarms.....the tickling of the feet to make the baby start breathing again........the "up one day and spiraling down the next".

This is very hard on your relationship with Tammi too.  Be sure to be gentle with each other, and when the stress gets you both at wits end, go for a walk or talk to someone like a counselor.

This is going to be a long year like you said.  I am praying with all my heart that Riley's problems heal quickly.

Love you all,
Donna

PS......babies very often surprise us.  They have great healing power and can be very ill, then improve so quickly that it's hard to believe.


Title: Re: Hurt
Post by tessistired on Jan 18th, 2008, 8:14am
Ike, Tami, Riley, and Family,

I am sitting here for several minutes trying to put into words my feelings and thoughts and what I need and want to say to you guys.  Ike since you have initially notified all of us of Riley's situation I have been praying so hard and continuously for all of you and will continue  to do so!  

I am so sorry that this is such a horrible time and no it isnt fair.  I know all too well how true that is...my son has endured a very similar health situation shortly after birth with seizures and living in the hospital.  It was rough but kids are alot more stronger than we realize and Riley will show that to you all.

I wish nothing but the best for you all!!

MANY BLESSINGS TO YOU AND YOURS

TESS

Title: Re: Hurt
Post by Melissa on Jan 18th, 2008, 8:18am
*hugs* to you Ike to give you strength to make it through this.

It's never, ever easy to watch our children hurting.

Things will get better hon, I know it will. :-*

Title: Re: Hurt
Post by Yorky on Jan 18th, 2008, 8:21am
dont really know what to say ike ?

just, rooting for you and the family.

xxx

Title: Re: Hurt
Post by Ghost on Jan 18th, 2008, 8:27am
:'(

Ike I wish there was something I could do or say. I just wish there was something someone could do to take away every childs pain, they did nothing wrong, they DON'T deserve it! Let him know every minuite of every day you are there and LOVE him. I pray for you all and will continue untill all is well.

Mike

Title: Re: Hurt
Post by artonio7 on Jan 18th, 2008, 8:36am
Stay strong Ike and when you can't be strong anymore , lean on us, and when you don't have the strength to even lean let God carry you and all of your burdens.

I am praying for your family Ike.

with warm regards,
Tony

Title: Re: Hurt
Post by lionsound on Jan 18th, 2008, 9:11am
[smiley=hug.gif]

love and comfort and caring,
rori

Title: Re: Hurt
Post by George_J on Jan 18th, 2008, 9:21am
Ike, I can't imagine how you all must be feeling.  I wish there was something that I could do or say that would make some sense of this--but I cannot.  

Just know that we think of you and your family every day, and that we will be here for you in any way we can.

All the best to you and your family,

George  

Title: Re: Hurt
Post by Maffumatt on Jan 18th, 2008, 9:35am
I know how you feel, Tabby has had seizures since she was 6, that is THE most helpless I have ever felt in my life. You and your family are in our prayers.

Title: Re: Hurt
Post by DennisM1045 on Jan 18th, 2008, 10:42am
For a guy that can't seem to find the words you sure made me feel your pain.  

I shed tears but I have no answers.  I write words that can't make things better.  I'm praying to a God that doesn't seem to be listening.  But I will keep on crying and writing and praying for all of you.

I don't know how, but you have to stay strong for Riley, Louisa, Tam and yourself.  When that fails, like Tony said, lean on us.

This just isn't fair  >:(

-Dennis-

Title: Re: Hurt
Post by Rosybabe on Jan 18th, 2008, 10:57am
Ike, Tami, my dear friends...all I can say is that I feel you pain because I am a mother too and I would give my life if that will take the pain away from my little one..
I know you have a lot of questions to make to God but you have Riley with you  right now and that is proof of how much He loves you. You must keep strong and faithful for your child and when you feel weak you have us and  of course The Lord to lean on...
God is listening Ike, He always listens...

I will be praying for you my friends and for Riley, I always do, I think about you every day and when I ask the sweet Lord for Mireille, I ask for Riley and Louisha and all the children of the world...

Have faith my friend and you will see how Riley gets better.

                   Hugs to you and your Family

                                          Rosy.

Title: Re: Hurt
Post by aloneuk on Jan 18th, 2008, 12:06pm
Things are still not going great, waiting on the doctor now think he will be going back in to hospital tonight, he is having apnea attacks a lot today and a few fits  also not keeping his milk down. That alarm must have gone of 20times today to say he isnt breathing some times only a few seconds and twice was more that a 30sec, the right side looks much worse today (he cant move his right arm or leg anyway) but that side of his mouth has dropped and so has his eye :'( :'( He is on the max dose to stop the fits but that dont seem to be doing shit...

I'm praying but dont think anyone is listening,
im so glad your here and im sorry for ranting but its better out than in

x

Title: Re: Hurt
Post by DennisM1045 on Jan 18th, 2008, 12:09pm
Keep on ranting Ike.  We'll keep on listening and holding you up. :'(

-Dennis-

Title: Re: Hurt
Post by Melissa on Jan 18th, 2008, 12:11pm
Oh no Ike, I am SO sorry!!

I wish there was something I could do to make it all go away! :'(

Title: Re: Hurt
Post by artonio7 on Jan 18th, 2008, 12:13pm
[smiley=hug.gif]

Title: Re: Hurt
Post by Woobie on Jan 18th, 2008, 12:14pm
[smiley=nono.gif] [smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif]

I dont know what to say - i'm just soooo sorry!
HUGS

woobie and Ramon :-*

Title: Re: Hurt
Post by nani on Jan 18th, 2008, 12:23pm

on 01/18/08 at 06:10:31, aloneuk wrote:
He never tasted the good of life before he got the sour bit....

http://render1.snapfish.com/render2/is=Yup6aQQ%7C%3Dup6RKKt%3Axxr%3D0-qpDofRt7Pf7mrPfrj7t%3DzrRfDUX%3AeQaQxg%3Dr%3F87KR6xqpxQQ0GxeQQxJPnxv8uOc5xQQQG0Q0PGGlnJqpfVtB%3F*KUp7BHSHqqy7XH6gX0QQJQ%7CRup6Gn0%7C/of=50,590,437


I dunno, sweetie. It looks like he's tasting the good in life right there is his big sister's arms.

You know I've been thinking of and praying for you all.
[smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif]

hugs and love, nani

Title: Re: Hurt
Post by aprilbee on Jan 18th, 2008, 12:29pm
I hope this comes across how I want it to:

Be gloriously happy you have him (I know you are), some couples never get that chance, after years of trying and getting pregnant and losing their baby before they ever get to see him or her,

I don't need to tell you time here is precious, no matter how we live, enjoy every sound moment you have, stay strong for that little heart, he needs you...your Son was given to you for a reason, because you are the only one who will be able to take care of him...take Pride in that...

I don't think anyone is being tested, if we understood God's plan, it wouldn't be called Faith,

My heart aches for you and your beautiful family and you guys, of course, are in my prayers Ike...God Bless You sweetie...

Title: Re: Hurt
Post by Ray on Jan 18th, 2008, 1:23pm
Dear Ike:

Life is precious, and with life there is hope.  Riley is a fighter and has hung in there.  You and Tami and Louisha are working together as a family to cope and deal with the situation.  You are all strong and getting stronger.  I can't make sense of the suffering that is going on, but I can pray that things will get better.  Infants are resiliant and the future can bring outcomes that exceed expectations.

I feel your pain Ike, please continue to lean on us and we will do our best to help you stand up to it.  Know that the best is yet to come!

You are special, your whole family is, and an example to us all.  Prayers of love, healing, strength and joy are going up daily and I will ensure that my church continues to wage spiritual warfare on Riley's behalf.

All of the best,

Ray

Title: Re: Hurt
Post by E-Double on Jan 18th, 2008, 5:55pm
hugs brother

Title: Re: Hurt
Post by Gator on Jan 18th, 2008, 6:02pm
I really hate to hear of children suffering.  It just breaks my heart.

Ike, I don't know what else to say except to tell you that Riley is in my thoughts and prayers.  You have my most sincere hopes and wishes for things to turn around.



Title: Re: Hurt
Post by Tiannia on Jan 18th, 2008, 6:13pm
Hun There is nothing I can say that will make sense of it.  The only thing that I can do is turn it over and believe in my heart and soul that there is a reason. That with all of the hurt and pain and sorrow that you are all feeling right now, is for a purpose.  It does not make it easier, and it is so hard as a parent when there is nothing more in your heart then to see them happy and without pain.  

Take the minutes, take the seconds that you have with him where he is not in pain and enjoy them.

Take the times where he is in pain and know that his daddy being there with him gives him strength and courage that he would not have without you.  

Love and Light, bright Blessings and Gentle Breezes to carry you all thru this time.
Blessed Be,
Tia

Title: Re: Hurt
Post by cosmicfunkfather on Jan 18th, 2008, 6:32pm
Be strong  Bro.keep your head up,and with love and blessing everything will be alright. [smiley=hug.gif]

     James

Title: Re: Hurt
Post by ski2k on Jan 18th, 2008, 7:26pm
  I'm so sorry to hear things are going so badly for you and the family, Ike. I'll keep praying and sending you all the best I can. Cherish the good times as much as you can!

Adam

Title: Re: Hurt
Post by Lizzie2 on Jan 18th, 2008, 9:19pm
Ike,

I'm so very sorry for what you're going through and the pain you are experiencing in watching your son suffer.  I agree with what everyone has said above - Riley is  very lucky to have you and Tami for parents.  We can't always understand why things happen the way they do, but you, Tami, and Louisha love Riley very very much, and that is a good thing.  Riley is lucky to have a family that loves him.

And I know you've heard this already, but babies truly are resilient.  They can survive things that you or I could never even come close to surviving, and they can recover from things that would leave you and I disabled for life.  I mentioned in one of your other threads that I am a neonatal nurse.  I work in a hospital that does special treatments for babies who go through traumatic birth.  While we can't reverse damage that has already been done, babies can learn how to function with what they have working well.  It is horrible to see children and babies suffer, but with all the care and love that you guys are giving to Riley, he has the best possible chance of getting better.

I know the apnea must be very scary for all of you.  I would love to hear an update on how Riley is doing tonight.  You are all in my thoughts and prayers, and if there is anything I can do, please let me know.

Love and hugz,
Carrie

Title: Re: Hurt
Post by sandie99 on Jan 19th, 2008, 4:50am
Ike,
little Riley and your whole family are in my prayers. I wish you and Tami lots of strength in the middle of this all and lots of [smiley=hug.gif]s and vibes.

Sanna

Title: Re: Hurt
Post by zwibbs/Scott on Jan 19th, 2008, 6:11am
Ike, I know that there is nothing worse than a child in pain. As helpless as you might feel, I believe in my heart that  God will help him. Remember, God only tests the strong !

Title: Re: Hurt
Post by Charlie on Jan 19th, 2008, 6:32pm
It's a horrible thing to hear about little babies going through all this.

I can't add much other than that you are in my thoughts and that it is true that the little tykes can surprise the crap out of us. It's his turn.

Charlie

Title: Re: Hurt
Post by mummymac on Jan 19th, 2008, 6:46pm
Its hard to know the right thing to say , so I will just say my thoughts are with you and your family right now .  Lots of prayers for you all [smiley=hug.gif]



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