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        New Message Board Archives >> Oct-Dec 2003 >> Saying Hello
        
(Message started by: CJNine on Dec 7^th, 2003, 9:05am)

Title: Saying Hello
Post by CJNine on Dec 7^th, 2003, 9:05am

Glad to find this message board.

I'm another CH type. Started eight years ago after some major dental work. Like many others who post, I basically had to self diagnose, then seek out the correct medical speciality.

Taking verap - 480mg - but neurologist changed from SR to non-SR saying the sustained release kind did not have any track record of helping CH. Also use Imitrex pills to abort attacks (works only if I take at the first hint which in my case is a noticeable light pain at corner of eye coupled with stuffy nostril). Tho't this was sinus problem for a long time and it took a while to convince me otherwise.

As I read all of the posts, all I can think of is "been there, done that."

Trying out O2 (abortive) and Topamax (preventative) for this cycle (my risk period is annual, Dec through Feb - pain free for the other nine months each year).

Question: anybody else monitored their blood pressure during an attack? I found mine drops quite noticeably as the attack intensity increases. A curiosity since the only explanation I've received is its a reaction to pain.

Anyway - glad to exchange info with the group.

Regards all,
CJ

Title: Re: Saying Hello
Post by jonny on Dec 7^th, 2003, 10:33am

Welcome aboard CJ

Pull up a seat and read your ass off, me?....I get to go move 20" of snow today but ill be back....LMAO ;;D

.................................jonny

Title: Re: Saying Hello
Post by Prense on Dec 7^th, 2003, 10:47am

Welcome aboard CJ!

You will find many here that do get results with the release versions of verap. Some however only get results from the immediate release version. If you need a little more freedom in your abortives, you may find that imitrex injections may work faster (about 10 minutes) and even when used further into an attack. Hopefully you are using O2 correctly...check out the oxygen info link to the left. I have no idea on the BP...I'm still trying to figure out why mine went up since being put on verapamil. Anyway, read everything you can here and hopefully your entire cycle will be PF!

Chris

Title: Re: Saying Hello
Post by jadedgazer on Dec 7^th, 2003, 11:53am

Welcome CJ.

Sorry you had to find us, but you will find a ton of information here...peruse through the archives, you will find answers to many questions there. Ask here too. There are plenty here who know what they are talking about.

As far as BP goes with me, mine spikes when in the throes.

Title: Re: Saying Hello
Post by Kirk on Dec 7^th, 2003, 1:25pm

Welcome CJ. Pull up a stump.
Mine goes thru the roof when I have an attack. As they say YMMV.

TTFN

Title: Re: Saying Hello
Post by Little Deb on Dec 7^th, 2003, 3:22pm

Welcome to Clusterville!
I tried the Imitrex pills. Didn't work fast enough. I also tried the Zomig pills. Didn't work. But the Zomig ZMT that disolves on your tongue at 5mg works good for me, and now it comes in a one dose nasal spray which is suppose to be even better.

LD

Title: Re: Saying Hello
Post by Rick_K on Dec 7^th, 2003, 3:29pm

Welcome CJ, you will find a great family here. I'm also a newbie to the site but not to CH.

Read, read and read, there is a wealth of knowledge here.

Rick

Title: Re: Saying Hello
Post by nancyc on Dec 7^th, 2003, 6:42pm

Welcome, CJ...I noticed the verap made my bp and pulse go down but during an attack, it goes up....pain usually makes your bp go up...and your pulse go up too...different strokes for different folks though..we are definetly not all alike when it comes to the beast...Good luck with the topamax..that is one of my meds too... ;;Dnancyc

Title: Re: Saying Hello
Post by Charlie on Dec 7^th, 2003, 8:23pm

Welcome and sorry you had reason to find us. I have too little experience with the drugs but although I didn’t monitor my BP, I’m sure it skyrocketed.

Stick around as you’ll find some good ideas about dealing with this horror. I hope you let us know how things are going.

Here is something that was very helpful to me:

http://www.netsync.net/users/charlies/

Charlie

Title: Re: Saying Hello
Post by kim on Dec 7^th, 2003, 8:40pm

Hey CJNine,

YES! My BP BOTTOMS OUT during attack. Weird. Almost like my body goes into "flatline" during attack. I've read so much about people's BP ramping up, but mine DROPS like Brick. One time I had a bad attack, had to go to ER. They could not administer any meds, said I'd pass out my blood pressure was too LOW. [smiley=huh.gif]

Welcome. Lots of help here**

Well wishes, kim

Title: Re: Saying Hello
Post by TxBasslady on Dec 8^th, 2003, 12:18am

:)
Welcome to the board, CJ

Have never monitored BP during an attack. Don't have enough hands...LOL Takes one hand to hold the ice pak on my eye and temple area, and the other hand to hold the ice pak on my neck.

However, I was at the dr's office a few hours after a bad hit, and my BP was higher than usual. Not sure if it was from the ha itself, or the anticipation of another.

Guess it's like the meds........everyone seems to react differently to these damn ha's. Some things work for alot of folks, and none of those work for others.

Sending you pf vibes from Texas.......

Jean

Title: Re: Saying Hello
Post by taraann on Dec 8^th, 2003, 2:02am

Welcome to the boat CJ. Seems that my BP rises when I have CH, was told it's most ppls reaction to severe pain...

Title: Re: Saying Hello
Post by sandie99 on Dec 8^th, 2003, 5:35am

Welcome aboard, CJ! :)

Too bad you had to join us, if you know what I mean. CH is not a nice thing to have... but ch.com is a wonderful place to be! I'm glad that you found your way to this site.

I have never checked my BP during CH, but it would not come as a surprise to me, if it indeed is low during attack - my BP tends to be quite low yet normal (considering that my family has a history of high BP) all the time.

Best wishes & PFdays,
sandie99

Title: Re: Saying Hello
Post by thomas on Dec 8^th, 2003, 10:47am

Welcome aboard. I have never monitored my bp during an attack.