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        New Message Board Archives >> Oct-Dec 2003 >> DO They Go Away
        
(Message started by: BstnEagles on Dec 4^th, 2003, 2:12am)

Title: DO They Go Away
Post by BstnEagles on Dec 4^th, 2003, 2:12am

Hello all,

I have had the chronic clusters for abotu four years now. I was wondering if the ever go away. My specialist seems to think that at some point they will but I am not so sure. Currently I have Immitrex Nasal for abostive (jsut go Zomig Nasal too) and 240 verapamil for preventative. Thanks

Title: Re: DO They Go Away
Post by BobG on Dec 4^th, 2003, 6:20am

Do they go away? Yes.

Then they come back again.

and again.

and again.

But, they may go away and never come back. Or you may out-grow them (at about age 60, + or - 10)

Welcome to the board. Sorry to hear you're hurting.

Talk to your doc about upping the verapamil dose. 240 is a low dose. Some folks are on 2 to 4 times that amount. Also talk to the doc about oxygen. (click the 'oxygen info' button on the left side of your screen.

Good luck. Stick around. Lots of help here.

Title: Re: DO They Go Away
Post by Charlie on Dec 4^th, 2003, 7:09am

Welcome aboard. I hate to see another but if one has to suffer from this horror, you'll find some good information here.

I'm 57 years old and mine went away 12 years ago when I was 45 in 1991. I was episodic and after 22 years, they were gone. They do indeed go away and it's not very clear why. I think there is an age factor but there are people older than I who have developed clusters. There are others here who have been in very long remissions as well.

Good luck and stick around and let us know how it's going.

Charlie

Title: Re: DO They Go Away
Post by suzy617 on Dec 4^th, 2003, 7:26am

I still insist that Charlie knows the secret how to stop them and just aint telling. ;;D

Suzy

Title: Re: DO They Go Away
Post by thomas on Dec 4^th, 2003, 8:29am

"It only hurts for a little while." or a long while - I think for some they go away and for others they may not. Don't give up hope. Hang in there. pfnad. :)

Title: Re: DO They Go Away
Post by Ree on Dec 4^th, 2003, 6:57pm

Hey I just PM'd you......a Bostonian here too!!!! Welcome to the board... My hubby was on Neurontin for preventative and Imatrex nasal, injectable and pills. Also zomig is a great abortive... Who is your doc... Where do you get your treatment??? My husband goes to a Doc at Newton Wellesley Hospital that is awesome. Actually we both do... I have chronic Migraine as well... Good luck and welcome aboard... We have belonged to this site for a long time and have had great support here... Ree