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        New Message Board Archives >> Oct-Dec 2003 >> Cluster Headaches Documentary
        
(Message started by: CCTV_guy on Dec 3^rd, 2003, 8:45pm)

Title: Cluster Headaches Documentary
Post by CCTV_guy on Dec 3^rd, 2003, 8:45pm

I'm writing this to request some help. My father is a clusterheadach sufferer and I am currently going to school to get my degree in Video and Digital Media production. He sent all of us in the family this website so we could check it out and I have been checking things out every so often. As I've seen from posts that there has not been much publicized about CH I thought it might be a good idea to do a documentary on them. I currently have a preliminary production packet finished. However before I can apply for grants and other forms of funding I need to have a complete script and production schedule. The only thing that is stopping this is that I need at least 2 CH sufferers willing to be interviewed and at least one of them will have to let me videotape one or more of there CH attacks. I also need a CH supporter or two willing to be interviewed. I am already talking to a couple of neurologists in the area about being interviewed but if any of you know any who would be willing please let me know and I'll talk to them. If anyone is interested in helping or has any questions please contact me either here or at my e-mail MidnightMedia@hotmail.com. I hope to be able to start shooting this summer and will keep you all up to date when I start and with how things are going with it afterwards.

P.S. If anyone knows of any research going on with CHs please let me know as even if I can't get an interview I will list them at the end of the film.

----Sorry about the spelling, Have corrected it---

Title: Re: Cluster Headaches Documentary
Post by jonny on Dec 3^rd, 2003, 8:50pm

Its great that you want to help but if you want to be tak'in seriously atleast use spell check.

.........................................jonny

Title: Re: Cluster Headaches Documentary
Post by don on Dec 3^rd, 2003, 9:13pm

Quote:

As I've sean from boasts that there has not been much publisized about CH

A decent vocabulary might help to. I hardly think anyone is "boasting" about the lack of publicity

Title: Re: Cluster Headaches Documentary
Post by ShariRae on Dec 3^rd, 2003, 9:53pm

The spelling (or lack of it) is what I noticed more than the post..YIKES!
Shari

Title: Re: Cluster Headaches Documentary
Post by Woobie on Dec 3^rd, 2003, 10:08pm

Maybe he's foreign... geesh. ::)

Hey CCTVguy - I'm sure there are people down there who will do it. .... i'm too far away...... but..........

I would if you fly me down there .. and I'm just a supporter, so you'd have to fly my husband too... and my kids - they have to watch the beast too........ you could interview them. And we'll be needing hotel accomodations - Disney World isn't far.. right?? [smiley=crackup.gif]

I'm sure you'll find someone in the vicinity ...

It's a good thing you're doing - even if your English isn't so good.

tina :-*

Title: Re: Cluster Headaches Documentary
Post by ShariRae on Dec 3^rd, 2003, 10:22pm

Woobie..
You are never JUST a supporter....without supporters, we would be lost..and you,by the way, are one of the best supporters I have ever seen here. Keep up the good work..and remember..never JUST a supporter!
Huggs
Shari

Title: Re: Cluster Headaches Documentary
Post by ClusterChuck on Dec 3^rd, 2003, 10:32pm

Should I post this? Maybe his father is a bonehead that never taught him proper English. What sort of an idiot father would let his son grow up to write like that? Find the father, and shoot him!

OOOPPPSSS! I am his father!

Family, meet my oldest son! He spoke to me about this project some time ago, and I told him that there would be people that would be willing to talk with him. I had not mentioned it, except to a few individuals, on the phone, until it got closer to the time fo his project. He is in the Ft. Lauderdale area of Florida, going to college.

His spelling and grammar have never been his high point, but he is not a phoney. Actually, look at my spelling! haha!!!

Sorry if this came out of the blue, but he has spent a lot of time thinking, and researching this.

Chuck

PS: Damn, does this mean I have to watch what I say now? No more shitty language, I guess! What sort of an example would I be setting? Heehee !!

Title: Re: Cluster Headaches Documentary
Post by CathiP on Dec 3^rd, 2003, 11:15pm

Dear Son-of-Chuck,
Your dad would be a perfect victi.....ummmm.....interviewee...however, be prepared, for his response will be- and I DO quote-"AH'M FAAAHN!
After which you may argue with him about whether or not he has an accent.....oh, and here's a hint...HE DOES!

I wish you the very best with your project, please don't let your dad do the spell-check for you...trust your puter instead!! ;)

Cathi :P

Title: Re: Cluster Headaches Documentary
Post by cootie on Dec 3^rd, 2003, 11:35pm

Oh no.....little Chuckie ? Hi Chuckie 2....I didn't get the 'use spell checker and learn proper vocab bit' till I got a brainstorm......duh......he modify'd his spelling in the post before I read it. Shewww.....was worried fer a bit cuz he does alot better then me.....I spell's em like I see's em Pam

Title: Re: Cluster Headaches Documentary
Post by brain_cramps on Dec 3^rd, 2003, 11:39pm

on 12/03/03 at 23:35:24, cootie wrote:

...I spell's em like I see's em Pam

LMAO Pam!!!!!

Title: Re: Cluster Headaches Documentary
Post by Charlie on Dec 4^th, 2003, 12:05am

Jeesh.

Here I tried to find spelling errors but didn't see that it was straightened out..I have no brain.

Why bug him? Find out more.

Charlie

Title: Re: Cluster Headaches Documentary
Post by Little Deb on Dec 4^th, 2003, 12:23am

Well, by next summer I will probably be in cycle. You can video me if ya want, but I won't take my clothes off!!! :o :o :o

If ya want that, you better check with NotH20!!! [smiley=laugh.gif] [smiley=laugh.gif]

It's a video people. Who cares how he spells???? As long as the kid can pronounce clusterhead and focus a camera. LOL

Always wanted to be in a movie....Little Deb ;)

Title: Re: Cluster Headaches Documentary
Post by cootie on Dec 4^th, 2003, 12:29am

Oh oh Deb.....now yer prolly gonna git all kinds of offers......blahhhhh-ha-ha-ha !!! Pam that'd never win a spellin contest

Title: Re: Cluster Headaches Documentary
Post by Linda_Howell on Dec 4^th, 2003, 1:08am

"I spells em like I see's em is called Phonics, Pamie dear
and you do just fine.

LindaH who sometimes spells her name Luinda cause she's blonde and very dumb

Title: Re: Cluster Headaches Documentary
Post by 12gagueblast on Dec 4^th, 2003, 2:51am

I no wonder you have problems with doctors if you treat them like you do CCTV. someone wants to help and you pick on spellin(sic). I happen to suck at spelling,but i thoug the point here was to help eachother and pass on helpful info. i didnt know this was for a grade. i thought we were going for a free flow of ideas here. now that i got that out of my system. i wouldnt mind helping you CCTV but i live in Ohio if you are up here or get a travel grant i would love to help. thanks for taking time on this. everyone's help is appreciated(oh no a spelling error). F the spell check whiners. ;)

Title: Re: Cluster Headaches Documentary
Post by BarbaraD on Dec 4^th, 2003, 4:21am

Chuckie 2

I'm not sure where you are in FL, but there are a bunch of sufferers there as well as supporters.

I think this would be a great way to get our message out there. It would be something to take to "luncheons" if one of us got invited to do a program on CH. I've thought about Lions Club, Rotary, Chamber of Commerce meetings.

How long is this going to be?

Whatever we can do to help just ask....

Again, good luck with your project and I, for one, think it's an excellent idea.

Hugs BD

Title: Re: Cluster Headaches Documentary
Post by sandie99 on Dec 4^th, 2003, 5:24am

Great project, I wish you the best of luck with it! :)

And what comes to spelling, I can't really comment. When I have HA, my typing is something horrible... ;;D

Best wishes,
sandie99

Title: Re: Cluster Headaches Documentary
Post by Bob P on Dec 4^th, 2003, 5:47am

Thanks for the offer dude. This is exactly the kind of thing we all want to see happen.

I'm on the California coast and should be in a cluster around next August. I'm sure not going to travel while being hit so you would have to come to me but I'm willing to do anything, even on tape, to help the cluster cause.

BTW gang, also doing an interview with a news reporter in St. Jo., MO today. God I'm a ham!!!!

Title: Re: Cluster Headaches Documentary
Post by thomas on Dec 4^th, 2003, 9:01am

on 12/04/03 at 02:51:57, 12gagueblast wrote:

Ditto. I would love to volunteer. Hmmmm did I spell that right?

Title: Re: Cluster Headaches Documentary
Post by CCTV_guy on Dec 4^th, 2003, 9:10am

More info:
Approximate Run Time=1.5 hrs
No clothes need to be removed (for that see Chuckey Sr. LOL ;;D)

My goal is to spend 3 weeks on the road taping my victims …. Oh wait, sorry, I meant most marvelous interviewees. LOL. Please feel free to ask any further ?’s you all may have and I will be glad to answer them if I can.

Title: Re: Cluster Headaches Documentary
Post by thomas on Dec 4^th, 2003, 9:34am

When are you planning on filming? I'm out of cycle and hopefully will remain so for about 9 months. But more than willing to give and interview anytime.

Title: Re: Cluster Headaches Documentary
Post by don on Dec 4^th, 2003, 10:07am

ClusterChuck 2: The Sequel

In this episode we learn that ClusterChuck has been breeding and sending his offspring out into the country side.

Scary.......Scary.......Scary !

Title: Re: Cluster Headaches Documentary
Post by ClusterChuck on Dec 4^th, 2003, 11:05am

on 12/04/03 at 10:07:31, don wrote:

ClusterChuck 2: The Sequel

In this episode we learn that ClusterChuck has been breeding and sending his offspring out into the country side.

Scary.......Scary.......Scary !

HEY!!! I resemble that remark! Just because I have a Demon spawn in Florida, another in Hawaii, and two in North Carolina ... Sheesh!!!

Wait a minute .. Thinking of my kids, maybe I should have become a MONK? Heehee ...

The Evil Spawn Spewer ...
Chuck

PS: I really do love my kids ... Or at least once in a while ...

PPS: I have the GREATEST kids! I am VERY proud of EVERYONE of them!

Title: Re: Cluster Headaches Documentary
Post by grumpett on Dec 4^th, 2003, 11:35am

I am in Canada and currently pf but.... and i do mean but.... My cycle has been starting in early spring and continues to the fall. I would even be willing to go to Florida to help with this, of course expences paid would be nice, But I would take the trip for help of any kind. Including tv. coverage and promoting this horrible beast to be stopped.
Hope for those who care that this is all spelled correctly!

Title: Re: Cluster Headaches Documentary
Post by aprilbee on Dec 4^th, 2003, 11:49am

Its a great idea! I'm in OK, I would love to help! My cycles have been all out of wack lately, so not sure if I will be in cycle in the summer...but anything you need just hollar!! Video, interview, place to stay, anything you need sweetie, More Power To Ya!!!! ;)

Title: Re: Cluster Headaches Documentary
Post by don on Dec 4^th, 2003, 12:06pm

ClusterChuck; Part 3

Save the Offspring episode. As the Chuckster's offspring infiltrate the country, community groups rise up to "Save the Children" from the influences of the demented master. (except the one in Hawaii, he looks pretty happy).

Title: Re: Cluster Headaches Documentary
Post by nancyc on Dec 4^th, 2003, 12:15pm

Chuckie Jr, I would be glad to have you interview me...I am pf at the moment due to my medications..I am chronic....But glad to volunteer to help....Great project... ;;D PS, Ignore the spell check folks...half of them can't spell and have to use spell check...you ever heard of the phrase, "bit dog hollers?"....Yep, I am SOUTHERN! LMAO

Title: Re: Cluster Headaches Documentary
Post by catlind on Dec 4^th, 2003, 1:04pm

Chuck Jr, Not sure if you got my email or not, but I'd be happy to help out in anyway I can.

I'm episodic with a currently messed up cycle hehe. If you are interested you could also interview my hubby (supporter) and my 3 kids age 3-12 who each have a job when mom gets one of her 'hegaches' as my 3 year old calls it hehe. (His job is to squeeze the bag attached to the O2 mask when it fills up).

Email me if there's anything I can do for ya.

Cat

Title: Re: Cluster Headaches Documentary
Post by Tiannia on Dec 4^th, 2003, 1:26pm

You are more then welcome to come to Vegas to see the sights and watch those of us here. My clusters only just started this July, but there are some longtimers around here who would be able to get you more indepth information about the lack of help here in the valley.

Tia

Title: Re: Cluster Headaches Documentary
Post by Jayne on Dec 4^th, 2003, 1:30pm

that's what we need....footage,,of a kip 10..I have only seen footage of one on the Good Morning America segment about "suicide Headaches" I for one would be willing to let one go through it's course without jabbing myself (eeewww) for the sake of education.
I still bloody hate the fact that we call them "headaches" because automatically, everyone associates thier own pain of headaches to ours.
It's not a bloody headache...it's a brain seizure or something more discriptivley horrible...ya'll know what I mean...I don't need to waffle on!

Title: Re: Cluster Headaches Documentary
Post by Paigelle on Dec 4^th, 2003, 1:35pm

Hmmm, well if you come to visit your Dad. You can interview me. He is suppose to come down for coffee, but I haven't seen him yet. So maybe if you come to interview me, he will tag along.

Title: Re: Cluster Headaches Documentary
Post by 12gagueblast on Dec 4^th, 2003, 3:54pm

I hopefully wont be in cycle durring the summer or ever again for that matter, but as i said you are more than welcome to interview me. My wife said you could interview her as a supporter if you like. just let us know. Ohio is pretty nice in the summer.

Title: Re: Cluster Headaches Documentary
Post by River_Rat on Dec 4^th, 2003, 5:58pm

Me would wanna help if me's cud. OK OK thats enough!!

Hey Chuckie, We are having a get together with about 20 - 30 clusterheads/supporters in IOWA January 9-10-11/03 I'm sure no one would mind if you would like to come by.

You can find the post about it titled "Midwest Meet and Greet January 10th & 11th"

It will explain the when and where of things, We also have some really great rates on rooms, Check it out!

Keep doin what your doin brother!!

LEE

Title: Re: Cluster Headaches Documentary
Post by CCTV_guy on Dec 4^th, 2003, 8:30pm

Anyone who would like to take part in this project and be interviewed please fill out the following survey and e-mail it to me at MidnightMedia@hotmail.com. If you are uncomfortable using your real e-mail address get one with hotmail or yahoo. However please remember your address name and film name as that is how I’ll refer to you when I post to arrange times and dates for interviews and the like.

Demographics Survey for
Cluster Headaches Documentary

1. Name (Fictional, to be used in film):
2. Age (Have to ask, sorry):
3. Sex (Male or Female, not wanted):
4. State of Residence:
5. Are you a sufferer or supporter:
a. If you are a sufferer answer below
i. How long have you been having Clusters:
ii. Type of Clusterhead (Episodic or Chronic):
iii. In a typical cycle (or if you are chronic on
a typical day) how many attacks do you
have a day:
b. If you are a supporter answer below
i. How long has your suffer been having
Clusters:
ii. Type of Clusterhead is your suffer (Episodic or
Chronic):
iii. In a typical cycle (or if you are chronic on a
typical day) how many attacks does your
suffer have a day:
6. How many people in your household:
a. How many are children:
7. May we interview others in your household:
8. How in depth can we interview you
a. Interview
b. Videotape an attack
c. Tape a few days of your life (to show level of
disruption)
d. Videotape a Neurologist appointment/tests
(privacy WILL be protected)
e. Other (describe)

I’m sorry if any of these questions are bothersome, but are asked in order to do the best job I can. Thank you for your assistance!

Pain Free wishes to all!

Title: Re: Cluster Headaches Documentary
Post by jonny on Dec 4^th, 2003, 8:38pm

Bothersome?

Its the best ive seen in over four years.

Go kid go!!!!

..................................jonny

Title: Re: Cluster Headaches Documentary
Post by Mastifflvr28 on Dec 5^th, 2003, 12:26am

Hey Chuckies son,
Why don't you think about coming to the convention, you'll have about 50 VICTIMS in one room! Or I should say ONE PORCH!

Think about it, it's the weekend of July 16th and it'll be in Nashville.

And thanks for considering us for your project.
Mast

Title: Re: Cluster Headaches Documentary
Post by ClusterChuck on Dec 5^th, 2003, 12:51am

on 12/05/03 at 00:26:35, Mastifflvr28 wrote:

Hey Chuckies son,
Why don't you think about coming to the convention

Damn, Mast, I finally got him out of the house, and now you are trying to get him backwith me? I want to have FUN at the convention!!

Chuck

Title: Re: Cluster Headaches Documentary
Post by BobG on Dec 5^th, 2003, 6:20am

If you want to come to Vegas I can line up 9 of the most beautiful (or handsomest, your choice) clusterheads in the world. How about a photo op at the fountains in front of the Bellagio? Or on the Brooklyn Bridge at New York New York? Or atop the Eiffel Tower at Paris?

Would it look like clusterheads have too much fun? After all we’re supposed to be miserable, pathetic creatures. Never mind…forget Vegas………go to Pittsburg.

Note: spel check completed before posting.

Title: Re: Cluster Headaches Documentary
Post by Woobie on Dec 5^th, 2003, 6:08pm

on 12/03/03 at 22:22:41, ShariRae wrote:

THaNks Shari!! I appreciate that! :D

Huggs to you too!!
Tina :-*

ps........YO! CCTV - good job!! and ClusterChuck.... you too!

Title: Re: Cluster Headaches Documentary
Post by Kirk on Dec 5^th, 2003, 9:09pm

Chuck with a son in an institution of higher learning?
I'll be damned [smiley=eek.gif]

TTFN

Title: Re: Cluster Headaches Documentary
Post by Major_Headcase on Dec 6^th, 2003, 1:19am

Great idea on the video CCTV, more power to ya'!

... but about the soundtrack, please ... no airy Zamphir (sp?) flute stuff, howz 'bout some Phillip Glass? [smiley=crackup.gif]

Title: Re: Cluster Headaches Documentary
Post by Prense on Dec 6^th, 2003, 2:02pm

on 12/05/03 at 06:20:21, BobG wrote:

Would it look like clusterheads have too much fun? After all we’re supposed to be miserable, pathetic creatures. Never mind…forget Vegas………go to Pittsburg.

LMMFAO! ;;D