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Title: Who's in..who's out?... Post by stevegeebe on Nov 28th, 2003, 3:36pm ...cycle that is. Might as well focus the might, ya know. I'm out. Vibes to my Clusterbuds in pain. Steve G |
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Title: Re: Who's in..who's out?... Post by brain_cramps on Nov 28th, 2003, 3:47pm been out-of-cycle since Oct 2002 --- not "expecting" to be in-cycle until March 2004 (knock on wood) PF to all that are in-cycle AND, of course, to the chronics, grant |
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Title: Re: Who's in..who's out?... Post by Paigelle on Nov 28th, 2003, 3:49pm I am in damnit! >:( |
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Title: Re: Who's in..who's out?... Post by samurai on Nov 28th, 2003, 3:53pm I am fortunate to be out of cycle at the moment, I just finished mine. I usually get them every other year (??) so I hope to be PF until I get back from overseas. Fingers crossed!! Strength and Love to those who are in cycle or chronic. Jason |
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Title: Re: Who's in..who's out?... Post by Mikey on Nov 28th, 2003, 4:10pm CHRONIC HERE....... >:( >:( >:( >:( >:( >:( >:( Mikey... |
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Title: Re: Who's in..who's out?... Post by Melissa on Nov 28th, 2003, 4:42pm I am out till 2005 (hopefully), lots of PF vibes to all suffering! :)mel |
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Title: Re: Who's in..who's out?... Post by Prense on Nov 28th, 2003, 5:38pm Chronic, but dealing with it and will continue to do so. |
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Title: Re: Who's in..who's out?... Post by TxBasslady on Nov 28th, 2003, 5:54pm 8) Day # 80.........PF !!!!!!!!! Jean |
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Title: Re: Who's in..who's out?... Post by ckelly181 on Nov 28th, 2003, 5:58pm Out for about 3 weeks...yay.[smiley=biggrin.gif] Chris |
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Title: Re: Who's in..who's out?... Post by ClusterChuck on Nov 28th, 2003, 6:20pm Chronic AND in cycle ...BUT I may be getting a break soon!!! Down to only 5 or 6 hits a day!!! YEAH!!!!! Chuck |
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Title: Re: Who's in..who's out?... Post by stevegeebe on Nov 28th, 2003, 6:27pm 5 or 6!!... Chuck! Maybe this was a bad idea.? Vibes! Steve G |
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Title: Re: Who's in..who's out?... Post by ClusterChuck on Nov 28th, 2003, 6:31pm Not a bad idea at all, Steve. You know how Chuck |
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Title: Re: Who's in..who's out?... Post by Linda T on Nov 28th, 2003, 6:34pm Hi all. Out since April 2002. Shadows here and there, that's it. Don't know if I'll be going back in anytime soon. Keeping my fingers crossed. I once had an 11 year remission and that's what I'm kinda hoping for now. Wishing you all PFDAN always, Linda T |
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Title: Re: Who's in..who's out?... Post by grumpett on Nov 28th, 2003, 6:43pm [smiley=snore.gif] 2 weeks pf here and enjoying every night of it! wish everyone else some pf time! |
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Title: Re: Who's in..who's out?... Post by Opus on Nov 28th, 2003, 6:55pm In for 7 months but who's counting. Opus/Paul |
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Title: Re: Who's in..who's out?... Post by 9erfan on Nov 28th, 2003, 7:02pm Chronic here....every day since Feb, 2001. :-/ |
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Title: Re: Who's in..who's out?... Post by Kirk on Nov 28th, 2003, 7:30pm Cronic myself. Sure is good to see how many are out of cycle and having a life. Keep it up folks, gives me hope. TTFN |
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Title: Re: Who's in..who's out?... Post by paul_b on Nov 28th, 2003, 7:33pm Out since Jan. 03. Missed the usual June cycle but the last cycle lasted 6months instead of 3. Crazy Beast. Maybe age factor is setting in---turning into an old fart. |
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Title: Re: Who's in..who's out?... Post by Ann on Nov 28th, 2003, 7:56pm Unfortunately...in! But glad to see people posting that they haven't been hit in 80 days and 3 weeks and so on!! That is great news..hope it lasts forever guys! hugs Ann |
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Title: Re: Who's in..who's out?... Post by jonny on Nov 28th, 2003, 8:00pm Been in cycle since 1974....aint life a bitch?....LMMFAO ;;D .................................jonny |
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Title: Re: Who's in..who's out?... Post by Elaine on Nov 28th, 2003, 8:05pm I am out and loving it! After years of being chronic I can't complain! |
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Title: Re: Who's in..who's out?... Post by amen on Nov 28th, 2003, 8:24pm I am in. Have been for about 6 weeks now. I think it may be ending. I have had mostly only shadows lately. Not sure when I'll be in again. I was PF for 5 years until about 6 weeks ago. And before that I never really had a pattern. I never even knew there was name for what I had then. PF vibes for those of you who are in cycle, and/or chronic. |
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Title: Re: Who's in..who's out?... Post by Little Deb on Nov 28th, 2003, 8:48pm OUT!! ;;D since Oct 2002. Hoping not to be back until next summer, but having occassional mild shadows the last 2 months. Just enough to make me paranoid...you know... Pain free vibes to all, and prayers for long remissions for everyone!! Little Deb 8) |
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Title: Re: Who's in..who's out?... Post by OneEyeBlind on Nov 28th, 2003, 8:56pm Out and thanking God for it every pain free day. Been out of cycle since 10/02. PFDAN's to all !!!! |
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Title: Re: Who's in..who's out?... Post by 12gagueblast on Nov 28th, 2003, 11:08pm In about the sixth week of a usually 8 week cycle. Mosty very well under controll. Have a cycle about every year but am able to keep it under pretty good controll durring the cycle. Havent had a "bad" cycle for about 4 years. Before I found some things that work for me. |
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Title: Re: Who's in..who's out?... Post by JDH on Nov 28th, 2003, 11:51pm been pf since late Feb 03 and hoping to stay this way [smiley=thumb.gif]. Jim |
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Title: Re: Who's in..who's out?... Post by Mastifflvr28 on Nov 29th, 2003, 12:40am Out, for about a week now...with no meds. Whoo hooo. Damn chronics at the convention wore off on me :) Wishing everyone PF days and nites!!!!! Mast |
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Title: Re: Who's in..who's out?... Post by cootie on Nov 29th, 2003, 12:46am Brad's an OUTIE at the time........he should be cool fer two more years but has been gettin odd twinges on one sidea his head. So.......hopein wishin it's a fluke of nature Pam |
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Title: Re: Who's in..who's out?... Post by ozzman on Nov 29th, 2003, 1:14am I'm finnally out, I have been drinking a an sload of beer and now am on some wine and Jager. Can't beat that. 8 out of the las twelve month I've bee in cycle. that's the closest I've bee chronic...Sucks to be you (chronic) for now it is ... [smiley=beer.gif] I've retyped all of this three times, but I'm soooooo happy I don't care, more Jager fotr me... Ozzman |
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Title: Re: Who's in..who's out?... Post by mikeyd on Nov 29th, 2003, 7:55am I'm in...on the way out (I hope). Mine last 6-12 weeks and come every 13-16 months for the last 11 years. Week 8/9 now. Had 4 PF days in a row!!! NNIIIIICCCEEE! :D PF wishes and vibes for all of yah! Mikeyd |
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Title: Re: Who's in..who's out?... Post by Jimmy_B on Nov 29th, 2003, 7:57am Out of cycle...Kudos to people "out of cycle" who still come regularly to this site to offer support to our brothers & sisters in cycle. (or who are chronic) Jim |
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Title: Re: Who's in..who's out?... Post by BarbaraD on Nov 29th, 2003, 8:03am Chronic, but glad to see so many outies. Stay that way... Hugs BD |
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Title: Re: Who's in..who's out?... Post by BlueMeanie on Nov 29th, 2003, 8:03am Just wanted to say I am thrilled to see so many people out of cycle and still posting for us unfortunate clusterheads that are still in. 12th week and still going. |
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Title: Re: Who's in..who's out?... Post by jadedgazer on Nov 29th, 2003, 8:11am Chronic since Sept. 2001, every day..but happy to see so many that are out! |
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Title: Re: Who's in..who's out?... Post by suzy617 on Nov 29th, 2003, 9:22am I'm out. Missed my dance with the beast this september. Hopefully he wont be back till next year. Suzy |
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Title: Re: Who's in..who's out?... Post by totka on Nov 29th, 2003, 11:07am Out ... yet |
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Title: Re: Who's in..who's out?... Post by thomas on Nov 29th, 2003, 1:56pm Out for about a month WHHOOOO HHHHOOOOOO!! |
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Title: Re: Who's in..who's out?... Post by taraann on Nov 29th, 2003, 4:36pm Glad to see so many out of cycle! And sorry to those that are currently suffering! on 11/28/03 at 18:20:50, ClusterChuck wrote:
Wow Glad to hear that chuckles buddy! I'm still in dabnabbit, since June, should've been out months ago! |
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Title: Re: Who's in..who's out?... Post by 5-string on Nov 29th, 2003, 6:29pm Out since mid sept. but I have constant shadows. Some are pretty strong....I have a question: Are you really out of cycle if the shadows won't go away and at times are so strong they wipe you out all night and in to the next day? W.T.F. is up with that??? I'm sick of the shadows! Totally sick of 'em. They are driving me nuts. Have a nice day :) ..Mark.. |
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Title: Re: Who's in..who's out?... Post by Not4Hire on Nov 29th, 2003, 7:15pm ....i hear ya, 'string.... whatEVER a *shadow* really is?... but I've been PF since October 2002, thanks to http://tinyurl.com/uby8... ...but a little maintenance is in order... lettuce P(ray)....wink, nudge.... notfer... |
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Title: Re: Who's in..who's out?...in sincein Post by tim_s on Nov 29th, 2003, 7:33pm IN!!!! started last monday and I'm not dealing well with it this time. hits have been worse than befor and sometimes back to back with as little as 45 min. between CHs.will have O2 first of the week, hope it helps.tring to stand on 1st tim 1:7 to fight the fear of going to sleep.God loves us all and we'll be healed in His time not ours :-/ [smiley=thumb.gif] |
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Title: Re: Who's in..who's out?... Post by LasVegas on Nov 29th, 2003, 8:39pm Out for over a month, thank God! Thank Prdenisone, thank Verapamil. Gregg in Las Vegas |
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Title: Re: Who's in..who's out?... Post by Roxy on Nov 30th, 2003, 1:00am not out.....chronic.....it sucks.......I'm getting hammered [smiley=hammer.gif] |
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Title: Re: Who's in..who's out?... Post by sandie99 on Nov 30th, 2003, 6:34am I say "in" to be sure... I was nearly PF yesterday (only shadow CHs) and so far no HAs today either :). I'll wait few days before saying "out"... ;;D I'm keeping my thumbs up! :) Best wishes & PFdays, sandie99 |
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Title: Re: Who's in..who's out?... Post by Edna on Nov 30th, 2003, 3:01pm In, but "alive" here. Day 25 here, and still fighting. EDNA |
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Title: Re: Who's in..who's out?... Post by AlienSpaceBabe on Nov 30th, 2003, 9:06pm (and only 26 months to go until my next 6 to 9 months off, I think) Lizzie |
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Title: Re: Who's in..who's out?... Post by nancyc on Dec 1st, 2003, 12:11am I am chronic but thanks to the combo i am on, i have been almost pf for about 15 months ,Other than three breakthru periods that did not last that long....BUT, the last few days, I have started having twinges in my face and neck that usually signal that an attack is on the way.So far, so good though...I am so grateful that I have had this pf time and Pray that it is a false alarm...but going to pick up some more imitrex tomorrow to be on the safe side...Vibes going out to all of you that are not pf....smiles,nancyc |
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Title: Re: Who's in..who's out?... Post by TomM on Dec 1st, 2003, 10:26am In but PF for 2 days now. Wahoo! TomM |
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Title: Re: Who's in..who's out?... Post by echo on Dec 1st, 2003, 11:53am Chronic and In. Whoopdeefuckendoo, what do I win? |
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Title: Re: Who's in..who's out?... Post by Big_Dan on Dec 1st, 2003, 12:04pm Out since Mid-April '03.... -Big Dan |
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Title: Re: Who's in..who's out?... Post by Rick_K on Dec 1st, 2003, 1:30pm I'm out, been 2 months now PF Good vibes to all in cycle and chronics PFDAN to all Rick |
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Title: Re: Who's in..who's out?... Post by Jewel on Dec 1st, 2003, 3:42pm I'm out. Been painfree for a few months now. It's great! :) |
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Title: Re: Who's in..who's out?... Post by miCHel on Dec 1st, 2003, 5:16pm Out since last Spring. Not very anxious to get back on the dance floor... I wish PF days to all of ya! miCHel |
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Title: Re: Who's in..who's out?... Post by AlanG on Dec 1st, 2003, 5:45pm Im Chronic, havent had a nights sleep in nearly 4 weeks now, only made it to work for 2 afternoons in the last month, been going thro an M tank oxy bottle in 2 weeks instead of 4 weeks, and im almost out on the bottle.ahggg. I have 4 small emergency/transport bottles left gives me about 8 hours of gas im hoping they will last till thursday when my resupply tanks come. Im more in than out, man is life screwed up. |
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Title: Re: Who's in..who's out?... Post by AlanG on Dec 1st, 2003, 6:21pm Paigelle, Mikey, Prense, ClusterChuck, Opus, 9erfan, Kirk, Ann, Jonny, Amen, 12guageblast, Ozzman (take it easy on the drink ozzman, thats not good for us in the long run either and its tempoary relief, ive tried booze too but it dont help) MikeyD, BarbaraD, Blue meanie, Jadegazer, taraann, Tim_S (i hear you on the sleep issue), Roxy, Sandie 99, Edna, AlienSpacebabe, and Echo, Hang in there buddies this doesnt last forever, might seem like it tho. im chronic and more in than out. so i know what its like....it sucks. |
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Title: Re: Who's in..who's out?... Post by jep22 on Dec 1st, 2003, 9:18pm Out for two weeks after being in for 12 weeks. But there is always a monster lurking in the shadows. And there it is alway that which will never go away --- the feeling of impending doom. The apprehension that the painfree days won't last. The gitchy gloomies. Jim P. |
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