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        New Message Board Archives >> Oct-Dec 2003 >> thought you could talk about ch
        
(Message started by: tinyhuey on Nov 14^th, 2003, 12:55pm)

Title: thought you could talk about ch
Post by tinyhuey on Nov 14^th, 2003, 12:55pm

:'( This is my first visit here, and I thought you could just sit and talk with people about how bad and how often. I just want to talk about how I feel when I have one. I'm not like other ones I read about, but then maybe I am. I would like to talk when it hurts ???????????????????????????????????????

Title: Re: thought you could talk about ch
Post by Patrick_A on Nov 14^th, 2003, 12:59pm

Welcome to CH.com, Talk away! I am sure you'll find many others that love to talk about it.
Everybodies different. I am a Venter, I just wanna Vent when i am hurting!

Patrick

Title: Re: thought you could talk about ch
Post by vig on Nov 14^th, 2003, 1:03pm

we're listening!

Title: Re: thought you could talk about ch
Post by thomas on Nov 14^th, 2003, 1:06pm

Hey, just let it out. It hurts when it's happening, no one understands, you can't take it any more, I'm going crazy. Well not anymore, you found us. We are here to help. You are not alone. Welcome aboard. :)

Title: Re: thought you could talk about ch
Post by ClusterChuck on Nov 14^th, 2003, 1:07pm

Welcome aboard, Tinyhuey, but sorry you have to be here.

I am not sure what you mean about you just want to talk. A lot of us have formed friendships to the point where we call each other on the phone. Many of us go to the chat room here: http://headachesupportgroups.com/echat44/public/index.html There are usually people in there after 8 or 9 pm EST.

If you have questions, or just want to vent or whine, many do so. There are usually people here 24 hours a day, so you should get an answer.

How about telling us about yourself? Tell us what your headaches are like, how often do you have them, what tests have you had done, what medications are you taking or tried? Let us get to know you.

This is a mb that sometimes gets a little fiesty, but like all families, sometimes there is some squabbling. Ignore it. There is so much love, concern and support here.

You also need to read, read, read ... There is so much information available to you. Check out the buttons on the left side of your screen. Knowledge is power, and you will need all the information you can get to properly fight this afliction.

Again, welcome aboard!

Chuck

Title: Re: thought you could talk about ch
Post by cathy on Nov 14^th, 2003, 1:46pm

Hi Tinyhuey....tell us about how often and how bad..talk away!!

Welcome to the family tell us a bit more about yourself we're all ears.

Cathy

Title: Re: thought you could talk about ch
Post by Bob P on Nov 14^th, 2003, 2:04pm

on 11/14/03 at 12:55:30, tinyhuey wrote:

:'( I would like to talk when it hurts ???????????????????????????????????????

The only talkin' I'm doin' when it hurts is to tell everyone to stay the fuck away from me and leave me the fuck alone!!!!!!!!!!!!!!!!!!!!!

Title: Re: thought you could talk about ch
Post by TxBasslady on Nov 14^th, 2003, 2:34pm

LOL........Ditto, Bob. It's those...don't touch me, don't talk to me, don't look at me kinda times.

Welcome to the board, Tiny.
There is usually always someone here to talk too. Lots of good information located on the left in the links.

I have found my best info from the folks here on the board. It's interesting to see what works and what doesn't. We are all different.

Hope you enjoy your stay here, and keep posting and let us know how things are going. [smiley=huh.gif]

Jean

Title: Re: thought you could talk about ch
Post by ZAIRA on Nov 14^th, 2003, 2:57pm

on 11/14/03 at 12:55:30, tinyhuey wrote:

Now you are no more alone! You are in a BIG family, here for helping you.... WELCOME HOME!

PFDAN, Zaira

Title: Re: thought you could talk about ch
Post by BarbaraD on Nov 14^th, 2003, 3:37pm

Welcome to Clusterville.... sorry you're here, but glad you found us.

Talk away - we're family and "know how you feel". We all handle our HAs different, but when it comes right down to it - we're here for each other.

Tell us about yourself (we're a nosey bunch) - it helps to get to know you. Then we'll tell you about us. We're good for giving advice .. take what you need of it - it's free.

Welcome to the family.... you're not alone anymore.

Hugs BD

Title: Re: thought you could talk about ch
Post by NotH20 on Nov 14^th, 2003, 4:14pm

Adding in my "welcomes" with the rest Tiny.....absorb all of this information like a sponge......

Talk away!!!!

Mia

Title: Re: thought you could talk about ch
Post by Svenn on Nov 14^th, 2003, 5:55pm

No need to say anything else here but Welcome to Clusterville

Svenn

Title: Re: thought you could talk about ch
Post by stevegeebe on Nov 14^th, 2003, 6:53pm

Welcome.

Hold on.

Steve G

Title: Re: thought you could talk about ch
Post by Tiannia on Nov 14^th, 2003, 7:46pm

Welcome, talk, yell, whatever helps.

Tiannia [smiley=wave.gif]

Title: Re: thought you could talk about ch
Post by tinyhuey on Nov 15^th, 2003, 2:59am

Good Morning and Thank you for a warm welcome. I'm scared to tell you how bad it hurts, because a lot of you would say maybe its not clusters.but if you could feel the pain you would know it is. Yes I know you all have terrible pain , it just seems like mine don't fit the profile of clusters. Mine don't stay for an hour or two I have had them last for days. Pain so bad you want to die, and yes I have thought of it.The only thing that keeps me here right now is raising my grandchildren and a WONDERFUL hubby who feels my pain too. I guess I'm not sure where to start or how to explain what goes on when they appear. Maybe in time and help from all the GREAT people on here I will tell you. I am like you.

Title: Re: thought you could talk about ch
Post by cathy on Nov 15^th, 2003, 6:06am

Hi Tinyhuey, why be frightened that they may not be CH surely that would be a good thing....believe me if it's not CH then you should be thankful and happy, CH do not usually last for days...do you get a break inbetween the pain, I think it would help if you could describe your pain a bit more...is it onesided..?? what do you do when your in pain...??

Whatever kind of pain your in is irrelevant, people here are here to help you as much as they can...surely it's better to be correctly diagnosed...maybe you should seek a second opinion from a neurologist...

In the meantime I wish you PF times...let us have a bit more information....maybe someone here can point you in the right direction...

Cathy

Title: Re: thought you could talk about ch
Post by Miss_Deleny on Nov 15^th, 2003, 10:40am

Welcome Tiny! [smiley=hug.gif]

I can't add any more than all the others before me stated. But letting us know more about your pain can help us in understanding more about what you are going through. I agree with Cathy .. If its not CH, you should be thankful since most anything else is curable where as CH is not.

Again, welcome to the family!
~April~

Title: Re: thought you could talk about ch
Post by Prense on Nov 15^th, 2003, 11:03am

Cathy really took the words out of my mouth... I'd be ecstatic to find that I don't have CH! For me, each attack doesn't last longer than 2-3 hours, but I can get attacks back-to-back.

If I may, I have a few questions...

"Days" is a little vague...how do you sleep, or do you sleep? What do you do/attempt to cope? Have you been diagnosed yet? What tests have you had performed? What meds have you tried and which were successful if any? Other than pain severity, would you describe your symptoms? Have you taken the cluster quiz?

Ok, that's all I can think of for now. There is no one here that doubts your pain, and no one here that can diagnose you.

Wishing you PF times!

Chris

Title: Re: thought you could talk about ch
Post by cootie on Nov 15^th, 2003, 11:59am

Hey tinyhuey.....nice ta meet ya !!! A big huey's Pam

Title: Re: thought you could talk about ch
Post by Cerberus on Nov 15^th, 2003, 2:54pm

You're in the right place, Talk, vent, curse, do what you must. If you'd like to talk face to face with others goto the CH chat around 9ish P.M.CST there are usually a few of us there around that time, if not, hang around a bit and someone will usually join you.

Ramon

Title: Re: thought you could talk about ch
Post by Charlie on Nov 16^th, 2003, 1:33am

Welcome aboard and glad to have ya.

Feel free to rant away, yak about CH or whatever strikes your fancy. One thing you'll find here is that we know exactly what this pain is like and what talking about...no need to worry.

We have our fun and sound strange at times but once someone asks a CH question, we all get back on track. In fact you are likely to be bombarded with suggestions.

Stick around and let us know how you're doing.

Charlie

Title: Re: thought you could talk about ch
Post by Opus on Nov 16^th, 2003, 9:38am

Tinyhuey,
This is the place to find out if you have clusters or not and yes I will say I hope you don't have it. There are treatments but they stop working after a few years for most people and they have to find something else. Any type of surgery seems to make thing worse in the end for most that have tried it. For most the best they can hope for is to limit the attacks not stop them. So read, read and read some more. There is a lot of information here and at OUCH. We need to help our Doctors with the correct diagnoses and treatment as most haven't heard of CH.

http://www.imgmag.org/images/sunny22/Gifs/Welcome.gif

Opus/Paul

Title: Re: thought you could talk about ch
Post by BillyJ. on Nov 16^th, 2003, 10:09am

Hi Tiny or is it PainPainGoAway? Are you the same one I
met in HSG chat a couple days ago?If you are then let
me explain a comment that was made there,it looked as though you
were heading for the old "my pain is worse than your pain"
toppic and that just don't fly around here.
Pain Sucks period.
However,correct diagnoses is VERY important because
the treatment for CH,CDH,CPH,chronic migraines,ect,ect
are all going to be differant,so advice given for one is
not going to be helpful for another.
If you have CH then WELCOME to the board!
If it turns out not to be CH then your still welcome in
HSG chat
http://headachesupportgroups.com/echat44/public/index.html All types of HA can be talked about there,although
most who go threre are from this board and have CH.
Several of us also have migraines too.
Pain Free wishes to you no matter what kind of pain you have!
BillyJ

Title: Re: thought you could talk about ch
Post by jonny on Nov 16^th, 2003, 1:58pm

on 11/16/03 at 10:09:44, BillyJ. wrote:

"my pain is worse than your pain"
topic and that just don't fly around here.
Pain Sucks period.

Ditto!!!!

....................................jonny

Title: Re: thought you could talk about ch
Post by tinyhuey on Nov 17^th, 2003, 2:34am

Dear Friends, No I'm not saying my pain is GREATER than yours!!!!!!! Every one says theirs only last for an hour or so ,yes mine do too, but then there is days where the pain never goes away! It might not be as bad as pain when a super one hits, but it still pain.Mine come at any time day or night.Oh God it hurts,my head will explode. I was told my a doctor I have clusters and sense I don't have insurance, I deal with them the best way I can. Most of the time its just cry( if you can cause it hurts so bad) and then cry some more.I walk the floor if I can keep my head from moving, I cuss and pray to God to make it stop even if it means dieing!