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Title: switching sides Post by ponos52 on Nov 13th, 2003, 9:30am hi.my husbands clusters came back after a 5 yr. remission.it is now 8 1/2 weeks with the last 2 weeks him having only shadows. good sign huh? well, for the last 4 days, he's been getting them level 4-5 on the OTHER side. is this normal? does this mean a new cycle is starting all over again? has this happened to anyone in here? please answer me. thanks, RIA |
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Title: Re: switching sides Post by thomas on Nov 13th, 2003, 9:36am I haven't had that happen to me, however there are some here that have had it happen. So, I wouldn't panic. Hoping for pfnad :) |
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Title: Re: switching sides Post by Margi on Nov 13th, 2003, 9:58am Hi Ria and welcome. Yes, I've seen that happen to my husband too. It's very demoralizing, isn't it? You think the cycle has left and then it just gathers strength again. I don't necessarily think it means that his cycle is coming back, exactly - I think it just hasn't left yet. :( If you need a shoulder from folks who understand what YOU go through, supporting your husband through his pain, please feel free to join us over at Supporters Corner and check out the Family Services Team pages (the link is at the bottom of my post here). Hang in there, Ria. |
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Title: Re: switching sides Post by ponos52 on Nov 13th, 2003, 10:07am THANK YOU SO MUCH FOR REPLYING. I ALSO WISH FOR EVERYONE IN HERE A PAIN FREE LIFE. |
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Title: Re: switching sides Post by Patrick_A on Nov 13th, 2003, 11:21am I used to think i wanted mine to switch sides. I am not so sure now. Patrick |
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Title: Re: switching sides Post by drnoe on Nov 13th, 2003, 11:22am Hi RIA I only had my CH change sides once and it went back to "normal" I asked a respected Neuro about it and he said it was uncommon. Very uncommon. Just under reported, I suspect. PFDAN dan |
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Title: Re: switching sides Post by Margi on Nov 13th, 2003, 1:28pm Agree, Dan. Mike's neuro was surprised to hear this from us as well. Mike has even (rarely, though) had individual attacks switch sides...but only ever at the peak of a cycle. He argued with us that this is rare. Yeah, well - lucky us. The good doctor was also amazed to inspect Mike's cluster bump on the back of his neck (a survey conducted here years ago found THIS to be a commonality amongst sufferers). Said he'd never heard of this ganglion lump that most here have reported. Yet one more example that we do, indeed, sometimes know more about our afflicition than our professionals!! It's fun playing Stump-the-Neuro, isn't it? ::) |
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Title: Re: switching sides Post by Unsolved on Nov 13th, 2003, 2:19pm Yes..It has happened to me. First 12 years I was epesodic and ALL my attacks were on the right side. Since I became chronic a little over 3 years ago, the attacks have switched sides...BUT...I now can have attacks on either side. Sounds fun, huh !? Sorry, I know there's not much to joke around about clusters. Just wanted to say that it does happen. Goodluck Wishing you the best Unsolved |
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Title: Re: switching sides Post by NotH20 on Nov 13th, 2003, 2:24pm Sorry Ria - but I've always had mine on the right side and they've never switched..... Good luck to your hubby..... Mia |
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Title: Re: switching sides Post by Prense on Nov 13th, 2003, 8:27pm I have had a few attacks on the "other" side...they were, by far, worse than the norm. For me, they are extremely rare, but I am chronic. |
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Title: Re: switching sides Post by goaway on Nov 13th, 2003, 8:46pm It happened to me in my last cycle after 16 years on one side. |
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Title: Re: switching sides Post by sandie99 on Nov 14th, 2003, 9:02am Hi there, Ria! :) My ch attacks are usually on the same (left) side, but I have had attacks on the right side, too. The medical books say, that ch attacks can switch sides during the same cycle, but not during one day, but in my case, it has switched side during the day. Hoping PF days to your husband, sandie99 |
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