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        New Message Board Archives >> Oct-Dec 2003 >> Who is chronic?
        
(Message started by: Roxy on Nov 8^th, 2003, 10:53am)

Title: Who is chronic?
Post by Roxy on Nov 8^th, 2003, 10:53am

I know this has been talked about in past threads.....okay, truthfully.....I looked and can't find it in the archives. But, how many people here are chronic, and how does your head treat you? Are you in a heavy cycle right now, or a light one? What meds are you taking?

I'm wanting to get off of my verap, and was wondering how many other chronics are taking it.

PFDAN,
Tracey

Title: Re: Who is chronic?
Post by Linda_Howell on Nov 8^th, 2003, 10:58am

My hand is up Roxy.
Head is mis-treating me right now.
Heavy cycle with-in normal cycle.
Imitrex, 02 and Amerge.
Tried Veramail again but is doing nothing for me.

Linda

Title: Re: Who is chronic?
Post by Prense on Nov 8^th, 2003, 11:20am

- chronic 10yrs, never been episodic

- verapamil 240mgx2/day, depakote 250mgx2/day

- trex injections and O2

- moderate "cycle"

I haven't found a preventative that works yet, and I just added the depakote at the end of October.

Chris

Title: Re: Who is chronic?
Post by Jayne on Nov 8^th, 2003, 11:40am

Chronic for 4 years. I take 180mg time release verap 2 times sometimes 3 tmes a day...depending on how my head is acting. I know chronics get cycles within their chronicness. I am doing very well right now just on my verap..head has quietened down for the moment...so me well happy right now...would never come off my verap...that to me would be asking for trouble.

Title: Re: Who is chronic?
Post by vig on Nov 8^th, 2003, 11:44am

I WAS chronic.
Now I am 95% pain free.
No more prescriptions, please.

Paul

Title: Re: Who is chronic?
Post by eyes_afire on Nov 8^th, 2003, 12:50pm

I don't know, I may be chronic. :-/
Constant shadows since Sept 2001... a good portion of that time medicated with verapamil or shrooms. I recently tried tapering off verapamil (again) and couldn't do it (again). At least verapamil is very effective for me. Praise be to Verapamil.

--- Steve

Title: Re: Who is chronic?
Post by Karla on Nov 8^th, 2003, 1:03pm

I am chronic and can't take verapamil. I tried it and it did nothing for me except give me an irregular heart beat. I am using fentanyl patch and have been pain free for quite a while now.

Title: Re: Who is chronic?
Post by BarbaraD on Nov 8^th, 2003, 1:08pm

Chronic. Been taking Topamax since Aug 1999 and up until recently it has been working (only breakthrus if you don't count the shadows). The past few months, it seems to have quit working. Back to one - six HAs a day now.

Cafegot when headaches hit. DHE when it gets really too much to handle to try to break "cycle" within cycle or whatever the hell is going on.

Ready to try shrooms, but have to go off meds first.

Verap didn't work on me and neither did much of anything else. Topamax has been my lifesaver, but now I don't know about it......

Not much fun........

Hugs BD

Title: Who is chronic?
Post by ZAIRA on Nov 8^th, 2003, 2:02pm

Ciao Tracey :-*!

-I have been episodic for 10 years and now I'm chronic. My neurologist (Doc. Bussone, who was in Rome for cluster club ;;D) says that I am chronic because I do not have any clusters as usual in spring and autumn but during all the year long. I am well for a week and then start again with attacks. That is, I do not have clusters as a typical episodic sufferer.

BTW:

- Lithium (600 mg) + Verapamil (480 mg) evey day.... this combo works for me... ;)

- Imitrex shots, O2, Lidocaine, I bang my head against a wall... ;;D

- Yes... :'(

- Fuck Beast... >:(

Zaira >:(

Title: Re: Who is chronic?
Post by Unsolved on Nov 8^th, 2003, 6:35pm

Chronic for 3 years ... BUT PF for almost the past 2 weeks after starting Clomid ;;D

I won't stop taking my Verapamil and I always keep an injection close !

Unsolved

Title: Re: Who is chronic?
Post by Tim_w on Nov 8^th, 2003, 9:25pm

Tracey
Chronic here 6 years now!
taking 960 mil Verapamil and maxalt
still getting hit 8 to 10 times aday afraid to go off verapamil , could get worse :-/

Wishing you some PF time [smiley=hug.gif]
Timw Happy Pappy

Title: I ain't chronic.......
Post by Mr.Happy on Nov 8^th, 2003, 9:39pm

Man.....I'm wearing a full body condom from now on around here.
You filthy chronics are 15% of 0.4% of the population.......and I know FAR TOO MANY of you on a first name basis.
Hose me down with sodium hypoclorite and Lysol........quick.......

Masked stranger,
RJ

Title: Re: Who is chronic?
Post by Linda_Howell on Nov 8^th, 2003, 9:42pm

Too late.

(masked stranger on a 1st. name basis)

LMAO @ you

Title: Re: Who is chronic?
Post by Callico_Kid on Nov 9^th, 2003, 12:17am

Chronic since March of last year. Episodic 23 yrs prior to that. On 240mg verap twice a day. Tried upping it by 60mg, but bottomed out blood pressure and almost passed out while driving. 300mg Lithium twice a day for the last month and feel almost humanoid again. Still have heavy shadows, but able to function. Just cant sleep at night. Occasional burnthroughs that I just tough out.

Jerry

Title: Re: Who is chronic?
Post by Mikey on Nov 9^th, 2003, 12:54am

Tracey,
Me is chronic....LOL For 6 years now. I'm in a bad cycle with it now, and i take 720 mg of verap a day. I don;t think it's helping much, but too scared to quit taking it for the CH reason, which would lower my dose because i also take it for my heart condition. Also taking Depakote too 1500 mg a day.

And Randy, i hope your full bodied condom gets a tear in it. [smiley=moonwiggle.gif].LMMFAO!!!!!! (just kidding... [smiley=sgrin.gif])

Mikey,

Title: Re: Who is chronic?
Post by Roxy on Nov 9^th, 2003, 11:37am

on 11/09/03 at 00:54:51, Mikey wrote:

And Randy, i hope your full bodied condom gets a tear in it. [smiley=moonwiggle.gif].LMMFAO!!!!!! (just kidding... [smiley=sgrin.gif])

I've been trying to rub off on him.....but, he's not having any of it....... [smiley=lick.gif]

Title: Re: Who is chronic?
Post by BUBBADOG on Nov 9^th, 2003, 3:50pm

i am a chronic suffer of the beast. does anybody live in the pennsylvania area that knows of a good doc. i have been traveling to chicago area and that is to far my family doc thinks i am nuts tells me i can not be having this many headaches . i am in a heavy cycle now this sucks i want my life back

Title: Re: Who is chronic?
Post by nancyc on Nov 9^th, 2003, 4:02pm

I am chronic...have been pf since August 2002 except for three breakthru periods that did not last over two weeks each time..Before that I never seemed to get a break and was out of work on disability...I , now have my life back...I am on verapamil., topamax, the lowest dose of duragesic patch which I do NOT recommend for anyone that is Not chronic....I am grateful for each pf day I have...wish I could put them in a bottle and give them to each of you because I so remember those long days and nites of fighting the beast...my prayers are with all of you in cycle now... :)nancyc