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        New Message Board Archives >> Oct-Dec 2003 >> Hello!
        
(Message started by: Nitro on Nov 7^th, 2003, 8:55pm)

Title: Hello!
Post by Nitro on Nov 7^th, 2003, 8:55pm

Greetings,

I have had CHs since I was about 13 yrs old. I'm 29 now so they have become a part of my life. I am ep so I am gratefull that I only have to endure them once or twice a year for a few months each time. My cycle started a few weeks ago but I actually went to the doctor for the first time for them. (My wife insisted after I begged her to bash me in the head with a bat and knock me out one night) I'm thankful that my doctor did seem to have an understanding of CHs so she perscribed Imitrex and verapamil. For the first time I have been able to manage this damn curse. The Imitrex is sending the beast to sleep in about 10 minutes and the verapamil seems to be working after two weeks of 1-2 kip 5-10s every day. I've been pf for 4 days now without having to "shootup" the trex. I'm so thankful that this combo is working. (At least for now). Thanks for this site and all the great info here.

Title: Re: Hello!
Post by Charlie on Nov 7^th, 2003, 9:09pm

Welcome aboard.

After we run out of expletives to delete, we find places like this and more to add to our collection. ::)

Anyway, it's a pretty big crowd and the one thing we have in common is that we don't have the near impossible task of making others understand that this has nothing to do with what others think of as headache.

If you look around and read some of the posts and other information, you'll find all sorts of good ideas about dealing with this horror. You might want to give this technique a try. It needs a rewrite but it worked for me:

http://www.netsync.net/users/charlies/

Good luck and let us know how you're doing.

Charlie

Title: Re: Hello!
Post by stevegeebe on Nov 7^th, 2003, 9:56pm

Stay on top.

Keep you boot on its throat.

Welcome Nitro.

Steve G

Title: Re: Hello!
Post by TxBasslady on Nov 7^th, 2003, 11:48pm

;)
Welcome to the board, Nitro.

You will find great information, and lotsa good friends here.

Good to know you have found the right combination of meds to fight the beast. 8)

Hope you keep posting, and let us know how you are doing. :)

Sending you lots of pf vibes from Texas...........

Jean

Title: Re: Hello!
Post by Lori on Nov 8^th, 2003, 12:19am

Sorry you need to be here. There is a ton of info though on CH so read, read, read. Check out the oxygen info on the left and go to OUCH for more on CH and maybe you can join up while you're there. Hoping you have a short cycle. Glad you found this site!!

Title: Re: Hello!
Post by Melissa on Nov 8^th, 2003, 9:34am

Welcome to the cluster family Nitro! These people here understand your condition better than anyone else in the world, including physicians ;) So glad the verap is working for you, lets hope it stays that way!

:)mel

Title: Re: Hello!
Post by drnoe on Nov 8^th, 2003, 9:40am

Hi Nitro
Great news to wake to!
Pain Free.
Says it ALL.
Welcome to the one in a thousand club.
Dan

Title: Re: Hello!
Post by Prense on Nov 8^th, 2003, 11:41am

on 11/07/03 at 20:55:18, Nitro wrote:

My cycle started a few weeks ago but I actually went to the doctor for the first time for them. (My wife insisted after I begged her to bash me in the head with a bat and knock me out one night) I'm thankful that my doctor did seem to have an understanding of CHs so she perscribed Imitrex and verapamil.

Damn, you are lucky!

If you find the hits returning, get O2 prescribed exactly as the "oxygen info" link to the left calls for. It will reduce your trex usage (hopefully). Additionally, check out the "imitrex tip" link on the left...there may be some useful info for you there.

Finally, change your handle (j/k)! Nitro is a trigger... ;;D

Welcome aboard!

Chris

Title: Re: Hello!
Post by Cooked Brain on Nov 8^th, 2003, 1:09pm

[smiley=hiya.gif] Nitro and welcome!

Title: Re: Hello!
Post by BarbaraD on Nov 8^th, 2003, 1:12pm

Welcome to Clusterville. REad READ READ!! There's years of info here on CH.

Try the O2. It sure works on a lot of us (sometimes).

You've found the place to be even if we are sorry to see another name on here.

Hugs BD

Title: Re: Hello!
Post by Linda_Howell on Nov 8^th, 2003, 1:39pm

Nitro,

You seem to have a fairly knowledgable Dr. there. Good for you my friend. Not everyone here has had that experience.

Ask her to prescribe oxygen for you also as a back-up to the Imitrex and Verapamil.

Have you joined OUCH ?????

LindaH

Title: Re: Hello!
Post by jonny on Nov 8^th, 2003, 1:39pm

Welcome aboard dude, see Cootie for an oar.....everybody rows....I mean everybody ;;D

...................................jonny

Title: Re: Hello!
Post by Nitro on Nov 8^th, 2003, 1:56pm

Thanks everyone for the warm welcome. My doctor said she would perscribe the o2 if the verap and trex didn't work. Thank goodness I haven't needed it yet. It's good to know she will give it to me if I need it though.

Now I have a question, or more of a need of opinion. My doctor gives me a script for 12 trex stat doses at a time, and has called my insurance to pay for more than a few a month. My wife picked up my script last night and they gave her 12 BOXES! Which is 24 injections. They only charged me my $20.00 co-pay. On the receipt is says 12 doses, so I guess somebody messed up and gave her too many. So do I do the honest thing and give them back, or do I keep them and consider it my lucky day. I'm not so concerned about saving the money because my doctor said she would call the insurance any time I needed them. My wife says to keep them, but I don't know if I would feel right about it. Thats a $1400.00 misstake on the pharmacys part! I'm still not sure what to do.
Thanks again for the warm welcome!

Title: Re: Hello!
Post by jonny on Nov 8^th, 2003, 2:05pm

Im pretty sure they come two to a box, which means you got the right amount.

Did you know you can turn 24 shots into 72?

..............................jonny

Title: Re: Hello!
Post by ZAIRA on Nov 8^th, 2003, 2:08pm

Hello Nitro.... happy if you have found this site.
This place is the best thing about CH, all the knowledge, support, love around here! You are not alone!

Welcome home!

Wishing you PFDAN... Zaira ;;D

Title: Re: Hello!
Post by Nitro on Nov 8^th, 2003, 2:26pm

jonny

They do come two to a box, but the previous script I filled they gave me six boxes=12 doses. The script says 12 doses so I think they messed up. I did read the trex tip, but as long as my insurance keeps payin I'll just use them with the pen. If my insurance decides to bail out, I will use the tip.

Title: Re: Hello!
Post by jonny on Nov 8^th, 2003, 2:36pm

Well, that shit is worth more than gold to lots of folks here and is probably to you now.....KEEP IT!!!

Insurance companies have been bending us over for how long?...time to bend them....

Thats my opinion.

...............................jonny

Title: Re: Hello!
Post by Prense on Nov 8^th, 2003, 3:05pm

Everytime I get my trex script filled/refilled, the pharmacy wants to do it differently. Just let them know that the "last time" you were there they gave you the number in boxes...not injections. For the future, just have the doc write the script for # of boxes just to save the questions later on. I always get my script filled in boxes...not injection count.

Title: Re: Hello!
Post by Jimmy_B on Nov 8^th, 2003, 3:10pm

For most Cluster Sufferers...Trex is Gold...so to hell with the Cold-hearted Corporate Bastards....Keep em. If you don't use them all...save them.

BTW,

Welcome.

Jim

Title: Re: Hello!
Post by forgetfulnot on Nov 8^th, 2003, 5:00pm

Quote:

My wife says to keep them, but I don't know if I would feel right about it. Thats a $1400.00 misstake on the pharmacys part!

If it was the insurance co's mistake I would keep em, but it sounds like a pharmacy mistake and when they take inventory or go to pull the next order someones head will probably roll. Imetrex inj. is the most confusing drug for pharmacies I have ever seen.

One thing to think of also is they (the pharmacy) cannot
take back or exchange prescription drugs, Federal Law.

Keep em,

Lee

Title: Re: Hello!
Post by Nitro on Nov 8^th, 2003, 6:07pm

Thanks for all the advice. Imitrex is better than gold to me. I think I'm gonna keep em unless the pharmacy calls asking about it. I wouldn't feel right lying about it.

Title: Re: Hello!
Post by Callico_Kid on Nov 9^th, 2003, 12:23am

Welcome aboard. Glad you found us. Glad also that you have a doc that know something about us!!!
jc