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        New Message Board Archives >> Oct-Dec 2003 >> "wow" Im Not Going Insane at all!!!!
        
(Message started by: MISSY on Nov 1st, 2003, 6:58pm)
Title: "wow" Im Not Going Insane at all!!!!
Post by MISSY on Nov 1st, 2003, 6:58pm
::) :o.I am 34 year old from new zealand and have been getting ha from 15 years of age,i just happened to look thru the net and found this site i have spent all morning reading everything that i could.tears have been rolling down my face as this is the answer to my control beast as well,they told me it was stress and diet and all the rest of the rig-ma-roll they tell you,try this drug and come back in a week or two......i changed doctors so often that i couldnt keep up with the pressures of them telling me that to slow down,pain was in my head (sorry about the pun)but from all the info on here im not alone,,,,and theres help for me now,im with a new female doctor who is trailing the drugs cafagot,nadalol,and amitrip,ive spent so many nights up and in so much pain that hubbys had to carry me off to a@e (we Brought our home 1 block from the hospital)it controls your life ,your sanity and family.i cant remember a pain free day,but i can the day after ch (morfine and taftan(spelling?)im new to this site and have just registered .will be spending alot of time here !!!!
Title: Re: "wow" Im Not Going Insane at all!!!!
Post by Patrick_A on Nov 1st, 2003, 7:42pm
Hello Missy, Welcome to the House of pain. Lots of great information on the left of this page and lots of great people here to help you if needed!

Patrick

http://216.40.249.192/s/contrib/sarge/Guillotine_anim.gif
Title: Re: "wow" Im Not Going Insane at all!!!!
Post by Prense on Nov 1st, 2003, 8:54pm
Greetings Missy!

Welcome to ClusterVille...   ;;D

Couple of questions for you:

Have you been diagnosed with CH yet?
Have you had any tests ran to rule out other conditions?  (CT scan, MRI, etc)

Take the quiz on the left (cluster quiz) and see what you come up with.

Either way, welcome and I hope your new doc offers you some real PF times!

Chris
Title: Re: "wow" Im Not Going Insane at all!!!!
Post by Miklos on Nov 1st, 2003, 8:57pm
Well, you found a good place to stop and take a look around. There is a great deal of information here along with a tremendous amount of support.  Don't forget to check-out the OUCH website; you may find some medication information that will help you and your physician settle on an effective regimen.

Look into the oxygen information. This information may help you more quickly than anything else.

With empathy....
Title: Re: "wow" Im Not Going Insane at all!!!!
Post by drnoe on Nov 1st, 2003, 9:25pm
Hi Missy and welcome!
Hope you get some pfdan soon now that you have a doctor worthy of the name.
I didn't get to Taranaki but aren't there some terrific beaches near there?  
peace,
Dan
Title: Re: "wow" Im Not Going Insane at all!!!!
Post by MISSY on Nov 2nd, 2003, 2:02am
Yep i have had MRI and a cat scan and the doctors couldnt find anything ,had a stroke two years ago and was left with lefthand sided weakness,they said it was the side affects of imagrill.they dont give me that anymore and have to wear a bracelet,incase i flake out somewhere and they give it to me by mistake, they call mine, migranes,but after reading all the info going back to the doc,shes got me on a waiting list for the nero,
mine start from hot and cold,fluro lights,food and coffee,
not enough sleep,(who gets any with this sort of pain)
and are full on,happens so infrequnetly and unpredictable they come on with the sweats and blurred vision and if i dont catch them then ,its hospital...
k10 and im a mess ....my poor hubby and children...
Title: Re: "wow" Im Not Going Insane at all!!!!
Post by MISSY on Nov 2nd, 2003, 2:05am
thank you for all the messages of hope ,it feels so good to know im not the only one
Title: Re: "wow" Im Not Going Insane at all!!!!
Post by Ann on Nov 2nd, 2003, 9:41am
Hey Missy!
Welcome..sorry you had to find us.

You should definately look into getting yourself some oxygen.  It's one of the best defenses out there and the least harmful!

Stick around....you'll learn lots from hanging around here!

hugs
Ann
Title: Re: "wow" Im Not Going Insane at all!!!!
Post by Cooked Brain on Nov 2nd, 2003, 10:44am

[smiley=hiya.gif]

and welcome Missy!
Title: Re: "wow" Im Not Going Insane at all!!!!
Post by jonny on Nov 2nd, 2003, 11:04am

on 11/02/03 at 02:05:19, MISSY wrote:
it feels so good to know im not the only one


If I had a nickle for everytime ive read that.....LOL

Welcome aboard....theres a few folks from your country that post here.

.......................................jonny
Title: Re: "wow" Im Not Going Insane at all!!!!
Post by Charlie on Nov 2nd, 2003, 7:45pm
Welcome aboard and sorry you had reason to find us.

I guess you've looked around and have found that we have some good ideas about dealing with this horror.

Glad to have you though but you're too late. This place has driven most of us around the bend. Insanity helps here.  ::)

Something look at:

http://www.netsync.net/users/charlies/

Charlie
Title: Re: "wow" Im Not Going Insane at all!!!!
Post by Woobie on Nov 2nd, 2003, 7:47pm
[smiley=hiya.gif]

Hi Missy!  Welcome!!

Tina
Title: Re: "wow" Im Not Going Insane at all!!!!
Post by stevegeebe on Nov 2nd, 2003, 8:00pm
Get your Doctor straight.  Bring info with you

And you...you read.  

Good luck Missy.  

Stay.

Steve G
Title: Re: "wow" Im Not Going Insane at all!!!!
Post by TxBasslady on Nov 3rd, 2003, 12:01am
:)
Hi Missy, welcome to the board.  There are lots of great folks here and valuable information on the links.

Stay with us and let us know how you are doing.

Lotz of pf vibes coming to you from Texas.      8)

Jean
Title: Re: "wow" Im Not Going Insane at all!!!!
Post by paul_b on Nov 3rd, 2003, 12:58am
Welcome MISSY. Consider yourself surrounded by guardian angels. We come in all shapes and sizes but with one common goal---to support each other and further the cause for finding a cure.
Title: Re: "wow" Im Not Going Insane at all!!!!
Post by taraann on Nov 3rd, 2003, 4:34am

on 11/01/03 at 18:58:27, MISSY wrote:
i just happened to look thru the net and found this site i have spent all morning reading everything that i could.tears have been rolling down my face


I did the same thing the first time I read this message board.  Glad you found us but sorry you are in so much  pain.  I hope the nuero helps you and gets you the right med combo, I'm still struggling with no right meds and waiting for my appt myself....this place has been a sanity saver for me so stick around lotsa support and info to be had here.  Welocome Aboard!
Title: Re: "wow" Im Not Going Insane at all!!!!
Post by sandie99 on Nov 3rd, 2003, 7:19am
Hi Missy! :)

Sorry for your headaches, but since you have them, this is the best place to be! A true blessing. Welcome abord!


Best wishes & PFdays,
sandie99
Title: Re: "wow" Im Not Going Insane at all!!!!
Post by maggie_may on Nov 3rd, 2003, 8:44am
Hi Missy   [smiley=hiya.gif]

and welcome!


maggie
Title: Re: "wow" Im Not Going Insane at all!!!!
Post by 5-string on Nov 3rd, 2003, 8:57am
Hi Missy,
I'm sorry your head hurts, but glad you found this sight.
Clusterheadaches are no mystery here.
....Mark..
Title: Re: "wow" Im Not Going Insane at all!!!!
Post by jflynn on Nov 3rd, 2003, 12:25pm

on 11/01/03 at 18:58:27, MISSY wrote:
...found this site...tears have been rolling down my face...they told me it was stress and diet and all the rest of the rig-ma-roll they tell you,try this drug and come back in a week or two...i changed doctors so often...


My experience was identical.

Look into melatonin as a preventative.  Works very wellfor some, not at all for others.  Cheap and safe for most, available without prescription.  Why treat what might be prevented in the first place?
Title: Re: "wow" Im Not Going Insane at all!!!!
Post by aprilbee on Nov 3rd, 2003, 1:47pm
Welcome Missy, heres hoping Pain Free Days and Nights for you SOON!!!


[smiley=wave.gif]
Title: Re: "wow" Im Not Going Insane at all!!!!
Post by Tiannia on Nov 3rd, 2003, 3:27pm
Hiya Missy - yes this place is a god send and these people have great insight and ideas that could help. Stuck around and say hi.  

Tiannia
Title: Hiya, happRe: "wow" Im Not Going Insane
Post by ZAIRA on Nov 3rd, 2003, 5:26pm

Hi Missy and nice to meet you ;;D!

Happy if you found us, this place is the best thing about CH [smiley=sayno.gif], all the support, knowledge, love around here!

Welcome home!

Hugs, Zaira
Title: Re: "wow" Im Not Going Insane at all!!!!
Post by MISSY on Nov 8th, 2003, 4:53pm
Had A bugger of a week,this week been to a and e twice, second time they hit me with a new drug here for chronic headaches called tramadol ,it worked,it slowes me down and gives me a nites sleep,a bit rough when waking but hay some of that horrible pain has gone can manage on this,they have given me tramadol to take home and add to the cupboard.my poor hubby has to give up his work and run my business for me.i feel so much for my family when this monster takes over.thank you everybody for the support and messages i still get tears to my eyes when i read more and more on this site,i ran out of ink in my printer printing copys off for the doctor,,,,lol,,,lets see if this will put her in the right track


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