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        New Message Board Archives >> Oct-Dec 2003 >> New member intro
        
(Message started by: Mac on Oct 27^th, 2003, 7:32pm)

Title: New member intro
Post by Mac on Oct 27^th, 2003, 7:32pm

Hi everybody. I joined a while ago but this is my first post. I first started getting these headaches about 3 and a half years ago but it wasn't until February of this year ::) that they figured out what was going on. Clusters was mentioned a couple of times but my symptoms were confusing me. I thought I was having sinus attacks and as it turned out I had three different infections of my sinuses all at the same time.One was the worst you could get(forget the name). After a multitude of specialists the last one explained the symptoms and the relationship to my sinuses. I was on so much sudafed and then drixoral near the end I was doing a package of TWENTY Drixoral a day :o just to fend off the attacks.It was brutal,not to mention expensive. It was a good thing I have low blood pressure or I could have been in real trouble.With this kind of pain though you do anything - am i right? I figure I had close to a thousand attacks before I was diagnosed. Anyways I still get attacks almost daily but now I have[smiley=bow.gif]Imitrex and so far it still works.I'm an artist and a musician and believe me the last place you want the beast to show up is on stage will your rockin' and the lights are going and you have to sing... [smiley=hammer.gif] Anyways that's my story and I'm stickin' to it.

Title: Re: New member intro
Post by ClusterChuck on Oct 27^th, 2003, 7:38pm

Damn, I always hate to do this, because it means another sufferer is cursed with this problem, but WELCOME ABOARD!

I hate it that you have to be here, but if you are a clusterhead, you are in the right place!

Now, grab an oar, and start rowing. We have a VICIOUS task mistress (Cootie) and she will be on your case if you don't pull your weight! heehee ...

Chuck

Title: Re: New member intro
Post by BarbaraD on Oct 27^th, 2003, 7:39pm

Carl D can relate to you.

Sorry you were diagnosed with this awful stuff, but glad you found us here. This is the best medicine you'll get. Any questions, problems, or just plain old support is here for the asking (and sometimes it's thrown in without the asking).

From what you just said, you're Chronic (3 years without a break?). There's a thred down below about that. And a world of info about meds and other treatments.

Pull up a chair and READ READ READ. Take the info to your doc and educate him/her. That's how we deal with this demon. I'm chronic and have been here since before dirt, so any way I can help just give me a yell.

Hugs BD

Title: Re: New member intro
Post by jimbo on Oct 27^th, 2003, 9:31pm

Hey Mac,

Grab an oar and paddle your ass off! And if you don't Pam will grab an oar and paddle your ass for ya!!!!

Welcome aboard, sorry your here but we are glad that you are!

Seeya,

Jimbo

Title: Re: New member intro
Post by Patrick_A on Oct 28^th, 2003, 12:08am

Hey Mac, Welcome to the House of Pain. Lots of info on ur left, and lots of friends to help ya on the way.
Now grab an oar and you can have my seat on the left next to the window. I wont be needing it anytime soon as i am going up to the top deck.

PFDAN, Patrick

Title: Re: New member intro
Post by cootie on Oct 28^th, 2003, 12:13am

Oar faster cuz Cootie is comein ta git ya!! Hi Mac....don't worry I won't hurt ya....depends on my mood ! (snicker snicker) Welcome and hope ya can stick around and have sum fun while learning !! Ahhhhhh anuther musician.......cool.......you should consider the CH convention in July and enter the Clusterhead Band aqoustics late nite jam sessions. Pam that's givein ya an oar

Title: Re: New member intro
Post by tsayswhy on Oct 28^th, 2003, 12:34am

Clusterhead band [smiley=jammin.gif]

Welcome Mac
sorry you have to be here but glad you found your way to us ;)

Title: Re: New member intro
Post by Mac on Oct 28^th, 2003, 1:24am

Thanks everybody. I wish we'd met under different circumstances but it's comforting to know that there are others that know what I go through. Not that I'm glad you go through what I go through...you know what I mean. ;)

Title: Re: New member intro
Post by juvy on Oct 28^th, 2003, 1:48am

Welcome aboard Mac. Sucks you have to be here but you won't find better company any where else. Stick around and don't forget to join in on the CH Quilt.

Cheers,
Juvy

Title: Re: New member intro
Post by nancyc on Oct 28^th, 2003, 2:41am

Hey, Mac, like your mouse....... :Dnancyc

Title: Re: New member intro
Post by Tim_w on Oct 28^th, 2003, 7:07am

Mac
Welcome To the family!!!!!
now grab an oar and get busy!
PFDAN TimW Happy Pappy ;;D

Title: Re: New member intro
Post by suzy617 on Oct 28^th, 2003, 7:30am

Hey Mac, welcome to our world. Now do as they say and grab that oar. You dont want to mess with the Coots. ;)

Suzy

Title: HRe: New member intro
Post by Woobie on Oct 28^th, 2003, 7:41am

Hello and WELCOME MAC!!!

What kind of music do you play??

Nice to meet you!

tina :-*

Title: Re: New member intro
Post by sandie99 on Oct 28^th, 2003, 8:19am

Welcome aboard! :)

When you have the curse called ch, this place is the blessing that comes along with it! :)

Funny, but ch brought my old love for rock music back alive! When I was dealing with the pain, I related to rock...

Best wishes & PFdays,
sandie99

Title: Re: New member intro
Post by Opus on Oct 28^th, 2003, 8:52am

Mac,
Sorry you had to find us but welcome aboard.

http://www.imgmag.org/images/sunny22/Gifs/Welcome.gif

Opus/Paul

Title: Re: New member intro
Post by gmlevenhagen on Oct 28^th, 2003, 9:22am

[smiley=hug.gif] Welcome

Sorry you had to find us, but glad you did.

Gena

Title: Re: New member intro
Post by Hirvimaki on Oct 28^th, 2003, 9:59am

Hullo, Mac!

Welcome aboard! As other have wrote before, sorry you have to be here, but glad you found a home. The inmates here are crazy (well, with the exception of ME of course), but a fine bunch of crazies. They've helped me through a lot.

I, too, am an artist and can relate. Sit down and read, Read, READ. There is tons of great info scattered about.

Good luck to you and remember:

When you're lying awake with a dismal headache,
and repose is taboo'd by anxiety,
I conceive you may use any language you choose
to indulge in, without impropriety
-- W. S. Gilbert

Hirvimaki

Title: Re: New member intro
Post by Margi on Oct 28^th, 2003, 10:02am

Hi Mac,
Welcome to the madness, sorry you have a reason to look for us though. I see you're from Edmonton (I'm in Calgary) - looks like you're going to get DUMPED on today! [smiley=sgrin.gif] Yes, we're going to get some too but not as much as you!
Anyways, Edm/Cgy rivalry aside ;), are you under the care of a cluster knowledgeable neuro? There is a list of these doctors over at the OUCH website (www.clusterheadaches.org) in the first menu above the map.
If you ever come down to Calgary, our Foothills Hospital has a great headache clinic and my husband is a patient of Dr. Werner Becker and Dr. Eloft there. They were very accommodating to us (after a little supporter "greasiness" ;)) when he was last in cycle.
Again, Mac - welcome and please feel free to email me directly if you need more "local" cluster help.
Too bad about your baseball/football/hockey teams.

Title: Re: New member intro
Post by KimM on Oct 28^th, 2003, 10:10am

Hi Mac, sorry you have to be here :'(, but welcome ::). There are some pretty amazing people here as well as a gold mine of information. Read, read, read, educate yourself. One of the best things you can do. Nice to meet ya.

Kim

Title: Re: New member intro
Post by Ann on Oct 28^th, 2003, 10:46am

Hey Mac!

Welcome and sorry you had to find us. Sit back and enjoy the ride....it's a crazy world around here sometimes...but it's always entertaining!

hugs
Ann

Title: Re: New member intro
Post by Cooked Brain on Oct 28^th, 2003, 5:22pm

hi there mac and welcome!

Title: Re: New member intro
Post by Charlie M on Oct 28^th, 2003, 5:40pm

HELLO MAC. I just want to welcome you, and let you know that you have found a great place, to park yourself and learn about this THING. My story is almost the same. I am also new to the site, just a little over a month ago, I found my way here. Charlie M

Title: Re: New member intro
Post by taraann on Oct 28^th, 2003, 5:52pm

Welcome to the boat Mac and Charlie M and I'm so sorry to hear of more ppl suffering from this hell

Title: Re: New member intro
Post by Mac on Oct 29^th, 2003, 2:14am

Thankyou everybody for the nice warm welcome :D.I'll try to visit the site daily to learn as much as I can about our common problem. To Woobie, I play a variety of Rock and Roll. From the Beatles and Van Morrison to the Tragically Hip,Green Day and the Foo Fighters. I play in a duo here in Edmonton and we play pubs and bars and private functions. We play 35- 40 weekends a year. The rest of the time I work as a freelance Illustrator/cartoonist. One of my regular art gigs is drawing cartoons for The Edmonton Journal, the big daily up here.
To Margi I would like to thank you for your offers of helping find a good doctor/clinic and sincere sympathy for our sports teams. It HAS been a burden carrying all those championships around for all these years ;;D. ABC(anybody but Calgary!)bwaaaahahahaha...