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        New Message Board Archives >> Oct-Dec 2003 >> Re: [email][/Cluster Sufferers, Please Reply Back 
        
(Message started by: Ree on Oct 25^th, 2003, 8:31pm)

Title: Re: [email][/Cluster Sufferers, Please Reply Back
Post by Ree on Oct 25^th, 2003, 8:31pm

Take the cluster quiz on the left its the 3rd green button on the left... that should set some light to your question... There are alot of sufferers that are effected by the light... some arent... When you are in the kind of extreme pain that they are in I don't think light matters either way. Keep us posted as to whether or not you are going to stick around I hope you dont have clusters... it sounds as if you do though... good luck and welcome Ree

Title: Re: [email][/Cluster Sufferers, Please Reply Back
Post by Patrick_A on Oct 25^th, 2003, 9:04pm

Welcome to the House of Pain.
Waking up at the same time everynight is real familiar to me. During my pain, i am sensitive to most everything, but truly it is mostly just a response to the unbearable pain. As said before, Tons of information on the left side of this page.

Good luck, Patrick

ps...Started gettings CH's at the age of 16, now 44

Title: Re: [email][/Cluster Sufferers, Please Reply Back
Post by Cerberus on Oct 25^th, 2003, 9:19pm

Well, How young you talkin about ???
I reckon I'm still young...lol. Is 35 young enough?
Anyway, yes, they usually come the same time of day/night for me and I do get the light sensitivity, not usually sound sensitive tho. :-/

There is a wealth of info in the buttons on the left to learn more.

Best of luck,
Ramon

Title: Re: [email][/Cluster Sufferers, Please Reply Back
Post by Charlie on Oct 25^th, 2003, 9:31pm

Welcome aboard but it's always sad to pipe aboard another sufferer. However, you're welcome and it's the place to be when you're hit by this horror.

To answer your questions: I was 23 when I got my first attack. The 20s seems to be when many of us first encounter this monster. It sounds to me like you have clusters as so far as I know, only a cluster will wake one out of a sound sleep. I was usually awakened about 90 minutes after hitting the hay.

Stick around and let us know how you're doing. You'll find some good ideas and ways to deal with this horror.

Charlie

Title: Re: [email][/Cluster Sufferers, Please Reply Back
Post by lisamchlmartin on Oct 25^th, 2003, 9:31pm

Thanks for all the info. guys. I took a couple of the surveys but they weren't able to provide me w/ much info. - I'll check it out a little more though. Maybe I'll find something that'll help.
I do have to say that this is by far the worst pain I've ever had in my life. I'm not really sure what's causing the headaches b/c I'm not under a lot of stress but I know that smoking is a factor - maybe it's time to quit :-/.
It would be much easier to quit smoking than deal w/ these headaches!! ;)

Title: Re: [email][/Cluster Sufferers, Please Reply Back
Post by Charlie on Oct 25^th, 2003, 9:47pm

Cluster Headaches: Always described as the worst pain there is. Sad to say, it sounds like you belong. Of course, I hope I'm wrong.

Good luck and let us know.

Charlie

Title: Re: [email][/Cluster Sufferers, Please Reply Back
Post by taraann on Oct 26^th, 2003, 12:29am

Hi I'm 26 and started getting clusters about 5-6 yrs ago. Light doesn't hurt my Cluster headache attack but I do prefer dim lighting during an attack. I also get migraines that started when I was about 16 and light plain old HURTS when I have one of those. Alot of sound annoys me during a CH attack but during a migraine sound hurts. None of us can diagnose your headache and if your doctor doesn't know it's time to find a new doctor or atleast visit a neurologist. Also have you had a CAT Scan and or MRI done? Those should always be done to rule out anything more "serious" than an benign headache (yes if you do have CH this headpain CAN'T kill you)

Title: Re: [email][/Cluster Sufferers, Please Reply Back
Post by nancyc on Oct 26^th, 2003, 12:40am

Starting getting chs in my early 20's...and YES, light aggrevates my chs really bad...I truly hope you dont have chs...I would not wish them on anyone...smiles,nancyc

Title: Re: [email][/Cluster Sufferers, Please Reply Back
Post by jonny on Oct 26^th, 2003, 2:55am

on 10/25/03 at 21:31:07, lisamchlmartin wrote:

I know that smoking is a factor - maybe it's time to quit :-/.
It would be much easier to quit smoking than deal w/ these headaches!! ;)

Smoking has nothing to do with clusterheadaches

...................................jonny

Title: Re: [email][/Cluster Sufferers, Please Reply Back
Post by Turts on Oct 26^th, 2003, 5:47am

Gday lisamchlmartin,
I am 28yrs old and have had ch for ten yrs. This is the best place to be.

As per everyone else, see the info to the side and do the quiz, here and on OUCH (join while your there) See ya doctor and get some test MRI CAt etc . to rule out anything else.

Good luck and welcome

Turts

Title: Re: Cluster Sufferers, Please Reply Back !!!!
Post by lisamchlmartin on Oct 26^th, 2003, 9:15am

Good morning everyone, well it's about 9:15 my time, not sure what time it is where you guys are ???. Last night I looked over the site a little more and read some of the info. and I'm still not 100% for sure that it is a cluster alone that I'm suffering from. I have a lot of signs leaning towards both migraines & clusters, that's fun huh?? :P But I think I'll take the advice & have another doctor examine me so I can find out what the problem is and hopefully make it go away.
This is by far the best site I've been to for clusters. It gives a lot of good information. And all the members are very helpful, which is great!

Title: Re: [email][/Cluster Sufferers, Please Reply Back
Post by cathy on Oct 26^th, 2003, 9:31am

Lisa...welcome aboard, sorry you've had to find us....!!

Im giving up smoking on Friday wanna join me..??

Keep us posted on how it's going.

Cathy :)

Title: Re: [email][/Cluster Sufferers, Please Reply Back
Post by lisamchlmartin on Oct 26^th, 2003, 9:44am

Hey Cathy,
That would be wonderful. I've been smoking since I was about 14 (which is really bad, I know) but yes I'd love to quit. It's too expensive!! [smiley=laugh.gif].

Title: Re: [email][/Cluster Sufferers, Please Reply Back
Post by LasVegas on Oct 26^th, 2003, 11:39am

"Hey everyone, I've got a question - I'm just wondering is there any young people out there (I'm 24) that suffer from these things?"

24 years old? Geez you're farting dust your so old. I started CH's when I was 11, now i'm 35. Yes, same time every night, sometimes sametime in the day too and always the same time every year. Take the quiz, read recent and archival posts on this site and the OUCH site. We are here for help if you need us.
Good luck.
Gregg in Las Vegas

Title: Re: [email][/Cluster Sufferers, Please Reply Back
Post by totka on Oct 26^th, 2003, 2:02pm

Welcome Lisa, Mchl and Martin,

An average CH starts in the 20's. (I' was 23 then and 44 now)

There is a lot of info about CH but look for a good neuro.

PFDANs,

Steve

Title: Re: [email][/Cluster Sufferers, Please Reply Back
Post by brain_cramps on Oct 26^th, 2003, 2:13pm

Yep --- clusters started at 20. now 42.

sound can bother me while being hit --- more just an annoyance than anything else.

light, on the other, hand doesn't bother me at all. Actually, I prefer to keep the lights on so I don't walk into coffee tables, etc... while pacing. :o

and YES - smoking is DEFINITELY a trigger for me while in cycle.

good luck and stick around,
grant 8)

Title: Re: [email][/Cluster Sufferers, Please Reply Back
Post by Karla on Oct 26^th, 2003, 3:08pm

My son Joshua started getting cluster headaches and migraines a couple of years ago and he is almost 18. He gets his ha at the same time every day.

Title: Re: [email][/Cluster Sufferers, Please Reply Back
Post by glitterybutterfly on Oct 27^th, 2003, 11:57am

Lisa,
I understand entirely tooooo much about what you're going through. I have the exact same things happen to me when a cluster is coming on. I am 25, so we're pretty close to the same age.
Keep me posted, hope you don't get anymore of these terrible things!!! ;)

Title: Re: [email][/Cluster Sufferers, Please Reply Back
Post by samurai on Oct 27^th, 2003, 12:54pm

My headaches started when I was about 18, and I am now 27. The determinig factor was my description of the pain. The doctor immediately recognized my headaches as something different when I descibed it as a white hot corkscrew being driven into my temple, or like being injected with molten metal into the temple. One of the immediate red flags for the doctor was the fact that I smoke, but when I have headaches, smoking is a distraction so that I don't focus too much on the pain. Light and sound are things that I avoid just to try and still myself and calm down. I hate the impulse to fidget!

Title: Re: [email][/Cluster Sufferers, Please Reply Back
Post by NotH20 on Oct 27^th, 2003, 1:57pm

CH's started for me at age 15 and am now 38....

I started smoking when I was 14 and quit in my early 20's....no changes in the visits from the beast.....

My ch's usually come at the same time of the day and night with each cycle....they've remained pretty much consistent all of these years.....

I like a dim light room when I have ch's - more of a comfort zone than anything else.....

You really need to find a good neuro - check the list on the left hand side and see if there is a recommended one in your area....

Good luck to you,
Mia