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Title: Lets poll the triggers of CH Post by Surf on Oct 15th, 2003, 3:47am We all know our triggers, right. Ok so lets have em... (not in any order)So lets begin shall we Z.A Dr. that leaves you hangin by not supplying enough Imitrex when they have been told that you require 12 mg of sumitriptan every 24 hours.Ok that was one of mine. Y.B Remember no order required. Having to chase down another Dr. in order to obtain the amount of Sumitriptan required to keep the beast at bay.OK X.C These don't halfto be in order. No 02 or running very short of and the weekend is near, no one at the dispensing site is in until next week and the nearest tank might as well be 1000 miles. W.D Driving the 1000 miles. V.E Hearing "I never heard of o2 for clusters,is that something new."nope can't pay for that it's not covered under your insurance. U.F Matches(sulfer) T.G Bright flourescent lights that are about to burn out, You know the ones that are flickering and their in the headache clinic.What do they wan't to do trigger an attack so they can watch you inject yourself or what? S.H Turning on the Bright Flourescent light while your in the room after you shut it off and turned on the dimmer. (THIS COULD BE RELATED TO THE ANXIETY THING)I. I have an apt in a few hours and haven't been to bed yet as I'm still searching for answers so this will continue I hope, gota go now and get ready for the apt...Surf |
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Title: Re: Lets poll the triggers of CH Post by taraann on Oct 15th, 2003, 7:05am Sorry your so nervous Surf, that always sucks (and sometimes triggers!) Goodluck at your appt, let us know how it goes! (btw what do all the initials mean or am I just too sleep deprived to be able to figure it out?!) |
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Title: Re: Lets poll the triggers of CH Post by Dave_Emond on Oct 15th, 2003, 7:17am My triggers (Chronic): 1. Laying flat on back 2. Cold wind 3. Anger 4. Sudden turning of head 5. CH "experimental" medications! Honorable Mention: (Not really a trigger, just seems so.) Being somewhere I want to be without having to leave. The Beast is cruel in that regard. (Many attacks without warnings or obvious triggers) Dave |
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Title: Re: Lets poll the triggers of CH Post by JDH on Oct 15th, 2003, 7:37am Two of my favorite things, Sleeping & Beer >:( Jim |
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Title: Re: Lets poll the triggers of CH Post by brain_cramps on Oct 15th, 2003, 8:20am on 10/15/03 at 07:37:44, JDH wrote:
I'll add smokes and stress to the list (at least for me.) |
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Title: Re: Lets poll the triggers of CH Post by BarbaraD on Oct 15th, 2003, 8:55am Mine Barametric Change -- and I live in Texas - if you don't like the weather - wait 5 minutes. Bd |
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Title: Re: Lets poll the triggers of CH Post by thomas on Oct 15th, 2003, 10:14am My boss being a dipshit |
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Title: Re: Lets poll the triggers of CH Post by ave on Oct 15th, 2003, 11:54am Liquorice. Only trigger I ever discovered. |
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Title: Re: Lets poll the triggers of CH Post by echo on Oct 15th, 2003, 12:11pm Changes in altitude (air flights) Changes in time zone Drastic temperature changes chardonay wine most beers (Miller High Life is my only safe bet) Hummer deprivation - it's my theory and I'm sticking with it. "Oh Honey, I feel a shadow". ;D :-X |
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Title: Re: Lets poll the triggers of CH Post by LasVegas on Oct 15th, 2003, 12:35pm 1. The change of temperature, Autumn/Fall. 2. Having others dictate a job for me to complete within their timeframe. (Thank God i'm self-employed). 3. Midnight wakeup calls (unkown reason except Hypothalymus Gland and circadian clock). 4. Alcohol (beer & Jack Daniels in particular) 5. Medical professionals that ask questions trying to evaluate diagnosis while suffering and advising them of what I need. They think they know everything, my last comment to them was "I gladly invite anybody here who knows more than me on this problem and will confidently bet their is not a person within 5 miles of here who does". and on a separate note, here is what makes it worsen... 1. The actual waiting time and frustration affiliated with waiting longer than NOW for an ER or Quickcare unit to get me Imitrex or o2. 2. Light (darkness helps relieve) 3. Sound (total quiet helps relieve) 4. Being in the company of others (relief acts quicker if I am completely left alone. Gregg in Las Vegas |
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Title: Re: Lets poll the triggers of CH Post by forgetfulnot on Oct 15th, 2003, 1:11pm Running out of shrooms...... ;) Lee |
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Title: Re: Lets poll the triggers of CH Post by nancyc on Oct 15th, 2003, 1:16pm 1.running out of imitrex 2. Stress, stress, stress 3. Heat if i am already getting hit 4.Lack of sleep 5. Alcohol if I am getting hit already ;Dnancyc |
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Title: Re: Lets poll the triggers of CH Post by Charlie on Oct 15th, 2003, 4:10pm No trigger I know of other than when I forgot to pack my Propranolol or Inderal. Charlie |
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Title: Re: Lets poll the triggers of CH Post by oringkid on Oct 15th, 2003, 4:17pm 1. Everything 2. Nothing Triggers don't matter a damn... I get hit whether I do this that or the other or not. Sherry |
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Title: Re: Lets poll the triggers of CH Post by Tim_w on Oct 15th, 2003, 5:30pm Stress Sleep Alcohol Stinking perfume & candles ::) TimW Happy Pappy |
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Title: Re: Lets poll the triggers of CH Post by Prense on Oct 15th, 2003, 5:49pm Beer, rum, running/jogging...that's all I know of. |
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Title: Re: Lets poll the triggers of CH Post by oringkid on Oct 15th, 2003, 5:59pm Wow, I didn't know Rum Running still took place! Cool! LOL! ;D Sherry |
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Title: Re: Lets poll the triggers of CH Post by brain_cramps on Oct 15th, 2003, 6:02pm on 10/15/03 at 12:11:58, echo wrote:
SHIT - JA ginger-beer all over my new monitor! ;D |
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Title: Re: Lets poll the triggers of CH Post by jonny on Oct 15th, 2003, 6:04pm None |
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Title: Re: Lets poll the triggers of CH Post by Blake on Oct 15th, 2003, 6:11pm Alcohol Cheap stinking perfume Smell of strong onions Blake |
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Title: Re: Lets poll the triggers of CH Post by suzy617 on Oct 16th, 2003, 4:46am Beer and sleep. >:( Suzy |
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Title: Re: Lets poll the triggers of CH Post by badfly on Oct 16th, 2003, 4:54am Wine beer etc Lying down |
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Title: Re: Lets poll the triggers of CH Post by totka on Oct 16th, 2003, 6:47am - stress - lack of stress - milk (really!!) |
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Title: Re: Lets poll the triggers of CH Post by sandie99 on Oct 16th, 2003, 7:15am My triggers... let's see now: 1. stress from uni projects (well, ch is more likely to accur when I'm stressed about something) 2. too much/lack of sleep 3. certain incense my flatmate uses (irritates the hell out of me!!!) 4. forgot to eat (low blood sugar) 5. bright sunshile (happend on a holiday, I wasn't happy about it...) 6. Pringles (thank God it happened only once! One must have some indulgences in life...) That's it. But this list doesn't mean that everytime I'm hungry or whatever, ch will appear. The devil does whatever it likes, but those I've noticed. PF days, sandie99 |
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Title: Re: Lets poll the triggers of CH Post by BobG on Oct 17th, 2003, 12:55pm Surf, you're going to be sorry you ask this question but here's the list........... The following is NOT to be taken seriously....... A quick search, copy and paste and we have a list of triggers for clusters. They were all posted at this site, some more than once. Some are serious and some are….well…you decide. I do not endorse nor dis-dorse any of them. relaxing after being stressed nitroglycerine tabs sitting behind a woman who wore way too much perfume Alcohol paint fumes citrus juices and products smell of Clorox the detergent section in the grocery store good whiff of a citronella torch or candle Fumes changes in temperature (like being in the refrigerated aisle of the grocery store) sun on my face Computer screens nutrasweet body odor chocolate caffiene chinese food MSG cold wind in the face Milk amd milk products, i.e.: cheese During vigorous sex sessions at peak of episode barometric pressure changes walking into the dry air inside from running the heat and back out into the moist cool air Driving on tree lined roads that cause the sunlight to be broken in patterns drinking plenty of alcohol or smoking like a chimeny a pattern of sleep loss Orgasms Hummer deprivation aerobic exercise getting hot Sex - if I go a while without, and then get some My Middle Child's patented "whine" !!!!! Any story my mother-in-law tells Smell of strong onions Cold air blowing in my eye time changes Traffic Jams rum Rosie O'Donnell. Also makes me a tad nuasous. prolonged periods of high adrenal stress a very bad weather system Peanuts (the roasted kind usually) Red wine Nitrates in hot dogs WD40 4-6 8oz cups of coffee a day odor of raw onions trialkylamines Sleep Frozen Food department repetitve motion of the shoulder taking a nap in the afternoon REM sleep Take-Offs on commercial airlines PepsiMax TV watching a movie in a movie theater ginko biloba alka seltzer plus over exertion in heat nasty flu virus Hot baths, sauna's, steamrooms vicks inhaler treadmill exercise Food......... the dreaded new shower curtain liner. RED 'Stuff', certain foods that are red, pizza sauce, etc. Altocor 60mg (lovastatin) Anger is an invitation to the beast my boss (she never shuts up) my boyfriend (he never shuts up) Citronella candles potato salad Reglan second-hand cigarette smoke And the winner is “Wierd as it may sound, Jello will do it every time” My personal trigger………lack of stress. Bob-nolife-G |
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Title: Re: Lets poll the triggers of CH Post by Carl_D on Oct 17th, 2003, 1:06pm When the weather changes, my head gets all messed up BAD from the TMJ and only gond knows what this fucking growth is on my head I have to see the Doc about monday. Started out the size of a tiny bb, now is as big as a half marble. My triggers? 1 Alcohol (beer not included, but sadly, my lovely lovely drink - ole Jagermeister. 2 Rest 3 Relaxation ( and people wonder why I am so wired out all the time...can't fricken think straight sometimes. 4 the formidable and unavoidable trigger we all have... SLEEP. THat's it for me, back to you Helen. ;D Carl D |
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Title: Re: Lets poll the triggers of CH Post by OneEyeBlind on Oct 17th, 2003, 1:43pm Helen here ...... Sleep, naps, relaxation. (thank God laughter isn't cause Ech .. ya got me going !) Off to you Bob ......... |
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Title: Re: Lets poll the triggers of CH Post by Jewel on Oct 17th, 2003, 2:36pm 1. Exercise 2. Smoking (or secondhand smoke) 3. Relaxing/sleeping 4. Air blowing in my face 5. Alcohol 6. Making love to myself :o |
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Title: Re: Lets poll the triggers of CH Post by jonny on Oct 17th, 2003, 2:54pm on 10/17/03 at 14:36:26, Jewel wrote:
Hmmmmmmmm ;D.........;) ..................................jonny |
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Title: Re: Lets poll the triggers of CH Post by Jewel on Oct 17th, 2003, 3:09pm ;) ;) ;) ;) ;) ;) |
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Title: Re: Lets poll the triggers of CH Post by Jewel on Oct 17th, 2003, 3:10pm Regarding alcohol, to be more specific....wine. |
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Title: Re: Lets poll the triggers of CH Post by Opus on Oct 17th, 2003, 3:10pm Life |
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Title: Re: Lets poll the triggers of CH Post by lelacks on Oct 18th, 2003, 1:48am I agree with Jim. Beer, peaceful sleep. sometimes chocolate. Inactivity. But then again, sometimes they don't. Also, you can do nothing wrong and still get one. Yanevano. Seung |
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