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Cluster Headache Help and Support >> Cluster Headache Specific >> So tired
(Message started by: badfly on Mar 13th, 2008, 6:06am)

Title: So tired
Post by badfly on Mar 13th, 2008, 6:06am
Each year my cycle gets longer. When I first got Ch over 12 years ago, the bout would last a mere 3 weeks to a month. But over the years each bout has been longer then the previous one. I am now beginning the 6th month of current cycle, but this one seems different. The attacks dont seem to be ending properly. They came on fast and progress past kip 7, but when they subside, I am left with a painful headache that seems to be migrain like. This rapdly becomes CH if I lie down, or seems to be triggered by excersize or food (not sure what in the food). Latly (past 2 weeks) my scalp seems to have become sensitive. Its painful (not very) to run my hand through my hair. Could this headache be a result of sleep deprevation ? Is this just a new and nasty shadow ? Could it be a CH that lasts longer that is not to high on the Kip scale ? Not sure what answers I can get ? Not sure if there is anything to do, I'm just so tired ...

Title: Re: So tired
Post by barry_sword on Mar 13th, 2008, 6:40am
Sorry you are going through a tough bout with the beast, hang in there. What you described is what I call "cluster hangover" meaning after the attack I cannot touch my hair and my head feels like I was in a boxing match, with no energy to do anything.

I do not know if you have o2 or not, but since I got mine and if I catch it at the first sign of an oncoming attack I can avoid the "hangover" feeling.

After using o2 to abort the hit I can most times resume doing whatever I was doing prior to the oncoming hit. But if I miss my window using the o2 I am there for the ride and as we all know have that drained, beaten up feeling.

I hope you find something that helps, each cycle for me is changing, maybe as we get older has something to do with it, I just do not know.

  Barry

Title: Re: So tired
Post by debOUCH on Mar 13th, 2008, 7:56am
OH, i hear u loud & clear on the painful scalp.even my hair hurts!!! ( i wear a hat every day when i can!!)when the water runs on my head in the shower, it hurts................since i am new at this,(1ST ATTACK, 43 DAYS & COUNTING) i dont really know, but from reading all on this site, seems to be the norm...........i have been having 2-3 biggies during the night, averaging 3.5 hrs sleep, the past 4 days, only on pred, which seems not to be working...........waiting for scan results.........i also seem to have headache most of day, due to lack of sleep, cryin, pred , ??who knows!!! i feel for you in the "tired" area, and i am sending you a big hug.................. [smiley=hug.gif] INSPIRATION for the day.................(todays page on THE SECRET calandar)........" WHATSOEVER YE SHALL ASK IN PRAYER, BELIEVING, YE SHALL RECEIVE"..........................sending out to everyone for PF days, sleep filled nights, understanding for those not affected, etc,etc...........................  [smiley=winkkiss.gif]

Title: Re: So tired
Post by AussieBrian on Mar 13th, 2008, 8:29am

on 03/13/08 at 06:40:14, barry_sword wrote:
What you described is what I call "cluster hangover"

Thanks for that, Barry.  I've a few other words for it, too, but NetNanny keeps kicking in.  Someone else, and I wish I could remember who, recently called it 'after-burn'.

Don't laugh, Badfly, but when this happens to me (often) I whack down two Panadols and a serious cup of serious coffee and it seems to ease the bruising.  I also learned the hard way that if two don't work, neither will four, six or eight.

There's also Panadiene Forte, while your tummy can handle the codiene, and again I've found that washing it down with serious coffee means you can use much smaller quantities than recommended and get better (and faster) results.

As to your tiredness, we comisserate completely.  I wouldn't be sitting here typing now if I wasn't so scared of sleep.  

Go the Wallabies  because the All Blacks wear ladies knickers,

Brian over the ditch.











Title: Re: So tired
Post by badfly on Mar 15th, 2008, 5:05am
[Yawn] Thanks for the words of encouragement. There are always such supportive people about on this site, it really is a godsend.

PS: The All Blacks rule and everyone knows it.

Title: Re: So tired
Post by andrewjb on Mar 15th, 2008, 3:21pm

on 03/15/08 at 05:05:32, badfly wrote:


PS: The All Blacks rule and everyone knows it.

not in 2007 ,  ;),  http://www.rugbyworldcup.com/home/fixtures/round=104/match=10120/analysis.html#springboks+struggle+describe+elation            <andrew.              

Title: Re: So tired
Post by Braindead on Mar 18th, 2008, 11:15pm
I always have some sort of head pain, migraine, cluster whatever i'm just a head pain kinda guy. They morph into all kinds of stuff for me.

Title: Re: So tired
Post by outofcommission on Mar 19th, 2008, 11:19pm
badfly you mentioned foods. chocolate, nitrates,(hot dogs) and beer are surefire triggers for me.

Title: Re: So tired
Post by superhawk2300 on Mar 21st, 2008, 9:33am
Sorry you are so tired. This may be the hardest part for me as well. The actaul hits can be aborted and the ordeal only lasts a short time compared to how long my ass drags on the ground like I just ran a marathon.

I just abuse energy drinks, drink lots of water and take multi-vitamin and minerals. I think the minerals help the most, esp magnesium as most americans are deficnant in these anyways and they are what gets you moving on a cellular level.



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