Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        Cluster Headache Help and Support >> Cluster Headache Specific >> Proper CH Log book
        
(Message started by: mcashes on Mar 7^th, 2008, 4:37pm)

Title: Proper CH Log book
Post by mcashes on Mar 7^th, 2008, 4:37pm

Hi, I'm new to this, not CH but the idea that I can actually do battle with it. I know I need to keep a CH log but I really don't know what one looks like. I've half heartedly tried to keep a log of my CH since first getting real meds (MaxAlt) this past October (the hits started about 9 yrs ago or so). At this point I'm just noting that I got a hit and that I took either 1/2 or a full MaxAlt tab. I don't record PF days. Should I be recording duration? Intensity (kip scale)? Shadows? All CH even if I don't take meds? I usually don't take anything till or unless I'm convinced it's going to be a bad one (I know, probably not a good idea). What else? What's a useful format, ledger style or narrative? I've seen a neuro only twice (then she left town? not sure if there's a connection), seeing a new one Monday. Basically, I want to keep the kind of log that is useful for a neuro that knows what she's dealing with.

Good news is my current cycle, which caused me to find this wonderful new family might be tapering off... I was PF 10pm - 4:30am last night (first time in 38 days). Either that or the Melatonin which I first learned about here on Saturday is starting to kick-in.

Mark

Title: Re: Proper CH Log book
Post by Dape on Mar 7^th, 2008, 4:47pm

Hi Mark,

I am sorry that you have a need to be here but you are now in the right place.

I had to fill in a daily diary and thanks to Artonio i used this 1
http://artonio7.com/CH_Pain_Cal_vert.pdf

It explains how to fill it in and was very helpfull for my neuro.

Dape

Title: Re: Proper CH Log book
Post by Linda_Howell on Mar 8^th, 2008, 11:01pm

Mark,

The link Dape gave you is the best we have to go on so far. Download or print it out.

Crossing my fingers and toes as well as lighting one of my candles and saying a very strong prayer for you that this is the end of your cycle.

Linda

Title: Re: Proper CH Log book
Post by mc_ashes on Mar 9^th, 2008, 10:42pm

Thanks Dape & Linda - I have continued to search around and I found what looks like a detailed, maybe too detail, form on the clusterbusters site. Here's the link if anyone's interested.

http://www.clusterbusters.com/CB.CH.GeneralDiary.pdf

Mark

Title: Re: Proper CH Log book
Post by Bill on Mar 10^th, 2008, 6:24pm

Check out http://www.ouch-us.org/downloads/headache_diary.pdf

-definitely better than nothing (many other excellent resources on the OUCH website, including a note for friends & co-workers). :-/

Title: Re: Proper CH Log book
Post by jace77 on Mar 11^th, 2008, 8:15am

I have a log sheet, it is a little more detailed, it is attempt to find triggers or patterns. I have been chronic for 10+ years, though friday will be 1 month PF. I will scan it and post it here if anyone is interested.

Title: Re: Proper CH Log book
Post by DragonSlayer on Mar 11^th, 2008, 2:52pm

on 03/11/08 at 08:15:12, jace77 wrote:

I have a log sheet, it is a little more detailed, it is attempt to find triggers or patterns. I have been chronic for 10+ years, though friday will be 1 month PF. I will scan it and post it here if anyone is interested.

WOW [smiley=thumbsup.gif] What great news for you Jace!! I truely hope this PF time continues!!!