Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        Cluster Headache Help and Support >> Cluster Headache Specific >> update
        
(Message started by: wanna_swap_brains on Feb 26^th, 2008, 5:31am)

Title: update
Post by wanna_swap_brains on Feb 26^th, 2008, 5:31am

hi,just a quick update,been doing lots of reading (and suffering)had mri on saturday and have to make an appointment with neuro on friday.monday was my best day for ages,i dont know if this makes any sense but i felt like part of my brain was missing(no im not an emptyhead)coz of lack of pain??anyway keep up the support and encouragement for people,it really helped me. stuart

Title: Re: update
Post by LeLimey on Feb 26^th, 2008, 10:42am

That "empty" feeling is about the best thing there is isn't there?! It's kind of scary though, you wonder how long it will last etc but the trick is make the most of every "empty" minute you get :)

Title: Re: update
Post by Guiseppi on Feb 26^th, 2008, 11:45am

Keep up with your reading, the bad news is you may have to educate your neuro some. You are your own best advocate and knowledge is power. Glad to hear you're catching a little pain free time, awesome isn't it? ;)

Guiseppi

Title: Re: update
Post by darknight on Feb 28^th, 2008, 10:46am

Good luck and read more on oxygen i never thought it would be as beneficial as everyone states but it is!!!
My GP sorted it out and all i had was the letter found on ouchuk about oxygen for ch sufferers, nice and simple they even deliver to the house!!!

Title: Re: update
Post by wanna_swap_brains on Feb 28^th, 2008, 11:24am

i asked my doc about o2 a few weeks ago,she said no,not until the mri has ruled out anything sinister.i should be getting my results next week but you know what the nhs is like.

Title: Re: update
Post by darknight on Feb 28^th, 2008, 12:44pm

From my own experience i had a scan they found nothing out of the ordinary,(hoping the same for you) actual suprised i had a brain lol. I then had a chat with the neurologist who diagnosed me, once they diagnose you they will talk about treatments and the next step, you will then go to your GP for your prescription at that point you should have a print out of the OUCHUK website, your doc cant refuse you it!!! Make sure you at least try it its making my life normal again!!!

Any problems or questions feel free to PM me ive only been on Oxygen for just over a week and cant beleive i hadnt started 2 years ago when i was first diagnosed. Doc told to take ibuprofen paracetamol and if it gets bad maxalt (waste of time for me) but at the end of the day id rather sup Oxygen than take a cocktail of drugs for any affliction!! ;)

Title: Re: update
Post by wanna_swap_brains on Feb 28^th, 2008, 2:48pm

cheers darknight,i just booked my neuro online for 12th march,was expecting a 4 week wait,best news this year 8)

Title: MRI
Post by beachmusic on Feb 29^th, 2008, 5:29am

Just curious if anyone has ever had an MRI (with all that noise etc) set off an attack? I am scheduled for back to back MRI and MRA and a bit concerned about that and or falling asleep. Naps are huge trigger for me as well as noise.

Title: Re: update
Post by darknight on Feb 29^th, 2008, 5:57am

Make sure you have the info to hand and take it with!!! ;)

Good Luck

Title: Re: update
Post by wanna_swap_brains on Feb 29^th, 2008, 6:58am

hi beachmusic,first thing i though when i seen the machine was"the icredible hulk"but only my head went in and it is a bit noisy but it will rule any other stuff out.it seems to me like its a case of eliminating stuff to get your diagnosis then you can get the right meds.like i said to my doctor you can cut my knob off if it works.

Title: Re: update
Post by Stinger on Feb 29^th, 2008, 5:01pm

I have often thought about a headache while in the MRI. I It's never happened. I am afraid I would just have to get out and reschedule.