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        Cluster Headache Help and Support >> Cluster Headache Specific >> coping with your job part 2
        
(Message started by: fluff_uk on Feb 16^th, 2008, 3:02pm)

Title: coping with your job part 2
Post by fluff_uk on Feb 16^th, 2008, 3:02pm

hi everyone
i was wondering how people cope with working as my employer is starting to get very unreasonable with me

Title: Re: coping with your job part 2
Post by LeLimey on Feb 16^th, 2008, 3:18pm

Can you explain a bit more?

How is your employer being unreasonable and what's happening for you?

We'll try and help!

Helen

Title: Re: coping with your job part 2
Post by outofcommission on Feb 17^th, 2008, 1:38am

hi fluffy. have you tried this link to our letter to employers?

http://www.ouch-us.org/chgeneral/colleagueletter.htm

hope this helps. i currently drive a truck otr. i have found this occupation to be somewhat ideal as long as i can pull over when a hit gets bad and i have plenty of o2. any job sucks when you have frequent chs at work. description of our condition is not going to suffice one of these "ya i've migraines before" kind of people. we have migraines on a good day. do the best you can and stay strong.

johnny

Title: Re: coping with your job part 2
Post by Bob_Johnson on Feb 17^th, 2008, 9:48am

I hope that you have made contact with the OUCH group in GB so that they can advise you about legal protections.

Title: Re: coping with your job part 2
Post by Dyno on Feb 17^th, 2008, 2:10pm

Quote:

i was wondering how people cope with working as my employer is starting to get very unreasonable with me

This seems all too common at the moment. Several members are worried about the possibility of losing their jobs. As Bob said

Quote:

I hope that you have made contact with the OUCH group in GB so that they can advise you about legal protections.

You could try looking at this information on the OUCH(UK) website.

http://www.ouchuk.org/html/workplace.asp?

or give the helpline a call on 01646 651979, leave your number and somebody will get back to you.

Rod

Title: Re: coping with your job part 2
Post by GrandPotentate on Feb 18^th, 2008, 10:14pm

I'm cyclic, not many hits during the day. A little caffiene buzz usually gets me through the day, but I get the hit at home (where I can deal with it on my own). A couple get through - I simply just need to drop everything and take a walk for an hour.

Dealing with the boss is different than dealing with the beast. I sat down with two bosses, explained what I was going through and what to expect from his point of view. It may be an unmanly thing to do, and perhaps no employee wants to discuss weakness with his boss. But most bosses have had to deal with more absenteeism and interruptions from others - it is part of their job. The pain from CH is indescribably indescribable, but for us it only entails a few short unscheduled breaks. I'm fortunate that most of my work can be easily rescheduled and done with some flexible hours.

Your job, your boss, your CH are probably different. See if you can work it out. Don't hit him up with all the gory details up front - give him the big picture and offer more info if he is interested.

Or get a new boss.

Jon

Title: Re: coping with your job part 2
Post by GrandPotentate on Feb 18^th, 2008, 10:15pm

Title: Re: coping with your job part 2
Post by fluff_uk on Feb 19^th, 2008, 12:05pm

thanks guys
i'll keep you posted turns out the owners brother who runs our other site is a ch suffer. thanks again
fluff_uk (kev)

Title: Re: coping with your job part 2
Post by puppylove41 on Feb 19^th, 2008, 7:25pm

Good luck with your boss now that you know his brother has CH's it may go easier on you. After 2 years my boss called me in the office one day and let me go. Told me I was a liability. I'm a maintenance man and only missed 3 days in the 2 years but guess better time are coming.
pf night to all

Title: Re: coping with your job part 2
Post by sandie99 on Feb 22^nd, 2008, 7:39am

To be honest, I'm not quite sure what will happen if/when ch makes it comeback during workhours. My part-time job does include medical services, but nothing like ch is included. I do know that several of my colleagues are using energy drinks on daily basis, so if I will drink some of my emergency red bull I won't stand out of the crowd.

But I'm thinking about it as a matter of "let's cross that bridge when we get there", so I'm not worried that much right now. I have my own cubicle to hide, and some shadows have not prevented me to do my job, so so far everything's fine.

Sanna

Title: Re: coping with your job part 2
Post by Charlotte on Feb 23^rd, 2008, 11:04am

Working is tricky, no two ways about it. Hopefully, your boss will appreciate your reliability and hard work, and work around the ch.

Good luck.

Charlotte

Title: Re: coping with your job part 2
Post by Barry_T_Coles on Feb 24^th, 2008, 11:26pm

on 02/23/08 at 11:04:34, Charlotte wrote:

Working is tricky, no two ways about it. Hopefully, your boss will appreciate your reliability and hard work, and work around the ch.

Good luck.

Charlotte

And as the others have said some things can be worked around, but there will always be the boss that is simply unresponsive.

I’ve just been through the old routine of inducting the fourth supervisor in three years into the world of CH; fortunately they have all been sympathetic and appreciated the for-warning, and the best tool in the approach is the letter to colleagues , I give it to them to read but at the same time give them a little run down on what to expect when a high cycle decides to attack me and tell them that once they have read the letter that if they want more info I am only too willing to elaborate on the situation.

One thing I have found when getting the message about shadows across to them is to explain shadows as like having a hangover every day of your life; if they are a drinker of any sort they will have experienced a doosey of a hangover at least once and you can see the wince in their look because that is how they can relate to that low level of pain and then they simply shake their head in wonderment when you explain to them that these shadows are the happy end of the scale.

Hope things work out for the best.
Cheers
Barry