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        Cluster Headache Help and Support >> Cluster Headache Specific >> Last dance with Mary Jane?
        
(Message started by: rolo65 on Feb 7th, 2008, 11:50pm)
Title: Last dance with Mary Jane?
Post by rolo65 on Feb 7th, 2008, 11:50pm
I got laid off a month ago and had to give up MJ, and ever since my CH has gotten much worse. I have been getting hit every two hours all night long again but the hits aren’t too bad. Kip 4-5’s for 15-20 minutes but the lack of sleep is getting to me again, and I’m also getting daytime hits as well :(

I have upped my lithium back to 900mg and I’m still getting them. I am afraid that when I start a new job that I will loose it from CH hits during the day.

I am afraid to tell my neurologist about it but may have no choice. Only 2 hits at bed time keeps me HA free, but I can’t and don’t want to do it anymore. Anyone have some suggestions that might help?

It would be nice if I could get a medical waiver but I know that’s a pipe dream. I really don’t miss it anyway and I have wanted to quit for a long time, but every time I quit the CH kicks into overdrive and I start back up again.

Any help with this situation would be greatly appreciated.

PFW’s to all.

Rolo

Edit: because I should have worded it better in the first place. Hope this is better, and can start this thread back on track. Sorry all for the misinterpretation and vagueness of the first draft.
Title: Re: Last dance with Mary Jane?
Post by Linda_Howell on Feb 7th, 2008, 11:57pm

 Um...I do believe you are in the wrong place to promote someone helping you with an illegal hook-up.

If I am wrong in my assumption I will apoogize.
Title: Re: Last dance with Mary Jane?
Post by rolo65 on Feb 8th, 2008, 12:01am

on 02/07/08 at 23:57:16, Linda_Howell wrote:
 Um...I do believe you are in the wrong place to promote someone helping you with an illegal hook-up.

If I am wrong in my assumption I will apoogize.


I guess you don't read very well do you!
Title: Re: Last dance with Mary Jane?
Post by Batch on Feb 8th, 2008, 12:02am
Rolo,

If you can afford Lithium, you can afford oxygen therapy... Get a prescription for 15 liters/minute and non-rebreather mask.

V/R, Batch
Title: Re: Last dance with Mary Jane?
Post by rolo65 on Feb 8th, 2008, 12:04am

on 02/08/08 at 00:02:15, Batch wrote:
Rollo,

If you can afford Lithium, you can afford oxygen therapy... Get a prescription for 15 liters/minute and non-rebreather mask.

V/R, Batch


Yes, I always have 4 M tanks and I use it every day. The O2 works very well and I have the correct mask and regulator.
Title: Re: Last dance with Mary Jane?
Post by nani on Feb 8th, 2008, 12:06am
I guess if we could figure out what, exactly, it was doing for you, we could figure out what might give the same assistance.  :-/

Maybe melatonin would help? If you were using before bed, the melatonin may help, too.

Heck, I dunno... just a thought.
Title: Re: Last dance with Mary Jane?
Post by Linda_Howell on Feb 8th, 2008, 12:17am

 
Quote:
I guess you don't read very well do you!


  Do NOt insult my intelligence.  I read just fine thank you.  References to MaryJane, wanting to roll one, afraid to tell your neurologist about needing 2 hits a night to keep you "right" , f**  Nancy Reagan and drug testing policies, "I've wanted to quit for a long time"

  and then this:

"any help would be greatly appreciated"

   Yeah...I must be zoning and I really didn't understand at ALL what you were getting at.     ::)


Good luck with your last dance with Mary Jane.  
Title: Re: Last dance with Mary Jane?
Post by rolo65 on Feb 8th, 2008, 12:17am
I have a box full of meds I quit taking and remembered that I have some amitripyline. I have to check to make sure it won't react with the lithium and I'll try that.

As many of you probably have tons of meds that didn’t work, so do I. I also have several antidepressants I can try also.

I used to be on 5 drugs at once before I quit every thing and tried the RC seeds but they didn’t cut the preverbal mustard and I decided to try the last resort “lithium” and low and behold it worked for me. I got down to 450mg and was doing great until I quit the MJ.

I just don’t want to be on a ton of meds again like before. All they did was make my life hell. Many of you may remember my earlier posts about this a year ago or so.

For those that don’t remember me, I am way chronic and no meds or combos worked for me until I went on the lithium.

Thanks, Rolo
Title: Re: Last dance with Mary Jane?
Post by Jimi on Feb 8th, 2008, 12:42am
That last post was better.


Quote:
I guess you don't read very well do you!


Now apologize to the little lady and all will be well again. :)
Title: Re: Last dance with Mary Jane?
Post by MJ on Feb 8th, 2008, 12:53am

"and was doing great until I quit the MJ"

Thats what all the girls used to say about me.

MJ
Title: Re: Last dance with Mary Jane?
Post by rolo65 on Feb 8th, 2008, 1:27am

on 02/08/08 at 00:06:51, nani wrote:
I guess if we could figure out what, exactly, it was doing for you, we could figure out what might give the same assistance.  :-/

Maybe melatonin would help? If you were using before bed, the melatonin may help, too.

Heck, I dunno... just a thought.


I have tried the melatonin and it does nothing at all for me. I don't know why the pot helps but it does. I have tried the tripy things and they dont work for me ether. I don't want to take or do anything but I can't just wish the pain away ether. This CH stuff is a mean animal that wont let you trim it's nails.

Thanks Nani,

Rolo.. :)
Title: Re: Last dance with Mary Jane?
Post by sailpappy on Feb 8th, 2008, 2:45am
;;D ;;D I use to smoke, it never helped at all, quit that a very long time ago.
       I use melatonin but it has to be at least 24mg based in B-6 or it wont help either.  It fairly cheap but wal-mart is the only source that sells the 3mg in b-6. I take 8 each night.     John
Title: Re: Last dance with Mary Jane?
Post by midwestbeth on Feb 8th, 2008, 9:18am
MJ is a huge trigger for me.  Before I knew I had ch, I tried that on a sugesstion from a friend thinking it would help me sleep and make the ch go away.  That DID NOT happen.  I thought my left eye was going to burst out of my head.  Maybe it helps some for migraines, but from reading this board, many say it is a trigger for a ch.

I have no sugestions other than trying melatonin again.

Beth
Title: Re: Last dance with Mary Jane?
Post by Ray on Feb 8th, 2008, 11:05am
I'm in the same boat as MidwestBeth...

I quit smoking that nearly 10 years ago.  My thought is that if you can let it go for a while, it will work it's way out of your system in about 2 weeks if you're a thin body type, and 6 weeks if you're overweight.  Eventually these effects will stop.

I have no clue how smoking it can be helpful at night to prevent hits...

When I lived in the netherlands, you could legally obtain a few grams at a time, maybe it's time to look for an international assignment?

With best wishes,

Ray
Title: Re: Last dance with Mary Jane?
Post by artonio7 on Feb 8th, 2008, 11:57am
rolo... first off... sorry you suffer from this pita CH...

secondly... You don't need to be a bitch to Linda... she's helped more people than you've seen in a decade and your post does come across as seeking an illegal substance on this site.

thirdly... if the o2 is working then what's the problemo?

I hope the melatonin works for you!

with warm regards,
Tony
Title: Re: Last dance with Mary Jane?
Post by vietvet2tours on Feb 8th, 2008, 12:30pm

on 02/08/08 at 09:18:33, midwestbeth wrote:
MJ is a huge trigger for me.  Before I knew I had ch, I tried that on a sugesstion from a friend thinking it would help me sleep and make the ch go away.  That DID NOT happen.  I thought my left eye was going to burst out of my head.  Maybe it helps some for migraines, but from reading this board, many say it is a trigger for a ch.

I have no sugestions other than trying melatonin again.

Beth


   Yep what she said.  Say sorry to Linda.

                     Potter
Title: Re: Last dance with Mary Jane?
Post by artonio7 on Feb 8th, 2008, 1:57pm



on 02/08/08 at 13:23:30, rolo65 wrote:
She was wrong so why would I apologize when what I said was correct?

If it makes you all feel better than I am sorry that Linda jumped to an inaccurate conclusion, and accused me of soliciting for drugs when I clearly stated that was not my intention.

Rolo…………………………………………………………………………. ::)


Would you care to point out where you clearly state in this post where you are not soliciting MJ?


on 02/07/08 at 23:50:51, rolo65 wrote:
I got laid off a month ago and had to give up MJ, and ever since my CH has gotten much worse. I have been getting hit every two hours all night long again but the hits aren’t too bad. Kip 4-5’s for 15-20 minutes but the lack of sleep is getting to me again. :(

I have upped my lithium back to 900mg and I’m still getting them. I am afraid that when I start a new job that I will loose it from CH hits during the day.

F’n Nacy Regan and the dam drug testing policies are a bunch of  bovine scatology!!!!! >:(

I am afraid to tell my neurologist about it but may have no choice. I only need 2 hits at bed time to keep me right but can’t do it anymore. Anyone have any suggestions?

God I wish I could get a medical waiver but I know that’s a pipe dream. I really don’t miss it that bad and I have wanted to quit for a long time, but every time I do the CH kicks into overdrive and I start back up again.

Any help with this would be greatly appreciated.

PFW’s to all.

Rolo who wants to roll one but can’t! :-X


Perhaps a lack of thc is altering your perception.

tony
Title: Re: Last dance with Mary Jane?
Post by Sandy_C on Feb 8th, 2008, 1:57pm
Sorry, Rolo.  

When I read your post I also thought that you were looking to score some MJ.  Where in your first post do you "clearly state" that it was not your intention to score?

You say you have 02 and use it daily.  Does it work for you?
Your hits, you say are in the K4 to K5 range and last for 15 to 20 minutes.  Is the 02  helping to abort the hit?

I'm not chronic, and I thank God every day that I'm not.  As an episodic, I've had great results with rc seeds in combination with 02.  So I too, am using an illegal substance to combat CH.  I grab my 02 immediately upon the first inkling that a hit is on the way, and can abort that hit within 5 minutes.  I mega dose with seeds at the first sign a cycle is starting, and I maintenance dose with 12 seeds every month to try to keep the cycle from starting.  I have been able to completely stop my last two cycles within days using this combination.  I take nothing else.

Not trying to be mean to you, just trying to understand what you are doing to combat CH, and to make sure that you are not using us to try and find a new source for pot.

Sandy
Title: Re: Last dance with Mary Jane?
Post by artonio7 on Feb 8th, 2008, 3:02pm

on 02/08/08 at 14:46:19, rolo65 wrote:
I started this thread for help and 75% of the responses are negative or misinterpreted.

All I wanted was a few responses from fellow sufferers that are in the same boat as I am, not a slew of accusations and negativity. If you think I’m going to get all upset about this BS you are sorely wrong. I will drop this site like a rotten potato before I bring myself down to the level of constant in fighting.

I want to thank Batch for being the only one on this board that was concerned enough to try to help without being judgmental or context blind.

All you folks who are so convoluted and context blind, I want to thank you for nothing!

Rolo. :'(


Listen up shit for brains...

Where the fuck do you get off asking for an illegal substance on this site... then when it's pointed out... denying it... and telling us that we're context blind?

perhaps if you can get your doc to prescribe marinol... that might solve your problem.

If you're having a shitty day... that's too bad... get in line with the rest of us and off your fucking high horse.

Tony
Title: Re: Last dance with Mary Jane?
Post by seasonalboomer on Feb 8th, 2008, 3:27pm
I read your post and it sounded to me like you were trying to score a doob dude..... Maybe that's not your intent but your defensiveness isn't helping your case.

If you choose to drop this site "like a hot potato"....well, I'll get up tomorrow and my day will be no different than it would have been otherwise.

Scott
Title: Re: Last dance with Mary Jane?
Post by Jimi on Feb 8th, 2008, 3:46pm
Oh, oh......now you've done it. You have made Tony sign off without saying warm regards and I never thought ANYONE could do that. If you are sooo misunderstood, than my advice to you would be to just start over. The only one I see on here with his panties twisted is you.

P.S. I received your pm. If you have a problem with Linda, you have a problem with me and about 90% of the people on here.  >:(

P.S.S.   (shit for brains) that was funny Tony. ;;D
Title: Re: Last dance with Mary Jane?
Post by nani on Feb 8th, 2008, 3:58pm

on 02/08/08 at 14:46:19, rolo65 wrote:
I want to thank Batch for being the only one on this board that was concerned enough to try to help without being judgmental or context blind.



Oh...helllooooo...am I invisible?  ;)

It took me a minute to figure out exactly what you needed, Roland. Once I did, I answered in what I hoped would be a helpful way. I could see how your original post might be misinterpreted.

Now, the gentlemanly thing to do would be to say sorry to Linda for the sarcasm, who probably would say she was sorry she misunderstood.

Let's remember our manners, class. Don't make me get the ruler.

/for clarity
Title: Re: Last dance with Mary Jane?
Post by brewcrew on Feb 8th, 2008, 4:43pm
I do a number of things very well, but reading minds is not one of them. In order to have understood that you were not looking to score, one would have had to read your mind.

You owe some people an apology. And as with anything unpleasant, the sooner it's over, the better. Now be a man.
Title: Re: Last dance with Mary Jane?
Post by BlueMeanie on Feb 8th, 2008, 5:59pm
I don't think you where soliciting to FIND anything here Rolo, but more complaining that you now have to do drug test. But, with that said, you shold not be faulting Linda for attempting to keep this site free of useless threads that could possibly jeopordize this site.

I have tired it hoping that just maybe it would stop CH's. I have also talked to several others who have tested to see if it works. Not a single person has ever said that it works as either a prevent or an abortive. Using the excuse that the government won't let you have it because it works, in my opinion, is a crock. If it DID work, i'd be right there rooting for ya.
Title: Re: Last dance with Mary Jane?
Post by Kevin_M on Feb 8th, 2008, 7:02pm
What you wrote was interpreted suspiciously within seven minutes of your post and that gave you a chance to clarify better then.  It would be best not to be pointing fingers as to who is wrong here after your replies.


on 02/08/08 at 00:01:15, rolo65 wrote:
I guess you don't read very well do you!



Quote:
a slew of accusations and negativity.



Quote:
judgmental or context blind.



Quote:
so convoluted and context blind



Quote:
She was wrong so why would I apologize when what I said was correct?

If it makes you all feel better than I am sorry that Linda jumped to an inaccurate conclusion, and accused me of soliciting for drugs when I clearly stated that was not my intention.

Rolo
                    ::)



How about your judgmental accusations, negativity, and a convoluted sorry about Linda? You could have changed this thread differently in the first eight minutes with this follow up post:


on 02/07/08 at 23:50:51, rolo65 wrote:
Rolo

Edit: because I should have worded it better in the first place. Hope this is better, and can start this thread back on track. Sorry all for the misinterpretation and vagueness of the first draft.


But now are only sorry for the misinterpretation due to your vagueness.  Then you are context blind to your written statements and specific rotten potato words that changed the circumstances of your situation here following your original post.



on 02/07/08 at 23:50:51, rolo65 wrote:
Any help with this situation would be greatly appreciated.


That's up to you now.



As to this situation:


Quote:
I am afraid that when I start a new job that I will loose it from CH hits during the day.


It may be unlikely you'd be able to use MJ as an abortive at work anyway so I'd be looking avidly for a different solution.  You came close with the lithium, talk to your neuro, perhaps a combination with the lithium will improve its effectiveness.  You have oxygen, get ideas from people here about revisiting seeds again.  Cooperation helps if you are serious.  Pot is a very dubious road with clusters and not an option with me.
Title: Re: Last dance with Mary Jane?
Post by Jimi on Feb 8th, 2008, 9:01pm
Well not only did Rolo leave but I see that he took all of his negative posts off the thread and left the others up. Maybe he will come back under another name and start over, unless he finds the need for MJ greater than the need to stop his clusters.  :-/
Title: Re: Last dance with Mary Jane?
Post by seasonalboomer on Feb 8th, 2008, 9:08pm

on 02/08/08 at 21:01:01, Jimi wrote:
Well not only did Rolo leave but I see that he took all of his negative posts off the thread and left the others up. Maybe he will come back under another name and start over, unless he finds the need for MJ greater than the need to stop his clusters.  :-/



Well.... then I'm personally starting to feel like a very warm tater.....
Title: Re: Last dance with Mary Jane?
Post by brewcrew on Feb 8th, 2008, 10:23pm
Not man enough to apologize to a real lady.

Tsk, tsk, tsk.
Title: Re: Last dance with Mary Jane?
Post by Redd on Feb 8th, 2008, 11:30pm
I wonder if his Mommy made him come up from the basement for supper?

Then while he was doing dishes, she deleted his profile.
Title: Re: Last dance with Mary Jane?
Post by otakuhouse on Feb 9th, 2008, 8:11pm
I have no problems with Marijuana and believe it should be legalized, but for the record I'm stating this straight up for any CH sufferer who believe that alternate therapeutic usages of a plant may help them.

It's a definite no-no during a cycle of cluster headaches.

It acts as a trigger, it amplifies the pain of CHs, and the paranoiacal effect is particularly not good for the psychological response to a CH.

If you puff, stop cold turkey on the weed during a bout.

And if you can't, you're abusing it to begin with.
Title: Re: Last dance with Mary Jane?
Post by Linda_Howell on Feb 9th, 2008, 9:39pm

 
Quote:
I'm all for Marijuana in every way possible,



  http://bestsmileys.com/angry1/8.gif


[smiley=ohjez.gif]
Title: Re: Last dance with Mary Jane?
Post by brewcrew on Feb 9th, 2008, 11:03pm
Party on, Wayne.

Party on, Garth.
Title: Re: Last dance with Mary Jane?
Post by Linda_Howell on Feb 10th, 2008, 1:25am

LMAO Bill.

  Ya know.  I do believe I am going to completely stay out of threads like these.  My blood pressure shoots up, I get angry, I get REALLY scared that DJ and this site will suffer from blatant references like the title of this thread.  

  I want all of you to know how much I appreciate the things you have said on my behalf here.  I am also glad to see that I was not the only one who thought Roll-em (LOL) was out to solicit..

  Most of you know that 2 of my sons are  killing themselves with drugs and it's just a matter of time before I get "THAT call"  so I am not in the best frame of mind when someone waltzes in here happily and laughingly talking about drugs of any kind that are illegal and for cripes sake don't work anyhow for CH.

I  truly thank you guys for the back-up.   [smiley=bow.gif]

Linda

 
Title: Re: Last dance with Mary Jane?
Post by otakuhouse on Feb 10th, 2008, 4:47am
Linda,

I thought Rolo was a jerk with bad manners.

I shouldn't have said in every possible way... What I meant to say was "hey you people who don't have problems with weed philosophically, here's some advice". It's definitely not for clusters.

I just wanted to share definitively that for those who, regardless of your views, tolerate specifically marijuana that it does them no favors while having cluster headaches.

Too many pot users believe it's a cure all for everything; and it's not. And desperate clusterheads will try all sorts of things - such as magic mushrooms. I don't think it does any damage to state that I don't have anything against the drug so this is not coming from a reaction - rather hard won experience would advise staying away from it during cluster bouts. If that saves someone from getting even one of these headaches, I don't see the harm done.
Title: Re: Last dance with Mary Jane?
Post by tommyD on Feb 10th, 2008, 7:49am

Quote:
And desperate clusterheads will try all sorts of things - such as magic mushrooms.


As well they should, as long as they aren't pregnant or have a propensity toward schizophrenia or similar mental illness.

It may sound silly to somebody new around here, but it may be the best chance out there to kick the beast to the curb.

Folks on this board have been using and discussing psilocybin and related compounds for going on ten years now. Hundreds (that we know of...it could be thousands) have used it with great success. Some of these folks are still hanging around here.

Add oxygen as an abortive, and you have the one-two punch that can win your life back. Check it out: www.clusterbusters.com

If you find anything that works better to break a cycle and suppress attacks long term. you be sure to let me know, okay?

-tommyD
Title: Re: Last dance with Mary Jane?
Post by hotprestwich on Feb 10th, 2008, 12:46pm
just my 2 cents,
i smoked mj through this whole cycle no other meds apart from 02 and coffee, the mj in no way for me triggers clusters so it shouldnt be said that its a definite no no,  its different for everybody,
just to let you guys know, ive had the shortest cycle to date 5 weeks, ive been pain free now for over a week,
huraaaayyyyyy ::)
Title: Re: Last dance with Mary Jane?
Post by otakuhouse on Feb 10th, 2008, 3:16pm
tommy, we don't disagree. i think magic mushrooms is a perfect case in point - a powerful natural substance that deserves rationally a serious study scientifically, and should any ch's get relief from it then yes the legal situation is absurd and pointless.

Linda i'm sorry pain is being caused in your life by drugs; i've been through that with family myself and have gotten that call, but one has to be objective as i think all clusterheads know that orthodox medical knowledge and legality (such as mushrooms) may not be in our favor.

prestwich it does seem to be different for everyone. i remember i did once in the early days get through a kip 8 by smoking a ginormous joint and thought i'd found a miracle cure - my diary though pointed out that days on which i used marijuana i did not immediately trigger a headache, rather on those days i'd get hit the hardest later. likewise cycles i abstain i get less frequent and lower scale attacks. also found that my natural anxiety levels were higher due to weed's paranoiacal effect. i'd rather have 0 headaches than a 3 day cycle - next time you're in cycle try abstaining from weed and see the results. but hey if it helps you, go for it.

one of the people who suggested i smoke marijuana for chronic pain was a neurologist who teaches at one of the most esteemed universities in the US. what i've found is that post cycle marijuana helps me with the post depression. it restores appetite, reduces lingering nausea from all the pain, relaxes my knotted muscles, keeps me from blowing up over small things, makes me appreciate simple things, and alleviates sadness and makes me more sociable. like any substance it can definitely be abused. but just as with magic mushrooms there is a large body of information on its helpfulness as a medical substance and it is used clinically in some parts of the u.s. to great effect, especially on cancer patients.
Title: Re: Last dance with Mary Jane?
Post by Kevin_M on Feb 10th, 2008, 9:27pm

on 02/10/08 at 15:16:43, otakuhouse wrote:
one of the people who suggested i smoke marijuana for chronic pain was a neurologist who teaches at one of the most esteemed universities in the US.

...there is a large body of information on its helpfulness as a medical substance


That being known and pertaining to chronic pain.  Within the subject of clusters, it may be too broad a statement for most.
Title: Re: Last dance with Mary Jane?
Post by Annette on Feb 10th, 2008, 11:38pm

on 02/10/08 at 15:16:43, otakuhouse wrote:
one of the people who suggested i smoke marijuana for chronic pain was a neurologist who teaches at one of the most esteemed universities in the US. the u.s. to great effect, especially on cancer patients.



That reminds me of the case of Dr Katelaris in Sydney a few years back. He was a pain specialist who was doing research work on marijuana for chronic pain. He obtained a permission to grow marijuana on his property for "research". However, in 2005 he was deregistered by the Medical Tribunal Board and charged with growing marijuana for personal use as well as selling them to patients and friends !

A case of Timothy Leary ?

No ethical doctor should tell patients to go "smoke marijuana for chronic pain". If they believe that can help in a particular case, the patient should be referred to enrol in one of the approved clinics or study trials.
Title: Re: Last dance with Mary Jane?
Post by brewcrew on Feb 11th, 2008, 7:53am

on 02/10/08 at 21:27:06, Kevin_M wrote:
That being known and pertaining to chronic pain.  Within the subject of clusters, it may be too broad a statement for most.

I think it has medical applications for easing the nausea that accompanies chemotherapy as well.
Title: Re: Last dance with Mary Jane?
Post by Kevin_M on Feb 11th, 2008, 1:13pm
Thanks Brew for the comment.  It was a very lazy and sloppy post by me.  I meant:

What's mentioned, I'm sure pot has been used for.


Quote:
what i've found is that post cycle marijuana helps me with the post depression. it restores appetite, reduces lingering nausea from all the pain, relaxes my knotted muscles, keeps me from blowing up over small things, makes me appreciate simple things, and alleviates sadness and makes me more sociable.


as well as chronic pain, and


Quote:
there is a large body of information on its helpfulness as a medical substance...

...and it is used clinically... especially on cancer patients.


are known (which includes the nausea part and mentions cancer patients), but I'd say the part about it's use for chronic pain and helpfulness as a medical substance is a bit too broad concerning clusters for most and could hardly be approved medically for the condition or recommended approvingly for the attacking pain, despite how it might be chosen for other aspects in the life a clusterhead.  
 
Title: Re: Last dance with Mary Jane?
Post by Miz_D on Feb 13th, 2008, 7:17pm
I was sooooooo not going to touch this thread (although as usual I have thoroughly enjoyed reading it!) but here I am throwing my 2 cents in!

Yep, I'm a social pot smoker meaning that I smoke it once in awhile kind of like how some people grab the odd beer with a friend. I also like the odd marini and glass of wine with dinner.

Does pot help my CH? Nope, not at all and it is not the 'drug of choice' I reach for when I experience an attack. That is usually 02 and if that doesn't work, a quick little shot of Imtrex will usually do the trick. Does it aggravate my CH when I am in cycle? Well, since I am chronic and always in cycle I will simply say that if I am between attacks and I decide to partake, it does not seem to trigger another attack. If I am in a space where I am having back-to-back attacks, smoking pot is the furthest thing from my mind.

I think the most important thing is that we continue to recognize that each persons CH is personal...what works for one does not always work for another. I believe most of us are simply trying to find something, anything that helps deal with our CH and have a great life in spite of it. The severity of the pain that we deal with often leaves some of us to consider options that we normally would never pursue. It is like that for almost everyone who deals with chronic pain, no matter what the cause.

On this message board, I love and value the information that is shared, whether personal, medical articles or whatever. What I find difficult is when people offer absolutes, not based on personal experience but simply from their own judgements and biases. Its ok to have opinions for sure, and we all do...but I think we do a disservice to anyone seeking valid information. when we simply dismiss something because we have personal issues with it.

It would be very selfish (not to mention foolish) of me to say that energy drinks don't work if I have never tried one to help abort a hit. It would also be irresponsible of me when trying to help someone if I were to say "don't do something" because I didn't think it was right...know what I mean? Especially if they saw me as someone who was more knowledgeable in a specific area than they and had more experience dealing with the issue.

Personally, I think we are brave and compassionate people but sometimes our egos get the best of us. Nothing to be ashamed of but definately something to be aware of.

Ok, that's my 2 cents...and we all know that doesn't buy shit these days!
Title: Re: Last dance with Mary Jane?
Post by Jonny on Feb 13th, 2008, 9:00pm
I remember Rolo, he was an ok dude when he showed up here (even PM'ed a few times) awhile back. Maybe, just maybe he felt comfortable enough to bring this subject up.

Thats just my take on this!
Title: Re: Last dance with Mary Jane?
Post by Kevin_M on Feb 13th, 2008, 9:08pm

on 02/13/08 at 19:17:48, Miz_D wrote:
Does pot help my CH? Nope, not at all and it is not the 'drug of choice' I reach for when I experience an attack.

Its ok to have opinions for sure, and we all do...but I think we do a disservice to anyone seeking valid information. when we simply dismiss something because we have personal issues with it.



This is a bit of the situation to which opinions and information were given.


Quote:
I got laid off a month ago...

I am afraid that when I start a new job that I will loose it from CH hits during the day.

I only need 2 hits at bed time to keep me right but can't do it anymore. Anyone have any suggestions?

I have wanted to quit for a long time, but every time I do the CH kicks into overdrive and I start back up again.

Any help with this would be greatly appreciated.


How would two hits at night alleviate his fear of getting hit at work, or would he have to smoke at any new job, too?  Would that work out ok and also be a consistently effective abortive enough to maintain a job?  Is continuing rolling to alleviate pain the answer or is there more he can do?


Any opinion, 2 cents, or valid information? I did not understand the ego part without your input also.


Title: Re: Last dance with Mary Jane?
Post by Jonny on Feb 13th, 2008, 9:14pm

on 02/13/08 at 19:17:48, Miz_D wrote:
Does pot help my CH? Nope, not at all


It dont help you, but what if it helps Rolo?

We are not all the same which is a subject that has been beat to death.

What if pot did help this dude....and now he was run out of here because pot dont help EVERYONE?

Think about it!

Like I said...he was a good dude to me and I can smell a rat real good on this site....and he was not one!
Title: Re: Last dance with Mary Jane?
Post by Miz_D on Feb 13th, 2008, 9:50pm
Hi Kevin,

In response to your post, I did not conclude that a) he got laid off due to smoking, I thought it could have been due to any number of reasons. b) the fact that he was concerned about losing a new job to CH hits during the day also did not indicate to me that those concerns were based on smoking. They could have been, but since he did not say that, I did not jump to that conclusion. When he stated that he only needed “2 hits at bedtime to keep him right but can't do it anymore”and then asked for any suggestions, those who responded with suggestions were accurate. What I was commenting on in my post was that when someone gives suggestions it is more beneficial and appropriate if those suggestions are based on fact and personal experience in relation to CH and not based on personal bias.

If this individual has a problem with smoking pot, wouldn't it be more appropriate to “suggest” that he seek professional help or, if there is someone on the message board that has this professional experience, send him a private message? I do not think we are here to pass judgment on others or to act as legal, marriage or financial counselors. Because in truth we are all here because we suffer from Cluster Headaches and we can find solace and understanding from others who know what we go through.

What makes this website and, particularly this message board so effective is that many of us have dealt with our CH for quite some time and are knowledgeable regarding our condition and how it effects us personally. When we share that information with each other, and new medical information as it becomes available, we collectively  benefit. When ego gets involved (and ya know, we all have one like it or not)and we allow our personal judgments to dictate how we respond to others and that response is less than compassionate, then we are doing each other a disservice. I am not the most articulate person in the world and so perhaps I am not clearly expressing my meaning. But I am hoping that you can understand the gist of what I am trying to say and take my post in the light that it was intended, which was that of a reminder I guess, for all of us. None of us is perfect and fortunately we don't need to be to be wonderful people.

If my post offended anyone, I sincerely apologize. I guess I better start baking for Dallas now....
Title: Re: Last dance with Mary Jane?
Post by Miz_D on Feb 13th, 2008, 9:54pm

on 02/13/08 at 21:14:58, Jonny wrote:
It dont help you, but what if it helps Rolo?

We are not all the same which is a subject that has been beat to death.

What if pot did help this dude....and now he was run out of here because pot dont help EVERYONE?

Think about it!

Like I said...he was a good dude to me and I can smell a rat real good on this site....and he was not one!


That was in fact the point of my posts. It very well might work for some and even if it doesn't work for me today who's to say that it won't tomorrow?
Title: Re: Last dance with Mary Jane?
Post by Linda_Howell on Feb 13th, 2008, 10:16pm


Quote:
and not based on personal bias.

If this individual has a problem with smoking pot, wouldn't it be more appropriate to “suggest” that he seek professional help


I am going to go on the assumption that you are referring to me,  MizD.

I'm with Kevin and a lot of others here on how this guy portrayed himself in that first post and I stand by that.

As for "ego" as you say....I assure you,   I have none.
Title: Re: Last dance with Mary Jane?
Post by Kevin_M on Feb 13th, 2008, 10:24pm

on 02/13/08 at 21:50:57, Miz_D wrote:
I did not conclude that a) he got laid off due to smoking, I thought it could have been due to any number of reasons. b) the fact that he was concerned about losing a new job to CH hits during the day also did not indicate to me that those concerns were based on smoking. They could have been, but since he did not say that, I did not jump to that conclusion.


Nothing at all indicated he was laid off for that reason, no conclusions were jumped to, any number of reasons would be correct.  He indicated pot alleviated night hits, was concerned about day hits on the job, what was he going to do about this with pot for clusters?  I don't see any conclusion jumped to.



Quote:
If this individual has a problem with smoking pot,...

I do not think we are here to pass judgment on others or to act as legal, marriage or financial counselors.


A problem was not mentioned, and I don't see how the other sentence comes into the picture helping with clusters.


My questions were:


Quote:
How would two hits at night alleviate his fear of getting hit at work, or would he have to smoke at any new job, too?  Would that work out ok and also be a consistently effective abortive enough to maintain a job?  Is continuing rolling to alleviate pain the answer or is there more he can do?


These would be considerations to his situation.  

His replies were a different situation.




Quote:
When ego gets involved...


I do not understand this without your input.
Title: Re: Last dance with Mary Jane?
Post by thebbz on Feb 13th, 2008, 10:25pm
Pots a trigger. Party on dude,gas,grass, or ass nobody rides for free.
thebb
Title: Re: Last dance with Mary Jane?
Post by Miz_D on Feb 13th, 2008, 11:43pm
Kevin,
Please let me clarify...I took no issue with the suggestions that were given him; as usual, the information that was presented to him, both medical and personal were very informative. If I were to have asked the same questions as Rolo, I would definitely be fortunate to receive the same kinds of responses, which I have in the past and hope to continue receiving in the future.

It was not the suggestions offered which motivated my posts. I just felt sad about how we as individuals sometimes approach others when they ask questions that we are uncomfortable with. How we can so easily allow our own personal views to  reflect intolerance towards others and cause us to act and react in ways that have little to do with providing support and a lot to do with helping ourselves feel justified in our views. It is this “attitude” that I meant when I referred to “ego”. This idea that we are right and if someone disagrees, they are automatically wrong and that we have a right to condemn or judge their beliefs, choices or lifestyle. But this is only a small manifestation of “ego”...and we all have one, it is part of being human. It's nothing to be ashamed of as it serves us well in many ways.

And no Linda, you would be incorrect if you jumped to the conclusion that it was you my posts were directed at. They were not directed at anyone in particular at all. They were simply a reminder for all of us, including myself, what our purpose here is and what, I believe, this website was created for. Although we have never met, you have been there for me when I was at my whit's end and I respect you and the content of many of your posts as well as your role in family services.
Bottom line for me is that I don't want to be the cause of anyone leaving this site or feeling personally attacked. This site is for CH sufferers and their supporters. Yes, people come here just screwing around and pushing their personal agendas, their called trolls and they're a pain in the ass. But unless we know for a fact that someone is just screwing with “us”, I, for one, would rather error on the side of caution in case the 'troll' is a legitimate 'clusterhead'.

I've taken up enough space on this thread and I'll return to doing what I do best which is keeping my mouth (or, in this instance, my fingers) shut.

Happy Valentine's Day everyone.
Title: Re: Last dance with Mary Jane?
Post by thebbz on Feb 13th, 2008, 11:47pm
Wow. :-/
thebb ;)
Title: Re: Last dance with Mary Jane?
Post by Crucified on Feb 14th, 2008, 1:51am
Maybe, I got laid off because I would not lie for my boss who once burned out a $1,000.00 control panel at a church and then would not pay me overtime to replace it on a Friday afternoon when I had 42 hours in already that week. And then he charged the church for the time and material at $75.00 hr. and at least he gave them the panel for cost.

Maybe, I passed that drug test, and now have a great job with a fortune 500 company.

Maybe, I really wanted help with my CH, and was just venting about the drug test because I was in that situation and need to feed my kids that are 5 & 7.

Maybe, there a lot of people that (even though I have never met them) I would pull out of a wreaked car in the middle of the freeway no matter what they have done in their life.

Maybe, there are a few members on this board that are a little too critical of others.

Maybe, that is why I deleted my user name to make me stop and think if I really wanted to post anymore after the morbid attacks I received for a small criticism of a miniscule proportion.
Title: Re: Last dance with Mary Jane?
Post by DragonSlayer on Feb 14th, 2008, 2:45am
Welcome Back!
Title: Re: Last dance with Mary Jane?
Post by Kevin_M on Feb 14th, 2008, 6:59am

on 02/14/08 at 01:51:54, Crucified wrote:
Maybe, I really wanted help with my CH, ...




on 02/13/08 at 23:43:30, Miz_D wrote:
Please let me clarify...


But as of yet, you still haven't given a word of what your valid information, opinion, or 2 cents is for him in his stated situation with clusters, only that other's have been ego driven.

That takes some ego without your own input.
Title: Re: Last dance with Mary Jane?
Post by Kevin_M on Feb 14th, 2008, 7:13am

on 02/14/08 at 01:51:54, Crucified wrote:
Maybe, there are a few members on this board that are a little too critical of others.


You mean like this one?


on 02/08/08 at 00:01:15, rolo65 wrote:
I guess you don't read very well do you!
Title: Re: Last dance with Mary Jane?
Post by Ray on Feb 14th, 2008, 8:26am
Dear Clustervillians:

I am seldom preachy, or at least try...

When someone is in pain or in distress, they often don't choose their words in the most politically correct and polite way.  As a Christian, and as a person, I feel that it is time to forgive and forget any perceived slights, real or imagined, and welcome our brother back into our midst.

The tendency to hang on to "offence" causes only bitterness and division; I'd prefer to heal and move on.

I'm climbing off of my soapbox now, but try to think about it and move on.

With best wishes,

Ray
Title: Re: Last dance with Mary Jane?
Post by vietvet2tours on Feb 14th, 2008, 10:32am
    Where the heck is this thread going?

                  Potter
Title: Re: Last dance with Mary Jane?
Post by Melissa on Feb 14th, 2008, 10:35am

on 02/14/08 at 10:32:12, vietvet2tours wrote:
    Where the heck is this thread going?

                  Potter

Hopefully nowhere.  I think it's time to move on!

(sorry I have now contributed to it still going :-[)
Title: Re: Last dance with Mary Jane?
Post by Crucified on Feb 14th, 2008, 2:37pm
Hey Mister over quote, you wanted my 2 cents so feel free to quote this. [smiley=bow.gif]

If your butt was as big as your stroked out ego, you would need a silo to crap in!

PS; sorry if I ofended you Sir quotes a lot.
Title: Re: Last dance with Mary Jane?
Post by brewcrew on Feb 14th, 2008, 2:45pm

on 02/14/08 at 14:37:28, Crucified wrote:
Hey Mister over quote, you wanted my 2 cents so feel free to quote this. [smiley=bow.gif]

If you butt was as big as your stroked out ego, you would need a silo to crap in!

So much for forgiving and forgetting.
Title: Re: Last dance with Mary Jane?
Post by Annette on Feb 14th, 2008, 3:06pm

on 02/14/08 at 14:37:28, Crucified wrote:
Hey Mister over quote, you wanted my 2 cents so feel free to quote this. [smiley=bow.gif]

If you butt was as big as your stroked out ego, you would need a silo to crap in!



Instead of coming back and making peace by apologizing to Linda for telling her that she couldnt read well, this person came back with a whole lot of "maybe"s and a complaint that he was "crucified".

I read the whole thread, the only thing people were asking for was for him to clarify his posts and to apologise to a real lady, which he has refused to do.

Its strange that someone who would be prepared to pull a complete stranger out of a wrecked car in the middle of a highway  found it so hard to apologise for something rude which he did say to a member of a board whose support he was apparently seeking !

Instead he immediately verbally bashed the next person who questioned once more, in a very rude way.

In pain or not in pain, that was deliberate.

Sounds like a troll to me ...
Title: Re: Last dance with Mary Jane?
Post by Crucified on Feb 14th, 2008, 3:27pm
I’m sorry Brew, but I find the journey to the forgiveness store difficult when the sharks have disemboweled me and taken my arms and legs.

That was all I had to get out of my system, besides he asked for my two cents and he got it.

I don’t see anyone beating the drum to get apologies for what was said to me on the board.

I’m man enough to admit to my mistakes and I expect the same in return. I never join in on the feeding frenzies except when it’s a troll in need.

It’s all out of my system now and I hope that is good enough. I PM’ed Linda and worked things out with her. So please forgive me because it is over as far as I’m concerned.
Title: Re: Last dance with Mary Jane?
Post by nani on Feb 14th, 2008, 3:43pm

on 02/14/08 at 15:06:07, Annette wrote:
Sounds like a troll to me ...



[smiley=spit.gif]    Now that's funny.

Fer chrissake people...

Roland is a good guy, who's original post was misunderstood.
Any apologies that need to happen can happen in private. This board doesn't need apology police.

Linda is a woman of character and compassion, with a heart of gold.

This doesn't need to go any further than here. Shall we get over ourselves now?
Title: Re: Last dance with Mary Jane?
Post by brewcrew on Feb 14th, 2008, 5:57pm

on 02/14/08 at 15:27:03, Crucified wrote:
I’m sorry Brew, but I find the journey to the forgiveness store difficult when the sharks have disemboweled me and taken my arms and legs.

Look, I wasn't asking for your forgiveness, nor do I feel like I owe you any of mine. Anybody has a problem, I think they should take it to private message.

You might well be the good guy several here are saying. I don't know you, so I'll reserve judgement. I'll treat you like any other person I don't know - with respect and dignity.

As to lamenting the loss of your ability to get high, personally I think it's a waste of time and money. Even worse, it causes one to withdraw instead of embracing life with all its ups and downs. If it helps your CH, you'd be the first one I heard of for whom it does.

I think we can all get past this. Do stick around.


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