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        Cluster Headache Help and Support >> Cluster Headache Specific >> pigeonhole
        
(Message started by: wanna_swap_brains on Feb 2^nd, 2008, 3:40pm)

Title: pigeonhole
Post by wanna_swap_brains on Feb 2^nd, 2008, 3:40pm

hi,i have only been having these things for 2 and half months,its roughly every 2 weeks for 4 days at a time,but for the last month i have had loads of headaches every day plus the really bad uns behind the eye for 4 days.what is this called so i can try and educate my doctor a little on monday?? thanks (english doctors aint got a clue about this condition)

Title: Re: pigeonhole
Post by Jonny on Feb 2^nd, 2008, 3:50pm

on 02/02/08 at 15:40:20, wanna_swap_brains wrote:

what is this called so i can try and educate my doctor a little on monday?? thanks (english doctors aint got a clue about this condition)

If your looking for us to diagnose you, you are crazy....we are not doctors!

Just tell your doc the symptoms and ask him if he thinks it may be cluster headches.

Good luck!

Title: Re: pigeonhole
Post by Patrick_A on Feb 2^nd, 2008, 10:44pm

Wow! I never heard an Englishman or any foreigner for that matter use the word "Aint".

Patrick_A :-/

Title: Re: pigeonhole
Post by wanna_swap_brains on Feb 3^rd, 2008, 3:59am

look mate,i "aint" after a diagnosis off you or anyone else.i knew nothing about this bs until a couple of weeks ago and you people can help try and understand things a bit better,thanks again, englishman

Title: Re: pigeonhole
Post by Kevin_M on Feb 3^rd, 2008, 7:20am

Quote:

hi,i have only been having these things for 2 and half months,

The best information to bring to your doctor is a good description of what is happening, pain level, how often, how long, in other words a headache diary.

http://www.ouch-us.org/downloads/headache_diary.pdf

Title: Re: pigeonhole
Post by Bob_Johnson on Feb 3^rd, 2008, 8:23am

Clearly, the first and best choice would be to ask your doc for a referral to a headache specialist. These conditions are just too complex for one person to learn about as quickly as your needs require.

If that is simply not possible, I can send you two medical articles which you could print out and give to your doc. (They are in PDF format, so you need a reader, plus printer.)

If you want them, send me your e-mail address to my e-mail (don't post here). Run your cursor over the wee icons below my name to the left and you will get my address.

Title: Re: pigeonhole
Post by maryo on Feb 3^rd, 2008, 9:38am

Hi Pigeonhole,

I totally agree with Bob. When anyone goes in to see a medical provider, it's usually because they're in pain, and patients don't always have the presence of mind in the office to report everything. The thoroughness of the doc is another crap shoot. Doctors see a gazillion patients every year complaining of (1) cold symptoms and (2) headaches and after a while they can get a little hardened or casual. At least that's been my experience. The Headache Diary solves this. Try to fill it out to the best of your memory to take with you, but also fill it out every day for a while. It can take several medical visits to sort things out (for me it took decades!).

And, yeah, some of us can be a little testy. This curse can do that to you.

Good luck tomorrow.

Title: Re: pigeonhole
Post by wanna_swap_brains on Feb 3^rd, 2008, 1:15pm

thanks for your replies,i got a date for an mri in 3 weeks but still waiting for a neuro date,do you have to have the mri first???all info appreciated

Title: Re: pigeonhole
Post by brewcrew on Feb 3^rd, 2008, 1:24pm

If your neuro is worth his or her salt, THEY should be the one who orders the MRI. To rule out anything more nefarious.

Title: Re: pigeonhole
Post by maryo on Feb 4^th, 2008, 8:14pm

I don't know how it works on the other side of the pond, but over here, a family practitioner can and will, based on certain criteria, order an MRI. That's good practice because then the neuro will have a little more to go on in starting your care. You're working on that headache diary, right?

Here, getting an appointment usually requires a referral, and sometimes there's a lag of a week or two before you hear back. These kinds of delays are excruciating for us in Clusterville. I have found that I have to phone the appropriate person and convey the urgency of the matter. One particular time I reported that I was "despondent" and that seemed to move mountains. Anything that smacks of a trend toward suicidal makes everyone jump. In the U.S., if someone commits suicide, there is a pretty thorough inquiry into whether there were red flags and whether those red flags were heeded. I'm not saying to falsify information. But tell them like it is. Post again to let us know how you're making out.

And by the way, if you say "ain't," I hope the heck you also say "y'all."

Title: Re: pigeonhole
Post by wanna_swap_brains on Feb 5^th, 2008, 3:52pm

hi,thanks for positive feedback maryo and thanks for the books bob very good reading.once again thanks "y,all"