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        Cluster Headache Help and Support >> Cluster Headache Specific >> A Headache Story - Part 4
        
(Message started by: Ace_Sterling on Jan 25th, 2008, 11:26am)
Title: A Headache Story - Part 4
Post by Ace_Sterling on Jan 25th, 2008, 11:26am
In retrospect, people with cluster headaches should be warned on the dangers of repeated use of steroids. Prenisone, Solumedrol, Dexamethasone, etc. will all make you feel better for 2 to 3 days but you are running the risk of the prednisone directly acting with what is causing your headaches.... your immune system and the presence of inflamation.

Prednisone is almost diagnostic in that it first reduces inflammation. I have been told that Prednisone does too much to your system to be diagnostic. Well if you do your research and realize how prednisone works with the first dose or two. It reduces inflamation and shuts down your HPA Axis.

Then it affects both serotonin and dopamine but the effects of this doesn't happen for at least a few days. Just like any of the SSRIs take at least a few days to build up in your system before they are effective.

_____________________________
The rest and end of the story.......

So its mid 2002. I tried Prednisone one more try and almost had a repeat of what I just described.

I tried to return to work but the morning headaches returned. I attempted to go to work 3 times that year with limited success.

Fast forward to 2005. I had figured out how to get on Prednisone without the serious reaction. I was on 400mg Ultram, 6mg Adivan, 30mg Prednisone. I was hoping that Prednisone might fix some of the tissue damage I sustained from the attack of 2001.

I worked all year in 2005. FINALLY, I felt a little bit normal. I had great colleagues and the project I was leading was challenging...it gave me something to do besides suffering. Then it happened...

Before I tell you what happened in 2005 let me back up bit an note a few things.

I basically had problems with steroids from the start. I initially had problems just tapering off of it. Then I had problems getting back on it. It was screwing with me both ways. (getting on it and iff if it)

The first taper, I jumped from 30mg to 20mg. I felt fine for the first 24 hours. I was in a bar drinking, smoking, throwing darts...and all of a sudden my tongue swelled up and filled the whole inside of my mouth. If I tried to open my mouth my tongue would start to slide back toward my airway. My girlfriend is freakin out and 60 seconds later I shrunk to normal size and I was fine.

Later that night, after I went home. I tried to go to bed and all of a sudden my head started ringing and it felt like either someone was pinching the base of my skull with channel locks or their was an increase of fluid in my head. That's what I felt like and off to the ER I go.

At the ER my white cout was raised and it was dismissed as an effect of prednisone. I was given Toradol and Prednisone w/o my knowledge and I almost had anaphylaxis. The stupid doctor just focussed on my anxiety and Dx'd me with anxiety attacks.

This feeling of my skull being squeezed would not return until mid 2005. I was on 30mg of Prednisone then and I was uncomfortable taking this daily dose. It was screwing with my blood sugar, affecting my sleep patterns, etc.

So I tried to go every other day. Three days into that, my squeezing episode return. All I was doing at the time was smoking a cig, drinking coffee, and surfing the net.

So what happened?

One of the major medical discoveries certainly of my life and maybe others. I had a "reverse allergy"

I was allergic to the cigarettes and the Ultram. The Ultram was a type 1 immune response and cigarettes initiated a type 3 immune response. More importantly, there were no blood markers. I went to the ER just to get bloodwork.

What happened to me in general is the prednisone raised my body's allergic response by several orders of magnitude. I was allergic to Ultram. I was allergic to cogarettes. I was allergic to alcohol. I jusr couldn't tell until Prednisone created this immune rebound effect.

Remember, per emedicine and a lot of authorities, The only commonality for cluster sufferers is the use alcohol and tobacco. It was these substances that were causing my headaches and it was my immune system that was the primary system irritating the nerves in my head.

I can say with 100% confidence that if I had never had a drink, never smoked a cigarette, never took a pill, I wouldn't have these headaches.

I say there is a blood marker for this condition but as of yet I haven;t found it other than a raised white count (not from steroids).

Yes, I am saying my cluster headaches are caused not exactly by the cigarettes or alcohol but by the immune response  to these substances.

to finish this story, in Jan 2006 I was admitted to the hospital and pulled off all medication...and I couldn't smoke. I had a severe headache from the withdrawal but then I was fine. I was put on Zyprexa because Prednisone made me schizophrenic. I highly recommend Zyprexa to anyone as it lowers the "ringing phenomenon" to almost 0 and I didn't have a headache in all of 2006...and I restarted smoking.

Since then I have applied for disability and was approved. I sit at home, alone and forgotten about. The mental side of my disease prevents me from working (thanks to Prednisone)  

I had another shoulder surgery in 2007 in Jan. It made me seek and lots of headaches. 3 months later I had to go in and have gallbladder surgery. Does any of this ring a bell. The first shoulder surgery was in January and 3 months later I was in the hospital for something.

It's now 2008
Noone called me on Christmas even though I called 5 people and left voicemails wishing them Happy X-mas. It takes five minutes. Not even my family called. Couple that depression with the depression from having this disease and I was ready ro commit suicide. Probably the closest I ever come. I have pulled out of it for the most part and after reading everyone's post I am going to yield some information and clear up some misunderstandings.
____________________________________________

Cluster migraines are potentiated by alcohol, cigarettes, and opiates. The Alcohol is special in that there is an innate allergy (immune response) to it and it also raises IgG and IgE sensitivitiy to other substances.

In lamens terms, I lowers your threshold to tolerate external stimuli (allergens like cigarettes)

For the smokers, it takes a few years for the immune system to make your Occipital nerve and the tissue around it sclerotic and fibrotic. Well we can say if we stop these behaviors the headaches will go away. The people that don't smoke would have issue with this stance. What about them, they don't smoke and they get headaches.

The answer to that is I don't know. It may be as simple as you (non-smokers) have other allergies that can potentiate the headache. Or there may be a sub-type of cluster sufferers that have a whole different set of triggers and pathology.

I do know one thing. Once the immune system is setup to inflame these nerves and the nerves have had a little slcerosis or other damage to them all you can do at this point is stay away from the triggers and attemp prophylaxis. Physically, the headache system has already been setup and nothing short of replacing your immune system via stem cells and cutting out the occipital and trigeminal nerves...take the drugs. You can't unring a bell.

I am mostly talking to those who are reactive to Alcohol or Smokers. (Just because I know for a fact what I am talking about with these folks)

So here it goes,

___________________________________________


We have the most painful headache/disorder and the word needs to be spread.

There had been talk about some nitroglycerin and headaches...Researchers use nitroglycerin  to initiate headaches to test the efficacy of their drugs. Headaches and nitro go hand in hand. There is one condition and for the life of me I can't remeber it but the treatment was placing a nitro patch on the anus.

Why the anus? Apparently the anal pathway is almost immediate for entering somthing into the blood steam.

Why is the headache always (or usually) in the morning?
 In a word - Blood Pressure. As you wake your blood pressure goes up ciculating thicker (dehydrated) blood throughout the body and the occippital and trigrminsl nerve. The blood hits the nerve where it is either damaged (like mine) or sensitized nerves (like others with trigeminal symptoms).

How do you stop cycling?
That is one thing I have not been able to figure out. I know itls a metabolic trigger but I don't know wht it is.

Stopping within cycle-
It will be different for every person. It will be the same for every person. I am only familiar with tha Alcohol and cigarette cluster headaches per emedicine.com. You stop it by quitting drinking the smoking. Getting a few cervical injections. And go easy (but don't quit) the coffee.

I probably know more I just can't think of anything right now.

____________________
SIDENOTE:

One interesting fact is that in my battle to stop cluster headaches and my orher problems I became allergic to a lot of drugs. My mother, who has been called one of  the worst schizophrenics around, also had the same allergies and deveoped some of them at the same age as me. She does not have headaches.

For some reason unknown to me I loooked up the first ailment I ever had which was an ear infection.I had a severe reaction to the sulfa in the medicine given to me. It's called Stevens-Johnson-Syndrome So I looked that up on emedicine.com. The going theory was that there was a defect in the CYP-450 system which is the system of enzymes that metabolize the drugs we take.


EVERY drug that made my mother psychotic and made my headaches worse or more frequent matched one for one and fell under one enzyme: 2D6.

I also noted that when I was really sick if I ate a high protein dinner I felt like a million bucks the next day.

Ergo: The enzymes in the liver depend on the protein in our diet.

__________________________

So that's it. That's my story. I would love to hear from anyone that has had a similar experiences.
Title: Re: A Headache Story - Part 4
Post by George_J on Jan 25th, 2008, 11:29am

on 01/25/08 at 11:26:35, Ace_Sterling wrote:
In retrospect, people with cluster headaches should be warned on the dangers of repeated use of steroids. Prenisone, Solumedrol, Dexamethasone, etc. will all make you feel better for 2 to 3 days but you are running the risk of the prednisone directly acting with what is causing your headaches.... your immune system and the presence of inflamation.

Prednisone is almost diagnostic in that it first reduces inflammation. I have been told that Prednisone does too much to your system to be diagnostic. Well if you do your research and realize how prednisone works with the first dose or two. It reduces inflamation and shuts down your HPA Axis.

Then it affects both serotonin and dopamine but the effects of this doesn't happen for at least a few days. Just like any of the SSRIs take at least a few days to build up in your system before they are effective.

_____________________________
The rest and end of the story.......

So its mid 2002. I tried Prednisone one more try and almost had a repeat of what I just described.

I tried to return to work but the morning headaches returned. I attempted to go to work 3 times that year with limited success.

Fast forward to 2005. I had figured out how to get on Prednisone without the serious reaction. I was on 400mg Ultram, 6mg Adivan, 30mg Prednisone. I was hoping that Prednisone might fix some of the tissue damage I sustained from the attack of 2001.

I worked all year in 2005. FINALLY, I felt a little bit normal. I had great colleagues and the project I was leading was challenging...it gave me something to do besides suffering. Then it happened...

Before I tell you what happened in 2005 let me back up bit an note a few things.

I basically had problems with steroids from the start. I initially had problems just tapering off of it. Then I had problems getting back on it. It was screwing with me both ways. (getting on it and iff if it)

The first taper, I jumped from 30mg to 20mg. I felt fine for the first 24 hours. I was in a bar drinking, smoking, throwing darts...and all of a sudden my tongue swelled up and filled the whole inside of my mouth. If I tried to open my mouth my tongue would start to slide back toward my airway. My girlfriend is freakin out and 60 seconds later I shrunk to normal size and I was fine.

Later that night, after I went home. I tried to go to bed and all of a sudden my head started ringing and it felt like either someone was pinching the base of my skull with channel locks or their was an increase of fluid in my head. That's what I felt like and off to the ER I go.

At the ER my white cout was raised and it was dismissed as an effect of prednisone. I was given Toradol and Prednisone w/o my knowledge and I almost had anaphylaxis. The stupid doctor just focussed on my anxiety and Dx'd me with anxiety attacks.

This feeling of my skull being squeezed would not return until mid 2005. I was on 30mg of Prednisone then and I was uncomfortable taking this daily dose. It was screwing with my blood sugar, affecting my sleep patterns, etc.

So I tried to go every other day. Three days into that, my squeezing episode return. All I was doing at the time was smoking a cig, drinking coffee, and surfing the net.

So what happened?

One of the major medical discoveries certainly of my life and maybe others. I had a "reverse allergy"

I was allergic to the cigarettes and the Ultram. The Ultram was a type 1 immune response and cigarettes initiated a type 3 immune response. More importantly, there were no blood markers. I went to the ER just to get bloodwork.

What happened to me in general is the prednisone raised my body's allergic response by several orders of magnitude. I was allergic to Ultram. I was allergic to cogarettes. I was allergic to alcohol. I jusr couldn't tell until Prednisone created this immune rebound effect.

Remember, per emedicine and a lot of authorities, The only commonality for cluster sufferers is the use alcohol and tobacco. It was these substances that were causing my headaches and it was my immune system that was the primary system irritating the nerves in my head.

I can say with 100% confidence that if I had never had a drink, never smoked a cigarette, never took a pill, I wouldn't have these headaches.

I say there is a blood marker for this condition but as of yet I haven;t found it other than a raised white count (not from steroids).

Yes, I am saying my cluster headaches are caused not exactly by the cigarettes or alcohol but by the immune response  to these substances.

to finish this story, in Jan 2006 I was admitted to the hospital and pulled off all medication...and I couldn't smoke. I had a severe headache from the withdrawal but then I was fine. I was put on Zyprexa because Prednisone made me schizophrenic. I highly recommend Zyprexa to anyone as it lowers the "ringing phenomenon" to almost 0 and I didn't have a headache in all of 2006...and I restarted smoking.

Since then I have applied for disability and was approved. I sit at home, alone and forgotten about. The mental side of my disease prevents me from working (thanks to Prednisone)  

I had another shoulder surgery in 2007 in Jan. It made me seek and lots of headaches. 3 months later I had to go in and have gallbladder surgery. Does any of this ring a bell. The first shoulder surgery was in January and 3 months later I was in the hospital for something.

It's now 2008
Noone called me on Christmas even though I called 5 people and left voicemails wishing them Happy X-mas. It takes five minutes. Not even my family called. Couple that depression with the depression from having this disease and I was ready ro commit suicide. Probably the closest I ever come. I have pulled out of it for the most part and after reading everyone's post I am going to yield some information and clear up some misunderstandings.
____________________________________________

Cluster migraines are potentiated by alcohol, cigarettes, and opiates. The Alcohol is special in that there is an innate allergy (immune response) to it and it also raises IgG and IgE sensitivitiy to other substances.

In lamens terms, I lowers your threshold to tolerate external stimuli (allergens like cigarettes)

For the smokers, it takes a few years for the immune system to make your Occipital nerve and the tissue around it sclerotic and fibrotic. Well we can say if we stop these behaviors the headaches will go away. The people that don't smoke would have issue with this stance. What about them, they don't smoke and they get headaches.

The answer to that is I don't know. It may be as simple as you (non-smokers) have other allergies that can potentiate the headache. Or there may be a sub-type of cluster sufferers that have a whole different set of triggers and pathology.

I do know one thing. Once the immune system is setup to inflame these nerves and the nerves have had a little slcerosis or other damage to them all you can do at this point is stay away from the triggers and attemp prophylaxis. Physically, the headache system has already been setup and nothing short of replacing your immune system via stem cells and cutting out the occipital and trigeminal nerves...take the drugs. You can't unring a bell.

I am mostly talking to those who are reactive to Alcohol or Smokers. (Just because I know for a fact what I am talking about with these folks)

So here it goes,

___________________________________________


We have the most painful headache/disorder and the word needs to be spread.

There had been talk about some nitroglycerin and headaches...Researchers use nitroglycerin  to initiate headaches to test the efficacy of their drugs. Headaches and nitro go hand in hand. There is one condition and for the life of me I can't remeber it but the treatment was placing a nitro patch on the anus.

Why the anus? Apparently the anal pathway is almost immediate for entering somthing into the blood steam.

Why is the headache always (or usually) in the morning?
 In a word - Blood Pressure. As you wake your blood pressure goes up ciculating thicker (dehydrated) blood throughout the body and the occippital and trigrminsl nerve. The blood hits the nerve where it is either damaged (like mine) or sensitized nerves (like others with trigeminal symptoms).

How do you stop cycling?
That is one thing I have not been able to figure out. I know itls a metabolic trigger but I don't know wht it is.

Stopping within cycle-
It will be different for every person. It will be the same for every person. I am only familiar with tha Alcohol and cigarette cluster headaches per emedicine.com. You stop it by quitting drinking the smoking. Getting a few cervical injections. And go easy (but don't quit) the coffee.

I probably know more I just can't think of anything right now.

____________________
SIDENOTE:

One interesting fact is that in my battle to stop cluster headaches and my orher problems I became allergic to a lot of drugs. My mother, who has been called one of  the worst schizophrenics around, also had the same allergies and deveoped some of them at the same age as me. She does not have headaches.

For some reason unknown to me I loooked up the first ailment I ever had which was an ear infection.I had a severe reaction to the sulfa in the medicine given to me. It's called Stevens-Johnson-Syndrome So I looked that up on emedicine.com. The going theory was that there was a defect in the CYP-450 system which is the system of enzymes that metabolize the drugs we take.


EVERY drug that made my mother psychotic and made my headaches worse or more frequent matched one for one and fell under one enzyme: 2D6.

I also noted that when I was really sick if I ate a high protein dinner I felt like a million bucks the next day.

Ergo: The enzymes in the liver depend on the protein in our diet.

__________________________

So that's it. That's my story. I would love to hear from anyone that has had a similar experiences.
Title: Re: A Headache Story - Part 4
Post by chewy on Jan 25th, 2008, 11:29am

Quote:
Later that night, after I went home. I tried to go to bed and all of a sudden my head started ringing


So answer it. Heres a dime in case you need to call it back.
Title: Re: A Headache Story - Part 4
Post by Ghost on Jan 25th, 2008, 11:29am
Thats my story this time and I am sticking to it! 8)

Mike
Title: Re: A Headache Story - Part 4
Post by brewcrew on Jan 25th, 2008, 11:30am
Deej - This is out of control. Please lend a hand where you can.
Title: Re: A Headache Story - Part 4
Post by hotprestwich on Jan 25th, 2008, 11:31am
i dont think anyone has had the same experience you have had
heres some polite advise and listen carefully

fuck off this web-site
your full of shit,

i dont think your helping anyone
Title: Re: A Headache Story - Part 4
Post by Ghost on Jan 25th, 2008, 11:34am
but you got to admit he does tell a mean tale and gobbles up lots of bandwidth.

Mike
Title: Re: A Headache Story - Part 4
Post by starlight on Jan 25th, 2008, 11:38am
Ace Sterling:

All your information sucks so bad.
Title: Re: A Headache Story - Part 4
Post by LeLimey on Jan 25th, 2008, 11:39am
All I can say is CH-CH-CH-CH-CH-CH-CH-CHARMIN  ::)
Title: Re: A Headache Story - Part 4
Post by LeLimey on Jan 25th, 2008, 11:39am
Oh and are you taking anything for carpal tunnel syndrone or writers block??
Title: Re: A Headache Story - Part 4
Post by starlight on Jan 25th, 2008, 11:41am
Your last paragraph where you claim to explain your headaches and your mother's schizophrenia by liver enzymes and then claim eating protein makes it better bites.
Title: Re: A Headache Story - Part 4
Post by Dape on Jan 25th, 2008, 11:44am

on 01/25/08 at 11:26:35, Ace_Sterling wrote:
I can say with 100% confidence that if I had never had a drink, never smoked a cigarette, never took a pill, I wouldn't have these headaches.


And I can say with 100% confidence that if you had never had a drink, never smoked a cigarette and never took a pill you would still be a total pillock with delusions of grandeur


on 01/25/08 at 11:26:35, Ace_Sterling wrote:
So that's it. That's my story. I would love to hear from anyone that has had a similar experiences.


That's gonna be a bit hard as this is a site for a condition called Cluster headaches not CyberCHondriacs r Us
Title: Re: A Headache Story - Part 4
Post by vietvet2tours on Jan 25th, 2008, 11:44am

on 01/25/08 at 11:29:08, chewy wrote:
So answer it. Heres a dime in case you need to call it back.


That's some kinda funny.

      Potter
Title: Re: A Headache Story - Part 4
Post by Ghost on Jan 25th, 2008, 11:44am
I got some extra protein he can eat! ooops did I say that out loud?

Mike
Title: Re: A Headache Story - Part 4
Post by George_J on Jan 25th, 2008, 11:47am

on 01/25/08 at 11:30:47, brewcrew wrote:
Deej - This is out of control. Please lend a hand where you can.


Boy, howdy.   ::)

This needs the coup de grace.

Best,

George
Title: Re: A Headache Story - Part 4
Post by sandie99 on Jan 25th, 2008, 11:48am
Just wondering... was it absolutely necessary to write such a long tale to us?  [smiley=huh.gif]

Never smoked, never drank that much alcohol (one glass per year would have been my record in 2001, before ch when I gave it up) and I don't have allergies. Still, I've got ch.

Sanna
Title: Re: A Headache Story - Part 4
Post by monty on Jan 25th, 2008, 11:50am

on 01/25/08 at 11:26:35, Ace_Sterling wrote:
So that's it. That's my story.



Olanzapine and/or lithium are what you need - the olanzapine is an atypical antipsychotic. The lithium controls mania.  They both are pretty good for cluster headaches.  Print out everything you have written here, and take it to your doctor. Godspeed.
Title: Re: A Headache Story - Part 4
Post by brewcrew on Jan 25th, 2008, 11:51am
Wow. Four whole parts. One more than The Godfather.

I think I'll wait for the movie.
Title: Re: A Headache Story - Part 4
Post by hotprestwich on Jan 25th, 2008, 11:53am
when hes full of shit, theres no point answering him as thats what this weirdos buzz is,
when headache strory part 5 comes on thread,
no one should reply,
dosnt matter how many user names hes got we all know he stinks,
p.s what a troll, sorry for being ignorant
Title: Re: A Headache Story - Part 4
Post by Jimi on Jan 25th, 2008, 11:58am
This thread is worthless without pics.
Title: Re: A Headache Story - Part 4
Post by George_J on Jan 25th, 2008, 12:02pm

on 01/25/08 at 11:58:50, Jimi wrote:
This thread is worthless without pics.


Now THAT'S funny.   [smiley=laugh.gif]
Title: Re: A Headache Story - Part 4
Post by PollyPocket on Jan 25th, 2008, 12:05pm

on 01/25/08 at 11:58:50, Jimi wrote:
This thread is worthless without pics.


http://i105.photobucket.com/albums/m211/darryljen/poo.jpg

what his story is worth
Title: Re: A Headache Story - Part 4
Post by LeLimey on Jan 25th, 2008, 12:16pm

on 01/25/08 at 11:58:50, Jimi wrote:
This thread is worthless without pics.


http://i135.photobucket.com/albums/q154/fedupofthinking/100_0992.jpg
Title: Re: A Headache Story - Part 4
Post by sandie99 on Jan 25th, 2008, 12:28pm
Helen, is that your toilet...?  ;;D
Title: Re: A Headache Story - Part 4
Post by LeLimey on Jan 25th, 2008, 12:31pm
Sanna really! As if I'd have a horrible trick like that in my house to surprise unsuspecting visitors.... sheesh!  ;)
Title: Re: A Headache Story - Part 4
Post by chewy on Jan 25th, 2008, 12:32pm
http://img.photobucket.com/albums/v388/bgull2/ace.jpg?t=1201282282
Title: Re: A Headache Story - Part 4
Post by sandie99 on Jan 25th, 2008, 12:43pm

on 01/25/08 at 12:31:10, LeLimey wrote:
Sanna really! As if I'd have a horrible trick like that in my house to surprise unsuspecting visitors.... sheesh!  ;)

;) Just as I thought. ;;D

BTW, did you ever get little something from us via mail? Timo has lost his confidence in Finland's post already...

Sanna
Title: Re: A Headache Story - Part 4
Post by Melissa on Jan 25th, 2008, 1:10pm
It's times like these I wish there was a "Report" button for posts. [smiley=nono.gif]
Title: Re: A Headache Story - Part 4
Post by brewcrew on Jan 25th, 2008, 1:22pm

on 01/25/08 at 13:10:42, Melissa wrote:
It's times like these I wish there was a "Report" button for posts. [smiley=nono.gif]

admin@clusterheadaches.com
Title: Re: A Headache Story - Part 4
Post by Melissa on Jan 25th, 2008, 1:26pm

on 01/25/08 at 13:22:15, brewcrew wrote:
admin@clusterheadaches.com

Bill, I know about the email addy.  It is just easier having a button to click on their posts like there are on other forums I've seen.

I'm sure DJ has known about this yahoo since they appeared here yesterday anyways.
Title: Re: A Headache Story - Part 4
Post by Paul98 on Jan 25th, 2008, 1:31pm

on 01/25/08 at 12:31:10, LeLimey wrote:
Sanna really! As if I'd have a horrible trick like that in my house to surprise unsuspecting visitors.... sheesh!  ;)


Helen used that trick on me to try and make me a eunuch.

-P.
Title: Re: A Headache Story - Part 4
Post by Annette on Jan 25th, 2008, 3:00pm

What we are reading is schizophrenic flights of ideas, loose association, triggered paranoia, delusional thinking and dissociation from reality.

I am not sure whether this poor person has CH or not, but his schizophrenia is most definitely not well controlled.

I dont think we can help him here. Responding to him in a hostile way will trigger more paranoia and flights of ideas and I dont think its kind to mock people who are mentally ill.  But responding in a gentle way will reinforce delusional thinking. Maybe its best to just ignore him.

Ace ,

Please go see your psychiatrist, get your schizophrenia controlled first, that will help your head.
Title: Re: A Headache Story - Part 4
Post by vietvet2tours on Jan 25th, 2008, 3:24pm

on 01/25/08 at 15:00:43, Annette wrote:
What we are reading is schizophrenic flights of ideas, loose association, triggered paranoia, delusional thinking and dissociation from reality.

I am not sure whether this poor person has CH or not, but his schizophrenia is most definitely not well controlled.

I dont think we can help him here. Responding to him in a hostile way will trigger more paranoia and flights of ideas and I dont think its kind to mock people who are mentally ill.  But responding in a gentle way will reinforce delusional thinking. Maybe its best to just ignore him.

Ace ,

Please go see your psychiatrist, get your schizophrenia controlled first, that will help your head.


   There were some other folks that liked to play let's pretend that used to hang here but they made their own site.  S'pose we could send him over there to a kinder gentler space.

        Potter

 fixed it
Title: Re: A Headache Story - Part 4
Post by Redd on Jan 25th, 2008, 3:29pm

on 01/25/08 at 15:24:39, vietvet2tours wrote:
   There were some other loons that used to hang here but they made their own site.  S'pose we could send him over there to a kinder gentler space.

        Potter


And lose my comedy relief for the week?  

Oh I suppose if we MUST.... [smiley=laugh.gif]
Title: Re: A Headache Story - Part 4
Post by Annette on Jan 25th, 2008, 3:30pm

on 01/25/08 at 15:24:39, vietvet2tours wrote:
   There were some other loons that used to hang here but they made their own site.  S'pose we could send him over there to a kinder gentler space.

        Potter



Who are "some other loons" and what other site is that Potter ?
Title: Re: A Headache Story - Part 4
Post by vietvet2tours on Jan 25th, 2008, 3:42pm
http://chronicclusterheadaches.myfreeforum.org/index.php

He'll fit right in.

     potter
Title: Re: A Headache Story - Part 4
Post by Annette on Jan 25th, 2008, 3:49pm
Dont know if you know, but the Admin for that site is our very own Ike, he is well loved by many here. Other Chers there are people who are long time members here such as Shedz and Phil. They are all your CHer fellows. To call them loons is most disrespectful on your part Potter.

You seem to enjoy tormenting a mentally ill person who may or may not have CH, that says a lot about your character.

You complained when others didnt show understanding and support for CHers, but do you show people afflicted with other chronic medical conditions any?
Title: Re: A Headache Story - Part 4
Post by brewcrew on Jan 25th, 2008, 3:54pm
Some Jack comes on here (mentally ill or not, doesn't matter) and ends up pitting the two of you against each other - bingo, he wins.

Knock it off. Take it to PM if you must.
Title: Re: A Headache Story - Part 4
Post by Annette on Jan 25th, 2008, 3:58pm

I would if I could Bill.

Potter had never responded to any of my PMs in the past.
Title: Re: A Headache Story - Part 4
Post by brewcrew on Jan 25th, 2008, 4:00pm
Look, I'm not here to play moderator. If you can't take it to PM, then just stop. Simple as that.
Title: Re: A Headache Story - Part 4
Post by Paul98 on Jan 25th, 2008, 4:10pm

on 01/25/08 at 15:54:27, brewcrew wrote:
Some Jack comes on here (mentally ill or not, doesn't matter) and ends up pitting the two of you against each other - bingo, he wins.

Knock it off. Take it to PM if you must.


I agree!

-P.
Title: Re: A Headache Story - Part 4
Post by vietvet2tours on Jan 25th, 2008, 4:25pm

on 01/25/08 at 15:58:20, Annette wrote:
I would if I could Bill.

Potter had never responded to any of my PMs in the past.


   Since ya never pm'd me in the past it would be hard to respond.

                      Potter
Title: Re: A Headache Story - Part 4
Post by Bob P on Jan 25th, 2008, 4:29pm
Actually this guy is really performing a service.  He shows up about once a week as a newbie, diferent user name each time, and posts something outrageous.  Stuff like, your headaches are caused by global warming, putting candy corn in your ear stops the attacks, gogi berries grow chest hair.  You know the stuff.  And then - everyone gets to unload on him.  That's the service he provides.  Designated dumping ground.

Thanks dude.
Title: Re: A Headache Story - Part 4
Post by vietvet2tours on Jan 25th, 2008, 4:33pm

on 01/25/08 at 16:29:02, Bob P wrote:
Actually this guy is really performing a service.  He shows up about once a week as a newbie, diferent user name each time, and posts something outrageous.  Stuff like, your headaches are caused by global warming, putting candy corn in your ear stops the attacks, gogi berries grow chest hair.  You know the stuff.  And then - everyone gets to unload on him.  That's the service he provides.  Designated dumping ground.

Thanks dude.


  Yep what he said.

                  Potter
Title: Re: A Headache Story - Part 4
Post by Ghost on Jan 25th, 2008, 5:01pm
You know reading his stuff is kinda like driving past a car wreck you just gotta look for the body and when you finially see it you freak out. If you didnt witness it keep driving. I personally stop to help but that is because I am trained to. but I never push my way in if they dont want help.
What I am trying to say I guess is if this is truely troll activity treat as such if not dont but either way we shouldnt fight about it.
maybe it aint a troll(ya ok) maybe they he she whoever may just be a bit pushy and abrasive. ok dont slide down the jagged slide if you dont want your pants ripped.  just do as YOU feel fit and let the cards land where they may.
Ok im done and dont make me get miss Twitch. ;;D

Mike
Title: Re: A Headache Story - Part 4
Post by chewy on Jan 25th, 2008, 6:13pm

on 01/25/08 at 16:29:02, Bob P wrote:
Actually this guy is really performing a service.  He shows up about once a week as a newbie, diferent user name each time, and posts something outrageous.  Stuff like, your headaches are caused by global warming, putting candy corn in your ear stops the attacks, gogi berries grow chest hair.  You know the stuff.  And then - everyone gets to unload on him.  That's the service he provides.  Designated dumping ground.

Thanks dude.


I kind of enjoy using you for that. This mean I have to stop?
Title: Re: A Headache Story - Part 4
Post by Jonny on Jan 25th, 2008, 6:51pm
http://i.pbase.com/o4/74/283874/1/64830632.s28h57zV.Yawning.gif ZZZZZZZZZZZZZ
Title: Re: A Headache Story - Part 4
Post by Ace_Sterling on Jan 25th, 2008, 10:08pm

on 01/25/08 at 15:00:43, Annette wrote:
What we are reading is schizophrenic flights of ideas, loose association, triggered paranoia, delusional thinking and dissociation from reality.

I am not sure whether this poor person has CH or not, but his schizophrenia is most definitely not well controlled.

I dont think we can help him here. Responding to him in a hostile way will trigger more paranoia and flights of ideas and I dont think its kind to mock people who are mentally ill.  But responding in a gentle way will reinforce delusional thinking. Maybe its best to just ignore him.

Ace ,

Please go see your psychiatrist, get your schizophrenia controlled first, that will help your head.


___________________________________________

She is right.

I am suffering from Schizophrenia. I am having med trouble right now and they will probably continue for the next week or two because my healthcare providers are screwing with my meds.

I recently switched to a new psychiatrist and he wouldn't give my Zyprexa. I told him I was schiz, I told him I needed Zyprexa and Adivan. He didn't think I was schiz so he didn't give me any meds. This went on until just recently. THis psychiatrist doesn't know me. I could be an axe murdered or suicidal. Prescribe first and ask questions later. It's not Percocet it's a psych med.

Anyway, I am schiz, I am also a CH'er 17 years, and I recently found out I have a connective tissue diorder that no one has ever seen. I've also had 2 kindey infections that resulted in sepsis that the Dr.s can't explain and 2 nerve palsies...one of which (my right scapula) is permanent.

That's it for now other than I am not coming here every month as a new person. This is the only person that I am.
Title: Re: A Headache Story - Part 4
Post by Ace_Sterling on Jan 25th, 2008, 10:11pm

on 01/25/08 at 15:00:43, Annette wrote:
What we are reading is schizophrenic flights of ideas, loose association, triggered paranoia, delusional thinking and dissociation from reality.

I am not sure whether this poor person has CH or not, but his schizophrenia is most definitely not well controlled.

I dont think we can help him here. Responding to him in a hostile way will trigger more paranoia and flights of ideas and I dont think its kind to mock people who are mentally ill.  But responding in a gentle way will reinforce delusional thinking. Maybe its best to just ignore him.

Ace ,

Please go see your psychiatrist, get your schizophrenia controlled first, that will help your head.



You could respond to me by telling me about your headaches (i.e how long you have had them, what they are like, what you take for them)...that would help me and give me something to do besides post. I have read everything else on this site.
Title: Re: A Headache Story - Part 4
Post by Jonny on Jan 25th, 2008, 10:15pm
http://i.pbase.com/o4/74/283874/1/64830632.s28h57zV.Yawning.gifZZZZZZZZZZZZZZ
Title: Re: A Headache Story - Part 4
Post by brewcrew on Jan 25th, 2008, 10:15pm
I told one of your other personas, it's spelled Ativan.
Title: Re: A Headache Story - Part 4
Post by Jonny on Jan 25th, 2008, 10:21pm

on 01/25/08 at 22:15:15, brewcrew wrote:
I told one of your other personas, it's spelled Ativan.


BINGO....Brew....this fuck is toast!!!!!
Title: Re: A Headache Story - Part 4
Post by chewy on Jan 25th, 2008, 10:23pm

on 01/25/08 at 22:11:31, Ace_Sterling wrote:
I have read everything else on this site.


Smart thing to do is move along to another site then.
Title: Re: A Headache Story - Part 4
Post by Jonny on Jan 25th, 2008, 10:27pm

on 01/25/08 at 22:23:42, chewy wrote:
Smart thing to do is move along to another site then.


Please do not plead with the wildlife, he will get a boner.  ;)
Title: Re: A Headache Story - Part 4
Post by deltadarlin on Jan 26th, 2008, 3:05pm

on 01/25/08 at 11:26:35, Ace_Sterling wrote:
The first taper, I jumped from 30mg to 20mg. I felt fine for the first 24 hours. I was in a bar drinking, smoking, throwing darts...and all of a sudden my tongue swelled up and filled the whole inside of my mouth. If I tried to open my mouth my tongue would start to slide back toward my airway. My girlfriend is freakin out and 60 seconds later   I shrunk to normal size and I was fine.


Well hell folks, let's give him another dose and perhaps he'll shrink to noting and go *poof* and disappear completely!
Title: Re: A Headache Story - Part 4
Post by purpleydog on Jan 27th, 2008, 1:12am

on 01/25/08 at 15:49:47, Annette wrote:
Dont know if you know, but the Admin for that site is our very own Ike, he is well loved by many here. Other Chers there are people who are long time members here such as Shedz and Phil. They are all your CHer fellows. To call them loons is most disrespectful on your part Potter.

You seem to enjoy tormenting a mentally ill person who may or may not have CH, that says a lot about your character.

You complained when others didnt show understanding and support for CHers, but do you show people afflicted with other chronic medical conditions any?



This is a cluster headaches website, Annette, in case you didn't notice. Maybe if he goes to the other website, you can show him your compassion for mental illness there, and proceed to diagnose all his problems. He has enough to keep even you busy for quite while. Probably have some things in common.

I haven't seen any evidence of CH. Just vague medical complaints that have nothing to do with CH.
Title: Re: A Headache Story - Part 4
Post by Ace_Sterling on Jan 27th, 2008, 9:49am

on 01/27/08 at 01:12:01, purpleydog wrote:
This is a cluster headaches website, Annette, in case you didn't notice. Maybe if he goes to the other website, you can show him your compassion for mental illness there, and proceed to diagnose all his problems. He has enough to keep even you busy for quite while. Probably have some things in common.

I haven't seen any evidence of CH. Just vague medical complaints that have nothing to do with CH.


I have schizophrenia (relativeley new diagnosis), I have Cluster headache that bounce from cronis to episodie, and I have other health issues which no one cares about and either do I anymore.
Title: Re: A Headache Story - Part 4
Post by Kevin_M on Jan 27th, 2008, 9:57am

on 01/27/08 at 09:49:49, Ace_Sterling wrote:
I have Cluster headache that bounce from cronis to episodie,


Another cluster self-diagnosis?  Those damn experts, what do they know.
Title: Re: A Headache Story - Part 4
Post by brewcrew on Jan 27th, 2008, 9:59am

on 01/27/08 at 09:49:49, Ace_Sterling wrote:
...I have other health issues which no one cares about and either do I anymore.

Here we go. Please turn to page 42, section B of your playbook. The section entitled "Playing the Martyr."
Title: Re: A Headache Story - Part 4
Post by starlight on Jan 27th, 2008, 11:32am
Annette,

I don't think this guy is schizophrenic at all.  Most schizophrenics don't readily admit to being schizophrenic.  
The loose association of ideas is him being sarcastic.  If anything he's trying to mock CHers.  But all he's doing is making an ass of himself.
Title: Re: A Headache Story - Part 4
Post by chewy on Jan 27th, 2008, 1:06pm
How dare you question a diagnosis via internet message board?


Quote:
If anything he's trying to mock CHers.


Bingo.
Title: Re: A Headache Story - Part 4
Post by Ace_Sterling on Jan 27th, 2008, 7:15pm
Starlight and Chewey, we've been though so much together [smiley=me&mb.gif]

I am not "self Dxd". What are you supposed to have me do, have my doctor come the website and say John suffer from CH and Schizophrenia. (Really Its schizoaffective disorer, paranoid and disorganized type) I can thank my mother for passin that one down to me.

I don't see how I am "mocking" CH'ers.
I wouldn't mock anybody witha medical condition.
I mostly reserve my mocking for small dogs and fair-ride workers.:)...and retarded people that don't know they're retarded.

As for this site...I see a LOT of suffering but not much action. On the other side fo the fence. I see the IHS doing a little thinking but more geared toward making their PowerPoint presentation look good for the board.

Seems if these 2 side could get together something might actually get done.

Let me ask you one question:
I have PM's or talked to or read that virtually every CH'er can bring on a headache via alcohol. Doesn't this fact bother you. It would bother me.

Samething goes for schiz. 80% of schizophrenians smoke, some say it more like 99%. Regardless, that high number sits in my head and say this has to be a part of it, it has to be causal,...but why.

That's just me. When I  am not getting abused buy retards.
Title: Re: A Headache Story - Part 4
Post by Kevin_M on Jan 27th, 2008, 7:36pm

on 01/27/08 at 19:15:51, Ace_Sterling wrote:
I don't see how I am "mocking" CH'ers.
I wouldn't mock anybody witha medical condition.
I mostly reserve my mocking for small dogs and fair-ride workers.:)...and retarded people that don't know they're retarded.


I believe you listed five CH'ers and then added most who've responded to you as in that category, so you are saying you do mock CH'ers.  Thank's for being honest about being a troll.  

Why did you come back as a soccer ball?




Quote:
Let me ask you one question:
I have PM's or talked to or read that virtually every CH'er can bring on a headache via alcohol. Doesn't this fact bother you. It would bother me.


Why, do you intend to do something about it?  I believe Chewy and I have for ourselves, long ago.  
Title: Re: A Headache Story - Part 4
Post by brewcrew on Jan 27th, 2008, 8:37pm

on 01/27/08 at 19:15:51, Ace_Sterling wrote:
I have PM's or talked to or read that virtually every CH'er can bring on a headache via alcohol. Doesn't this fact bother you. It would bother me...

...if I was a diagnosed cluster headache sufferer.

Is that what you're trying to say?
Title: Re: A Headache Story - Part 4
Post by monty on Jan 27th, 2008, 8:53pm

on 01/27/08 at 19:15:51, Ace_Sterling wrote:
Let me ask you one question:
I have PM's or talked to or read that virtually every CH'er can bring on a headache via alcohol. Doesn't this fact bother you. It would bother me.


No, it doesn't bother me at all. I am glad to know that. If I am in cycle, drinking will quickly cause pain. So I don't drink when I am in cycle. It's not a big deal for me to postpone that. The universe dealt a card that says that alcohol is the most widely recognized trigger. You can play that card as you like.

The fact that a whiff of perfume or gasoline can sometimes trigger is more of a bother, because I have less control over that. But I do what I can to reduce that - and it that doesn't happen too often.  

Sleep is my biggest trigger, and melatonin and antihistamines at night are two ways that I deal with it.


on 01/27/08 at 19:15:51, Ace_Sterling wrote:
As for this site...I see a LOT of suffering but not much action. On the other side fo the fence. I see the IHS doing a little thinking but more geared toward making their PowerPoint presentation look good for the board.  


Your perspective is limited and your conclusions are incorrect. Over the years, this place has led to discussions on clusterbusters, high-flow oxygen, kudzu, water flushes, taurine and a few other things that are effective tools for helping people cope. Other valuable info is regularly discussed here, like the circulatory technique, or splitting trex doses to minimize the side-effects and conserve limited prescriptions. You won't see a major breakthrough every day, but they do happen.

Title: Re: A Headache Story - Part 4
Post by starlight on Jan 27th, 2008, 9:28pm
Ace,

I started getting CH when I was 14--never had touched alcohol, cigs, or even coffee at that age, so I wouldn't jump to the conclusion that alcohol is "causal" as you put it.  Alcohol didn't cause my CH.  Also I did not used to be triggered by alcohol when I did drink (late high school/college).  Alcohol didn't trigger me until I was 26 and hardly drank at all at that time but had a glass of wine at a Stevie Nicks concert and a couple sips brought on a horrible HA in public.  Well, I just never did that again.  But just cause alcohol triggers most people I guess doesn't mean it is the root cause of CH--it couldn't be--I had never touched alcohol when mine developed and do not presently drink and still get them.  
Also smoking does not cause schizophrenia, yes a lot of them smoke a lot but it is their condition that causes them to smoke a lot--not the other way around.
Title: Re: A Headache Story - Part 4
Post by Ace_Sterling on Jan 28th, 2008, 4:02am

on 01/27/08 at 21:28:55, starlight wrote:
Ace,

I started getting CH when I was 14--never had touched alcohol, cigs, or even coffee at that age, so I wouldn't jump to the conclusion that alcohol is "causal" as you put it.  Alcohol didn't cause my CH.  Also I did not used to be triggered by alcohol when I did drink (late high school/college).  Alcohol didn't trigger me until I was 26 and hardly drank at all at that time but had a glass of wine at a Stevie Nicks concert and a couple sips brought on a horrible HA in public.  Well, I just never did that again.  But just cause alcohol triggers most people I guess doesn't mean it is the root cause of CH--it couldn't be--I had never touched alcohol when mine developed and do not presently drink and still get them.  
Also smoking does not cause schizophrenia, yes a lot of them smoke a lot but it is their condition that causes them to smoke a lot--not the other way around.



Don;t even begin to give me a lecture on schiz. I have had the fine pleaseure of taking care of one of the worst schizs' (not my words) that anyone has ever come across (mother) had about a year break and then I developed the disease. The thing is I can look back now I say I showed signs ans symptoms possibly as far back as 4 or 5 years old.

[quote/]Also smoking does not cause schizophrenia, yes a lot of them smoke a lot but it is their condition that causes them to smoke a lot--not the other way around.[/quote]

Remember those words in 5 years.

At least I got an honest reply from you guys instead of the hammerdown BS I have had to put up with. Thank You.

I did some research and after talking to a lot of you I don't know what to make of it....I get headaches that start outside my skull at the right occipital protuberance. You can feel it where this nerve has been damage and that it where the headaches start.(No auras or any type of migraine nehavior)

When they do, I know the clock is ticking and I have to get some Excedrin, some ice on the back of my head, and laydown quickly (30 minutes or so). IF I DON'T, my headaches progress to a full blown cluster headache like the one you all describe.

What do I call that?
Pain Killer and coffee give me some relief nut then there is the rebound ffrom the pain killer...
Also, why does everyone here tske melatonin?
I know it's for sleep but is everyone an insomniac (besides me:))
Is everyone allergic the Ambien?

Ace
Title: Re: A Headache Story - Part 4
Post by kcopelin on Jan 28th, 2008, 7:14am
my head hurts. Go away.
Title: Re: A Headache Story - Part 4
Post by artonio7 on Jan 28th, 2008, 7:19am
Ace... I'm curious. What does schizophrenia feel like? I guess it sucks. Are you currently on any form of chemical therapy?

with warm regards,
Tony
Title: Re: A Headache Story - Part 4
Post by brewcrew on Jan 28th, 2008, 7:21am

on 01/28/08 at 04:02:05, Ace_Sterling wrote:
When they do, I know the clock is ticking and I have to get some Excedrin, some ice on the back of my head, and laydown quickly (30 minutes or so).


What do I call that?

http://www.migraineheadaches.com/

Sorry, Ace. The Excedrin part and the laying down part just ain't cluster.
Title: Re: A Headache Story - Part 4
Post by Paul98 on Jan 28th, 2008, 8:25am

on 01/28/08 at 04:02:05, Ace_Sterling wrote:
I did some research and after talking to a lot of you I don't know what to make of it....I get headaches that start outside my skull at the right occipital protuberance. You can feel it where this nerve has been damage and that it where the headaches start.(No auras or any type of migraine nehavior)


Also, why does everyone here tske melatonin?
I know it's for sleep but is everyone an insomniac (besides me:))
Is everyone allergic the Ambien?

Ace


Ace, I cannot speak for the rest of the folks here but in all the years I have had CH none of my H/A's are external to the cranium.  Asprine or ibuprofin don't touch the HA. and the last thing I could possible do when getting hit is lie down.

For the melatonin, it helps sleep and I feel it has lessened the intensity of my cycles.  People with CH have very low melatonin levels and we do not have the circadian rhythem of the nocturnal increase like normal people do.  

-P.
Title: Re: A Headache Story - Part 4
Post by Angie on Jan 28th, 2008, 8:36am

on 01/27/08 at 19:15:51, Ace_Sterling wrote:
I can thank my mother for passin that one down to me.


You can also thank your mother for giving birth to you.
Title: Re: A Headache Story - Part 4
Post by LeLimey on Jan 28th, 2008, 8:38am

on 01/28/08 at 08:36:57, Angie wrote:
You can also thank your mother for giving birth to you.


Thank you Angie - that sentence of his particularly upset me this morning as alot of you can guess why.

What a horrid little man he is huh?  ::)
Title: Re: A Headache Story - Part 4
Post by Kevin_M on Jan 28th, 2008, 8:39am

on 01/28/08 at 07:19:37, artonio7 wrote:
Are you currently on any form of chemical therapy?



on 01/25/08 at 22:08:05, Ace_Sterling wrote:
I recently switched to a new psychiatrist and he wouldn't give my Zyprexa. I told him I was schiz, I told him I needed Zyprexa and Adivan. He didn't think I was schiz so he didn't give me any meds.




on 01/25/08 at 22:11:31, Ace_Sterling wrote:
You could respond to me by telling me about your headaches

...that would help me and give me something to do besides post.



on 01/25/08 at 11:26:35, Ace_Sterling wrote:
I sit at home, alone and forgotten about.



needs a hobby.




on 01/24/08 at 22:35:54, Ace_Sterling wrote:
I have myofascial pain syndrome.




Quote:
Myofascial pain syndrome is a chronic form of muscle pain. The pain of myofascial pain syndrome centers around sensitive points in your muscles called trigger points. The trigger points in your muscles can be painful when touched. And the pain can spread throughout the affected muscle.

Nearly everyone experiences muscle pain from time to time that generally resolves in a few days. But people with myofascial pain syndrome have muscle pain that persists or worsens. Myofascial pain caused by trigger points has been linked to many types of pain, including headaches, jaw pain, neck pain, low back pain, pelvic pain, and arm and leg pain.

Treatment for myofascial pain syndrome can bring pain relief in many cases. Options for myofascial pain syndrome treatment may include physical therapy, trigger point injections or medications.

http://www.mayoclinic.com/health/%20myofascial-pain-syndrome/DS01042




on 01/25/08 at 08:28:17, Ace_Sterling wrote:
I went 6 months trying to diagnose what was looking like a rheumatoid condition on top of my headaches.




on 01/25/08 at 08:28:17, Ace_Sterling wrote:
I put myself on 30mg Prednisone, Xmg of Celexa, Aspirin, Vitamins, and who knows what else.

Half-way during the week...my head was just ringing so bad I couldn't stand it..

(The only thing running through my mind was that I looked like my Mother after she has an episode. My mother has schizophrenia)


the schizo diagnosis?
Title: Re: A Headache Story - Part 4
Post by Angie on Jan 28th, 2008, 8:45am

on 01/28/08 at 08:38:57, LeLimey wrote:
Thank you Angie - that sentence of his particularly upset me this morning as alot of you can guess why.

What a horrid little man he is huh?  ::)


Yes Helen that upset me as well. I double that, the horrid little man.
Title: Re: A Headache Story - Part 4
Post by Melissa on Jan 28th, 2008, 9:19am
Dontcha ever just wanna...

http://living.onstable.com/wp-images/nuke.jpg

a thread??
Title: Re: A Headache Story - Part 4
Post by starlight on Jan 28th, 2008, 9:43am
Ace,

I second what Helen said--that was WRONG what you said about your mother--show some respect.
Secondly, I knew a schizophrenic guy, came into where I worked a lot,  and he was a very sweet, kind man who was just very confused/delusional, but probably the sweetest person you'd meet.  You on the other hand are very nasty and seem mostly coherent.  So if doctors are telling you you are not schizophrenic, accept it and find something else to BS about.
 
Title: Re: A Headache Story - Part 4
Post by brewcrew on Jan 28th, 2008, 9:59am

on 01/28/08 at 09:19:42, Melissa wrote:
Dontcha ever just wanna...

http://living.onstable.com/wp-images/nuke.jpg

a thread??

Ah, to posess that kind of power.

The only real power I have is that I have a key to get in and out of the place. ;;D
Title: Re: A Headache Story - Part 4
Post by George_J on Jan 28th, 2008, 10:23am

on 01/27/08 at 19:15:51, Ace_Sterling wrote:
That's just me. When I  am not getting abused buy retards.


http://www.sonofthesouth.net/uncle-sam/images/stop-whining_small.jpg
Title: Re: A Headache Story - Part 4
Post by Ace_Sterling on Jan 28th, 2008, 10:44am

on 01/28/08 at 08:36:57, Angie wrote:
You can also thank your mother for giving birth to you.



Yes, yes I can. I can also thank my mother for drinking all the time, ruining every childhood moment I had and most of my adult moments too). I can thank her family for disowning her and leaving me to take on the burden and responsibility of caring for here myself. And trust me...If she had your phone number....you would not be offended by anything I said. I know this may seem shallow but I can also blame her for her genes. I could have done without this illness.
Title: Re: A Headache Story - Part 4
Post by brewcrew on Jan 28th, 2008, 10:49am
Some people take responsibility for their own happiness, and others make a whole lifetime career out of pointing the finger at others.

You just tipped your hand. From this point forward, I'll have nothing to do with you.
Title: Re: A Headache Story - Part 4
Post by Ace_Sterling on Jan 28th, 2008, 10:53am

on 01/28/08 at 09:43:50, starlight wrote:
Ace,

I second what Helen said--that was WRONG what you said about your mother--show some respect.
Secondly, I knew a schizophrenic guy, came into where I worked a lot,  and he was a very sweet, kind man who was just very confused/delusional, but probably the sweetest person you'd meet.  You on the other hand are very nasty and seem mostly coherent.  So if doctors are telling you you are not schizophrenic, accept it and find something else to BS about.
 


Most schizophrenics are very nice and mild until they are attacked (verbally or phyically) or they off meds. I have been told, when picking my mother up the hospital, that she was the sweetest, nicest person they had. Me and a select few "licky" people know different. MY Aunt, who raised me, could not believe that my mother had a nice side to her and still doesn't beleive it when I tell her about how smooth her inpatient stays go.


As for me, I have schizophenia. This I am sure of. Even though I am schiz I can compare apples and apples and I am just like my mother. As for "official" diagnosis. I have had doctors say I was juat suffering from  major depressive disorder to achizophrenia to I don't see anything wrong with you. It had gone this way for me physicaly to...

I was not being disrepectful to my mother. There is a very bad histroy there.
Title: Re: A Headache Story - Part 4
Post by hotprestwich on Jan 28th, 2008, 10:56am
Dude you cant blame your mother for the way your life turned out, we are all in control of our own lives and it is what you make of it,
start thinking more possitivly things will change, you sound like you live in resentment of a lot of things,
my mother is difficult but i have the upmost respect for her, i chose to do other things and take charge of my life you can do the same,
we all can do without our medical problems but its part of life and if you wana be a part of it then start taking charge of it, we all have clusters here and this forom helps us deal with it, your not using this site like all of us are, plus im convinced you dont even have cluster headaches, sounds more like migraines,
you sound like a child who needs a scapegoat and that seems to be your mother, im sorry dude but that is just very sad.
Title: Re: A Headache Story - Part 4
Post by LeLimey on Jan 28th, 2008, 10:59am
Is your real name Norman Bates by any chance?
Title: Re: A Headache Story - Part 4
Post by Ace_Sterling on Jan 28th, 2008, 11:00am

on 01/28/08 at 08:39:29, Kevin_M wrote:
needs a hobby.











the schizo diagnosis?


I have 3 psych docs and my old Primary Care doc that say I am schiz. They are not counting out my physical illness but mrntally, I have picked up the schiz gene.

What I meant by my comment "I looked like my Mother..." Is that after every one her episodes she would be spaced out and non-responsive having this blank, emotionless look on her face. It would also take here a month or more to recover.
Title: Re: A Headache Story - Part 4
Post by hotprestwich on Jan 28th, 2008, 11:03am
?????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????
[smiley=stfu.gif]
Title: Re: A Headache Story - Part 4
Post by monty on Jan 28th, 2008, 11:09am
So have you tried the olanzapine? Works for both schizophrenia and cluster headaches. Even seems to help with migraines and other refractory headaches.
Title: Re: A Headache Story - Part 4
Post by Ace_Sterling on Jan 28th, 2008, 11:10am

on 01/28/08 at 08:25:11, Paul98 wrote:
....

For the melatonin, it helps sleep and I feel it has lessened the intensity of my cycles.  People with CH have very low melatonin levels and we do not have the circadian rhythem of the nocturnal increase like normal people do.  

-P.



The melatonin "thing". I did not know that was are part of CH'ers.

I also have circadian rythm issues with a malformed pituitary (inoperable). You wanna talk about scewing up hormaones. Anyway, thanks for the reply, that was informative.

I do have cluster's. I could provided the links to where it decsribe my headaches but everyone seems to be having a lot of fun saying I'm ignorant.

I am REALLY interested in the pathphysiology of the Oxygen thing. Did it originate on this forum?

What is it supposed to do? And How?

I just ask because I had a schiz speel back in 2006 and was given oxegen and it completely beought me back to reality. No drugs. Just 02.
Title: Re: A Headache Story - Part 4
Post by Ace_Sterling on Jan 28th, 2008, 11:12am

on 01/28/08 at 11:09:03, monty wrote:
So have you tried the olanzapine? Works for both schizophrenia and cluster headaches. Even seems to help with migraines and other refractory headaches.

I take Zypreza. It works to some degree. Keeps me from killin' myself. Not trying to be self loathing...just stating a fact.
Title: Re: A Headache Story - Part 4
Post by Paul98 on Jan 28th, 2008, 11:17am

on 01/28/08 at 11:10:29, Ace_Sterling wrote:
I am REALLY interested in the pathphysiology of the Oxygen thing. Did it originate on this forum?

What is it supposed to do? And How?

I just ask because I had a schiz speel back in 2006 and was given oxegen and it completely beought me back to reality. No drugs. Just 02.


O2 has long been known for being a vasoconstrictor.  It has been used for headaches for a very long time.  

As for treatment of phychatric disorders I haven't a clue as I have never heard of it being used for that pourpose.

-P.
Title: Re: A Headache Story - Part 4
Post by Gator on Jan 28th, 2008, 11:24am
http://www.untwistedvortex.com/wp-content/uploads/2007/06/dontfeedthetroll.jpg
Title: Re: A Headache Story - Part 4
Post by starlight on Jan 28th, 2008, 11:36am
I can't keep up with this guy's mother issues, oxygen--treated schizophrenia, skin turning to porcelain, malformed pituitary, schizoaffective hoozymacallit--I'm out.
Title: Re: A Headache Story - Part 4
Post by Ace_Sterling on Jan 28th, 2008, 1:09pm

on 01/28/08 at 11:36:12, starlight wrote:
I can't keep up with this guy's mother issues, oxygen--treated schizophrenia, skin turning to porcelain, malformed pituitary, schizoaffective hoozymacallit--I'm out.

Do you promise?
Title: Re: A Headache Story - Part 4
Post by vietvet2tours on Jan 28th, 2008, 1:16pm
   Duuuuude go find a mirror....look close.  Do ya like what ya see"  bummer ain't it.

                     Potter
Title: Re: A Headache Story - Part 4
Post by Ace_Sterling on Jan 29th, 2008, 6:27am
Hohohohehehe! ;;D ;;D ;;D :-X

Wow you showed me...'tard!
Title: Re: A Headache Story - Part 4
Post by deltadarlin on Jan 29th, 2008, 8:13am
Potter,
Don't you know that trolls can't see past the end of their noses?  Wouldn't do him much good too look in the mirror.

I think his docs missed the dx on schizophrenia, it appears that his dx is more along the lines of mpd.
Title: Re: A Headache Story - Part 4
Post by Gator on Jan 29th, 2008, 8:36am
[smiley=troll.gif]
Title: Re: A Headache Story - Part 4
Post by George_J on Jan 29th, 2008, 9:41am

on 01/29/08 at 06:27:37, Ace_Sterling wrote:
Hohohohehehe! ;;D ;;D ;;D :-X

Wow you showed me...'tard!
Title: Re: A Headache Story - Part 4
Post by Kirk on Jan 29th, 2008, 11:39am
   [smiley=troll.gif]    This guy is such a moron!
Title: Re: A Headache Story - Part 4
Post by vietvet2tours on Jan 29th, 2008, 12:07pm

on 01/29/08 at 06:27:37, Ace_Sterling wrote:
Hohohohehehe! ;;D ;;D ;;D :-X

Wow you showed me...'tard!


        Pretty poor come back. Yer boring me spitless and I'm easily amused.

                        Potter
Title: Re: A Headache Story - Part 4
Post by brewcrew on Jan 29th, 2008, 12:59pm
Your story has become tiresome.

Now is the time on Sprockets when we dance.

http://www.nowtoronto.com/issues/2004-04-01/cover_story-2.jpg
Title: Re: A Headache Story - Part 4
Post by Paul98 on Jan 29th, 2008, 1:12pm

on 01/29/08 at 12:59:28, brewcrew wrote:
Your story has become tiresome.

Now is the time on Sprockets when we dance.

http://www.nowtoronto.com/issues/2004-04-01/cover_story-2.jpg


Well, ve can dance vot I enit nicht touch-ing yer Minky!

-P.
Title: Re: A Headache Story - Part 4
Post by brewcrew on Jan 29th, 2008, 1:44pm
TOUCH HIM! LOVE HIM! LIEBE MEIN ABSCHMINKY!
Title: Re: A Headache Story - Part 4
Post by Paul98 on Jan 29th, 2008, 1:48pm

on 01/29/08 at 13:44:39, brewcrew wrote:
TOUCH HIM! LOVE HIM! LIEBE MEIN ABSCHMINKY!


ROFLMAO!

-P.
Title: Re: A Headache Story - Part 4
Post by Ace_Sterling on Jan 30th, 2008, 2:26am
I don't even know how this started. I would like just to erase it and call it a day.

I have cluster headaches but you all clearly have them much worse than I

I really didn't understand the whole support website thing. I usually just deal with them on my own.

I saw my doctor today.

I have scleromyxedema per a biopsy and a severe attack on my neck muscles that he didn't know what to do about because this disease is so rare. The back of my neck muscles is hardening. Now I need support. I sought out a sclera. website. There is one but this disease is so rare that there are like 4 memebers to the site.

First CH, then schiz, then this admist 3 joints, a lymphnode, and a gallbladder surgery.

If anyone doubts my CH (which you do) I can go to the Cleveland Clinic website and cut and paste the description of my headaches from their CD site. They describe exactly what I go though.

If I didn't have CH I doubt Maxalt would do anything. Forgot to mention taking Maxalt.

Anyway, we managed to create an enormous thread.
I don't know what DJ's policy is but this thread should go away.

There is some good advice mixed in with a bunch a crap. I appreciate the advice. THANK YOU.
Title: Re: A Headache Story - Part 4
Post by outofcommission on Feb 2nd, 2008, 12:22pm
in the immortal words of george carlin "exuse me  i have nothing to say"
Title: Re: A Headache Story - Part 4
Post by chewy on Feb 3rd, 2008, 1:29pm

on 01/30/08 at 02:26:08, Ace_Sterling wrote:
I don't even know how this started. I would like just to erase it and call it a day.

.


That can be arranged. LMAO!


Quote:
but this thread should go away


Right along with it's author.
Title: Re: A Headache Story - Part 4
Post by Jonny on Feb 3rd, 2008, 2:10pm
[smiley=troll.gif]
Title: Re: A Headache Story - Part 4
Post by aloneuk on Feb 6th, 2008, 5:40am

on 01/25/08 at 15:24:39, vietvet2tours wrote:
   There were some other folks that liked to play let's pretend that used to hang here but they made their own site.  S'pose we could send him over there to a kinder gentler space.

        Potter

 fixed it

HEY POTTER,

GO FUCK YOUR SELF YOU LOON !!
Title: Re: A Headache Story - Part 4
Post by vietvet2tours on Feb 6th, 2008, 5:21pm

on 02/06/08 at 05:40:32, aloneuk wrote:
HEY POTTER,

GO FUCK YOUR SELF YOU LOON !!


   Does typing in caps mean that yer yelling at me?  I been yelled at by pro's whiz bang.  Do you see yer name in any post I've made.  Didn't think so.

       Potter
Title: Re: A Headache Story - Part 4
Post by chewy on Feb 6th, 2008, 6:58pm

Quote:
whiz bang


LMOA! Whiz Bangb ?? WTF is a whiz bang? LOL
Title: Re: A Headache Story - Part 4
Post by larry777 on Feb 7th, 2008, 12:29pm
2001 annual meeting  

http://abstracts.neurosurgeon.org/view.php?id=6714

MIGRAINE SURGERY VIDEO

http://www.youtube.com/v/VoQV5VPN2ZE


http://www.youtube.com/v/wL1y0SHSKs8



MIGRAINE SELF TREATING VIDEO

http://www.youtube.com/v/JZ8mmkRu748

 
Title: Re: A Headache Story - Part 4
Post by George_J on Feb 7th, 2008, 12:31pm

on 02/07/08 at 12:29:44, larry777 wrote:
2001 annual meeting  

http://abstracts.neurosurgeon.org/view.php?id=6714

MIGRAINE SURGERY VIDEO

http://www.youtube.com/v/VoQV5VPN2ZE


http://www.youtube.com/v/wL1y0SHSKs8



MIGRAINE SELF TREATING VIDEO

http://www.youtube.com/v/JZ8mmkRu748

 


Get lost, Ali.


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