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Title: I know you guys understand .just rambling(sorry) Post by 65fstbk on Jan 15th, 2008, 9:22am Good Morning everyone.....just posting because sometimes it feels good to vent to people who understand this crap. I was PF for the last 4 years except for "little" hits now and then that only lasted a couple days. I called them "strong shadows"I guess I used up all my wifes sympathy the first 19 years we were married, as now it seems she is agitated because I am disrupting HER sleep. [smiley=huh.gif] Ive been registered on here since 2000...originally under joe_w but I forgot my password, and have a new e-mail address since then, so I just re-registered last year under this name..but as you can tell....Im not a "talker", but I do absorb what others have to say. ;) The morning of News Years Eve (5am), I was rudely awaken with a "feeling" only we can understand. I pretty much knew right away that my 4 year "vacation" was over...this one hit me like a Mac Truck! (Kip8?) Since then, this is the "weirdest" cycle Ive ever been in. Nite time hits are (Kip)6-7 and all day I walk around with (Kip) 3-4 "shadows"..In the past, the nite time hits were worse..(Kip) 8-9-..even10) , and if I got shadows, they were more like 1-2, and only before a BIG hit was coming. So, this time i am a little confused...I guess the beast decided to turn right, and take a different path. [smiley=hammer.gif] . As far as Drs. go, I have pretty much given up on the medical profession being able to get over their huge egos.In the words of my last Dr...you cant believe everything you read on the internet, and since he is the one who "sacrificed" his time for medical school, he will determine what course we take. (not the first Dr. I had with that attitude, but also not my Dr. after that either.) Im from a rural area of Ohio and the Drs egos wont allow them to admit that they dont have a clue about these things..after all, they have a medical book that they can look up all the info in, and no need to refer me to a Neuro...they can get a handle on it.Insurance Co. are no better...20 years ago, I had the "Cadillac of insurance"...it seems my employer traded the Caddy for a Yugo >:( With all that said (and its alot...sorry)..My youngest 2 daughters (of 4) are in college (Jr. & Freshman) and a 3rd daughter is getting married in 3 weeks, so at the moment (or anytime in the near future) I dont have the "extra" money (is there such a thing? [smiley=huh.gif]) to be throwing away on Drs. visits again until I finally find one willing to listen to what the information on all these pages I print out have to offer. I did get my last Dr to prescribe Verapamil, but he didn't think that o2 was necessary. >:(...so currently, I am taking 480 mg a day(and may increase it to 720mg), and Maxalt MLT when one wakes me up (I dont think it does much). Before my insurance changed, I could get a 3 month supply of "maintenance" drugs for $2.00...what a deal!..I had just filled a new prescription when the change was about to happen (that "feature" was eliminated) and had 1 refill available, so I sent in and got that one filled also..so now I had a 6 month supply...the problem is, that was in 2003 and that was when the Ch's decided to take a vacation, so needless to say, the drugs are WAY outdated....(expired in 2004) ...I think that may be why the cycle this time is "weird" Sorry this is so long..remember, I am not a talker ::) :P ...This has taken over an hour to type because I am still not thinking straight...last night was bad....and it doesn't help that I pissed the wife off because all the groaning and pacing woke the dog up and she (the dog) was whining and barking..I think she knew something was wrong..it wasn't her fault.(some of you are lucky for the support you get [smiley=thumbsup.gif] )..At work, one benefit I have is sick days..I can accumulate 1 1/4 day a month until I hit 250 days in the "bank"...I hit that 2 years ago..so I decided today was good day to start using some...maybe the beast isn't paying attention, and I can get a bit of shut-eye before he realizes it and returns... One thing I would like to add....I hope I am not whining too much ..I FULLY realize many of you have it MUCH worse than I do..I mean after all...I was on vacation (pretty much) for 4 years...sometimes life IS good.. I do have one question about the site...I keep seeing reference to the links on the left..nothing shows up for me..I use Firefox browser, but opened a window in IE7, but it still didnt show up...In a post I was reading, someone posted this link (dont remember why) http://www.clusterheadaches.com/wwwboard/boardleft.html but one that page, and any page I go to from there, I get the "left" side navigation bar...I saved the link in my favorites so I can refer to it, but I am wondering if I am missing something..is there a setting so it shows up when I go from forum to forum?..Under profile or anything else, I haven't found a "preference" setting....thnx Good luck, & PF wishes to all of you unfortunate enough to read this whole thing. :o Joe |
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Title: Re: I know you guys understand .just rambling(sorr Post by hotprestwich on Jan 15th, 2008, 11:12am Sorry that your back man my cycle also started 2 days before new year and i had been pain free for 3 years, just gotta remember that it will end or thats what i keep telling myself, check out clusterbusters.com they have a whole new way for dealing with clusters i havent tried out there methods, but i am searching for the medecine maybe it might help you, get 02 man i went through so may cycles without it (stupid) and even though it dosnt work all the time id say i can abort 40 per cent of my headaches any that are aborted is a blessing, sorry to hear about your mrs some people just dont understand this fucking pick ice in the eye, try and educate her. support from a loved one is like a float on water, i hope your cycle ends real soon... at least here there are lots of us that understand welcome back |
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Title: Re: I know you guys understand .just rambling(sorr Post by Bob_Johnson on Jan 15th, 2008, 12:20pm I started having the problem of the left hand boxes not loading just a few weeks ago. Usually, they appear if you hit the roload button on the browser; at times, I've had to close the browser and open it again. ------------- Since you have been exposed to the material here for so long, assume you have Rozen article on current therapies. If you have not tried, ask the doc for samples of Zyprexa and give a try as an abortive. It's almost as fast acting as Imitrex and the per dose cost is much less--if you have to pay out of pocket. If you have the option of seeking a new doctor: 1. Search the OUCH site (button on left) for a list of recommended M.D.s. 2. Yellow Pages phone book: look for "Headache Clinics" in the M.D. section and look under "neurologist" where some docs will list speciality areas of practice. 3. Call your hospital/medical center. They often have an office to assist in finding a physician. You may have to ask for the social worker/patient advocate. 4. http://www.achenet.org On-line screen to find a physician. 5. http://www.headaches.org/consumer/index.html Call 1-800-643-5552; they will send a list of M.D.s for your state.I suggest using this source for several reasons: first, we have read several messages from people who, even seeing neurologists, are unhappy with the quality of care and ATTITUDES they have encountered; second, the clinical director of the Jefferson (Philadelphia) Headache Clinic said, in late 1999, that upwards of 40%+ of U.S. doctors have poor training in treating headache and/or hold attitudes about headache ("hysterical female disorder") which block them from sympathetic and effective work with the patient; third, it's necessary to find a doctor who has experience, skill, and a set of attitudes which give hope of success. This is the best method I know of to find such a physician. |
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