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        Cluster Headache Help and Support >> Cluster Headache Specific >> Can everyone please
        
(Message started by: KristenF1977 on Dec 10^th, 2007, 11:59am)

Title: Can everyone please
Post by KristenF1977 on Dec 10^th, 2007, 11:59am

post what they take daily to conquer the beast? I want to mention a few treatment courses to my neuro tomorrow.

Thanks for your help

Title: Re: Can everyone please
Post by DennisM1045 on Dec 10^th, 2007, 12:02pm

240mg Verapamil + 9-12mg Melatonin to prevent

O2 @ 15lpm + energy drinks + imitrex injections to abort.

-Dennis-

Title: Re: Can everyone please
Post by George_J on Dec 10^th, 2007, 12:12pm

Out of cycle:

250 mg. magnesium supplement
1000 mg. calcium supplement.

In cycle:

500 mg. magnesium supplement
1000 mg. calcium supplement
9 mg. melatonin 1/2 hour before bedtime
Energy drinks with caffeine and taurine as needed to abort shadows.
Will be using 02 @ 15 liters per minute with a non-rebreather mask to abort stronger hits during my next cycle.

I'm pretty conservative as far as treatments I'll use now, although I've tried many others in the past.

Best,

George

Title: Re: Can everyone please
Post by E-Double on Dec 10^th, 2007, 12:32pm

hey long island girl.
It appears ya know me :)
What doc do you go to?
I'll post later tons of recs later as I am on the road.

Have tons of info for ya and good to know or meet another local friend.(though sorry you have to deal)

E

Title: Re: Can everyone please
Post by NJRik on Dec 10^th, 2007, 1:18pm

240mg Verapamil, 100mg Topamax to prevent.
Maxalt-MLT, Imitrex injects, Oxygen to abort.

Title: Re: Can everyone please
Post by Gator on Dec 10^th, 2007, 1:28pm

If you haven't already done so, print this out, read it and take a copy to your doc.

http://www.plainboard.com/ch/chtherapy.pdf

Many here find it useful.

Good luck with the neuro.

Title: Re: Can everyone please
Post by KristenF1977 on Dec 10^th, 2007, 1:56pm

Would you believe I am so gullible that I actually bought HEAD ON at Eckerd just now, and it stopped todays shadows? ::)

Title: Re: Can everyone please
Post by txbeck on Dec 10^th, 2007, 1:56pm

To prevent:
100 mg Topamax
12 mg melatonin

To abort:
O2

Forgot to mention, I keep half a dozen ice packs ready at all times, too!

Title: Re: Can everyone please
Post by Guiseppi on Dec 10^th, 2007, 2:21pm

Episodic, usually 2X a year sprig and fall 8-12 week cycles, 47, male, weigh about 190.

Year round i take magnesium, calcium, and vitamin B-2.

On cycle I take 1200 mg a day of lithium as my prevent with a 10 day to 2 week prednisone taper to tide me over until the lithium becomes effective.

For attacks I use oxygen with oral cafergot, the 02 beats it down the cafergot buys me up to 12 hours pain free. For the real barn burner attacks I use imitrex injectables. Good luck!!!

Guiseppi

PS: Regarding head on, still a very controversial topic on this board but there are some very intersting studies going on about how oleocapsin...(sp?)......ineracts with neuro transmitters.

Title: Re: Can everyone please
Post by HeadhurtinMama on Dec 10^th, 2007, 2:52pm

I have chronic CH and fibromyalgia, so this is a list of daily meds for me. Some help with both, others are just for CH.
840 mgs of verapamil
600 mgs of carbatrol
120 mgs of cymbalta
10 mgs of amatriptiline
1860 mgs of calcium with D and magnesium
2 mgs of folic acid
2500 mgs of B12 sublingual

I also use taurine free energy drinks, lots of coffee, O2 at 15 lpm, and imitrex injections and nasal spray.

And yes, my pharmacist loves me. ;)

Title: Re: Can everyone please
Post by KristenF1977 on Dec 10^th, 2007, 3:05pm

I really found that as soon as I started the Verapamil last time I was in cycle, it helped tremendously. Unfortunately, I never kept a journal and don't recall how long I was in cycle for, but I think after a week on the Verap, my headaches were pretty much gone. I am praying this cycle follows suit.

Title: Re: Can everyone please
Post by BarbaraD on Dec 10^th, 2007, 7:57pm

Chronic

100 mg Topamax
100 mg Trazadone
12mg melatonin

cafergot to abort (prn)
phenergan with cafergot 25mg (for naseau)

O2 at onset of shadow
Coffee at onset of shadows
Red Bull at onset of shadows

I just started taking taurine caps (500mg X2) so I don't know how they're going to work yet.

If I can't break a "high" cycle I go for DHE IV q8h until it breaks (usually 3 to 4 days). But that's a last resort.

Pred taper helps while the other prevents get into your system.

Hugs BD

Title: Re: Can everyone please
Post by brewcrew on Dec 10^th, 2007, 8:51pm

I won't post what I have taken, just what I am taking currently:

2mg methysergide maleate (Sansert) 3x per day
300mg lithium carbonate 3x per day
50mg diphenhydramine (Benadryl) at bedtime

Note: the methysergide can only be taken for 6 months maximum. You have to take a minimum one-month holiday from it after 6 months or you greatly increase your chances of developing kidney or heart valve fibrosis.

Title: Re: Can everyone please
Post by sandie99 on Dec 11^th, 2007, 11:41am

When I'm in cycle and getting hit I take

- one ice cold energy drink (e.g. Red Bull/Red Devil)
or
- 1-3 caffeine tablets

I also keep a bottle or two of ginger ale at my fridge, because it helps with the shadows.

No more meds for me. That's my choice and so far, it's been a good one. :)

PF wishes,
Sanna

Title: Re: Can everyone please
Post by brewcrew on Dec 13^th, 2007, 9:16pm

Since you left in a huff, can I take my post back? [smiley=huh.gif]

Title: Re: Can everyone please
Post by Charlotte on Dec 13^th, 2007, 9:40pm

I'm not sure why she left, but I want you people who posted to know that I appreciate your contribution. This person may be gone, but someone else may benefit from the info.

Charlotte

Title: Re: Can everyone please
Post by brewcrew on Dec 13^th, 2007, 9:58pm

I's just messin' around, Charlotte. I have no intention of deleting my previous post(s).