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        Cluster Headache Help and Support >> Cluster Headache Specific >> I guess I am back in cycle...Not really sure
        
(Message started by: KristenF1977 on Dec 10^th, 2007, 9:26am)

Title: I guess I am back in cycle...Not really sure
Post by KristenF1977 on Dec 10^th, 2007, 9:26am

Hi,

I posted under KristenF77, and do not have my password here, so I had to re-register because the site was not recognizing my name when I tried to have my PW mailed to me. Anyhow..............

I started Friday night with a headache at around 3:30 AM. Lasted for about 15 minutes, and I was able to get back to sleep. Saturday night, no headache at all. Last night, headache at 1:00 am. Got out of bed, injected myself, and was ok to go back to sleep in about 15 minutes or so. It seems the headaches are hitting appx. 5 hours into sleep. I fell asleep fairly early last night, around 8:30 am. On Friday, I went to bed at 10:30 pm, and got hit at 3:30pm.

My question is, has anyone had a cycle that has "skipped" days?

I am a little confused.

Thank you in advance.

kristen

Title: Re: I guess I am back in cycle...Not really sure
Post by pattik on Dec 10^th, 2007, 10:08am

Hi Kristen,
I've been episodic for many years, and all of my cycles start out on an every other day schedule, then move to daily attacks. Hopefully you're just seeing random activity and not a new cycle, but you may want to look into getting some oxygen for aborting attacks, if you haven't done so already.
Oxygen can be a good weapon in the arsenal for many, and help you to use less of the Trex. Hope this helps.

Patti

Title: Re: I guess I am back in cycle...Not really sure
Post by KristenF1977 on Dec 10^th, 2007, 10:22am

Pat

Thank you so much for the quick reply. They seem to be very low on the KIP, almost mistakeable for a sinus headache if I didnt know any better. I guess time will only tell. I only used a teeny bit of the trex, and it really helped me alot. I also took 7mg of Melatonin before bed.

I really hope this isnt a new cycle, but I have a feeling it may be.

Title: Re: I guess I am back in cycle...Not really sure
Post by George_J on Dec 10^th, 2007, 10:39am

My cycles typically start out with lower-level hits, spaced farther apart than those that occur later, in mid-cycle. So yes--if it were happening to me, I'd say that it's the beginning of a new cycle.

Seems as if every episodic's cycle is a bit different, though.

Sorry to hear you're getting hit again.

Best wishes,

George

Title: Re: I guess I am back in cycle...Not really sure
Post by KristenF1977 on Dec 10^th, 2007, 11:58am

I was lucky enough to get an appointment tomorrow with my Neurologist. Hopefully, he can get me on a course of action which I can get the most relief.

Title: Re: I guess I am back in cycle...Not really sure
Post by DennisM1045 on Dec 10^th, 2007, 12:04pm

Hi Kristen,

My cycles skip days even at their peak. It might be one in 10 days off but I'll take it ;;D

-Dennis-

Title: Re: I guess I am back in cycle...Not really sure
Post by wip5150 on Dec 10^th, 2007, 12:33pm

Kristin,

My episodes usually start slow, peak, then die slow. At the beginning of a cycle, I'll have a headache every other day then slipping into an every day pattern after about a week or so (although each of my cycle's are different).

Good luck - I hope you're not beginning a new cycle.

Bill

Title: Re: I guess I am back in cycle...Not really sure
Post by Samiam on Dec 18^th, 2007, 4:24pm

Hi,

When mine start I will get low grade hits for about a week but make no mistake I know after the second one that it's my cycle. They ramp up in about a week and for 5 weeks I want to end it all. If it wasn't for this site I might have. I've had these now for over 26 yrs and what I have noticed is as I get older my cycles start to skip years. When I first cycled I would get them every year for 6-8 weeks now if I'm lucky I can go a couple of years between hits but I never know until I skip my time.

Sami

Title: Re: I guess I am back in cycle...Not really sure
Post by thomas on Dec 18^th, 2007, 5:11pm

Yep, I've had plenty of pf days during a cycle over the years.

Title: Re: I guess I am back in cycle...Not really sure
Post by BarbaraD on Dec 19^th, 2007, 8:18am

You might try upping the melatonin to 12-15mg at night to help with the night hits. Sounds like you're not taking enough.

If they're low-grade hits - might try a can of Red Bull along with O2 to abort instead of trex (save the trex for the big ones).

Wishing you a short cycle...

Hugs BD