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Cluster Headache Help and Support >> Cluster Headache Specific >> My o2 supplier stopped by
(Message started by: barry_sword on Dec 8th, 2007, 9:47am)

Title: My o2 supplier stopped by
Post by barry_sword on Dec 8th, 2007, 9:47am
where I work and picked up some plastic tee fittings. I was their first client to get o2 for CH's. They listened very intently when I explained how it works for me, and how quickly I can stop a hit if caught in time.

I helped one other get o2 for his CH's. I talked to my Neuro and gave him a demo using my Clustermasx and he told me he has a couple of other's suffering from CH's. He was thrilled by the success with the o2.

My o2 supplier told me they have a total of four now using o2 for CH's. I cannot help but feel I was a big part of them getting this. As we all know a Doc cannot talk about his other patients, BUT he said he will talk to his other CH patients about the o2. He also said he will check out our site. :)

No feeling like it helping others get some relief from the beast. Made my day!! ;;D

Title: Re: My o2 supplier stopped by
Post by DennisM1045 on Dec 8th, 2007, 10:25am
Way to row the board Barry!   [smiley=cool2.gif] [smiley=headbanger.gif] [smiley=bow.gif] [smiley=thumbsup.gif]

-Dennis-

Title: Re: My o2 supplier stopped by
Post by Chillrmn1 on Dec 8th, 2007, 10:33am

on 12/08/07 at 09:47:13, barry_sword wrote:
No feeling like it helping others get some relief from the beast. Made my day!! ;;D


And that's what it's all about.

Good man Barry for sharing so others could find relief from their attacks!

Title: Re: My o2 supplier stopped by
Post by Bob_Johnson on Dec 8th, 2007, 11:14am
Barry, print this article and give to your doc. He will recognize as being a medical journal and give him greater confidence in using oxygen.
==============================

Headache. 2005 Jan;45(1):98.  


CLUSTER.

[No authors listed]

Rozen TD. High oxygen-flow rates for cluster headache. Neurology. 2004;63:593 The two most effective cluster abortive agents are injectable sumatriptan and inhaled oxygen. Because most cluster headache sufferers are cigarette smokers and at high risk of coronary artery disease, many develop contraindications to triptans. Oxygen, the safest of all cluster therapies, is not effective for every patient. In Kudrow's landmark study, 75% of patients responded to 100% oxygen at 7 L/min, although only 57% of older chronic cluster headache patients had relief. A recent study documented a gender difference in response to oxygen because only 59% of female cluster patients responded to oxygen, whereas 87% of men did. In most textbooks and articles on cluster headache treatment, patients are instructed to use 100% oxygen via a nonrebreather face mask at 7 to 10 L/min. The rationale behind this prescribed oxygen-flow rate is unknown but has become doctrine since the Kudrow study. Prescribing higher flow rates of oxygen up to 12 L/min has recently been suggested, but there is no documentation that this may improve efficacy. Higher oxygen-flow rates (up to 15 L/min) are not known to benefit cluster headache patients refractory to standard oxygen therapy. Three cluster headache patients who demonstrated no response to standard oxygen therapy were exposed to higher flow rates of oxygen (14 to 15 L/min) to assess response. Comments: Once again, Dr. Todd Rozen's observations will change my clinical practice!-Stewart J. Tepper, MD I have questions: Were these empirical observations or do Drs. Kudrow and Rozen know how rate of flow affects oxygen delivery? Is oxygen uptake higher with higher flows? After all, 100% oxygen is 100% oxygen unless under hyperbaric pressure! Perhaps higher flow rates dry the nasopharyx to a greater extent. If patients perceive a higher flow rate, might this be an enhanced placebo effect? It seems like an interesting study to be conducted, and it would be useful to test if using nasal cannulae is just as good. Pulse oximetry and arterialized capillary blood gases could be used to monitor oxygen saturation and CO(2) retention/carboxyhaemoglobin levels in smokers.-David S. Millson, MD.

PMID: 15663630 [PubMed]

Title: Re: My o2 supplier stopped by
Post by barry_sword on Dec 8th, 2007, 11:20am
Thanks Bob, done deal. Printing as we speak. I will make sure he gets a copy of it ASAP! Really appreciate that. :)

Title: Re: My o2 supplier stopped by
Post by Annette on Dec 8th, 2007, 5:48pm
Here is some more info for your doctors Barry

Press releases / Cluster headache: AETMIS recommends oxygen treatment during attacks

2003-01-17 @ 14:10:47
Montréal, June 5, 2002 – The Agence d’évaluation des technologies et des modes d’intervention en santé (AETMIS — the Quebec government agency responsible for health services and technology assessment) published a brief today that recognizes the therapeutic value of home oxygen therapy for the treatment of cluster headache. AETMIS has recommended that it be included in the list of treatments insured by the public health plan, and is siding with a majority of international experts, who believe that the inhalation of high concentrations of oxygen is the treatment of choice in order to relieve the intense pain that traditional treatments are unable to relieve during attacks.
Commonly referred to as a “male migraine”, because it affects five times as many men as women, the cluster headache is a relatively rare condition. Studies have revealed that its prevalence varies from 1 in 1,400 to 1 in 250. More severe than a migraine, it is characterized by sudden and intense pain localized on one side of the head, around the eye, on the temple or cheek. Attacks can last between fifteen minutes and three hours, and may be repeated several times a day. Cluster headaches can occur for several consecutive weeks, and are followed by periods of remission.

Although certain drugs may be prescribed to treat attacks, none are as safe and effective as oxygen therapy in relieving the intense suffering experienced by those who are afflicted. In fact, considering the sudden nature of the attacks, their intensity, and their relatively limited duration, the use of analgesics is not a very effective method of treating the pain. Oxygen therapy, which was introduced by Horton in the mid-1950’s, has become the standard treatment for relieving attacks. This treatment involves inhaling oxygen for 10 to 20 minutes, using a non-breathing face mask, at a rate of 7 to 10 litres per minute. When properly administered, there are no side effects.

“It is now up to the Health and Social Services Ministry to decide whether it wants to go ahead with this recommendation, and to determine how these services should be offered in terms of equipment, supply, and reimbursement procedures,” explained AETMIS President and Chief Executive Officer, Dr. Renaldo N. Battista. At the present time, only people suffering from chronic obstructive lung disease benefit from home oxygen therapy that is paid for by the state.
About AETMIS
AETMIS reports to the Minister of Health and Social Services. By producing assessments, its mission is to advise and support decision makers in the health-care system in matters concerning the introduction, acquisition and utilization of health services and technologies. Headed by a board of experts, AETMIS employs over forty health-technology assessment (HTA) researchers and specialists. The Agency makes recommendations based on scientific reports assessing the introduction, diffusion and use of health technologies, including assistive devices for disabled persons, as well as the modes of providing and organizing services. The assessments take into account many factors, such as efficacy, safety and efficiency, as well as ethical, social, organizational and economic implications.

Here are the links that will allow you to download the PDF document(s):

Home oxygen therapy for the treatment of cluster headache


[2002-01] - ID: 1065/3219 - Reiner Banken, AETMIS
Montréal: AETMIS, 2002, vii-6 pp.

2002_01_nt_en.pdf | English technology brief | 557,3 KB

2002_01_nt_fr.pdf | French technology brief | 167,9 KB


by e-mail, via our section: Contact Us (immediate e-mail confirmation)
by e-mail: aetmis@aetmis.gouv.qc.ca
by phone: (514) 873-2563
by fax: (514) 873-1369
postal service: Agence d’évaluation des technologies
et des modes d’intervention en santé (AETMIS)
2021, avenue Union, bureau 10.083
Montréal (Québec) H3A 2S9
Information:
Éliane Hamel
Simard Hamel Communications
Tel.: (514) 287-9811
eliane.hamel@shc.ca
Source:
Jacqueline Racicot, AETMIS
Tel: (514) 873-9040
jacqueline.racicot@aetmis.gouv.qc.ca


This is the link to the article

http://www.aetmis.gouv.qc.ca/site/index.php?id=424,364,1,0,1,0

You can click on the link to download the whole file on their finding and recommendation for home oxygen use for clusterheadaches in Canada.




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