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        Cluster Headache Help and Support >> Cluster Headache Specific >> sometimes I feel like I don't belong here
        
(Message started by: Charlotte on Nov 20^th, 2007, 9:57am)

Title: sometimes I feel like I don't belong here
Post by Charlotte on Nov 20^th, 2007, 9:57am

because of my wierd diagnosis, but I was assured by people who mean a lot to me that I can be of assistance to other people who have ch and/or sunct, ph, etc., and that I have a home here.

Some people have said I am an idiot and should dump my neuro because I do not have O2. However, this neuro is thoughtful and does research and has helped get several types of headaches under control, including my ch w/320 mg verapamil daily, and continues to help me sort out the wierd stuff, short 2 to 20 minute hits.

The latest contributing factor to my wierdness is the occipital nerve. It can cause short electrical type headaches in the back of head, side of head and behind the eye orgit, that seem like mini ch hits. They can switch sides, and I was getting them on both sides, in addition to the normal ch on the right.

I love my neuro for finding this.

It is true that O2 is the best option for ch, that I have heard of so far. The reason that I have not insisted my neuro give me a script is that he has already helped me with the ch and I use maxalt melt for the breakthrough hits, and have only had one level 9 hit in two months.

So, anyway, I want to say thank you to DJ, Helen, Gator, Nani, Jonny, DonnaD, Annette, departed Unsolved, Guiseppi, Kathy, Steph, MJ, Ghost, Mik, Kirk, Chris, Carol, SophiaK, Driving Blind, Lizzie, Jenn, KJ, Ray, Laurie, Margo, Margie, Jacki, Alchemy, BMonee, Tess, Barry_Sword, Drew, Tony, Chuck, and everyone who has made me feel like I have a home here and am of value. If I didn't mention your name, it is just short term memory loss, lol, and I love you.

Thank you.

Charlotte

Title: Re: sometimes I feel like I don't belong here
Post by StrangeBrew on Nov 20^th, 2007, 10:02am

Uh, Charlotte, this isn't like a Magnum Opus, is it? You are sticking around, right?

Title: Re: sometimes I feel like I don't belong here
Post by Guiseppi on Nov 20^th, 2007, 10:06am

She WILL stick around or she will be hunted down like a rabid dog!!!! >:( You provide far too much support to consider an exit stage left. Guiseppi's 2 cents.....

Guiseppi

Title: Re: sometimes I feel like I don't belong here
Post by kcopelin on Nov 20^th, 2007, 11:00am

Charlotte,
you are very treasured here, my friend. :) I am so happy that you have a doc who will listen to you and appears to have taken some courses in diagnosis. Personally, I'd rather you have zero headaches, but I'm glad to hear that you guys are chipping away at it.

As for O2-took me a major battle to get it Rx'ed- worked great, especially with the cluster masx, and now it no longer helps me. sure am gonna keep the script. Sometimes things that didn't work, or stopped working, will be effective later. That's why its so easy to feel like a chemical test site. :-/

PFDAN,
kathy

Title: Re: sometimes I feel like I don't belong here
Post by nani on Nov 20^th, 2007, 11:08am

"Sometimes I feel like I don't belong here"

...and then you come to your senses, right?
Miss Charlotte, you are one very special lady, and I can't think of ANY reason why you don't belong here.

Thank YOU for being here, and helping so many with your kind words and encouragement.

Love you LOTS, nani :-*

Title: Re: sometimes I feel like I don't belong here
Post by Dape on Nov 20^th, 2007, 11:12am

Char,

I could only guess at the amount of hours we have spent in chat in the 2 years that i have been here, but i do know that if it hadn't been you in chat i wouldn't have even gone in and got to know a lot of wonderful people.

Just chatting with you always make me feel better whether we are discussing your latest painting or just chatting about nothing it makes no difference and i hope that i get the pleasure of meeting you one day.

Dape :-*

Title: Re: sometimes I feel like I don't belong here
Post by sandie99 on Nov 20^th, 2007, 11:17am

Charlotte... [smiley=hug.gif] [smiley=hug.gif][smiley=hug.gif]

PF days to you,
Sanna

Title: Re: sometimes I feel like I don't belong here
Post by aloneuk on Nov 20^th, 2007, 11:46am

char [smiley=hug.gif]

Your a big part of this family, and we all love you !

smile sweetie :-*

Title: Re: sometimes I feel like I don't belong here
Post by tessistired on Nov 20^th, 2007, 11:53am

All I can say is DITTO to everyone else cause they said it perfect!

And does your neuro make house calls?......you know I am in search of a new one! I will pay mileage!!! ;;D

Title: Re: sometimes I feel like I don't belong here
Post by Bob_Johnson on Nov 20^th, 2007, 12:12pm

With a doc like yours !!??? We should all be so blessed....

But to the meds: there is no one best med! The best one is the one which works for US and, we know from our experience and the medical literature, nothing is 100% BEST or even 100% EFFECTIVE for any single person.

And (the old curse) since effective ones sometimes stop working, we are always in the position of having to start another search, should this unhappy outcome arrive.

My main point: survival involves an artful blend of appreciation for what we do have plus flexibility in being open to something new.

Title: Re: sometimes I feel like I don't belong here
Post by Grandma_Sweet_Boy on Nov 20^th, 2007, 5:20pm

Quote:

"Sometimes I feel like I don't belong here"

And then you wake up and realize that it was just a dream sequence (like who shot JR! ;;D)

But of course you belong here - wherever on earth would you find people like this bunch! ;)

Hugs
Carol

Title: Re: sometimes I feel like I don't belong here
Post by seasonalboomer on Nov 20^th, 2007, 5:36pm

me neither, but everytime I signal for the driver to let me off, he just keeps driving past my stop......

so sit back and enjoy the ride.

scott

Title: Re: sometimes I feel like I don't belong here
Post by phil_h on Nov 20^th, 2007, 6:07pm

Charlotte , You are always a great addition and support to all on this board . You know it . You're family and belong here . You artists are sometimes a little too sensitive . That's part of your charm and beauty . You have been kind and encouraging to me and so many others . Stay put , you have an important roll in the family . Phil h ;) ;) ;)

Title: Re: sometimes I feel like I don't belong here
Post by cynjeep89 on Nov 20^th, 2007, 8:05pm

Charlotte,

You know how much many, many people here love you, me included.

You had better hang around or we will hunt you down. ;;D

Now if the threat of a bunch of CHs running around looking for you isn't enough to scare you into sticking around, I don't know what will.

Love ya, sweetie :-*

Title: Re: sometimes I feel like I don't belong here
Post by Charlotte on Nov 20^th, 2007, 8:14pm

Thank you.

Charlotte

Title: Re: sometimes I feel like I don't belong here
Post by barry_sword on Nov 20^th, 2007, 8:27pm

Charlotte, you mean more to us than you know. I read your posts and replies and respect you very much.

Barry :)

Title: Re: sometimes I feel like I don't belong here
Post by ski2k on Nov 20^th, 2007, 10:19pm

You better not be going anywhere!! I just started getting to know you! ;;D Of course you belong!

Thanks for being here!
Adam

Title: Re: sometimes I feel like I don't belong here
Post by Garys_Girl on Nov 21^st, 2007, 1:03am

Charlotte - I don't know what happened to make you feel that way, but you've been so helpful to so many. Certainly to me and Gary.

Every time I post any questions, I get inundated with 02 PMs and often posts. Sometimes, the people for whom it works forget (or don't know) that in studies and on the survey here, it's only effective for 70-some percent (72?) of people who use it. Some have tried using it - even correctly, and it doesn't help. So some may have made you feel like an idiot - but the beast is SO individual, and some see so black and white - but there are so many shades of grey!

What matters is that YOU are happy with your Neuro!

http://pages.prodigy.net/rogerlori1/emoticons/smileyhug.gif

Laurie

Title: Re: sometimes I feel like I don't belong here
Post by Annette on Nov 21^st, 2007, 3:17am

My goodness Charlotte, if you dont feel like you belong here then I am going to have a heart attack because I certainly feel I belong much less than you do ! Heck, I dont even have a headache to boast, I am just a supporter.

You have no idea how much you mean to me. All those PMs, all the time we spent in chat, all the wise motherly advices you have given me .... Your gentleness, your genuine concern, your love, your care ... Whenever I talk to you I feel like I am talking to a mother, you have always made me feel so much better.

You have soothed my pain with your loving, caring words and you have calmed my soul with your beautiful paintings.

You better not abandon me here because I dont want to become orphaned.

HUGS

PS: Who dared call you an idiot? >:( Let me at them and I will give them a piece of my mind !

Title: Re: sometimes I feel like I don't belong here
Post by LeLimey on Nov 21^st, 2007, 8:33am

I don't think there are many of us who haven't wished we didn't belong here Sweetness - I wish you didn't either BUT - I'm very glad you are here.

You do so much to brighten days and help show how pleasant life can be. Your paintings give me a simple pleasure thats no less important than anything else.

You've made me smile more times than I could begin to count and you've made me feel like a friend - and that I have a really good friend too.

I'm truly looking forward to meeting you one day. I have no doubt that will happen.

You have borne your difficulty to diagnose with a dignity and stoicism many of us would do well to emulate, you bring grace and beauty and a lot of smiles.

You are one of the threads of the tapestry of CH.com and every single thread is needed to make our fabric. Don't you even THINK of fraying from our cloth y'hear?!

lots of love
Helen xxx

Title: Re: sometimes I feel like I don't belong here
Post by Charlotte on Nov 21^st, 2007, 3:18pm

No, I am not leaving. I live here.

It seems like whenever my pain tolerance changes (better or worse), my emotions go a little out of wack and I do get overly emotional, and I just felt a need to explain.

Charlotte

Title: Re: sometimes I feel like I don't belong here
Post by Ray on Nov 21^st, 2007, 4:13pm

I think this sums it up:

Charlotte, we love you!

Ray

Title: Re: sometimes I feel like I don't belong here
Post by Garys_Girl on Nov 21^st, 2007, 9:35pm

on 11/21/07 at 15:18:18, Charlotte wrote:

As a supporter, I am SO familiar with these emotional swings - Gary experiences the same thing.

I'm sending more hugs!

http://pages.prodigy.net/rogerlori1/emoticons/grouphug.gif http://pages.prodigy.net/rogerlori1/emoticons/grouphug.gif http://pages.prodigy.net/rogerlori1/emoticons/grouphug.gif http://pages.prodigy.net/rogerlori1/emoticons/grouphug.gif http://pages.prodigy.net/rogerlori1/emoticons/grouphug.gif

Laurie

Title: Re: sometimes I feel like I don't belong here
Post by KJ on Nov 22^nd, 2007, 12:29am

I don't think I could live without the grey ghost here. My best chat pal, and a great friend. Feed your head (name the artist ;)) your own way.

Just never leave us.

KJ

Title: Re: sometimes I feel like I don't belong here
Post by brewcrew on Nov 22^nd, 2007, 11:09am

on 11/22/07 at 00:29:27, KJ wrote:

Feed your head (name the artist ;)) your own way.

Jefferson Airplane.

Title: Re: sometimes I feel like I don't belong here
Post by E-Double on Nov 22^nd, 2007, 9:43pm

:-*

Title: Re: sometimes I feel like I don't belong here
Post by Kirk on Nov 23^rd, 2007, 7:37pm

Oh you belong here alrite. Besides it would break way too many hearts if you left. And you're far too kind for that.
Don't let some MORON cause you to feel like an idiot. I deal with the VA all the time. So I know you're not one. Trust me on this.
Please stay. [smiley=smokin.gif]

Title: Re: sometimes I feel like I don't belong here
Post by gore2424 on Nov 24^th, 2007, 2:29am

you belong here and at the chat room i have enjoyed talking to you Ü Terry

Title: Re: sometimes I feel like I don't belong here
Post by HeadhurtinMama on Nov 24^th, 2007, 9:46am

Char,

I have always felt that you and I were floating in the same boat out on the fringe with our HA. I for one would be lost without you and all the others on this site. So, I just wanted to send you and your wacked out emotions a great big hug and say I love ya!

Bridget