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        Cluster Headache Help and Support >> Cluster Headache Specific >> Chiari Malformation - Firsthand experience/Insight
        
(Message started by: Mikella on Oct 22^nd, 2007, 12:23pm)

Title: Chiari Malformation - Firsthand experience/Insight
Post by Mikella on Oct 22^nd, 2007, 12:23pm

Just as the title says, I'm wondering if anybody here has/had a chiari malformation. Putting it out there, then I'll ask questions. Anybody have experience with them? Somehow know a lot about them? Because I have scoliosis (my spine is a backwards "S", luckily you can't really tell......) and have had severe severe neck problems, this is a real possibility......... (not going to get into all of the symptoms, no need). There is something (scary) structurally wrong with my neck I've been told (and know), but nobody has figured it out yet. If this is the case, it would explain the mind-blowing pressure in my head (it would be the build-up of cerebrospinal fluid) and all the other chiari malformation/cluster symptoms etcetcetc (some different, some the same). I'm also losing use of half of my right hand, which is the same side as the root of all my neck problems, the base of my skull on the right side. Not sure if this would be causing the "cluster" pain/symptoms, or if I may have both (which I think may be the most likely whereas I don't THINK a chiari malformation would explain the autonomic symptoms etc). This definitely makes sense, so I'm just looking for real insight. I don't know what to do until my appointments...... my next neuro appt. isn't until Dec. 4th.. I NEED an MRI. I've never had one for any of this. It feels like if I put a needle into my head, it would just pop. :o

Thanks for any info <3