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        Cluster Headache Help and Support >> Cluster Headache Specific >> Of demons and dream
        
(Message started by: BobbyEasland on Oct 16^th, 2007, 10:17am)

Title: Of demons and dream
Post by BobbyEasland on Oct 16^th, 2007, 10:17am

What is this new word "refractory" that my neuro is telling me about? Is it his way of telling me all previous abortives, preventives, and transitionals are not working like they use to? Could 10 years of dealing with the demon finally have given it a way back in permanently?

HELL NO! I've beat this demon on 21 separate cycles and won't give up now. I've come too far for that...I'm a survivor. Ironic though, since none of us can kick the demon off our island. Yet, tired I am. Weeks of sleep deprivation have me typing like Yoda in random thoughts.

I wonder why I come back here and post random thoughts every few cycles. I guess it's because there is nowhere else I can where the words make sense to others. They don't to my family, friends, co-workers...sometimes not even my doctors. They can witness a cluster but never truly identify with the pain. They can provide support yet can't feel the relief just after a cluster subsides (that "shit...thank god that's done" moment).

At any rate, I'll move on into the next phase of my domestic demon engineering career in a refractory world. Until I find the path to make it submissive again I'll dream of demons and dreams.

Oh, and hello again all.

Bobby

Title: Re: Of demons and dream
Post by DennisM1045 on Oct 16^th, 2007, 10:30am

Keep fighting the good fight Bobby! I hope you find a set of weapons that works for you quickly.

-Dennis-

Title: Re: Of demons and dream
Post by sandie99 on Oct 16^th, 2007, 11:00am

Wishing you PF days, Bobby.

Sanna

Title: Re: Of demons and dream
Post by Rosybabe on Oct 16^th, 2007, 12:31pm

Pain free wishes for you Bobby! don't let the beast win the battle!

Hugs

Rosy.

Title: Re: Of demons and dream
Post by Ray on Oct 16^th, 2007, 8:23pm

Refractory, heck, it just means that they want to give up on you....

At least they didn't add the word "intractable" to the list....

Keep fighting the beast one moment at a time, know your tools, and carry your head high.

With PF wishes,

Ray

Title: Re: Of demons and dream
Post by RichardN on Oct 16^th, 2007, 9:43pm

Ditto all the above and hoping you have the shortest cycle ever.

Be Safe, PFDANs

Richard