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        Cluster Headache Help and Support >> Cluster Headache Specific >> I am sorry
        
(Message started by: mdorr on Oct 9^th, 2007, 9:41pm)

Title: I am sorry
Post by mdorr on Oct 9^th, 2007, 9:41pm

I have done nothing but "take" from this site. I only come here when I am at the end of my rope in the worse stage in a cycle.

Yet here I am again, leeching away support and information during the peak of a cycle. It makes me feel guilty and sad, so.....

I am sorry. After reading all the posts over these last few days I am going to try and be more supportive of this site and all of the members who make up this family of sufferers.

Thank you so much for this site. I hate to know that we all suffer from this terrible affliction, but am comforted that it (and you all) are here to support me, and one another

Here's to a good nights sleep, free from the demon and the shadow he throws over us

With respect and gratitude
Matt

Title: Re: I am sorry
Post by DennisM1045 on Oct 9^th, 2007, 10:11pm

Hey Matt,

I found an open seat for you on the starboard gunnal. Here, grab this oar. Comfortable? Ok, now row.

It's simple. ;;D

-Dennis-

Title: Re: I am sorry
Post by AussieBrian on Oct 9^th, 2007, 10:14pm

Take, take and keep taking, mate, so far as I'm concerned. The reason we're here is to help others and if you find at some time in the future you're able to give a little back, well, that'd be nice too.

In the meantime, walk tall and get well soon.

Title: Re: I am sorry
Post by George_J on Oct 10^th, 2007, 1:35am

Well...

I first found this site in 2000, but I've only been active here in the past year-and-a-half.

Why? A lot of reasons, I suppose. Primarily I wondered what I really had to offer--after all, I'm not a doctor, nor am I knowledgeable about current medications. I'm not a particularly perceptive judge of what people most need to hear during dark times.

But you know what? When I first introduced myself, a few people extended a hand to me--people with whom I've become friends, although I've yet to meet them. We're very different people politically, socially, and in our outlook toward many things. But we have a common bond that surpasses all those things, this thing in our heads that unites us.

I started to try to contribute what I could, and one day I talked with a desperate supporter who was at the end of her rope, and I managed to somehow say one right thing that I believe made a small difference in her life, and the life of her sufferer.

It was then that I realized what I had to contribute--my experience with them. I'm an episodic clusterhead with forty years of these behind me, and what I can try to do is impart this one thing: A person can survive these, can live a fulfilling life that--juxtaposed against the pain--may be all the sweeter for the price that is paid. That we can learn to understand them, yes, and learn to fight them, but we can also laugh at them. Laugh in defiance.

We all have something unique to ourselves that we can contribute to this marvelous place.

Like Dennis said, grab an oar and start rowing.

Welcome aboard.

My very best wishes,

George

Title: Re: I am sorry
Post by Kevin_M on Oct 10^th, 2007, 3:06am

on 10/10/07 at 01:35:32, George_J wrote:

... I wondered what I really had to offer--after all, I'm not a doctor, nor am I knowledgeable about current medications. I'm not a particularly perceptive judge of what people most need to hear during dark times.

And here I am up in the middle of the night after emptying and changing out an oxygen tank, coming to the board and taking from George his contribution and only capable of listing more shortcomings to give back. CH isn't any precursor to much more than gaining the compassion that can be realized like you. Most surprisingly, I'm still here among only a dependency upon others for their words I see printed that instill me to comment understandibly similar from shared feelings many times.
And also taking from what George mentioned, your presence and attempts have the capability to matter to another in need. Grabbing an oar gets us all somewhere we would not be alone with this.

I appeared twice at first and only in cycle then, leaving for reasons now afterward harder to comprehend but learning different eventually from the examples here. Even if all I'm capable of is borrowing and agreeing with George on a matter, the repeating can possibly be comprehended as stressing his point and that of Dennis and Brian too that there is room and acceptance for sharing your reason for being here and understanding why. Helping comes in many different ways by just choosing to stay for others and others understanding your need to be here when the time comes, to learn, fight, and cope needing greater augmenting when dealing with all CH encompasses.

dip an oar when you can and be rowed when you find it hard.

Title: Re: I am sorry
Post by PollyPocket on Oct 10^th, 2007, 8:20am

Hi Matt. I've read your post a couple of times and I wanted to say that I fully understand where you're coming from. I too came and went from here for varying reasons, and felt I had nothing to offer to give me a reason to stay.

I still can't retain or offer a lot of help when it comes to meds (probably because there's more air going thru my head than brain matter), but even that one time when we can offer comfort or sit with a friend in chat who is going thru a rough time, can make a world of difference.

So don't feel like you don't have something to offer. Stay, take what you need, then stay when you're stronger.

Hugs,
Jen

Title: Re: I am sorry
Post by E-Double on Oct 10^th, 2007, 8:37am

no apologies necessary.
you do what you can.

some offer hugs while others offer research.

Compassion is what is mostly needed with a strong kick in the a$$ mixed in.

Read learn share!

best,

E

Title: Re: I am sorry
Post by Guiseppi on Oct 10^th, 2007, 11:18am

I used to get intimidated by Floridians, E-Doubles, Bob Johnsons', etc..postings. Extremely well researched, and CITED, postings about various medical trials. While postings like those are critical for understanding medications and treatments, I've learned posting how to slam an energy drink, or how to use a non re breather mask, can be just as beneficial to someone new.

I used to hide from the board when I was off cycle, believing that thinking about CH could start a cycle...(Oh shut up all of you, you've all had just as ridiculous beliefs about the beast at one time or another ;;D). I've since learned how helpful someone as "unlearned and uneducated" as me can be to an even newer person! So stick around and post away!!!

Guiseppi

Title: Re: I am sorry
Post by sandie99 on Oct 10^th, 2007, 11:23am

Matt,
you're here now, give what you can. You're the expert what comes to your ch and what you have been through can help others. Give your ch/life knowledge forward. :)

Hugs & PF days,
Sanna

Title: Re: I am sorry
Post by luveemom on Oct 10^th, 2007, 3:21pm

I agree with the "elders".....don't apologize....take what you need and just pay it forward when you are able...

PF wishes
Alicia

Title: Re: I am sorry
Post by DennisM1045 on Oct 12^th, 2007, 1:30pm

on 10/10/07 at 15:21:51, luveemom wrote:

I agree with the "elders

If one more person calls me old! ;)

-Dennis-

Title: Re: I am sorry
Post by Beastfodder on Oct 13^th, 2007, 5:29am

No need to thank anyone for support, we've all needed it and got it from here in the past.

Good to have isn't it ? - irrespective of whether you're age-challenged or not.

All the best

Title: Re: I am sorry
Post by horsegirl on Oct 13^th, 2007, 7:09pm

I to left the sight for a brief time after my cycle for a variety of reasons , one because I didn't want to hear the word clusters , even a cereal commercial with the word clusters would make me cringe :)also I seemed to have butted heads with a few people, but I got so much support at the same time, So I just made the decision to stay and learn, listen, and support. and keep most of my oppinions to myself, except I still hate watching that guy hit the other guy in the face with a fish over and over , specialy when I have a shodow headache or something [smiley=laugh.gif] thanks to you all for helping me through my last cycle.

Title: Re: I am sorry
Post by mdorr on Oct 16^th, 2007, 7:52pm

All very well put! And thanks!

[smiley=laugh.gif]

Title: Re: I am sorry
Post by phil_h on Oct 16^th, 2007, 8:05pm

I LOVE THIS PLACE........THANK YOU ALL AND WELCOME TO ALL............I STACKED THE BOARD BEFORE POSTING>>>>>>>>>> I LOOKED FOR OTHERS TO ASK MY QUESTIONS>>>>>IT'S MORE EFFECTIVE TO TAKE WHAT YOU NEED AND THEN SUPPORT WHEN ABLE.......I KNOW I'M TIRED OF LIVING IN THE SHADOWS AND DARKNESS ALONE...............I LOVE THIS PLACE..... phil h

Title: Re: I am sorry
Post by mdorr on Oct 17^th, 2007, 5:02pm

Am I the only one who has actually had relief from a CH (without meds) at any time by just reading these boards?

Strange.....

Title: Re: I am sorry
Post by aceserve on Oct 17^th, 2007, 6:24pm

I am CH free these days, but am visiting the site. I am here for anyone that needs help, though there are wiser people than me in this community.

If only my moral support serves as a small slice of payback for the help and camaraderie I have received on clusterheadaches.com, I give it totally.

But I am ready to give advice or a shoulder to those in need.

Best,
Andrew