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Title: Episodics - are you in season yet? Post by Beastfodder on Oct 1st, 2007, 6:06pm Always been an Autumn (fall) CH sufferer of seven years standing (and crawling round the bathroom floor), with the irritating exception of a cluster this spring. Each year's a bit like jumping off a very tall building - so far so good, so far so good, so far so good .... and then splat. Haven't gone splat just yet and past diaries show I'm due, so wondered how many other episodics were doing out there with the seasonal visits? Could it be one of the very good things about global warming that these things are getting later and later in the year, or has pre-emptive alternative dosing actually busted this year's cycle? |
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Title: Re: Episodics - are you in season yet? Post by Guiseppi on Oct 1st, 2007, 6:13pm Mine always fall a little closer to the time changes. I started shadowing a month ago, then nothing. I'm hoping it's like a mild case of the chicken pox....so now I'll be immune for the rest of the year!!!! ;;D (Hey, a guy can hope)... As much as you can don't sweat it. Keep your meds handy and enjoy the pain free time. He'll pay a visit soon enough!!! Here's wishing you a skipped cycle or two. Guiseppi |
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Title: Re: Episodics - are you in season yet? Post by George_J on Oct 1st, 2007, 6:31pm Back when I cycled twice a year, my fall cycle usually started somewhere around Halloween. (Pretty appropriate.) I haven't had a fall cycle in around ten years, though. Here's hoping it continues. Hope you skip this one as well. Best, George |
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Title: Re: Episodics - are you in season yet? Post by DennisM1045 on Oct 1st, 2007, 7:37pm This cycle started August 17th and is still ramping up. More attacks each week than the week before. O2 and Imitrex are working to abort. I'm only using one shot a week so far and aborting the rest with pure O2. 3 m-tanks and 8 e-tanks so far. Melatonin is keeping the early am hits away but I've woken up to some real bangers. To tell the truth I am beginning to get a bit worn down. Hopefully it'll end soon. I'm done whining now. ;) I hope you don't splat this fall. Hell maybe I'm taking yours for ya ;;D Now that'd be cool 8) Wishing you PFDAN... -Dennis- |
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Title: Re: Episodics - are you in season yet? Post by Beastfodder on Oct 2nd, 2007, 7:36am Thanks for this, sorry you're going through it Dennis. The O2 tank is ready to rumble and clustermasx on standby. So far so good. Normally they've been literally a few days apart over the past three years when the cycle started and I'm definitely not missing them. Any celebrating will wait well into November. Thing is I don't remember a cycle back in '97 when I trained to do a marathon. That was enough to persuade me to leave marathons alone for a good ten years - until this year when I found my name down for a half marathon next weekend. Call me superstitious but once this one's run and if I'm still cluster free then it looks like I'll have to make marathons an annual event. |
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Title: Re: Episodics - are you in season yet? Post by DennisM1045 on Oct 2nd, 2007, 7:53am That sounds like a win-win to me ;;D Good luck... -Dennis- |
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Title: Re: Episodics - are you in season yet? Post by chewy on Oct 2nd, 2007, 8:40am My neuro's office used to call me every September to remind me to get my ass into the office to prepare. Its been 5 years since my last cycle. I dont miss it. |
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Title: Re: Episodics - are you in season yet? Post by Bob P on Oct 2nd, 2007, 9:48am Been a little over two years since last cycle ended. Should be good for another year and a half (or maybe never again). It's the up side of getting old. Then again, I had my heart cathitered and my ass hosed last month! |
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Title: Re: Episodics - are you in season yet? Post by kimmiedawn81 on Oct 2nd, 2007, 9:58am Yep, I'm in cycle! However, I did skip my cycle last year...that was the first one I'd ever skipped. I hope you are getting the same relief that I did!! Enjoy it! My cycle this year started 3 weeks after my wedding...what a wedding present! Ha ha! At least it didn't start on the honeymoon...I'm thankful for that. |
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Title: Re: Episodics - are you in season yet? Post by Lonnie on Oct 2nd, 2007, 10:51am I shadowed for a while then around the August 17th. they started. Best I can recall they follow |
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Title: Re: Episodics - are you in season yet? Post by seasonalboomer on Oct 2nd, 2007, 11:13am Nope, got mine out of the way before the Fall rush ;;D It was a Shakesperian cycle: "Midsummer Night's Dream" |
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Title: Re: Episodics - are you in season yet? Post by GaWd on Oct 2nd, 2007, 12:05pm Yep, I'm in season. My clusters have always fallen on the summer/fall season change. After 5 or 6 years of remission, I'm back and in fine form. Yay. Sam |
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Title: Re: Episodics - are you in season yet? Post by justthe2ofus on Oct 2nd, 2007, 4:58pm starting right on schedule for me...few shadows then a real hit Saturday morn. Even worse of a hit last night and today, and thus....here we go again.... ::) |
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Title: Re: Episodics - are you in season yet? Post by mathieulives on Oct 2nd, 2007, 5:18pm I'm Episodic Autumn. Right at the end of baseball season and my bday.. and it started up last week... started verap today... and so far not too bad...i'm hoping for the best. :'( |
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Title: Re: Episodics - are you in season yet? Post by Beastfodder on Oct 2nd, 2007, 7:11pm Do remember watching the Rugby World Cup final in November 2003 through an attack toward the back end of a cycle which did the decent thing by the end of the second half. But I do suspect this weekend's game could be bad enough to start a whole new cycle. Damn strange things. Incidentally hope the colonic irrigation wasn't a trigger, a fella needs something to look forward too in later life! |
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Title: Re: Episodics - are you in season yet? Post by cyberone on Oct 3rd, 2007, 1:30pm its only my second year on this... last year 3 months of hell over Japanese hot summer.... im really surprised im still here.. this year a hard but fast cycle at the start of summer... but now as we are getting into fall its starting all over again... i hate this shit... they say its got to do with light/day lenghts or position on the planet.... i think its getting time to leave japan after this shit is finished this time... |
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Title: Re: Episodics - are you in season yet? Post by mcf69 on Oct 5th, 2007, 12:28am Nope, I'm not in cycle yet, but I can guarantee that the 20th of Dec, give or take a few days, I will be. Been like that for at least 5 years, I can almost set my calendar to it. |
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Title: Re: Episodics - are you in season yet? Post by Maffumatt on Oct 6th, 2007, 11:25am Yes I am. |
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Title: Re: Episodics - are you in season yet? Post by michael on Oct 6th, 2007, 12:23pm February to April |
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Title: Re: Episodics - are you in season yet? Post by rolo65 on Oct 6th, 2007, 12:37pm January through December [smiley=hammer.gif] |
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Title: Re: Episodics - are you in season yet? Post by Whipsmart on Oct 6th, 2007, 7:30pm Started a couple weeks ago. Taking a bunch of stuff now that seems to be helping. Fall isn't usually too bad. It's the spring ones that are eye-poppers. |
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Title: Re: Episodics - are you in season yet? Post by 1968eric on Oct 6th, 2007, 11:40pm I just came in season a couple weeks ago only they aren't as regular as they used to be - miss a night here and there, but then I also get a bunch during the day now here and there. |
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Title: Re: Episodics - are you in season yet? Post by MJ on Oct 8th, 2007, 2:11am Glad your possibly bypassing another cycle Beast. I have been thinking about quitting CH alltogether. We should all try it. ;) Catheter and hosing ...hmmm.......Nahhh..... My thoughts are with you that are hurting and hope its a short cycle with ever milder hits. I know your pain too well as do so many others. |
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Title: Re: Episodics - are you in season yet? Post by sandie99 on Oct 8th, 2007, 3:26am Week 16 going... past few days have been easier, so I'm hoping that this this time around October means PF for me. :) I'm not counting on that, because my first ch cycle started in October and it's traditionally been worst ch time for me. Let's just see how this one goes. I'm keeping my optimism, though! :) PF days to all, Sanna |
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Title: Re: Episodics - are you in season yet? Post by Beastfodder on Oct 9th, 2007, 5:47am Having done my (first) half marathon at the weekend and one pre-emptive alternative therapy some four weeks back, it's all good so far. Really didn't enjoy the alternative dosing at the time and thought I might have overdone things at the time compared to previous years. But at this rate it's an awfully small price to pay if this carries on. Looks like the running schedule won't be tapered down for a bit yet either, which is just fine by me since I'm enjoying the post race euphoria now the aches and pains are going. |
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Title: Re: Episodics - are you in season yet? Post by thomas on Oct 9th, 2007, 1:21pm Not yet. [smiley=cool2.gif] |
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Title: Re: Episodics - are you in season yet? Post by JDH on Oct 9th, 2007, 3:02pm It s/b be hammer time at my house right about now through the end of the year but thanks to clusterbusters I haven't had to deal with it in almost 5 years....not bad eh? ;) Jim |
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Title: Re: Episodics - are you in season yet? Post by clusterf_ked on Oct 9th, 2007, 4:23pm Yes, 2 weeks into my usual 5-8 week cycle. Mine recur about every 14 months, so can't say it's absolutely seasonal for me. stevo |
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Title: Re: Episodics - are you in season yet? Post by mdorr on Oct 9th, 2007, 6:19pm Like clockwork during Labor Day weekend and just getting worse. Just using Zomig and gallons of water. Weird cycle this time- A LOT of shadows, no specific time of day for the CH and either a real mild one or a 3 hour 10 that has me at the end of my rope. I quit smoking 6 days ago and am taking Chantix for that. I thought there might be a correlation but the doc says no. This sucks! I long for when I outgrow these but at 34 the demon and I have decades to go |
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Title: Re: Episodics - are you in season yet? Post by Beastfodder on Oct 10th, 2007, 6:34pm Mdorr Sorry it's not the best right now, but there are two ways of looking at it, after a few years you'll be fully trained in CH combat which is pretty good when you've found your own way to beat the little bastard. Do try hi-flow o2 - pretty good incentive to stay off the ciggies too - at least when you're on the cylinder. The seeds option may be good to try as well. |
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Title: Re: Episodics - are you in season yet? Post by plungerjoke on Oct 11th, 2007, 4:13am this is my third time getting them the first round was when i was 18, and it was misdiagnosed as sinus headaches... this is when i first discovered the saline spray feeling pretty good even if it doesnt actually help anything... also getting the gunk out of my right nostril seems to help with pain management as well second round was when i was 20, and man was it horrible... i figured out what they actually were, fell way behind in school, and didnt really ever catch up (though some resourcefulness allowed me to pass all my classes in not too bad of shape) this time i am just at the beginning but sure enough, unmistakable pain... got some "shadows" i guess you guys/gals call them the other day, couple nights ago sure enough... head is a'catchin on fire around 4 in the morning. I find that chugging water in the garage kind of helps more than anything... im scared as shit to go to sleep bc i know that i will almost certainly wake up with a horrible one soon after but hey, eyes are tired, i am so glad i found this place! |
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Title: Re: Episodics - are you in season yet? Post by birdman on Oct 11th, 2007, 1:24pm If not now, the time change usually gets me. Started a pre-emptive attack thanks to clusterbusters and hoping for the best. Good luck all! Tim |
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Title: Re: Episodics - are you in season yet? Post by Buzz on Oct 11th, 2007, 1:32pm My headaches came back 2 weeks ago, took the weekend off and are now back with a vengeance...about 10 over 24 hours... that's a lot of Red Bull. I have big eyes and my head is still about to explode! [smiley=bomb.gif] Agh. Bloody headaches... |
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Title: Re: Episodics - are you in season yet? Post by Mudflaps_Melissa on Oct 11th, 2007, 2:01pm Mine usually turn up about every 18 months, usually in September, but due to my past 2 pregnancies and now this one, they'll turn up within 4 weeks after I give birth. I knew what I was getting into before I became pregnant, but it still saddens me to enjoy my newborn with a cycle. :'( |
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Title: Re: Episodics - are you in season yet? Post by mdorr on Oct 17th, 2007, 5:10pm on 10/10/07 at 18:34:56, Beastfodder wrote:
I didn't want to imply that these are new. I am in my 12th year of these. I have tried Chinese herbs, acupuncture, O2, Verapamil, Prednisone, Schrooms, seeds, Axert, and so one. The 02 rocks, but I get hit at the most crappy times (not that there is a good time). I was more curious if anyone had any noticible change due to chantix and quitting smoking. Here's to a few pain free days for us all..... |
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Title: Re: Episodics - are you in season yet? Post by VinceFromOhio on Oct 17th, 2007, 8:01pm on 10/09/07 at 18:19:07, mdorr wrote:
This is advice based on my OWN experience. Please don't think I'm preaching to you. If this turns out to be wrong for you, I'm sorry...this is based on what happened to me: Don't give in to the overwhelming urges you're about to have to smoke - even on the Chantix. The beast will soon taper....to the point of disappearing altogether. This takes about 3 weeks. During that time you'll have one or two more REALLY bad ones...and several mild. After the headaches disappear, your desire to smoke will also dissipate. You'll know you want "something"...but you won't know what. It won't be a cigarette. If you're episodic, your next cycle should be YEARS away....not one year to 18 months. When you DO revisit Clusterville, the episode will only last DAYS....not months. Then....gone...for YEARS again. This condition will become a cautionary tale in your life at this point....just stay off the cigs and avoid 2nd hand smoke. Again, this is based on what happened to ME. I pray you'll get the same results. Best Always, Vinnie |
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Title: Re: Episodics - are you in season yet? Post by aceserve on Oct 17th, 2007, 8:18pm I have been hit in the summer, and in the winter. And when I moved to south of the equator, and winter became summer, I was also hit. So the seasons don't seem to be a factor for me, but several episodes have happened while I was traveling. I was hit in Florida on New Years Eve on vacation once, and biking in Oregon also on vacation, in the summetime. Go figure. |
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Title: Re: Episodics - are you in season yet? Post by cjc68 on Oct 17th, 2007, 8:44pm Mine started 2 nights ago, not even a shadow to give me a warning, It was 2 times that night at around a kip 4, I stayed up for the rest of the night and got my butt into the Doc that next day. It has been 2 years since my last bout but last time they started in August, lasted for 2 months then the stopped for 2 1/2 weeks and they changed sides and lasted for another 2 months. I had been in remission for 4 years that time, I guess the beast decided to make up for the lost time....lol. |
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Title: Re: Episodics - are you in season yet? Post by mdorr on Oct 17th, 2007, 10:04pm Thanks Vince! It's been 2 weeks without a cig and you are right! Hard to tell if I am at the end of my cycle or if the non-smoking has helped (or both). And you are also right about the need for something, not sure what it is, but it's there in the back of my mellon nagging me. Strange, I miss smoking something aweful, but when I did smoke I hated when people smoked near me and would never smoke in my house or car- so that has made it pretty easy to keep away from temptation. AndI try to keep away from booze during the cycle, and that was the biggest reason I smoked. cheers |
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Title: Re: Episodics - are you in season yet? Post by VinceFromOhio on Oct 18th, 2007, 11:09am on 10/17/07 at 22:04:03, mdorr wrote:
GREAT news!! Here's a tip for the "something" you can't put your finger on: WATER! Keep a bottle of water with you wherever you go. No matter how much your brain tells you "No, that's not what you want", still satisfy the craving for "something" with a swig or two. Again, that's what worked for me. Incidentally, I went back to smoking (like an idiot) and the clusters came back just like before. I've just received a prescription for Chantix....so I'm going to attempt to follow YOUR example! Best....Vince |
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Title: Re: Episodics - are you in season yet? Post by barnythebear on Oct 18th, 2007, 5:32pm I used to be a spring cycle person and as of 4 years ago on holiday in Canada went to autumn. Then nothing for 4 years and this year without warning splat. Not even an alcohol starter and to be fair alcohol has not been a trigger this time. Why the changes? Never been a smoker, interested to see the possible links. Strange little fellows aren't they. I'm virtually out of it now about 4-5 weeks still some shadows but what the hey life is getting back to normal. Maybe it will be longer next time, one can but hope. Good luck to you all. |
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Title: Re: Episodics - are you in season yet? Post by BlueMeanie on Oct 18th, 2007, 10:11pm Ever since my CH cycles stopped 4 years ago, I've had cycles of shadows every Spring & Fall. I am into week 2 of this cycle which has never gone past a KIP 3. It's just more of an annoyance than anything and it really doesn't count, but I can tell I am in a cycle but the Beast never shows up. :o |
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Title: Re: Episodics - are you in season yet? Post by lexi919 on Oct 19th, 2007, 11:47pm my first one started in the fall of 2005 then i had a full 2 years off. then i am at work about a month or so ago and bam. you know what is really weird i had no warning at all, i remember about 20 min or so before i felt great like the best i had felt physically in 6 months or so, it was a 7 or so on the scale so i headed to the truck grabbed the imitrex nasal and snorted it and paced around for 45 min or so and then it backed off enough for me to go home. |
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Title: Re: Episodics - are you in season yet? Post by slacker032 on Oct 29th, 2007, 8:17am Yup...just started my autumn cycle this past week. Here I am - up at 5:15 am after a KIP 9 and wide awake from chugging a Red Bull. Can't wait to dose on the seeds again on Tuesday. |
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Title: Re: Episodics - are you in season yet? Post by Shedz on Oct 29th, 2007, 8:22am Oh yea, its def playtime again for me >:( but he'll NEVER win ;;D |
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Title: Re: Episodics - are you in season yet? Post by Beastfodder on Oct 29th, 2007, 7:41pm Fascinating feedback. Confess that I'm yet to go splat which is pretty good. A bit apprehensive, but definitely in a far better place than the past few years. Allegedly fresh liberty caps are out now which might be nature's reminder to get a five week top-up in to get through November and actually miss a cycle. |
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Title: Re: Episodics - are you in season yet? Post by DennisM1045 on Oct 29th, 2007, 9:00pm Good luck to you Beast. I hope he skips your door this year. -Dennis- |
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Title: Re: Episodics - are you in season yet? Post by Dave_C on Oct 29th, 2007, 9:27pm I am definately right on schedule. I have always started in the beginning weeks of october. I have been in cycle now for two weeks. today was my first pf day. I am really grateful for that. I really hope this one bypasses you. :-/ |
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Title: Re: Episodics - are you in season yet? Post by signdog on Nov 2nd, 2007, 12:59pm This is year 3 for me, my cycles start mid Oct. & last about a month. I just found this site a couple of days ago & heard about melatonin. Aside from day hits, I seem to always get one at night. I tried the melatonin last night, it sure knocked me out, but I was awake in an hr. with pain. Does it take a while for the mela. to work, or am I one of those people that in doesn't work for? |
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Title: Re: Episodics - are you in season yet? Post by Sympatico on Nov 2nd, 2007, 8:04pm I to all the CH family! It's been a while since i've been here... I was here sometimes this summer to talked about the Kudzu treatment that did a hell of a job for me last year! I've started the Kudzu like usual in the first week of august, time that the Beast usually come back. But for the 2 regular months of cycle nothing, not even a shadow... Stopped the Kudzu at the date usually the beast goes, nothing! After a month without Kudzu and no symptoms got hit last thursday with a vengeance, Kip10 and nausea like i've never had before... Since then got hit 4 times with Kip 10 sometime twice a day, aborted almost all of them with Zomig nasal except one! Started back on Kudzu Wednesday, i hope that this will break the cycle fast because i don't have any energy to fight the beast this year... I taught the Beast passed away this season but i should never underestimate her! So for the next 2 months, time that cycle ordinary last, i'll keep my Zomig nasal near me and take my 6 pills a day of Kudzu... Wish to all of you a lots of PF days... |
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Title: Re: Episodics - are you in season yet? Post by Shedz on Nov 2nd, 2007, 8:36pm The thing that gets me every year is that, you know its gonna hurt, you're only too aware its gonna hurt......... But that first hit of the season always knocks the shit out of me, and you're never ready for the pain........... But he'll never win ;;D Paul ;;D |
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Title: Re: Episodics - are you in season yet? Post by BobG on Nov 3rd, 2007, 3:16pm on 10/18/07 at 22:11:42, BlueMeanie wrote:
I'm like BlueMeanie, only I just get the Spring shadows. Usually end of January to beginning of March. It's good to be old. |
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Title: Re: Episodics - are you in season yet? Post by outlaw67_11 on Nov 3rd, 2007, 5:53pm hello when i started getting full cycles they began in the spring for 2-3 months than remission for 2-3 years the last 2 cycles though have started the first part to the middle of october. i started this cyle 3 weeks ago after a 3 year remission my doc put me on prednsion 50 mgs to taper down and 240 mgs of verapimil ( 80 mgs 3 x a day ) i was pf yesterday and last night thank god but have been having light shadows all day today so im afraid i may be in for a long night. i have trex nasal for abortive and works well not as well as the shots but still works and ice packs. i use to think it was due to my allergies but those are in the spring. i am wondering though if tmj can trigger them. i have determined that high stress and lots of chocalate can trigger them but i think there is something else there with it where they only cycle every 2-3 years idont know maybe im just reaching. anyways thanks for listening to my ramblings lol |
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Title: Re: Episodics - are you in season yet? Post by RayU on Nov 4th, 2007, 4:02pm A month ahead of schedule this year probably due to a stressful year, excessive long-haul travel across time zones and a bereavement. This hopefully means it will end a month earlier and I will have an alcohol infused festive season... |
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Title: Re: Episodics - are you in season yet? Post by Ree on Nov 4th, 2007, 9:41pm Dave has had his cycles in all four seasons... I always try to think of things that happen around his cycles... He usually starts after a stressful time has ended...First cycle I remember was started at a John Cougar Mellencamp concert on Fathers day 1988~ When we got married... June... 1991 he started in July. Breezy was born May 1994 Dave started in June that year. In 1997 it was Aug and that cycle lasted 7 months. That one started with a trampoline injury. He had to be hospitalized with DHE to stop that cycle.... I can remember his next one starting after we finished the Christmas shopping 1999... Breezy was about 5 then it was I think 2000 when I found ch.com. We went to a Convention in 2003 and the Beast followed us there. Dave coincidentally or ironically got hit there and started his cycle. In 2005 My Dad died in June and Dave started his cycle in the end of Aug early Sept. This is not a perfect account. I don't think he has ever started in the spring that I can recollect but I know he has cycled through a springtime... His remissions used to be 3 years and are now 18 months to 2 years in between his last cycle was this time of year two years ago almost exact.I know that because of the dates on his Neurontin bottles were September 5, 2005. His cycle started on Sept 8th this year and we are still hanging in there I know I missed a cycle somewhere in there. Hope this helped... Ree |
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Title: Re: Episodics - are you in season yet? Post by voc417 on Nov 5th, 2007, 11:24am started on october 3rd, still goin strong. will have them again at the end of march too. LOVE IT!! kill me now damn it! |
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Title: Re: Episodics - are you in season yet? Post by jackieg on Nov 7th, 2007, 11:05pm My cycles used to be a summer thing. I'm a teacher and I always thought it was due to a change in my sleep pattern and work schedule. Then I was hit in the winter twice. The last several cycles have started in October. This cycle started October 2, 2 days after the I watched the Mets historic collapse. I am a huge fan and was up very late for 3 weeks watching them lose game after game. I know it sounds silly, but I think the stress and disappointment of that , the drinking at the stadium with friends (lots of drinking to help forget the impending doom) and one very long workout on the treadmill got this one started. I get hit every other year in the fall now. I'm not sure stress is key because there have been many stressful periods in my life that have not brought on a cycle. It just seems to be a planned thing in the brain. The trick is knowing the signals and working hard to stop a cycle during a vulnerable time. Unfortunately, I had no signs this time. I thought I still had some time before I had to worry. I just hope that this cycle ends before Christmas which would be at 12 weeks. That's on my list for Santa! |
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Title: Re: Episodics - are you in season yet? Post by inyoureye on Nov 9th, 2007, 8:06am Strong hits since Oct 5. I often have a few very bad, consecutive nights right before it breaks. I had those nights (3 in a row of 7-8 hits that reach kip 9-10) about 2 weeks ago. My beast is changing, it's still here. |
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