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        Cluster Headache Help and Support >> Cluster Headache Specific >> 22 days
        
(Message started by: MR_FLOOR on Sep 28^th, 2007, 11:10pm)

Title: 22 days
Post by MR_FLOOR on Sep 28^th, 2007, 11:10pm

I think I'm at 22 days I kinda lost track I know that sounds crazy but I think my last hit was on the 6th.This is my longest stretch since my last Histamine treatment almost 3 years ago.
Could I be turning episodic ,that I could dig..Go me.

Dave

Title: Re: 22 days
Post by sandie99 on Sep 29^th, 2007, 2:41am

Dave,

That's just wonderful! :)

I'm so glad to hear that you've been PF long enough to lost track! :D I, for one, do hope that this means that you are episodic - but the kind who stays PF for a long, long time... like for good. ;)

It's morning here in Finland as I write this and I must admit that this is the best kind of news one could get first in the morning! :)

Lots of more PF days,
Sanna

Title: Re: 22 days
Post by MR_FLOOR on Sep 29^th, 2007, 2:53am

Thanks Sanna.It is pretty cool

Dave

Title: Re: 22 days
Post by Wayne on Sep 29^th, 2007, 3:56am

Thats Grand Dave, simply grand. Are you still on any prevents or are these things going away by themselves?

Title: Re: 22 days
Post by phil_h on Sep 29^th, 2007, 5:43am

AHHH ! Going episodic on us...... Stay pf and don't look back........ Enjoy.... Wishing continued pfnad's. phil h

Title: Re: 22 days
Post by aloneuk on Sep 29^th, 2007, 6:31am

fanfuckingtastic

;;D ;;D [smiley=headbanger.gif] [smiley=headbanger.gif]

Title: Re: 22 days
Post by barry_sword on Sep 29^th, 2007, 7:23am

22 days!! That is friggin great news. Hope this continues for you bro. Must be nice getting some much needed sleep after all this time. [smiley=sleep.gif]
Enjoy your PF time.

Barry

Title: Re: 22 days
Post by DennisM1045 on Sep 29^th, 2007, 8:20am

That's awesome Dave! I love it when people get some serious PF time. [smiley=headbanger.gif] [smiley=headbanger.gif] [smiley=thumb.gif] [smiley=thumb.gif]

-Dennis-

Title: Re: 22 days
Post by nani on Sep 29^th, 2007, 12:20pm

YAY!!!! May it last forever, Dave.
hugs, nani

Title: Re: 22 days
Post by MR_FLOOR on Sep 29^th, 2007, 9:29pm

on 09/29/07 at 03:56:42, Wayne wrote:

Thats Grand Dave, simply grand. Are you still on any prevents or are these things going away by themselves?

480 mg of Verap.

23 days and counting. ;;D

Dave

Title: Re: 22 days
Post by Ray on Sep 29^th, 2007, 9:34pm

Dave:

Each day is a victory over the beast. Cherish each one and make yourself and your family proud! I am cheering from the bleachers!

Ray

Title: Re: 22 days
Post by MR_FLOOR on Sep 30^th, 2007, 11:26pm

Thanks Ray,

24 still counting.It's unbelievable I don't even think about getting hit.

Dave

Title: Re: 22 days
Post by phil_h on Oct 1^st, 2007, 8:55pm

[smiley=wow.gif] [smiley=thumb.gif] I hope you continue to be pf.....quietly continue ,so the beast doesn't awaken........ phil h

Title: Re: 22 days
Post by MR_FLOOR on Oct 2^nd, 2007, 11:35pm

I say f**k the beast 26 days pf and still counting.Just call me
mr episodic . ;;D

Dave

Title: Re: 22 days
Post by MR_FLOOR on Oct 3^rd, 2007, 7:59pm

Title: Re: 22 days
Post by Wayne on Oct 4^th, 2007, 8:15am

F&^$#n A Man!!!!!

Title: Re: 22 days
Post by phil_h on Oct 4^th, 2007, 8:24am

Just 3 away from qualifying for BEASTMASTER.............Ride that wave..... phil h

Title: Re: 22 days
Post by MR_FLOOR on Oct 7^th, 2007, 3:54am

30 days. Does this mean I'm episodic? :)

If this keeps up I'm going to have a couple of beers. Do I dare?

Dave

Title: Re: 22 days
Post by phil_h on Oct 7^th, 2007, 6:07am

Great.... I think I'd just kick back and not have a HA.......Enjoy the pfnad's for awhile longer, before celebrating being episodic............ the beast maybe thirsty too.................. phil h

Title: Re: 22 days
Post by MR_FLOOR on Oct 7^th, 2007, 9:33am

on 10/07/07 at 06:07:30, phil_h wrote:

Great.... I think I'd just kick back and not have a HA.......Enjoy the pfnad's for awhile longer, before celebrating being episodic............ the beast maybe thirsty too.................. phil h

Your probably rite Phil,and believe me I am enjoying it.

Dave

Title: Re: 22 days
Post by phil_h on Oct 7^th, 2007, 12:05pm

All of this resulting from a car crash ??? Makes me hopeful that I may become episodic one day....... :) phil h

Title: Re: 22 days
Post by George_J on Oct 8^th, 2007, 2:14am

Dave, I'd like to be the first to formally welcome you to Episodicville.

:)

May you continue painfree for a very long time.

Best wishes,

George

Title: Re: 22 days
Post by sandie99 on Oct 8^th, 2007, 3:15am

Yahoo! Congratulations, Dave! :)
May this PF period last for a long, long time! :)

Hugs & PF days,
Sanna

Title: Re: 22 days
Post by Wayne on Oct 8^th, 2007, 8:15am

on 10/07/07 at 03:54:16, MR_FLOOR wrote:

30 days. Does this mean I'm episodic? :)

If this keeps up I'm going to have a couple of beers. Do I dare?

Hey Dave

I can drink with Verapamil, just need to be carefull that I remember to take it. No reason why you shouldn't give it a try I suppose. Just keep a Redbull or three close just in case. When I first tried a beer, after about 6 weeks alcohol free I was Shi&^%g myself but no problems, not even a shadow.

Good luck mate, may the PF days last forever.

Title: Re: 22 days
Post by DennisM1045 on Oct 9^th, 2007, 1:04pm

[smiley=beer.gif]

Have one for me too Dave!

-Dennis-

Title: Re: 22 days
Post by schaan on Oct 11^th, 2007, 1:22am

ah 3 hours later i get to this post and understand the earlier one about beer #2.

good luck

Title: Re: 22 days
Post by MR_FLOOR on Oct 13^th, 2007, 3:22am

35 days still not even a shadow ;;D

Dave

Title: Re: 22 days
Post by phil_h on Oct 13^th, 2007, 5:32am

you're the man ............. continued pfnad's ................. [smiley=me&mb.gif] [smiley=sayyes.gif] [smiley=me&mb.gif] phil h

Title: Re: 22 days
Post by aloneuk on Oct 13^th, 2007, 7:40am

dave im SO happy for you !

may it continue for ever !

Title: Re: 22 days
Post by sandie99 on Oct 13^th, 2007, 8:43am

Dave, that's brilliant! Congrats! :)

PF days,
Sanna

Title: Re: 22 days
Post by MR_FLOOR on Oct 13^th, 2007, 8:44am

on 10/13/07 at 05:32:29, phil_h wrote:

you're the man ............. continued pfnad's ................. [smiley=me&mb.gif] [smiley=sayyes.gif] [smiley=me&mb.gif] phil h

Thanks Phil,I'm happy too

Title: Re: 22 days
Post by MR_FLOOR on Oct 13^th, 2007, 8:48am

Thanks Sanna,Thanks Alone. I don't know what I'm doing rite but I hope I keep doing it.

Dave

Title: Re: 22 days
Post by sandie99 on Oct 13^th, 2007, 8:56am

on 10/13/07 at 08:48:14, MR_FLOOR wrote:

I don't know what I'm doing rite but I hope I keep doing it.

That sounds just like how it is with the beast... Something's working, but what?. :)

I do hope that this PF time will last for a long, long time.

PF days,
Sanna

Title: Re: 22 days
Post by DennisM1045 on Oct 13^th, 2007, 9:33am

I'm so happy for ya Dave. That's aweome! Let's hope it's contageous ;;D

-Dennis-

Title: Re: 22 days
Post by MR_FLOOR on Oct 16^th, 2007, 12:28am

37
;;D

Title: Re: 22 days
Post by sandie99 on Oct 16^th, 2007, 2:41am

That's wonderful, Dave! :)

PF days,
Sanna

Title: Re: 22 days
Post by phil_h on Oct 16^th, 2007, 7:59am

[smiley=thumb.gif] and on and on................ phil h

Title: Re: 22 days
Post by Emily on Oct 17^th, 2007, 8:59am

That's amazing! It must be an awesome feeling. I just had 4 days PF (one was even a weekend day, when I didn't have to work!) and I didn't know what to do with myself. Just as I was realising this morning that it had been 4 whole days, the shadows returned (about 6 hours ago). Boo! I was hoping you PF days were contagious... [smiley=laugh.gif]

Title: Re: 22 days
Post by CostaRicaKris on Oct 17^th, 2007, 5:00pm

Good for you Dave! Keep Going! Forget Episodic – Go for Remission. I was PF for 4 years before they came back. Or better yet, maybe it’s Goodbye CHs for you. ;-)

Title: Re: 22 days
Post by MR_FLOOR on Oct 19^th, 2007, 12:29am

I wish is was that easy Chris,not that I'm not hopeful,but for now it's one day at a time and it's now 40 days ;;D

Dave

Title: Re: 22 days
Post by Angie on Oct 19^th, 2007, 8:19am

Awsome news Dave

Many more PF days ahead.

Title: Re: 22 days
Post by phil_h on Oct 19^th, 2007, 8:19am

You give us chronics great hope........ we all need the hope and dream of pfdan's............... also I wish you would pass on the magic...... Enjoy the painfree time , you so greatly over paid for in the dark...... Keep the updates coming............. phil h

Title: Re: 22 days
Post by MR_FLOOR on Oct 20^th, 2007, 1:13am

on 10/19/07 at 08:19:41, phil_h wrote:

You give us chronics great hope.. also I wish you would pass on the magic..... Keep the updates coming...

I hope it's catchy Phil. I honestly never thought being chronic I could never turn episodic,but I guess there is hope for us all.And as for the updates I will keep them coming,I mean this the longest streak I have ever had without Histamine Desensitization.

Dave

Title: Re: 22 days
Post by MR_FLOOR on Oct 20^th, 2007, 1:21am

on 10/19/07 at 08:19:41, phil_h wrote:

You give us chronics great hope.. also I wish you would pass on the magic..... Keep the updates coming...

Title: Re: 22 days
Post by phil_h on Oct 20^th, 2007, 3:30am

[smiley=me&mb.gif] [smiley=jammin.gif] [smiley=biggrin.gif]

Title: Re: 22 days
Post by Wayne on Oct 20^th, 2007, 3:47am

Good stuff hey Dave, I'm on 31 days pf myself and starting to taper off the Verap, went from 480 to 400 the last 3 days and so far so good, just really scared of waking the bastard.

Title: Re: 22 days
Post by MR_FLOOR on Oct 21^st, 2007, 6:08am

I know what you mean Wayne it's like walking on egg shells.

Dave

Title: Re: 22 days
Post by phil_h on Oct 21^st, 2007, 8:16am

May you 2 continue walk as quietly as the fox. Shhhhh....... it's sleeping....... phil h

Title: Re: 22 days
Post by Wayne on Oct 21^st, 2007, 4:14pm

Thanks Phil, I'm slithering through the undergrowth here, but ready to run back up the Verap tree at the first sign of attack.
PFDAN Mate

Title: Re: 22 days
Post by aloneuk on Oct 21^st, 2007, 4:32pm

ok so now its time for both of you to fill us in on the secret !!

how the hell you doing it? lol

Title: Re: 22 days
Post by Wayne on Oct 21^st, 2007, 4:40pm

Verapamil, water, coffee by the bucket full and walking. :) i think I may be out of cycle but I thought so 6 weeks ago and got hammered for my troubles so I'm tapering really slowly this time.

Title: Re: 22 days
Post by MR_FLOOR on Oct 26^th, 2007, 9:03pm

on 10/21/07 at 16:32:03, aloneuk wrote:

ok so now its time for both of you to fill us in on the secret !!

how the hell you doing it? lol

Thats just it Phil I don't know what I'm doing rite. I can hardly
believe it 47 days now. ;;D ;;D ;;D ;;D

Dave

Title: Re: 22 days
Post by phil_h on Oct 27^th, 2007, 4:32am

[smiley=jammin.gif] [smiley=jammin.gif] [smiley=jammin.gif] [smiley=shore.gif] [smiley=shore.gif] [smiley=me&mb.gif] [smiley=me&mb.gif]

Title: Re: 22 days
Post by kcopelin on Oct 27^th, 2007, 8:00am

;;D carpe diem!

continued PFDAN y'all
kathy

Title: Re: 22 days
Post by Sandy_C on Oct 27^th, 2007, 4:14pm

Absolutely fantastic, Dave.

Keep it going!

Sandy

Title: Re: 22 days
Post by phil_h on Oct 28^th, 2007, 5:47am

Do you need an apprentice ? ::) phil h

Title: Re: 22 days
Post by MR_FLOOR on Oct 30^th, 2007, 12:23am

on 10/28/07 at 05:47:51, phil_h wrote:

Do you need an apprentice ? ::) phil h

Sure Phil.

I thought I mite have felt a shadow coming on but I slammed down a Red Bull and it went away,so I'm still saying 50 days ;;D

Dave

Title: Re: 22 days
Post by phil_h on Oct 30^th, 2007, 7:49am

WAY TO GO ! FIGURE OUT THE SECRET AND SHARE . 8) 8) 8) 8) YOUR FAN..... phil h

Title: Re: 22 days
Post by MR_FLOOR on Nov 4^th, 2007, 1:41am

60 days still going 2 days with no Verapamil.

Dave

Title: Re: 22 days
Post by Brewcrew on Nov 4^th, 2007, 8:34am

on 11/04/07 at 01:41:44, MR_FLOOR wrote:

60 days still going 2 days with no Verapamil.

I should have known better than to shake your hand when we met for dinner a couple of weeks ago. I think you handed it off to me. ;)

Title: Re: 22 days
Post by Annette on Nov 4^th, 2007, 9:36am

on 11/04/07 at 08:34:34, Brewcrew wrote:

I should have known better than to shake your hand when we met for dinner a couple of weeks ago. I think you handed it off to me. ;)

Well Bill, maybe we should arrange for you to go shake hands with our prime minister ..... ;;D

Title: Re: 22 days
Post by Brewcrew on Nov 4^th, 2007, 10:31am

on 11/04/07 at 09:36:33, Annette wrote:

Well Bill, maybe we should arrange for you to go shake hands with our prime minister ..... ;;D

I've shaken hands with a number of folks since that time, and none of them has taken it from me.

Apparently they don't have "the gift." ;)

Title: Re: 22 days
Post by phil_h on Nov 4^th, 2007, 10:55am

60+......... living the dream............ go go go phil h

Title: Re: 22 days
Post by JohnMcCloy on Nov 8^th, 2007, 10:01am

on 09/28/07 at 23:10:35, MR_FLOOR wrote:

That is great news.I was just telling my g/f yesterday the strength it must take to be a chronic sufferer.