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        Cluster Headache Help and Support >> Cluster Headache Specific >> Update on my neuro appt.
        
(Message started by: printspec on Sep 27^th, 2007, 9:45am)

Title: Update on my neuro appt.
Post by printspec on Sep 27^th, 2007, 9:45am

I think I really lucked out. Firstly, I got a neuro who had heard of CH and recognized my symptoms immediately. She said that she had dealt with several CH'ers at the VA hospital where she used to work.

I was given some samples of Zomig nasal spray, Imitrex nasal spray, and Imitrex tablets. I got scripts for all 3 and can pick what I want to have filled (or get them all filled).

I go every 6mths for follow-ups unless I need to go in earlier.

I'm so excited that I may finally get some relief when my next cycle hits!

Title: Re: Update on my neuro appt.
Post by Em_22 on Sep 27^th, 2007, 10:30am

That's great news!

Fingers crossed that one (or all 3) help to ease the symptoms.

Did she make any mention of o2?

Title: Re: Update on my neuro appt.
Post by printspec on Sep 27^th, 2007, 10:56am

on 09/27/07 at 10:30:48, Em_22 wrote:

That's great news!

Fingers crossed that one (or all 3) help to ease the symptoms.

Did she make any mention of o2?

Yes, she said she'd had some VA patients that responded well to O2 and it's something that I can try if I feel that I need to.

Title: Re: Update on my neuro appt.
Post by Emily on Sep 27^th, 2007, 11:38am

It's great that you've found someone with experience who'll let you try a variety of things to help.

Let us know if the meds help at all!

Em

Title: Re: Update on my neuro appt.
Post by sandie99 on Sep 27^th, 2007, 3:23pm

Sounds brilliant! I'm so happy for you. :) A good neuro is great aid in the battle against the beast.

PF days,
Sanna

Title: Re: Update on my neuro appt.
Post by Guiseppi on Sep 27^th, 2007, 3:30pm

Just a follow up on the oxygen!!!!

It continues to be my first line abortive. It will stop an attack in its tracks for me in as little as 6 minutes. But it has to be used correctly or it's next to useless. You need a "Non Rebreather" mask, with a high flow regulator that goes to at least 15 LPM. It's critical you breathe pure oxygen, with no outside air and you don't rebreathe any of the air you've exhaled. I hope it works as well for you, it's an awesome feeling to know you have a weapon that effective when he comes calling.

Guiseppi

PS: cut the elastic band off of the mask so if you fall asleep and the tank runs dry you don't suffocate!!!!!!