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        Cluster Headache Help and Support >> Cluster Headache Specific >> What a mess
        
(Message started by: Tom_Thumb on Sep 13^th, 2007, 10:06pm)

Title: What a mess
Post by Tom_Thumb on Sep 13^th, 2007, 10:06pm

I try to get on here and read a little or make a comment and here he comes again . I am starting to play out . I can not go anywhere or do anything without him showing up .You Know The BEAST. I live on a lake and injoy bass fishing but I can not go out at all right now damn it. I have had 8 attacks since 2am around 6 to 10 kip. I have not have much sleep in the past three weeks . I would like to get on here a lot more and get to know some of you guys . I like alot of thing that I have read . Bacth you sure know alot as it seems . Again alot of good comes with age . Not leaving no body out because all input is good input . Sorry for the cry baby stuff but I am here and will be when I can . As it goes for now I WILL SUCK THIS MASK TO MY FACE FOR A LITTLE LONGER . MAY GOD BLESS ALL OF US ...

Title: Re: What a mess
Post by phil_h on Sep 13^th, 2007, 11:19pm

Tom T , Sorry your being battered by the beast..... Hang in there..... o2,icepacks,water,coffee,redbull and hopefully you have abortive rx's.......1 hit at a time ! We all feel your pain...Wishing you pfdan's.... or at least a decreasing kip scale and frequency .... phil h

Title: Re: What a mess
Post by MJ on Sep 14^th, 2007, 1:19am

Tom T, I also know your pain like many others here and do understand where your at.

If you only have a little time without pain do go out and look at the water and feel the breeze. Its those times between the hits that give us the strength to fight again. Laugh at the beast and he will weaken.

Title: Re: What a mess
Post by phil_h on Sep 14^th, 2007, 7:24am

I wish you a pain free day and that you can follow the sound of the bass calling you to wet a line today........ phil h

Title: Re: What a mess
Post by George_J on Sep 14^th, 2007, 10:03am

Hi Tom,

All I can say, is throw the tank in the boat and go out anyway.

I know that high cycle can grind a person down flat...but going out on the water and hooking a good bucketmouth is the best way to spit in the beast's eye. You win, beast loses. You'll feel better.

Kowabunga.

Best,

George

Title: Re: What a mess
Post by Tom_Thumb on Sep 14^th, 2007, 11:40am

Thanks guys I think on the next hit 100 imitrex pill and o2 rid the beast and on the water I go for a hour or two .I just stay in close so I can make it home if needed . Ok for the beast is not enough I slept a couble of hours this morning only to wake up with a STY on my eye . Of course the same one that the beast is beating the hell out of . Wishing all of pf days .

Title: Re: What a mess
Post by NotH20 on Sep 14^th, 2007, 12:30pm

Hey Tom.....stay strong!

About your sty - don't think I'm being silly, but put Johnson & Johnson baby shampoo on your eyes and rub them. You probably have some debris trapped in and around your eyelashes. Got this info from the eye doc himself and it works. The last thing you need when brining in that BIG fish is having to look at him hanging there on a line with a swollen eye from a darn sty! ;)

Good luck with the fishing and keep your chin up with the CH....if you get lucky maybe you'll drown the beast while you're out on the lake! OH YEAH!!! :D

Mia

Title: Re: What a mess
Post by Ctech on Sep 14^th, 2007, 1:54pm

I feel your pain Tom!

I love bass fishing (or any fishing for that matter) but last year I would not even go outside when it was time for my cycle to start because I have this theory about air pollution and my CH (that’s another post). And guess what – I did not have any HA last year! But it did suck not being able to fishing though...

I will tell you what I did though that helped me – Fishing programs on TV: bass masters, Bill Dance etc... Yeah I know it’s not the same, but I did learn a lot though and it helps to keep your mind in the right place until the beast gives you a break. I have a TiVo so I can get every fishing show that comes on ;;D

I have been going outside some this year and now the beast is back, but not as bad though??? I have been up to maybe a Kip7 but nothing like it was the last cycle I had, of course I do have 02 this go round? My cycle started around the first of August this year which is fairly predictable for me (usually starts in June and ends around September) so I hope I will still be able to get some fishing in before winter if all goes well...

Hope you get back fishing soon!

Chris

Title: Re: What a mess
Post by Lotus on Sep 14^th, 2007, 5:01pm

Hello Tom Thumb

Sorry to hear you are struggling. Hope it wanes down soon for you.

Arent your preventive meds working? What are you on? Maybe a prednisone taper while things are a bit frantic?

Painfree wishes and vibes to you.

Annette

Title: Re: What a mess
Post by Tom_Thumb on Sep 14^th, 2007, 6:38pm

Thanks NOTH02 I have got that jonhson&jonhson now .Thanks to my wonderful girl . NOW I SEE HOW IT WORKS FOR ME . Hope it works better than the meds that i am on for ch . Thanks Again

Title: Re: What a mess
Post by NotH20 on Sep 14^th, 2007, 8:08pm

Keep me posted Tom......sure hope both the beast AND the sty are gone in no time! ;)

Mia