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        Cluster Headache Help and Support >> Cluster Headache Specific >> When To Give Up ... (RANT = UPDATED)
        
(Message started by: UN solved on Aug 28^th, 2007, 5:02pm)

Title: When To Give Up ... (RANT = UPDATED)
Post by UN solved on Aug 28^th, 2007, 5:02pm

I'm NOT one to simply give up. NO ... I WILL NOT GO QUIETLY !! So, how is it that the doctors can give up on treating the patient ? HELLO !! I"M STILL HERE AND IT STILL PHUCKING HURTS !!

I was told today ... and I quote ... " ... Tough it out ..."

.."...NO PLAN B.." ....Diamond Headache Clinic
.."...NO FURTHER SUGGESTIONS.." ....SO IN NEURO CARE
..."...SORRY..."

WTF ?? I ASKED FOR NON-NARCOTIC MEDICATIONS OF ANY KIND !! NO, I DON"T WANT YOUR VALIUM'S !! WHAT DO THEY MEAN ... "GET SOME SLEEP" ???

WTF JUST HAPPENED ?? I'LL TELL YA ... BOTH DOCS GAVE UP ON TRYING TO HELP ME !!

I still have a small supply of Trex left. As long as I can keep Trex in supply, it won't be total CHAOS . WARNING: When/if the Trex dries up .... The shit WILL hit the fan !

It seems like when it really gets tough - it's every man for himself !

GOODLUCK TO YOU !

UNSOLVED

Title: Re: When To Give Up ... (RANT)
Post by Ray on Aug 28^th, 2007, 5:31pm

Have you been offered Lidocaine to instill in your nostril? That is something the Diamond clinic did with me and it was sometimes helpful. Ask if Dr. Seymour Diamond can review your case and offer suggestions.

I suspect that without reported progress, your insurance company has decided to limit your stay.

Keep that chin up, and keep on plugging.

Wishing you the best and relief,

Ray

Title: Re: When To Give Up ... (RANT)
Post by UN solved on Aug 28^th, 2007, 5:53pm

on 08/28/07 at 17:31:17, Ray wrote:

Have you been offered Lidocaine to instill in your nostril?

Yes, I been there and done that. I also did their 'Cocaine' drops. It was a nightmare (literally) ... neither helped at all.

Thanks Ray :)

UNsolved

Title: Re: When To Give Up ... (RANT)
Post by Ray on Aug 28^th, 2007, 6:16pm

This is a crying shame.... :'(

I'm praying hard for you!

Ray

Title: Re: When To Give Up ... (RANT)
Post by LindsayLoo on Aug 28^th, 2007, 6:19pm

I can't offer any advice since I am so new to this but I can offer you my thoughts and prayers (I added your name to my prayer circle if thats ok with you, if not tell me.)

Also, can I PM you and ask you a question?

*Hugs*
Lindz

Title: Re: When To Give Up ... (RANT)
Post by Grandma_Sweet_Boy on Aug 28^th, 2007, 6:53pm

Good God! Mike you won't give up and neither should the medical people. That's just a bloody cop out on their part.

Hang in there.

Carol

Title: Re: When To Give Up ... (RANT)
Post by E-Double on Aug 28^th, 2007, 6:59pm

hang in there and check pm

Title: Re: When To Give Up ... (RANT)
Post by George_J on Aug 28^th, 2007, 7:04pm

World's full of doctors.

If this bunch is giving up on you, maybe it's time to see someone else. Not trying to be flippant, but what's the use of keeping on with them if they don't have a plan "B"?

As for telling a chronic clusterhead to "tough it out"..... [smiley=nono.gif]

MRA, Michael.

Best wishes,

George

Title: Re: When To Give Up ... (RANT)
Post by nani on Aug 28^th, 2007, 9:19pm

When to give up? NEVER.

hugs and prayers to you, Mike. :-* [smiley=hug.gif]

Title: Re: When To Give Up ... (RANT)
Post by Chillrmn1 on Aug 28^th, 2007, 9:58pm

Mike,

Really hate seeing you going thru this. :(

Vibes and prayers coming your way for relief.

Hang in the best you can, it has to start getting better for you soon.

Sincerely,

Bob

Title: Re: When To Give Up ... (RANT)
Post by starlight on Aug 28^th, 2007, 10:31pm

Why is Diamond Headache Clinic considered best in the country? Just wondering--what do they do their special?

Unsolved, it is far away from you, but you could try New England Regional Headache Center in Worcester, MA--they are considered one of the best.

Title: Re: When To Give Up ... (RANT)
Post by sandie99 on Aug 29^th, 2007, 2:03am

Mike,

Giving up is not allowed! ;;D
Keep on fighting, bro!

Shame on your docs, though... >:( They should raise to the occasion and not wash their hands off...

Lots of vibes & prayers,
Sanna

Title: Re: When To Give Up ... (RANT)
Post by headbanger45 on Aug 29^th, 2007, 11:37am

on 08/28/07 at 15:57:39, Karla wrote:

Ask for imitrix shots, nasal sprays, tablets, zomig nasal spray and tablets, frova, amerge, relpax, axert, and oxygen. You cant take any of these within 24 hours of eachother but you get the idea. Multiple perscriptions will get you through the month. That is what I do. Also I didn't see Melatonin mentioned. Many take it at bedtime to get a good night sleep with out any hits from the beast. Good luck!

I understand my brother - time to shift gears and doctor shop Karla makes a good point. Set up many and make sure every visit you get something different. Then stock pile. I had one @sshole doctor that wanted me to have nasal surgery for a deviated septrume (sp). Most of them (doctors) have heavy house notes, large $ hobbies, and several ex's. Do you really think they give a $hit about how you feel. Lie, cheat, beat the f-ing system. Your quality of life depends on you not those bastards. And Don't, I REPEAT - DON'T give up.
We'll beat this thing...

Title: Re: When To Give Up ... (RANT)
Post by BlueMeanie on Aug 29^th, 2007, 1:09pm

Sorry to hear that nothing is still helping. Check your pm's.

VIBES

Title: Re: When To Give Up ... (RANT)
Post by UN solved on Aug 29^th, 2007, 2:45pm

I'm headed to Chicago, back to Diamond. Arrive in Chicago @ 1:30.

I can't sit here and do nothing. I gotta at least 'throw the beast a curveball' ... so I called Diamond again ... and they will do something to try and help. We begin the fight tomorrow .. until then ....

LATER

UNsolved

PS. Taking the laptop, will try to stay in touch

Title: Re: When To Give Up ... (RANT = UPDATED)
Post by starlight on Aug 29^th, 2007, 6:55pm

Good luck! Let us now how things go, Star

Title: Re: When To Give Up ... (RANT = UPDATED)
Post by 2late on Aug 29^th, 2007, 7:00pm

fight the good fight my brother...best of luck to you,keep us posted.

Title: Re: When To Give Up ... (RANT = UPDATED)
Post by sandie99 on Aug 30^th, 2007, 3:56am

Lots of good luck!!! :)

Vibes for PF time,
Sanna

Title: Re: When To Give Up ... (RANT = UPDATED)
Post by DennisM1045 on Aug 30^th, 2007, 6:56am

Mike, Never give up, never give in. I'm glad to see you are still on the offensive. Good luck man.

(((((((VIBES)))))))

-Dennis-

Title: Re: When To Give Up ... (RANT = UPDATED)
Post by aloneuk on Aug 30^th, 2007, 11:11am

good luck mate

we're all rooting for you !

Title: Re: When To Give Up ... (RANT = UPDATED)
Post by Rosybabe on Aug 30^th, 2007, 2:30pm

Mike if you have a litle chance check this out...

http://es.youtube.com/watch?v=T2GVk-MuYgk

Never give up.....

Title: Re: When To Give Up ... (RANT = UPDATED)
Post by Sandy_C on Aug 30^th, 2007, 4:50pm

Mike, never EVER give up.

As I read through the thread, I was about to post GET A NEW DOC!. But, found you have already moved on to Diamond. This is good news.

This proves you haven't given up. And, for one, I'm happy.

Hang tough, hang on. We're all here for you.

Keep us posted.

Sandy

Title: Re: When To Give Up ... (RANT = UPDATED)
Post by Patrick_A on Aug 30^th, 2007, 5:34pm

Hey bro,
The only suggestion I got for you is to try completely detoxing urself. Other than that, I got nothing else to tell ya.

Good luck,
Pat

Title: Re: When To Give Up ... (RANT)
Post by crumpy on Sep 7^th, 2007, 1:23pm

on 08/29/07 at 11:37:27, headbanger45 wrote:

I have had nasal surgery for a deviated septume. It didn't help

Title: Re: When To Give Up ... (RANT = UPDATED)
Post by MJ on Sep 9^th, 2007, 12:42am

on 08/30/07 at 17:34:20, Patrick_A wrote:

Hey bro,
The only suggestion I got for you is to try completely detoxing urself. Other than that, I got nothing else to tell ya.

Good luck,
Pat

Agreed. Sometimes no medicine is the very best medicine.
It aint easy but its worth a shot. You have tried all the rest it seems. Whats the worst that can happen?

Edit to add: best advice I ever got was from chief of neurology at a major university. "theres nothing more that we can do for you" this after 20 some years of searching with trial and error, countless dollars spent and many many wise docs around the country. The ten years I chose to be med free was phsycologically better than any single day on medications and far easier dealing with the pain. Yet still there was pain.

Title: Re: When To Give Up ... (RANT = UPDATED)
Post by clusterwife on Sep 9^th, 2007, 9:14pm

We are praying for you!!!!
Leah.