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        Cluster Headache Help and Support >> Cluster Headache Specific >> I Need Doctor Advice, please....
        
(Message started by: clusterwife on Aug 28^th, 2007, 12:59pm)

Title: I Need Doctor Advice, please....
Post by clusterwife on Aug 28^th, 2007, 12:59pm

Kevin is finally going back to the doctor on Sept. 18, to see Dr. Cos in the Woodlands, Tx. He is relunctant, since everything else has failed him. Any and all advice would be greatly appreciated. Are there any new meds out there that might do him some good, like from the last 3 years? He was on so many, he tried surgery, to no avail. Please help!
Thanks so much! Leah.

Title: Re: I Need Doctor Advice, please....
Post by Bob_Johnson on Aug 28^th, 2007, 3:33pm

This is the most current thinking.

http://www.plainboard.com/ch/chtherapy.pdf

Here is a link to read and print and take to your doctor. It describes preventive, transitional, abortive and surgical treatments for CH. Written by one of the better headache docs in the U.S. (2002)
---------
I assume you are satisfied with this doc, that he has deep experience with headache. If not,

1. Search the OUCH site (button on left) for a list of recommended M.D.s.

2. Yellow Pages phone book: look for "Headache Clinics" in the M.D. section and look under "neurologist" where some docs will list speciality areas of practice.

3. Call your hospital/medical center. They often have an office to assist in finding a physician. You may have to ask for the social worker/patient advocate.

4. http://www.achenet.org On-line screen to find a physician.

5. http://www.headaches.org/consumer/index.html Call 1-800-643-5552; they will send a list of M.D.s for your state.I suggest using this source for several reasons: first, we have read several messages from people who, even seeing neurologists, are unhappy with the quality of care and ATTITUDES they have encountered; second, the clinical director of the Jefferson (Philadelphia) Headache Clinic said, in late 1999, that upwards of 40%+ of U.S. doctors have poor training in treating headache and/or hold attitudes about headache ("hysterical female disorder") which block them from sympathetic and effective work with the patient; third, it's necessary to find a doctor who has experience, skill, and a set of attitudes which give hope of success. This is the best method I know of to find such a physician.

Title: Re: I Need Doctor Advice, please....
Post by BarbaraD on Aug 29^th, 2007, 8:37am

Dr Hurt has a Pain Management Clinic now. Kevin might want to try him since he's familiar with Kevin's history. Hurt is familiar with CH. He might be Kevin's best bet. Just a thought. No more surgery, but I know Hurt is familiar with the treatments for CH and is knowledgable about the disease.

Let me know what happens. I know how skiddish Kevin is.

Hugs BD

Title: Re: I Need Doctor Advice, please....
Post by Bob P on Aug 29^th, 2007, 9:54am

Quote:

Dr Hurt has a Pain Management Clinic

LOL